TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘caregiver’

COVID-19: Dr. Fauci: Don’t Worry – Santa Claus – Immune to COVID-19

COVID-19: Dr. Fauci: Don’t Worry – Santa Claus – Immune to COVID-19
by
Columbia University Professor Emeritus, Dr. David Figurski
presented by
Donna O’Donnell Figurski

 

(Disclaimer: The World Health Organization <WHO> has officially named the new coronavirus as SARS-CoV-2 and the disease it causes as COVID-19. Because the majority of people, including much of the press, commonly refer to the virus as “COVID-19,” to avoid confusion, I use COVID-19 as the name of the virus in this post.)

David H. Figurski, Ph.D & Survivor of Brain Injury

     Children and parents don’t have to worry that the pandemic will ruin Christmas.

 Dr. Anthony Fauci, a member of the President’s Coronavirus Task Force and Director of the National Institute of Allergy and Infectious Diseases, has stated (video) that Santa has excellent innate immunity. (Innate immunity is the body’s first line of defense against viruses. Specific neutralizing antibodies develop a couple of days later.)

 Santa’s immunity is so good that he can’t get infected by COVID-19 and, consequently, he can’t spread the virus. In fact, he doesn’t need a vaccine. All the elves and Mrs. Claus are staying safe by wearing masks and practicing social distancing. It also turns out that the cells of Santa’s reindeer don’t make the receptor for the virus, so the reindeer can’t be infected.santa-2

 

For those who are concerned about receiving gifts on Christmas morning, the good news is that Santa and his reindeer will make their usual Christmas eve worldwide trip.

To track Santa’s trip around the world on December 24th, 2020, go to Norad Tracks Santa.

Have a safe and healthy Merry Christmas

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

 

Prisoners without Bars: A Caregiver’s Tale

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Caregivers SPEAK OUT! . . . . Roxanne Greene

Caregivers SPEAK OUT! Roxanne Greene

presented by

Donna O’Donnell Figurski

Roxanne Greene – Caregiver for a survivor of brain injury

1. What is your name? (last name optional)

Roxanne Greene

  1. Where do you live? (city and/or state and/or country) Email? (optional)

Wichita, Kansas, USA

  1. What is the brain-injury survivor’s relationship to you? How old was the survivor when he/she had the brain injury? What caused your survivor’s brain injury?

My husband was 35 years old when he developed sepsis due to an unknown infection. While he was at the hospital for that, the doctors discovered the presence of three frontal lobe brain tumors. My husband’s brain lost oxygen as they were trying to save my husband’s life. He also had a secondary brain injury – brain swelling – after brain surgery.

  1. On what date did you begin care for your brain-injury survivor? Were you the main caregiver? Are you now? How old were you when you began care?

I began as my husband’s caregiver on February 13 2007 – the day I took him to the Emergency Room. I was his main caregiver then, and I still am now. I was 38 years old at the beginning of this journey – 12 years ago.

  1. Were you caring for anyone else at that time (e.g., children, parents, etc.)

My husband and I had four young children – ages 3-12 at the time.

  1. Were you employed at the time of your survivor’s brain injury? If so, were you able to continue working?

I was not employed at the time. I was a stay-at-home mom.

  1. Did you have any help? If so, what kind and for how long?

I was very blessed to have a lot of support. My husband’s parents were able to help, and I had other friends and family that came alongside me – helping with the children, meals, or house, etc.

  1. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

The support began the minute we arrived at the hospital. Our pastors met us there shortly after we arrived. During my husband’s entire hospital stay and even through rehab, I always had someone with me.

  1. Was your survivor in a coma? If so, what did you do during that time?

Yes. My husband was in a coma about 5-6 weeks. He woke up very slowly and had to learn everything all over again. It was a very challenging time for the both of us. I was there as his cheerleader – cheering him on. It was hard to have a balance between caring for my husband and taking care of the children. I was very overwhelmed at times, but again, family support was crucial to my husband’s success.

  1. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? How long was the rehab? Where were you when your survivor was getting therapy?

Yes. My husband had inpatient rehab for about a month, and then he transitioned to in-home rehabilitation, where the therapist would come into the home to do therapy. My husband had physical, occupational, and speech therapies and even counseling. He was in intensive therapy for about a year, and he had outpatient cognitive therapy off and on for another year?

11. What problems or disabilities of your brain-injury survivor required your care, if any?

My husband’s brain injury caused him to become aggravated easily. He has had memory problems and also issues with communication. I had to watch him when he was around the children in the beginning. He was totally dependent on me for everything. I was like a single mother – I paid the bills, and I took care of the house, cars, etc.

  1. How has your life changed since you became a caregiver? Is it better? Is it worse?

My life has changed drastically. My husband and I both say our new marriage started February 13th, 2007. He was then, and is now, a different person. We had to figure out how to be married again to each other as new people. It has been good because our love is stronger than before. It has also been very difficult because this is not what I pictured for my future. I have moments of self-pity and sometimes wish it could be the way it was. Those moments are fleeting, and I know I have so much to look forward to.

  1. What do you miss the most from pre-brain-injury life?

I miss my husband’s going to work every day. I miss his doing projects around the house. I miss his being able to be the protector and the provider that he once was. I miss being a stay-at-home mom and spending one-on-one time with the children (even though most are grown now).

  1. What do you enjoy most in post-brain-injury life?

My husband and I get to spend more time together. My husband is more loving than before. Before injury, he worked a lot and was not home as often.

  1. What do you like least about brain injury?

I miss having more financial freedom. I sometimes don’t like having to do everything, including all the paperwork that goes into maintaining a home. I have to organize all of my husband’s doctor appointments, medications, and dealings with SSDI (Social Security disability insurance). It can get so overwhelming sometimes that I just want to cry.

  1. Has anything helped you to accept your survivor’s brain injury?

Accepting the reality of my husband’s condition has helped. It is what it is. There is nothing I can do to change what happened to my husband. I decided I can either wallow in self-pity or pick up my feet and move forward. I have also read many books on brain injuries and educated myself through this journey. The one thing I wish for is a brain injury support group for caregivers. I know I am not alone.

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

Yes. I have become the main parent and disciplinarian, as my husband cannot parent without getting overwhelmed and angry. He has improved, but the children, even as adults, come to me for advice.

  1. Has your social life been altered or changed and, if so, how?

We both had close friends before my husband’s brain injury. We would go out and socialize and have people over often. Now we still have friends, but we rarely have anyone over to our house. We go out with family once in a while, and my husband has a few friends that will invite him to lunch once a month. It sometimes happens that my husband will not make the most appropriate comment.

  1. What are your plans? What do you expect/hope to be doing ten years from now?

I am a grandparent now, which brings a new set of challenges. My plans are to continue my education. I am in school to become an ASL (American Sign Language) interpreter for the deaf. I had to go back to work to increase our income just so we could pay the bills. I would love to travel some, but I am not sure if that will ever become a reality, as I have to work full-time.

  1. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add?

Roxanne Greene – Caregiver

Even though your life has changed, remember you are stronger than you realize. I look back and think of how much I have accomplished and learned about myself during this time. I am not sure I would have gone back to school if my husband had not become ill. Caregivers have been giving a gift that most people never get to experience. We get to see miracles every day as our loved ones fight to improve their lives. It’s a humbling thing to be a part of such a journey.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

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As I say after each post: Please leave a comment by clicking the blue words “Leave a Comment” below this post.

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If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

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Prisoners without Bars: A Caregiver’s Tale

You can find Prisoners without Bars: A Caregiver’s Tale where most books are sold.

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WriteLife Publishing

Surviviors SPEAK OUT! . . . . . Craig J. Phillips . . . . . Survivor of Brain Injury

Survivors SPEAK OUT! Craig J. Phillips

presented by

Donna O’Donnell Figurski

Craig J. Phillips
Survivor of Brain Injury

1. What is your name? (last name optional)

Craig J, Phillips

2. Where do you live? (city and/or state and/or country) Email (optional)

Charlotte, North Carolina, USA

My email is secondchancetolive1@yahoo.com.

3. On what date did you have your brain injury? At what age?

August 11, 1967 at age 10

4. How did your brain injury occur?

Motor vehicle accident – We were in a Volkswagen Beetle that was hit by a woman driving a Cadillac. She lost control of her car, ran off the side of the road, hit a pole, came across her two lanes and a grass medium, and hit our car in the passing lane. I went up over my Dad’s bucket seat and hit the windshield, fracturing my left femur.

5. When did you (or someone) first realize you had a problem?

My father, who was driving.

6. What kind of emergency treatment, if any, did you have?

Hospitalization – I was not expected to live the night of the accident.  I was put into traction to set my femur. I was then placed into a full body – or Spica – cast for 5-6 months. With obvious external wounds, an invisible traumatic brain injury was not considered.

7. Were you in a coma? If so, how long?

Yes. I remained in a coma for three weeks.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

In 1967, there was nothing in the way of brain injury rehabilitation. Once my external wounds healed, I was on my own to navigate life with the impact of right frontal lobe damage and a severe brain bruise. I attended two physical therapy appointments, but was then on my own to teach myself how to walk.

For details, see my article:

Finding Craig — Learning to Walk Again by Not Giving Up (Part 3)

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I underwent two EEGs (electroencephalograms – given to detect electrical activity in the brain) and a battery of cognitive and psychosocial tests. The results showed that I probably would not succeed academically beyond high school. That conclusion was shared with my parents, but not with me. I grew up not knowing that my life was being impacted by the traumatic brain injury that I sustained when I was 10 years old. I had difficulty reading non-verbal cues and social nuances and learning sequences of information. I had to discover how I learn best and to accept myself. I am not my traumatic brain injury.

10. How has your life changed? Is it better? Is it worse?

Better – I obtained my undergraduate degree in ten years, after attending two universities and one college and having four different majors. I obtained my graduate degree in rehabilitation counseling in three and a half years, after attending two graduate schools.

There were twenty years of getting and losing jobs. Twice, I had Department of Vocational Rehabilitation (DVR) evaluations. I was deemed to be unemployable by the DVR counselor after the second evaluation. Of my three applications for SSDI (Social Security Disability Insurance), two were denied, but I was approved after the third application.

Nevertheless, I still wanted to contribute and use my gifts, talents, and abilities. I created Second Chance to Live on February 6, 2007 (secondchancetolive.org). I have written 1860 articles and made 413 video presentations and 10 eBooks. I have 30 slide show presentations, 33 posters, and other creations.

For details, see my article:

Finding Craig – My Academic Path (Part 4)

11. What do you miss the most from your pre-brain-injury life?

I had my TBI (traumatic brain injury) at the age of 10. I don’t remember my life before then.

12. What do you enjoy most in your post-brain-injury life?

I enjoy using my creativity in ways that work for me. “Do what you can, with what you have, where you are.” Theodore Roosevelt

13. What do you like least about your brain injury?

It is as it is. I would like to have more of a social life. However, I accept that I do not have the skills to have more of a social life – so it is stressful for me.OIP-1

14. Has anything helped you to accept your brain injury?

When I reached a point in my life when denying my reality became more painful than my need to deny my reality, I began to grieve my reality through the five stages that Elisabeth Kübler-Ross spoke about in her book, On Death and Dying. Once I moved through confronting my denial; experiencing anger for what I was powerless to change; trying to bargain my way out of what I could not change; and experiencing depression, I was able to increase my acceptance. As I grew in acceptance of what I could not change, I was open to discovering possibilities. Possibilities through choices. Choices that helped me to get into action. Action that helped me to create hope in my life.

For details, see my article:

15. Finding Craig – My Brain Injury Awareness (Part 5)

Has your injury affected your home life and relationships and, if so, how?

Yes. As I accepted my reality, I stopped needing to convince other people of my reality. People cannot give what they do not possess. For people to accept my reality would mean that they would have to feel feelings and make changes – feelings and changes that they may not know how to feel or want to feel. Changes that they may not know how to make or want to. As I stopped trying to change people, I had more peace in my life.

16. Has your social life been altered or changed and, if so, how?

I enjoy my solitude and my freedom to create through Second Chance to Live. I have a small circle of friends.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I am my own case manager. As a rehabilitation counselor, I fully understand what a counselor does. A counselor is not in the position of having to do for another person what that person cannot do for himself or herself. As a counselor, what I seek to do is to teach and encourage the individual to fish – not provide fish, so that that individual will never go hungry again.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I am an author, advocate, keynote speaker, and a motivational coach. I created Second Chance to Live nearly fourteen years ago. I do not know what the future holds. I am preparing to be available to present at more conferences and organizational settings as a keynote speaker/workshop leader. I am doing the footwork – one day at a time. I am trusting the process, a loving God, and myself. More will be revealed with time. The pieces of the puzzle will come together at the right time and in the right order.

For details, see my article:

Finding Craig – Making Sense of Brain Injury (Part 8)

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Pursue excellence, instead of being driven by perfectionism.

I have difficulties learning sequences of information. I have written an article that explains what has helped me with this information: Neuroplasticity, Small Successes and Learning/Relearning Skills and Skill Sets.

Craig J. Phillips 120. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Trust the process, a loving God, and yourself.

See that your circumstances are a way to build you up, not to keep you down.

See that you are not your traumatic brain injury or your disability.

See the disappointments and disillusionment that you experience as important parts of your process.

See how those events move you in the direction of your destiny.

Find ways to use what you can through your gifts, talents, and abilities.

Accept your inability to do some things because of your deficits and limitations. Stop berating yourself for your inability to do those things.

Live and explore outside of the box that society seeks to keep you in through dismissing, discounting, patronizing, minimization, and marginalization.

Love, accept, and celebrate who you are as an individual.

Break free from the denial system that keeps you feeling like a mistake. Stop identifying as a patient.

Accept the things you cannot change, change the things you can, have the wisdom to know the difference, and then be at peace with that difference.

See life as a process – a journey.

Realize that your job is to learn “how-to” from various ingredients and then combine what “you learned” together to bake various “cakes.”

Realize that there is no such thing as failure, only an opportunity to learn.

Realize that what occurs in your life is meant to set you up, not set you back.

Begin to live the “now” in life.

Struggle makes you stronger.

Avoid the comparison trap.

Share with other traumatic brain injury survivors that there is hope.

Realize that what happened to you is not as important as what you do with what happened to you.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

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As I say after each post: Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

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Please check out my book.

Prisoners without Bars: A Caregiver’s Tale

 

Read All About It! . . . . . . . Prisoners without Bars: A Caregiver’s Tale

Read All About It!

Prisoners without Bars: A Caregiver’s Tale

presented by

Donna O’Donnell Figurski – author

Donna & David with ARC of Prisoners without Bars: A Caregiver’s Tale

 

My memoir, Prisoners without Bars: A Caregiver’s Tale, is not only a story of David’s and my struggles after his traumatic brain injury, but it is also a love story. Though my memoir addresses a dire topic, it is peppered with comedic situations. They say laughter is the best medicine, and again, they are right.

Prisoners without Bars is a heart-wrenching memoir that will make you laugh, cry, and G-A-S-P. I promise!

 

Boy Laughing

 

Girl Crying girl-crying-clipart-34

Girl Gasping 2

It’s not a beach read, but it reads like one. It’s fast! It’s easy! It’s fascineasy. I mean fascinating.

What Readers are Saying!

Jackie said – “A beautiful and touching story.”

Anonymous Amazon Customer said – “I loved this book. almost couldn’t put it down.

jlgwriter said – “I found the story powerful and compelling.

Todd & Kim said – “This is such an inspirational story of survival! The book is a very easy read and informative as well as inspiring!!”

Judy said – “Donna O’Donnell Figurski tells her story of grace, love, frustration, anger, disappointment, strength, joy, and above all hope.”

Marge said – “I read it in one fell swoop… I guess the word that would describe your book, your life, and who you are is SUPERCALIFRAGILISTICEXPIALIDOCIOIUS.”

Anonymous said – “This book pulled me in immediately and didn’t let me go until the end! ”

Helen said – “Could not put this book down. Written for easy reading. It was like having a conversation with a friend.” “I finished it in one day with some teary moments along with some chuckles. A must read!!”

Get Your Copy Now

Read It!               Review It!

Click Links under Book

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PAPERBACK!        Read it Now!                              e-BOOK!      Read it Now!

 

Stay Safe and Healthy!

Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.anim0014-1_e0-1

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

 

Caregivers SPEAK OUT! Harriet Hodgson – Caregiver and Author

Caregivers SPEAK OUT! Harriet Hodgson (caregiver for husband)

presented by

Donna O’Donnell Figurski

(Author of Prisoners without Bars: A Caregiver’s Tale)

 

Harriet Hodgson – Caregiver for her husband, John – Author of many books.

1. What is your name? (last name optional)

Harriet Hodgson

2. Where do you live? (city and/or state and/or country) Email? (optional)

Rochester, Minnesota, USA      harriethodgson@charter.net

3. What is the brain-injury survivor’s relationship to you? How old was the survivor when he/she had the brain injury? What caused your survivor’s brain injury?

I cared for my mother, who had been a brilliant woman before her Vascular Dementia. At the time, nobody knew mini-strokes continued to spread.

4. When did you begin care for your brain-injury survivor? Were you the main caregiver? Are you now? How old were you when you began care?

I started caring for my mother after she was found wandering in a department store. Interestingly, my mother called from Florida to tell me this story. “The clerk told me cars are parked outside the store.” In my fifties, I moved my mother from Melbourne, Florida, to Rochester, Minnesota, to care for her.

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

I wasn’t caring for anyone else at the time.

6. Were you employed at the time of your survivor’s brain injury? If so, were you able to continue working?

Yes. I was a freelance writer. Continuing to write was difficult. My mother lived with us for a month, while her apartment in an assisted living community was being readied for her. If I sat down at the computer, she stood behind me and literally breathed down my neck.

7. Did you have any help? If so, what kind and for how long?

I moved my mother into an assisted living community. Also developed a weekly schedule of care: shopping day, medical/dental day, errand day, out to lunch day, etc.

8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

On a frigid night, when the temperature was 35-below and the wind chill was 50-below, my mother called and said she was going back to Long Island to be with friends. All of the people she mentioned were deceased. I called her physician, and he wrote orders sending her to nursing care, a locked ward.

9. Was your survivor in a coma? If so, what did you do during that time?

No coma. Profound confusion.

10. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? How long was the rehab? Where were you when your survivor was getting therapy?

No rehab. There was no way to fix my mother’s mind.

11. What problems or disabilities of your brain-injury survivor required your care, if any?

Complained to management. Social services came and evaluated her. Mom couldn’t answer any of the questions on the Mini Mental Status Exam. Worse, she said, “My daughter put me in here.”

12. How has your life changed since you became a caregiver? Is it better? Is it worse?

Years later (maybe ten), caregiving took over my life. I’ve cared for three generations of family members: my mother, my orphaned twin grandchildren, and now my husband, who has a spinal cord injury. This prompted me to write a series of books for family caregivers.

13. What do you miss the most from pre-brain-injury life?

I miss the freedom of my old life and being able to do what I want. Am also physically and emotionally tired.

14. What do you enjoy most in post-brain-injury life?

Being even closer to my husband. We are devoted to each other.

15. What do you like least about brain injury?

I hate the unpredictability of brain injury. For example, my mother would call my phone number repeatedly and hang up repeatedly because she didn’t recognize my voice.

16. Has anything helped you to accept your survivor’s brain injury?

Learning about Vascular Dementia and writing have helped.

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

Eventually my mother’s brain shut down. She couldn’t read, couldn’t speak (grunts), didn’t recognize me, and thought I had come to harm her. This was heartbreaking.

Harriet Hodgson – Caregiver and Author; Dr. John Hodgson

18. Has your social life been altered or changed and, if so, how?

I don’t really have a social life.

19. What are your plans? What do you expect/hope to be doing ten years from now?

My plans are to care for my husband until one of us dies. Both of us are 84 years old.

20. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add? 

Be kind to yourself, and be on the lookout for Compassion Fatigue.

 

If you would like to learn more about Harriet, please visit her website;

Harriet Hodgson

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

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Survivors SPEAK OUT! . . . Thomas Hopkins, Jr (Tommy)

Survivors SPEAK OUT! . . . Thomas Hopkins, Jr (Tommy)

presented

by Donna O’Donnell Figurski

Tommy Hopkins, Jr Survivor of Brain Injury

 

 

1. What is your name? (last name optional)

Thomas Hopkins, Jr.

2. Where do you live? (city and/or state and/or country) Email (optional)

Mountain Home, Idaho, USA (originally from Wisconsin)

3. On what date did you have your brain injury? At what age?

I was 19 years old.

4. How did your brain injury occur?

I have had several head traumas that led to my brain injuries. I’ll discuss the main ones. I have two injuries from February 2003. The first was due to a JDAM bomb (Joint Direct Attack Munition – a guidance kit that converts unguided bombs into all-weather precision-guided munitions). The second was from an explosion in a unit I was working with. In 2006, on my 4th tour, I had gotten a hammer to the head. I do not recall this incident at all. My fourth injury was in May 2007. I was still on my 4th tour. Our camp got morning RPG/mortar hits. The shop I was working in had one hit close by that shook the shop. The 40-lb. equipment I was working on fell over and hit me in the back of the head.

5. When did you (or someone) first realize you had a problem?

I started noticing issues after my first injury back in 2003 – daily headaches, ringing in my ears, light sensitivity, plus I would invert numbers.

6. What kind of emergency treatment, if any, did you have?

Due to the units I was in, I did not get treatment. I’ll rephrase that – due to the units I was part of, unless you lost a limb, your sight, etc. or your life was in danger, you were not allowed to seek medical treatment.

7. Were you in a coma? If so, how long?

No coma

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I started seeking help once I got out of the army. I started at the VA (medical care at hospitals of the Veterans Administration). It was not the best outcome.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have convergence insufficiency (a condition in which your eyes are unable to work together when looking at nearby objects, creating double or blurred vision),

photophobia, daily headaches that turn into migraines, and constant tinnitus. One doctor said I have damage to the autonomic and limbic systems in my brain. Other doctors have said that I don’t even have a brain injury! (LOL) I have no concept of time; I experience jerks (involuntary muscle movements); I search for words; my speech is slurred; my brain often won’t let me get my words out; and I have a poor memory. I do not feel 60+% of my body, and my lower limbs do not work a lot of the time. “Partial Para” is what they call it. At times, I need to be in a wheelchair.

10. How has your life changed? Is it better? Is it worse?

Worse

11. What do you miss the most from your pre-brain-injury life?

I miss my memory. It used to be photographic.

12. What do you enjoy most in your post-brain-injury life?

Retirement (LOL) … Driving my wife nuts (LOL) … Um, working my brain in different ways to work on problems and situations that come up in my hobbies

13. What do you like least about your brain injury?

I’m not Johnny-on-the-spot anymore. I miss my memory. My body is going to shit.

14. Has anything helped you to accept your brain injury?

MY WIFE. Even though most of my injury is “invisible,” she showed me that I also have physical scars that I and others can see.

15. Has your injury affected your home life and relationships and, if so, how?

Yup. That’s a very long answer.

16. Has your social life been altered or changed and, if so, how?

Yup. We lost a lot of friends and family because I was not the same Tommy I was before I was brain-injured in the war.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

Tommy Hopkins, Jr. Brain Injury Survivor
Caregiver – Kristina Hopkins

MY WIFE! I have a rough idea of some of what she does for me, but I have no clue of what all she does.

18. What are your plans? What do you expect/hope to be doing ten years from now?

My “plan” is to maintain what I have and live each day as if it is my last.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Yes. You have to adapt to your new self. That old person is gone. I had to realize I will never be as I once was, BUT I am still able to do most things with adaptation.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

My advice: Good days come and go. Work with the day you have because you don’t know what tomorrow will bring.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

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New NEWS: . . . . . . . 2019 Caregiving Visionary Award Finalist

New News:    2019 Caregiving Visionary Award Finalist

presented by

Donna O’Donnell Figurski

th-1YAY! I am one of ten finalists for the 2019 Caregiving Visionary caregiver-word-clipart-1Award, so I’m still in the running. A great big THANK YOU to all who voted for me. Your votes helped immensely. YOU made this happen and I am so honored to be a finalist. Winners will be announced March 1st.

Thank you! Thank you! Thank you! THANK YOU!

 

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

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SPEAK OUT! NewsBit . . . . . . VOTE for Me! – Caregiver Visionary Award

VOTE for Me! – Caregiver Visionary Award

presented by

Donna O’Donnell Figurski

This is just an itty-bitty, tiny-teeny, itsy-bitsy newsletter because I want to share some exciting news with you.

I have been nominated for the “Caregiver Visionary Award,” which will honor five th-1caregivers who stand out in their caregiver world. Now frankly, I think all caregivers deserve this award, but, alas, only five will be chosen, and I hope I am one of them. David thinks I should be too. He nominated me.

I need your help. Only you can make this happen. Here’s how it works. In order to be chosen as one of the top ten finalists, I need votes. Internet votes! That’s it. Pretty easy. All you have to do is click on the link I posted below.

https://www.caregiving.com/ncc19/cva-donna-odonnell-figurski/

Voting ends at Midnight ET on February 25, 2019. So please HURRY!

Scroll to the end of my nomination.
Click on “Cast your vote.”
Takes you to a new page
Lists all nomineesplease-vote
Mark my name, Donna O’Donnell Figurski.
Click “VOTE!

See, that wasn’t so hard, was it?

On March 1, 2019, the winners will be announced. You’ll probably know right away because you will hear me squealing and jumping for joy. And now, I am going to cross my fingers until March 1st. pco5aerzi

ashdis kjdihio jsh pogwkp d wyqye. Oops! It’s really hard to type with crossed fingers.

Translation : Thank you so much from the bottom of my heart!

P.S. Phew! Thank goodness that’s done. I hate to ask for things!

 

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

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Caregivers SPEAK OUT! . . . . Malissa Mallett (caregiver for her son)

Caregivers SPEAK OUT!

Malissa Mallett (caregiver for her son)

presented by

Donna O’Donnell Figurski

“Malissa Mallett will be my guest tomorrow (Sunday, February 17) on my radio show (Another Fork in the Road) on the Brain Injury Radio Network. She has been caregiver for her son, who had an anoxic brain injury, since 1997, when he was an infant. Malissa is Program Director for the Brain Injury Alliance of Arizona (BIAAZ). We will discuss caring for her son and the effect of her expertise (opioid use on the brain.) My show broadcasts live at 5:30 PT (blogtalkradio.com/braininjuryradio), or it can be heard as a podcast anytime (https://survivingtraumaticbraininjury.com/category/on-the-air-show-menu/).”

Malissa Mallett

1. What is your name? (last name optional)

Malissa Mallett

2. Where do you live? (city and/or state and/or country) Email? (optional)

Laveen, Arizona, USA     Program@biaaz.org

3. What is the brain-injury survivor’s relationship to you? How old was the survivor when he/she had the brain injury? What caused your survivor’s brain injury?

The survivor is my son. He was 2 months old. His brain injury was caused by aspiration, causing him to stop breathing (anoxic brain injury).

4. On what date did you begin care for your brain-injury survivor? Were you the main caregiver? Are you now? How old were you when you began care?

My care began in April 1997. I was 22 years old. I was my son’s main caregiver then, but I’m not now.

th

Babies get brain injury too

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

No

6. Were you employed at the time of your survivor’s brain injury? If so, were you able to continue working?

I had just returned to work after giving birth. I was not able to continue working, since my son required 24-hour supervision for his heart and lung monitor.

7. Did you have any help? If so, what kind and for how long?

Occasionally. My family, who were trained in CPR, would care for my son to give me a break or a night out.

cartoon-hospital8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

In the hospital

9. Was your survivor in a coma? If so, what did you do during that time?

No

10. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? How long was the rehab? Where were you when your survivor was getting therapy?

No

11. What problems or disabilities of your brain-injury survivor required your care, if any?

This is difficult to answer given my son’s age at the time of his brain injury.

12. How has your life changed since you became a caregiver? Is it better? Is it worse?

My life was challenging all throughout my son’s life.

13. What do you miss the most from pre-brain-injury life?

I will never know what could have been.

14. What do you enjoy most in post-brain-injury life?

Does not apply

15. What do you like least about brain injury?

shakilaramanwordpresscom

Learn about brain injury

The lack of understanding in the community

16. Has anything helped you to accept your survivor’s brain injury?

Yes. Education.

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

Yes, it has. We can discuss this on your radio show. It’s too much to explain here.

18. Has your social life been altered or changed and, if so, how?

Not anymore

19. What are your plans? What do you expect/hope to be doing ten years from now?

I would love for my son to be successful and independent.

20. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add?

supportTake care of yourself.

Be surrounded by supportive people.

Educate yourself.

 

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it (intact) with your enemies. I don’t care!

Feel free to “Like” my post.

 

TBI Tales . . . . . . . . . . . . . . . . . . This Song Could Be a Caregiver’s Anthem

This Song Could Be a Caregiver’s Anthem

by

Donna O’Donnell Figurski

David &amp; Donna Aunt Irene's Funeral 060718

 

I happened to hear this old hit song (“Lean on Me”) a couple of days ago. After listening to the lyrics, I realized it reflects what we caregivers do. We just want to help.

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We don’t look this bad.

As the song implies, we give much-needed help. “Lean on Me” could be our anthem. Give it a listen.

PS. I just had to dance with this man to that song and we each did a bit of “leaning on.”

 

(Disclaimer: The views or opinions in this post are solely that of the author.)

If you have a story to share and would like to be a part of the SPEAK OUT! project, please submit your TBI Tale to me at neelyf@aol.com. I will publish as many stories as I can.

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.anim0014-1_e0-1

Please follow my blog. Click on “Follow” on the top right sidebar. (It’s nice to know there are readers out there.)

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

(Clip Art compliments of Bing.)

 

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