TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘“Prisoner Without Bars: A Caregiver’s Story”’

SPEAK OUT! . . . . . . . . . . . . Itty-Bitty Giant Steps

SPEAK OUT! Itty-Bitty GIANT Steps

presented by

Donna O’Donnell Figurski

Itty-Bitty GIant Steps for BlogSPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at neelyf@aol.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

Here is this week’s Itty-Bitty GIANT Step

Otto Rodriguez (survivor) (submitted with permission by Otto’s sister, Sylvia Rodriguez Witt)…

Rodriguez, Otto Survivor 121115

Otto Rodriguez, Survivor

Otto sustained a diffuse axonal traumatic brain injury on February 28, 2015, due to an assault. Otto had to relearn to walk and talk, and he continues to learn independence. Before his injury, my brother was a marathon runner. Recently he and I completed a 5K together. Otto completed the 5K in an hour.

Rodriguez, Otto Survivor & sister Sylvia Witt

Otto Rodriguez, Survivor & sister, Sylvia Rodriguez Witt

I write this to offer hope to those in the early stages of this journey. Each day, my brother continues to heal. It is slow and requires patience. But with love, support, and patience, it is possible to loosen the grip of this awful beast, otherwise known as “TBI.” This holiday season, I am thankful for resilience, patience, and perseverance. Stay strong survivors!

YOU did it!

Congratulations to contributors!

(Clip Art compliments of Bing.)

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Survivors SPEAK OUT! Alisa Noah

 

Survivors SPEAK OUT! Alisa Ann Noah

presented

by

Donna O’Donnell Figurski

 

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1. What is your name? (last name optional)

Alisa aka “El Dorado”

2. Where do you live? (city and/or state and/or country) Email (optional)

North Carolina, USA

3. On what date did you have your brain injury? At what age?

February 2012

4. How did your brain injury occur?

My brain injury came from a motor vehicle accident. I wasn’t at fault. My truck was rear-ended at 50+ mph. Because my truck had no headrests, my head hit the back glass.

5. When did you (or someone) first realize you had a problem?

Immediately

6. What kind of emergency treatment, if any, did you have?

I was first treated in the Emergency Room. Scans and X-rays were taken. Later I had a neck brace, cervical epidurals, other cervical injections, and physical therapy.

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I did physical therapy.

How long were you in rehab?

Three months of 3 days a week

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have vision loss; migraines; balance issues; sleep problems; mood problems; memory loss; anxiety; and pain, pain, pain. Unexpected loud noises send me into a panic.

10. How has your life changed? Is it better? Is it worse?

My life got worse for about three years. I have recently started to make progress with happiness and finding new ways to keep busy.

11. What do you miss the most from your pre-brain-injury life?

I miss my career as a horse trainer, and I miss college.

12. What do you enjoy most in your post-brain-injury life?

Retirement (LOL)

13. What do you like least about your brain injury?

I dislike the pain and my physical limitations.

14. Has anything helped you to accept your brain injury?

Friends and new hobbies have helped me accept my brain injury.

15. Has your injury affected your home life and relationships and, if so, how?

Yes. People don’t understand my thought process or mood swings.

16. Has your social life been altered or changed and, if so, how?

Yes. I fear driving. I don’t engage in social activities much anymore.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My mother and my roommate are my main caregivers.

18. What are your plans? What do you expect/hope to be doing ten years from now?

Hmmm, I’m not sure. I take things one day at a time. 🙂

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Don’t let doctors just throw pills at you. After I had been told for almost three years that my condition is permanent, I recently learned that I can heal from it. Do your research. Some doctors are really no help.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

NEVER let your “disabilities” define who you are as a person! You are and always will be just as valuable and important as anyone else. Never let anyone tell you otherwise. Stay strong!

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

 

Survivors SPEAK OUT! Sandra Williams

Survivors SPEAK OUT! Sandra Williams

presented

by

Donna O’Donnell Figurski

12200687_895719387130278_18176772_n1. What is your name? (last name optional)

Sandra Williams

2. Where do you live? (city and/or state and/or country) Email (optional)

Athol, Idaho, USA

3. On what date did you have your brain injury? At what age?

My injury was on May 28th, 2012, at 10:00 am. I was 38.

4. How did your brain injury occur?

A drunk driver crossed the center lane as we were turning a corner in our Ford F250 Power Stroke. We were pulling a 26-foot travel trailer. There was a cliff on the other side of us. We should have gone over the cliff, but instead we crossed all lanes of traffic and ended up in a ditch. We should have jackknifed, but we didn’t. The truck that hit us also went through the length of our travel trailer. He ended up in the lane opposite to the one he was traveling in and facing in the opposite direction. We all should have died. The details of the accident are many. It sounds like a made-for-TV movie. We are all alive, but we’re not OK.

5. When did you (or someone) first realize you had a problem?

I first learned of my son’s brain injury when I took him to a neurologist. His primary care physician wanted a follow-up because my son was sleeping so much and his balance was off a bit. We made him rest all summer. When he went back to school, he went from an A-B student to one who got Ds and Fs. I was really focused on my son, but the neurologist diagnosed me too. The diagnosis shocked my primary care provider and me. I didn’t really believe her until I lost my job as a Special Education teacher.

6. What kind of emergency treatment, if any, did you have?

I lost consciousness. I was taken to the Emergency Room. I don’t remember babbling to the sky, but that is what my kids said. They told me this several weeks after the accident. They didn’t know I didn’t know. That’s when my husband knew something wasn’t right. But he thought I would get over it. We all rested that summer. I seemed to be doing well – no headaches, etc. – until I went back to work.

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I have been to two ten-day sessions of speech therapy, vestibular therapy, cognitive behavioral therapy, and exposure therapy. I also attended Carrick Brain Injury Center, a multidisciplinary brain rehab center.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I am still struggling to work. My memory is still affected to the point of frustration for my family members. I struggle with headaches, dizziness, and confusion when people speak to me. I have given up being a youth group-leader. I tried to go back to work, but, due to the fact that educational systems do not accommodate, I cannot work as a teacher – not even online. I really want to run and work out like I used to, but I don’t. That is the biggest change. I never used to drink coffee or alcohol. I don’t abuse either, but now I drink both. I never used to eat chips or anything unhealthy, but I eat those things now. I used to garden, but now I don’t. I do want to return to the way it was with those things, but it is hard while I’m keeping up with my kids and their needs since the accident.

10. How has your life changed? Is it better? Is it worse?

I think my life is worse, but can get better. It is worse because I can’t work in a job where I can get full-time benefits. My health care needs have increased, and my income has decreased. I am trying to help my husband start a new business in construction. He is being patient with me, but it is not easy. Our kids are different, and we really struggled with their behavior until we went to Carrick Brain Injury Center. We still struggle with one kiddo, but I think it is a grief process that he is going through.

11. What do you miss the most from your pre-brain-injury life?

I miss running. (I ran a half marathon and was training for a full marathon when we were hit.) I miss having the energy to do anything I wanted. I miss remembering everything. I miss being able to find a job whenever I wanted. (I have been working since I was eight. I started working for my dad and got my first out-of-family job at the age of fourteen. I paid for the first four years of college by working, and I sent myself to Europe – some people in my church helped me to play basketball internationally.)

12. What do you enjoy most in your post-brain-injury life?

Nothing really. I wish I could say something different. But, my life is so limited from what it once was, and I look so normal. People expect me “to do better,” “to not give up,” or “to stop making excuses.”

13. What do you like least about your brain injury?

I dislike that I cannot be independent and that people expect more from me than I can do. If a person had a broken leg, that person would receive accommodations until it healed. Accommodations are not given when one has an invisible traumatic brain injury (TBI). It doesn’t work that way. But I will not give up.

14. Has anything helped you to accept your brain injury?

I was actually helped by the fact that I can’t work no matter how hard I try. Working came easily to me, just like sports. Now, working and sports are the hardest things for me to do. I will keep trying though. I can’t do them now, but that doesn’t mean I won’t be able to do them forever. I won’t give up. I will do them someday.

15. Has your injury affected your home life and relationships and, if so, how?

Yes, immensely. My kids get really frustrated with me, and so does my husband. I used to be unorganized and forget things, but now it is ten times worse. I really have to rely on notebooks and repeat myself several times. That is what is so frustrating for my family. They also don’t understand my need for rest or my light-sensitivity to the TV. There are many things to list, but I will keep it short!

16. Has your social life been altered or changed and, if so, how?

I don’t visit with anyone anymore. I used to go to bible studies, but they scare me now. (I am afraid I will say the wrong thing.) I can’t go see my mom because I can’t drive that long at one time (it takes two days for me to get there), and it’s just too long to be gone. Plus, I have a huge family, which is hard to be around. My sisters don’t understand my brain injury. I just stay away. It’s better for all of us.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?12202566_895719670463583_794991146_n

Me. I am my own caregiver. My husband tries, but he is focused on the business. I submit insurance claims and speak to the doctors. I am even filing claims with Disability Rights of Idaho, so I know I can be organized and I can do something!

18. What are your plans? What do you expect/hope to be doing ten years from now?

I plan to be working in construction until I put myself through college again to finish my counseling degree and/or get a certification in TBI so I can educate teachers about it. There is the need for special education to have a different evaluation process. I also plan to use online settings to sell lessons that target students with TBI in the secondary school classroom.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

I wish I knew more about Disability Rights of Idaho and more about the complaint process for educators. (Parents are at such a loss!) The biggest tip I can give other survivors is not to listen to negative comments or to employers who tell you that you can’t do the job. Listen to your heart and your soul. Fight for yourself and others. It will keep you going.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Never, ever give up! If you can’t realize your dream one way, find another way to do it. It may take you longer, but do it. Henry Winkler (the Fonz) applied to sixty-eight different colleges before one accepted him. He was not diagnosed with dyslexia until his son was. He never gave up. We can’t either!

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

SPEAK OUT! . . . . . . . . . . . . . . . . . Faces of Brain Injury Melanie Goodman

SPEAK OUT! Faces of Brain Injury – Melanie Goodman

presented by

Donna O’Donnell Figurski

 Brain Injury is NOT Discriminating!

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It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

Melanie Goodman (survivor)

I had an AVM (arteriovenous malformation), a birth defect. No one knows he or she has one until it ruptures. Mine was about having weak veins where an artery was supposed to be. The weak veins were under constant high pressure. AVMThe AVM finally exploded at home one night. My love and best friend rushed me to the hospital, where they life-flighted me to Missoula, Montana. They said to let her die because she’s just going to be a vegetable for the rest of her life. My boyfriend fought them to get me to the best hospital on the West Coast, which was all the way in Seattle, Washington. Harborview Medical Center saved my life.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

SPEAK OUT! Guest Blogger … Randy Terry “How To Make Your Life Better”

How To Make Your Life Better

by

Randy Terry

presented by

Donna O’Donnell Figurski

Boy Blogger thSo many times I hear, “I want my life back!” I’ve said it myself and made myself miserable. Now six years post stroke, I see that I will never get my old life back. It’s impossible. But the trials of my stroke and my recovery have changed my life forever – and for the good.

I am a survivor, and the things I have learned about life will Randy Terry 2 102615not allow me to return to the old life. Sure, some of the things I loved to do are no longer possible, but I have adapted to change. It wasn’t easy, but I really had no choice.

For the first few years, I played the “pity game.” I was mad at the world. I lamented, “Why me?” One day, I found that I was tired of this game. I thought that there has to be a better life after stroke. I put the wheelchair in a corner and picked up my walker. I started the hard work. Soon I was on the cane doing the same thing. It is by no means easy. Not only was I walking, but I also felt proud. That’s why you hear me say, “Stand tall and proud!”

Do not waste your time in that “pity place.” It’s very lonely there, Randy Terryand there is nothing to gain but misery. The ability to change your life is not a secret hidden from you. Instead, it’s about working to get what you want out of life.

I’m not smarter than you. You just have to get that brain thinking right, and get up and get it done. It takes time to heal, but time is on your side. You have plenty of it. Don’t think it’s all got to come at once. Work slowly and steadily. It will come.

Thank you, Randy Terry.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Randy Terry.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

Another Fork in the Road . . . . . . NFL Player, Kyle Turley, Brain Injury, Football, and Music

YOU ARE INVITED!

NFL Player, Kyle Turley, Brain Injury, Football, and Music

with host Donna O’Donnell Figurski

putthis_on_calendar_clip_artKyle Turley, former football player for the New Orleans Saints, the Saint Louis Rams, and the Kansas City Chiefs, will join me to discuss life after football while living with brain injury. As an offensive tackle, Kyle has had more than his share of concussions – leading to seizures and various Kyle-Turleybrain-injury complications, which have adversely affected his life. Kyle is picking up the pieces and assembling his life-puzzle by speaking out about brain injury. He does this through his music, The Kyle Turley Band, and his recent documentary, “The United States of Football.”12821083-standard

You can hear one of Kyle’s songs here. “Fortune and Pain.” It’s powerful!

Come One! Come ALL! 

What:        NFL Player, Kyle Turley, Brain Injury, Football, and Music

Why:        Kyle Turley SPEAKS OUT! about how brain injury affects his life.

Where:     Click: Brain Injury Radio Network

When:       Sunday, October 18th, 2015

Time:         5:30p PT (6:30p MT, 7:30p CT, and 8:30p ET) 80 minute show

How:         Click: Brain Injury Radio Network

Call In:    424-243-9540

Call In:     855-473-3711 toll free in USA

Call In:    202-559-7907 free outside USA

or SKYPE

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening. The archived show will be available after the show both on the Brain Injury Radio Network site and on my blog in “On the Air” Show Menu.

(Clip Art compliments of Bing.)

Another Fork in the Road: Depression, Suicidal Thoughts, & Brain Injury

Fork in the Road copy

“Another Fork in the Road”

This category is an extension of my radio show, “Another Fork in the Road,” which airs at 5:30 pm (Pacific Time) on the 1st and 3rd Sundays of each month on the Brain Injury Radio Network. (See the “On The Air Show Menu” category for a list – with links – of all my shows, which are archived and thus always available.)

On the 1st Sunday of each month, I host a panel of brain injury survivors, caregivers, and/or professionals in the field. On these shows, my panelists and I examine topics pertaining to brain injury.

On the 3rd Sunday of each month, I host guests – brain-injury survivors, caregivers, or professionals in the field.

Since I spend countless hours in preparation for each show, I decided to share the knowledge that I gather with my readers.

Another Fork in the Road

Depression, Suicidal Thoughts, & Brain Injury

by

Donna O’Donnell Figurski

canstock16714646Depression is a state of mind that can cause long-term mental mood disorders. Everyone experiences sadness and unhappiness at times. That’s normal. Those feelings happen when something sad enters people’s lives or they experience grave disappointments. Normal life-events, like a pet dying, being passed over for a promotion, going through a divorce, or experiencing money problems, can trigger feelings of sadness. Usually with time, those feelings pass, and people move on.

But when there are unrelenting feelings of despair, usually coupled to at least one of the many telltale signs and symptoms of depression, then drastic measures need to be taken. Depression is devastating and can affect every aspect of daily living. Depression is pure agony resulting from desperation and the need to escape. It is constant; there is no relief. Unlike sadness or unhappiness, depression settles in to stay. It can last weeks, months, or even years. If not treated, depression can be deadly. But if a person seeks treatment, there are ways to diminish, and possibly even cure, depression.

I have never been diagnosed with clinical depression. Technically, I have never been depressed. But I have occasionally complained that I am “depressed” – using that word. I think everybody does. It’s a term we throw around too easily. When I’m feeling blue or down, I might say, “I’m depressed.” But I’m only experiencing a feeling of unrest or unhappiness for a short time. I have learned that there are ways for me to alleviate these uncomfortable and unwanted feelings with a few easy activities. I find if I remove myself from the environment that I am in, I can change my emotions. For example, if I am home when these feelings overwhelm me, I often will go to the store or run errands. Sometimes I will turn on uplifting music or talk to a friend. Exercise can usually jar me out of my doldrums. While I can change my mood when I’m sad, a truly depressed person can do so only with great difficulty.

Depressed GirlSome signs and symptoms of depression are very intense feelings of unhappiness, anxiety, worthlessness, helplessness, lack of self-esteem, and/or lack of self-confidence. Depression can seriously impact sleep and eating habits. It can lead to a significant loss of energy, focus, or attention. A prolonged feeling of panic is also a sign of depression. A lack of interest in taking care of health needs may be indicative of depression. A person may start to withdraw from his or her family or friends or from the things he or she once enjoyed – essentially quitting the world. Defying fate (for example, doing things that are risky or death-defying, such as swimming too far out into the ocean or walking too close to the edge of a cliff) is a relatively obvious symptom, but what about overeating,Depressed Man overuse of alcohol, or drug use? If a person is talking about suicide or is making statements, such as “Everyone would be better off, if I weren’t here,” “I can’t take this anymore,” or even more blatantly, “I wish I were dead,” that person may be sending up a red flag. It may be the person’s way of begging for help.

Depression is not discriminating. It can happen to anyone. Actress Winona Ryder, Princess Diana, former Pittsburgh Steelers quarterback and four-time Super Bowl winner, Terry Bradshaw, and Barbara Bush, wife of a former United States President all suffered from depression. And the list goes on and on. Sometimes, people hide their depression, as with actor and comedian Robin Williams. I think we were all broadsided when Robin committed suicide in August 2014. Though Robin’s close friends saw signs of his depression, the rest of the world saw only a very accomplished actor who always had a smile on his face. His great acting skills spilled over into his personal life, and his greatest role was “the great deceiver.” I can’t imagine the pain his smile must have been covering up. Robin sought help and willingly admitted himself to treatment centers, but unfortunately that was not his salvation.th

Former San Diego Chargers linebacker and Hall of Fame member, Junior Seau, was deeply affected by depression after years of collisions with other players. Years of playing football ultimately damaged Seau’s brain and led to his suicide in 2012. Chronic traumatic encephalopathy (CTE) was the unequivocal diagnosis by the National Visger, GeorgeInstitutes of Health (NIH) from the study of Seau’s brain. Former San Francisco 49er, George Visger, lives daily with the complications of brain injury. (You can hear George’s story on my August 16, 2015 show. You can also read more about George on this blog.) Another former football player, Kyle Turley, who played for the New Orleans Saints, the St. Louis Rams, and the Kansas City Chiefs is Kyle Turleysuffering the ravages of brain injury and depression. (Kyle will be a guest on my show on October 18, 2015. He will discuss his life with brain injury and how he is redefining his new world.)

Depression is not an unfamiliar state for those who live with brain injury. And it’s not surprising. Brain injury turns lives completely upside down. Usually it’s difficult, sometimes impossible, for survivors to realize the extent of the damage done to their brains. Many times they are not the same person they were before the injury, and they have to face their limitations – cognitive, behavioral, emotional, and/or physical. Thinking back on a pre-brain-injury life and being aware of what was stripped away can easily lead someone to depression – and even to suicidal thoughts.

One way to help deal with depression after brain injury is to accept the “new” person who a brain-injured person has become. I have noticed in the Survivor SPEAK OUT! interviews on this blog that many survivors have stated that, once they accept their “new” persona, they have found more happiness. That isn’t to say that everything is okay. That isn’t to say that the brain-injured persons have given up. It’s just that the survivors have become more accepting of the persons they have become, and they will take those new persons to the limit.

With her permission, I want to share the story of a friend of mine who used an additional method to help with her depression. Cat Brubaker was enjoying life as a young woman. She had completed college, and she was working in a position that she enjoyed. Then she became the victim of two brain injuries. These injuries left Cat feeling helpless and hopeless. With Cat confined to her home, the walls closed in on her, and she felt desperate. Cat’s loss of independence, the decline of her longtime relationships, and finally the death of her mother were too much, and she fell deeply into depression. She eventually entertained thoughts of suicide. But Cat found a way out of her trapped box when she discovered the joys of her recumbent cat-triketrike and met a new friend, Dan Zimmerman, a stroke survivor and also a recumbent trike rider. Cat and Dan set off last summer to cross the USA on their trikes. They rode their trikes from Anacortes, Washington, diagonally across the country to Key West, Florida – a trip that took them five months and was 5,400 miles. I’m not saying that everyone needs to get a trike and travel across the country, but I am pointing out that perhaps finding a new purpose in life can help shove depression into the background. The recumbent trike was the answer for Cat. Zimmerman, Dan Survivor 071015Riding her recumbent trike is something that Cat thoroughly enjoys and relies on for her mental health. Cat has made many new friends by riding her trike. She has even created a foundation, called “Hope for Trauma,” to help other brain-injury survivors. Cat’s story shows that, though people may feel the total helplessness and hopelessness that accompanies depression, it is sometimes possible to find a way to redirect their lives to find happiness.

There are other methods that may help alleviate the feelings of depression. Art Therapy also helps some folks connect with their inner selves. It usually also requires complete concentration, which can take the focus off the unwanted depressive feelings. Animal Therapy guarantees that one is never alone. Pets usually provide unconditional love, which a person suffering from depression could certainly use.

Technically depression is a chemical imbalance in the brain. It is not easy to turn off. So what can be done about depression? Two different types of health-care workers can help immensely: psychologists and psychiatrists.

PsychologistBoth psychologists and psychiatrists use psychotherapy, often referred to as “talk therapy” or “counseling.” Psychotherapy helps patients with mental health issues sort through their feelings, moods, and emotions. Through talk, a mental-health-care provider can guide or retrain a person’s mind to approach existing problems differently. The brain can actually change physically by talking about a problem. Psychotherapy can be effective with many different types of mental-health challenges, including anxiety, personality or mood disorders, problems with eating or sleeping, and various addictions. It can also address coping with life-altering situations, such as the ones that many brain-injury survivors live with daily. Realizing that they are not the persons they were before their brain injury is a major problem for many survivors. Not being able to return to the former life-style and having to redefine oneself can be devastating to a person who survives a brain injury. Often a brain-injured person wonders why he or she was saved. These kinds of thoughts can easily lead to depression.

Psychotherapy does not use medication. Both a psychologist (usually a Ph.D.) and a psychiatrist (an M.D.) use psychotherapy. A psychiatrist has been trained in the biology of the body and in neurochemistry, while psychologists focus more on the behavioral aspects of the person. Some patients may need stronger medical Doctor Womanassistance. Because a psychiatrist is a medical doctor, he or she can prescribe medication. Medications are getting better. The best ones are more targeted and thus have fewer side effects.

Research is very active and is greatly advancing our knowledge of depression. A recent NewsBit on this blog (“Depression Reversed in Mice”) reported that basic research has resulted in the curing of depression in mice. Memories are tagged with positive or negative feelings. Scientists have been able to activate specific neurons to induce a memory with its associated positive feeling to overcome depression. It will probably be a couple of decades before this kind of therapy will be ready for humans.

If you want to learn more about depression, the Internet is a marvelous tool for gathering information. There are countless sites, many very reputable, that examine this topic. Simply Google “brain injury” and “depression.” I can guarantee you will learn more than you could imagine.

Of course, if you or someone you know needs immediate help, don’t waste time on the web. Call 9-1-1 immediately.

There are also many depression and suicide hotlines. Here I name a few in the US that I found on the web. I really do not know anything about them, so I cannot endorse them. But I suggest that, if you have concerns about depression or suicide, you look into them in advance of any crisis.

Hotline-ICON-XS_optiHotlines

National Suicide Prevention Lifeline
800-273-8255
(suggested by the Mayo Clinic)

The Samaritans 24-Hour Crisis Hotline
212-673-3000

Crisis Call Center
775-784-8090

Most states in the US have mental health hotlines. Here is a site that has links to most state hotlines.

Suicide Hotlines

Depression is a common affliction of brain-injured survivors. It needs to be recognized as a serious and devastating illness, not as something one can “work through” himself or herself. The good news is that help is available. If you are suffering from depression or if you know someone showing signs of depression, I urge you to use it.

Listen to the October 4th show on depression.

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SPEAK OUT! Guest Blogger … David Lloyd “What I Gained From My Brain Injury”

What I Gained From My Brain Injury

by

David Lloyd

presented by

Donna O’Donnell Figurski

Boy Blogger thI used to be an intolerant perfectionist before my accident. I did not even realize the extent to which I looked down on others, how prideful I was, and how I put others down without any thought, until an event out of my control took away my ability to meet my own standards.

I had fooled myself into believing I was better than I was. Now I see others with a much humbler and more forgiving attitude. I am much more compassionate and a lot less full of myself.

My change in attitude probably saved my relationships with my David Lloydchildren, whom I had been pushing away by demanding unrealistic standards from them with what were my goals and not theirs. Now I am much more impressed with their strengths and more understanding, and even accepting, of those areas that seemed important to me, but never motivated them. There is a sense that my disability has removed blinders that kept me from seeing the value of letting my children have interests that are different than my own.

Those are good qualities that I intend to hold onto, regardless of how much I recover eventually.

Thank you, David Lloyd.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of David Lloyd)

A11998344_873343152701235_1064470731_ns I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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On The Air: Brain Injury Radio “Another Fork in the Road” “Depression and Suicidal Thoughts”

On The Air: Brain Injury Radio “Another Fork in the Road” 

with

Panelists: Survivor, Melissa Cronin and Survivor Troop, Juliet Madsen

Topic: Depression and Suicidal Thoughts

presented

by

Donna O’Donnell Figurski

Depression is a state of mind that can cause mental mood disorders. It is devastating and can affect every aspect of daily living. It can affect people in so many different ways and it is pure agony resulting from desperation and the need to escape. Depression is not an unfamiliar state for those who live with brain injury.

Juliet Madsen and Melissa Cronin, both survivors of brain injury, join me to discuss depression and suicide – two common, yet serious, repercussions of brain injury.

Melissa Cronin Head Shot 2When a car went rogue careening through 2 1/2 blocks of the Santa Monica, California Farmer’s Market it left Melissa Cronin with not only broken bones and a ruptured spleen, but also with a Traumatic Brain Injury. Melissa is the author of “Invisible Bruise” and “Silencing the Boom.” Both stories are published in “Chicken Soup for the Soul” books.

Juliet Madsen Uniform

Troop, Juliet Madsen, got her brain injury while serving her country in Iraq. Juliet is a member of the Board of Directors of R4 Alliance and is a master quilter. You can see some of her work at “Stroke of Luck Quilting.”

If you missed this show on “Another Fork in the Road” on October 4th, 2015, don’t fret. You can listen to the archived show here. Click the link below.

See you “On the Air!”

On The Air: Brain Injury Radio “Another Fork in the Road” Depression and Suicidal Thoughts with panelists, Survivor, Melissa Cronin and Survivor Troop, Juliet Madsen

Sources I used for this show:

  1. Everyday Health – 8 Unconventional Ways to Ease Depression

http://www.everydayhealth.com/depression-pictures/unconventional-ways-to-ease-depression.aspx

  1. Health – 7 Types of Therapy That Can Help Depression

http://www.health.com/health/gallery/0,,20310354,00.html

  1. Mayo Clinic – Psychotherapy

http://www.mayoclinic.org/tests-procedures/psychotherapy/basics/definition/prc-20013335

  1. Mental Health Foundation – Depression

http://www.mentalhealth.org.uk/help-information/mental-health-a-z/D/depression/

  1. The Guardian – Robin Williams, depression and the complex causes of suicide

http://www.theguardian.com/science/blog/2014/aug/18/robin-williams-depression-causes-suicide

  1. WebMD – Psychologist or Psychiatrist: Which Is Right for You?

http://www.webmd.com/mental-health/features/psychologist-or-psychiatrist-which-for-you

  1. WebMD – Symptoms of Depression

http://www.webmd.com/depression/guide/detecting-depression

Hotlines:

If you or someone you know needs immediate help, don’t waste time on the web, call 9-1-1 immediately.

There are many depression and suicide hotlines. Here are some I located. I am NOT endorsing them, but if you have concerns about depression or suicide, I might want to look into them in advance of any crisis.

 

  1. National Suicide Prevention Lifeline (1-800-273-8255) Suggested by the Mayo Clinic

http://www.suicidepreventionlifeline.org/

  1. Samaritans 24-Hour Crisis Hotline (212) 673-3000

http://samaritansnyc.org/24-hour-crisis-hotline/

  1. 24/7 Crisis Support 775-784-8090  

http://crisiscallcenter.org/crisisservices.html

  1. Most states have mental health hotlines. Here is a site that has links to most states.

Suicide Hotlines

http://www.suicide.org/suicide-hotlines.html

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As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

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If you don’t like my blog, “Share” it with your enemies. I don’t care!

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SPEAK OUT! . . . . . . . . . . . . . . . . . Guest Blogger: Miki Mashburn-Bailey “Awareness: TBI Survivor Advocate”

Awareness: TBI Survivor Advocate

by

Miki Mashburn-Bailey

presented by

Donna O’Donnell Figurski

Girl Blogger cartoon_picture_of_girl_writingIt has been twenty years since my husband’s traumatic brain injury (TBI). Unawareness has been our enemy and hurt us tremendously. Awareness has found its place in our home just this past year, and it has brought along with it forgiveness, acceptance, and understanding.

Awareness has turned our life around. And, everyone who suffers from a TBI deserves to understand this life he or she lives. So obviously, awareness is important to me. It has become my passion. I ask you to help me prevent further damage by making the world aware. Your response could save a life – a marriage – a family.Miki Mashburn-Bailey 1

My husband was hit in the head by a brake drum that had flown off an eighteen-wheeler. The brake drum was traveling at highway speed. It wasn’t actually a “car accident,” but it was an unnecessary and unfortunate accident. (It’s for a reason such as this that you can receive a ticket for “failure to maintain your vehicle.”) My husband’s car veered to the left. The barrier between the highway lanes slowed him to a stop, as he was combative and lost all control of his being. An ambulance just happened to be driving by soon after, and the EMS (Emergency Medical Services) team just happened to look down into my husband’s vehicle. They saw him and took immediate action.

I am thankful for this EMS team because they helped save my husband’s life. They responded quickly and effectively, and my husband was rushed to the nearest trauma center. The team there responded quickly, and the surgeon was able to do what was necessary to prevent further damage. This man and the trauma center team saved my husband’s life. I am forever grateful to them. They did their jobs, and they did them well. Had the EMS team not responded in the manner they did, it would’ve made the trauma center’s job more difficult.

Miki Mashburn-Bailey and Jay Bailey 3My husband survived an incident he should not have. He improved much sooner than expected. He recovered miraculously and was discharged earlier than expected. I am thankful to everyone. They did their jobs well.
 HOWEVER, there was still a job that was necessary. There was still work to do. There was still much-needed therapy. There was still much-needed counseling.
 A life was saved, but it was forever changed, and no one was there to help make sense of it. No one was there to guide my husband and me to the next step. No one was there to warn of the subtle changes that have huge impacts. No one was there to enlighten and give insight as to what to expect next. 
EMS did a great job and sent us on to the next step – the trauma center. The trauma center did a great job and sent my husband on into surgery. The surgeon did a great job.

But, the only place left to pass my husband on to was home. “No more treatment necessary” written on discharge papers means “There is no more left for us to do on our end,” but, to the sufferer of a TBI, it reads as, “You’re fine. You will heal right up!”
 My husband and I go home. We expect things to be different. We adjust. We assume time is all that’s needed. Time marches on, and things don’t improve, or we begin to notice this and that here and there. By the time we recognize things aren’t healing cognitively as well as they are physically, we go to a doctor confused and try to communicate our concerns. My husband is brushed off because he “looks fine.”

Trauma centers need to have a “TBI Survivor Advocate” to hold the survivor’s hand into the next step of the TBI journey – not to hand out written material that will be lost in all of the other paperwork given at discharge. TBI Survivor Advocates would sit down with survivors and their families and/or friends and help them understand that, while EMS and the hospital saved the survivors’ lives, there are others who will help survivors LIVE their lives. TBI Survivor Advocates could direct and guide survivors to find therapists and counseling that will help transition and adjustment to their “new normal.” 
A disservice was done to my husband – to his future, to the company he worked for, to our relationship, and to our family.
 We were denied effective help and expected to carry on, due to my husband’s “miraculous” physical healing. Because of that, the cognitive damage that affected his being never got the attention or therapy it desperately needed.

Awareness of the reality of TBI as often being an invisible disability is vital in the health of the world we all live in. TBI is a thief in the night and has no prejudice. It can happen to anyone of any status. Please help me make others aware. Miki Mashburn-Bailey 4We can be that hand that guides others to their next steps in their journeys. The world we live in is full of those who have influence. A difference CAN be made in the way a brain-injured individual adjusts to his or her new life. All it takes is ONE person to make a difference. The more we help one another, the better our world becomes.

Thank you, Miki Mashburn-Bailey.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Miki Mashburn Bailey)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

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If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

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