TBI – Survivors, Caregivers, Family, and Friends

Archive for the ‘Caregivers SPEAK OUT!’ Category

Caregivers SPEAK OUT! . . . Heather Sivori Floyd . . . Caregiver for her son, TJ

 

 

Caregivers SPEAK OUT!

Heather Sivori Floyd (caregiver for her son, TJ)

presented by

Donna O’Donnell Figurski

 

Heather Sivori Floyd – caregiver mom to her son, TJ

1. What is your name? (last name optional)

Heather Sivori Floyd

2. Where do you live? (city and/or state and/or country) Email? (optional)

Oldham County, Kentucky, USA

3. What is the brain-injury survivor’s relationship to you?

He (TJ) is my son.

How old was the survivor when he/she had the brain injury?

TJ was 7 years old.

11 TJ Floyd

TJ – Brain Injury Survivor – bicycle accident

What caused your survivor’s brain injury?

TJ was riding his bicycle when he wrecked into the back of his brother. He flipped over the handle bars and hit his head on the concrete. He went to “sleep” and never woke up until days after his emergency open brain surgery.

4. On what date did you begin care for your brain-injury survivor?

April 21, 2010

Were you the main caregiver?

Yes

Are you now?

Yes

How old were you when you began care?

Age stinks. I’d rather not discuss it. LOL!

TJ and Mom Heather Sivori Floyd

TJ – Brain Injury Survivor & his Mom, Heather Sivori Floyd

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

Yes – my three other children. I was also pregnant at the time.

6. Were you employed at the time of your survivor’s brain injury?

Yes

If so, were you able to continue working?

Yes – part time from home.

7. Did you have any help? Mother-in-Law

My mother-in-law moved in to help with my other children so I could care full-time for TJ with his therapy and doctors.

If so, what kind and for how long?

Well, she is still here.

8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

Immediately

9. Was your survivor in a coma?

I’m not sure of the medical term, but he was unresponsive until several days after his brain surgery.

If so, what did you do during that time?

I slept beside TJ in a chair. I was three months pregnant and heartbroken at the fear of the unknown. What was it they called it? . . . Ah yes, “the new normal.” I was trying to figure out what that meant. You don’t actually “get it” until years later.

14 TJ & Mom Heather Sivori Floyd copy

TJ – Brain Injury Survivor & Mom, Heather Sivori Floyd

10. Did your survivor have rehab?

Yes

If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)?

Physical, occupational, and speech therapies; also, hippotherapy (the use of horseback riding to improve balance, coordination, and strength)

How long was the rehab?

TJ still goes to therapy.

Where were you when your survivor was getting therapy?

With TJ

11. What problems or disabilities of your brain-injury survivor required your care, if any?

brain-injury-imageEverything. TJ’s brain bleed damaged the whole left side of his brain and parts of the right. He was left with severe impairments, specifically in speech, language, memory, and cognitive function. He has safety issues. Because of attention, safety, and balance issues, he has trouble walking without hands-on help constantly. He also has memory problems, speech problems, vision problems, physical issues from having hemiparesis (weakness on one side), and a lot more.

12. How has your life changed since you became a caregiver?

Things that mattered to me prior his accident are non-issues to me now. I often times feel I can talk with doctors and therapists better than I can with most people my age. It can be lonely, difficult, and frustrating at times to find common connectors in my personal relationships with friends and family. Some weeks are packed full of appointments. I’m drinking so much coffee I think my system will crash. Just this past week, I knocked out four appointments in one day. The most I’ve done in one day has been seven.

Is it better?

I would say yes – my life is better. Even though this is the most challenging task of my life, my son is innocent, happy, and laughs a lot. I believe having the privilege to care for my child, who is special needs, has been the most rewarding love one can experience. The impact special-needs children make are life-long. You learn so much through them in how they view the world.

Is it worse?

No parent ever wants this for his or her child. That being said, my life is better because of the profound true joy my son has brought me. The worst part, I would say, is having struggles that are hard to overcome. Watching him struggle is hard. I do whatever I can to help him when this happens. Also, the stress of future planning is scary and overwhelming.

18 TJ & Mom Heather Sivori Floyd copy

Heather Sivori Floyd & her son, TJ

13. What do you miss the most from pre-brain-injury life?

Our conversations. Most of the time, our conversations now are basic – food, eat, play a game, etc. I miss those conversations with my child that went beyond basic needs.

14. What do you enjoy most in post-brain-injury life?

Oh gosh, a child like TJ changes you in a profound way. The love you have in your heart for your child and others like him or her is something that is hard to put into words. I want to protect all of them forever. The world is full of evil people who would take advantage. I also enjoy trying to help others – to make it easier for the family who comes after us. There will always be another family. I’ve also learned to let the little things slide because, at the end of the day, they are just that – little.

15. What do you like least about brain injury?

Everything. It’s unrelenting and nasty. It takes a lot and rarely gives anything back.

16. Has anything helped you to accept your survivor’s brain injury?

Yes – TJ is happy. It is hard to justify my being sad or my crying all the time when he is happy. He lives in the now – not for tomorrow or the day before.

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

1-divided-path-tracie-kiernanYes – especially my personal friendships and my relationships with family. I think we are on different paths in life now. While they talk of work and social events, I am constantly thinking What can we do to make it better for TJ and others going through this? My closest friends are now the caregivers and survivors I’ve met locally. We work together locally to make a positive change for the brain-injury community. I also work with an amazing team of ladies who help me run two support-groups for survivors and caregivers. I started my first one seven years ago. I was scared after TJ’s brain injury, and I needed to know I was not alone. I needed hope. The groups grew to over 30,000, and the rest is history. The friendship we have is unbreakable. Shout-out to my amazing admins and friends: Melissa, Shauna, Margie, Mary, Michael, Eddie, and Alex. Love you all! We’ve met many who have inspired us in this journey.

18. Has your social life been altered or changed and, if so, how?

Um, what social life?! Seriously, I have no social life. It’s too hard to connect with others.

19. What are your plans?

My #1 plan is finding the best long-term situation for TJ that will ensure the best care he can have when we can no longer do so. Personally, I also plan to continue making a difference locally. We have several projects we are working on, and I have some more ideas to help. I ALWAYS have an idea. I’m always thinking big. Nothing brings me greater joy than helping others. It is important for families to know they aren’t alone and that people care enough to try and make it better. I try to do my part because of my son and the many we have met.

What do you expect/hope to be doing ten years from now?

I hope to still be laughing and loving the small joys in life with TJ. Hopefully, we will have made a big impact locally and beyond for the brain-injury community.

20. What advice would you offer other caregivers of brain-injury survivors? Never Give Up

Never give up. Let the small things go. Love deeply, and give your all. If you don’t, one day you will wish you had. Be the voice for your loved one. Never let “no” be an obstacle; there is always a way. If the door closes, kick it open. Most importantly, hang on when the days are hard and you feel you cannot go on. You can, and your survivor needs you to. Connect with other caregivers so you don’t feel like you walk this path alone – because you don’t. There are many who walk it with you daily

Do you have any other comments that you would like to add?

I think I’ve said what’s important for caregivers to know.

 

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

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Caregivers SPEAK OUT! . . . Pattie Welek Hall . . . . . . . . (caregiver for her son)

Caregivers SPEAK OUT!

Pattie Welek Hall  (caregiver for her son)

presented by

Donna O’Donnell Figurski

 

Pattie Welek-Hall 3

Pattie Welek Hall (caregiver for son) Author of “A Mother’s Dance”

 

1. What is your name? (last name optional)

Pattie Welek Hall

2. Where do you live? (city and/or state and/or country) Email? (optional)

Summerville, South Carolina, USA     pattie@pattiewelekhall.com

3. What is the brain-injury survivor’s relationship to you?

He’s my son.

How old was the survivor when he/she had the brain injury?

19 years old

What caused your survivor’s brain injury?

Motorcycle accident

4. On what date did you begin care for your brain-injury survivor? 

MotorcycleOctober 6, 2002

Were you the main caregiver?

Yes

Are you now?

We live in different states now, but I’d have to say that emotionally I am his main caregiver.

How old were you when you began care?

56

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

I was in the process of finalizing a divorce and also raising my other two children, Annie (freshman in college) and Bo (junior in college).

6. Were you employed at the time of your survivor’s brain injury?

th

Yes – at Barnes & Noble in Charlotte, North Carolina

If so, were you able to continue working?

No. Mid-October, I was scheduled to step into new position – Community Relations Manager at Barnes & Noble in Huntersville, North Carolina. The manager held my position until I was able to return.

7. Did you have any help?

Yes

If so, what kind and for how long?

When Casey returned home, he went to outpatient care in Charlotte, North Carolina. At that time, his dad’s insurance paid for a driver to take and pick him up from rehab so I could return to work. Casey remained in rehab until April 2003.

8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

For the first eleven days after my son’s accident, I slept on the floor in the ICU (Intensive Care Unit) at the Medical University of South Carolina, and then I moved to Marriott Courtyard for the remaining days of his six-week stay.

A Mother's Dance

“A Mother’s Dance’ by Pattie Welek Hall

9Was your survivor in a coma?

Yes. Twice.

If so, what did you do during that time?

I prayed out loud to him; I talked to him; I relayed how his day unfolded (Guess who visited; I recounted what they said) . . . and I told him stories.

10. Did your survivor have rehab?

Yes

If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)?

Outpatient—speech, occupational, and physical

How long was the rehab? kc8oAg59i

Five months

Where were you when your survivor was getting therapy?

At work

11. What problems or disabilities of your brain-injury survivor required your care, if any?

12. How has your life changed since you became a caregiver? Is it better? Is it worse?

13. What do you miss the most from pre-brain-injury life?

I miss my boy’s easy-going nature.

14. What do you enjoy most in post-brain-injury life?

Pattie Welek Hall

Pattie Welek Hall (caregiver of son) Author of “A Mother’s Dance”

That my son is alive

15. What do you like least about brain injury?

That my son has frontal lobe damage which affects those he loves

16. Has anything helped you to accept your survivor’s brain injury?

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

Relationships are up and down – mostly due to frontal lobe damage.

18. Has your social life been altered or changed and, if so, how?

19. What are your plans? What do you expect/hope to be doing ten years from now?

I hope that my son’s life is filled with love, laughter, and peace.

20. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add?

 

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

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Caregivers SPEAK OUT! . . . Sheria Westhoff-Eubanks

Caregivers  SPEAK OUT!  Sheria Westhoff-Eubanks

(caregiver for son, Jason Westhoff)

presented by

Donna O’Donnell Figurski

 

Sheria Westhoff Eubanks – Caregiver for son, Jason Westhoff

1. What is your name? (last name optional)

Sheria Westhoff-Eubanks

2. Where do you live? (city and/or state and/or country) Email? (optional)

Hendersonville, Tennessee, USA

3. What is the brain-injury survivor’s relationship to you? How old was the survivor when he/she had the brain injury? What caused your survivor’s brain injury?

The brain-injury survivor is my oldest son, Jason. He was 30 years old. He was attacked from behind.

4. On what date did you begin care for your brain-injury survivor? Were you the main caregiver? Are you now? How old were you when you began care?

On Sunday, March 11, 2012, I began to care for my son in a new way. Yes, with my husband and my ex-husband. Now we are his support. I was 51years old when my son was injured.

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

No, we were not. Jason’s youngest sibling was in his first year of college.

6. Were you employed at the time of your survivor’s brain injury? If so, were you able to continue working?

Sheria Westhoff Eubanks – Caregiver for son, Jason Westhoff with Darryl Eubanks

My husband and I were both employed at the time. We both took a leave-of-absence and temporarily relocated to Illinois.

7. Did you have any help? If so, what kind and for how long?

We were so incredibly blessed with help and support from family, friends, church members, strangers, and the wonderful doctors and staff of St. Francis Hospital. There was housing for the families of patients and transportation to and from the hospital. I think we used it for almost three months. When it was time for my son’s discharge from rehab, a good friend of my son provided us with a home to stay in – rent free. We resided there for five months. Friends and family donated money, food, gift cards, and groceries. Some spent nights with Jason, so that my husband and I could both sleep. Youth Build provided my son with money for clothing. He had lost so much weight.

8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

Jason Westhoff – Survivor of Brain Injury

Our support of Jason started immediately. He’s our child. We needed to be with him, and he needed us with him. He lived in Illinois, and my husband and I live in Tennessee.

9. Was your survivor in a coma? If so, what did you do during that time?

Jason was not in a coma when we arrived in Illinois, but in a few hours, he was. (A coma was induced for medical reasons.) While Jason was in the coma, we talked to him, touched him, loved on him, and played music. My husband read the Bible to him, and we prayed, cried, and believed God would heal him.

10. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? How long was the rehab? Where were you when your survivor was getting therapy?

Yes, Jason had inpatient and outpatient therapies. He had speech, physical, and occupational therapies. I think he had four weeks of inpatient therapies and about twelve weeks of outpatient therapies. We remained with him every step of the way – mainly my husband or I and his youngest sister.

11. What problems or disabilities of your brain-injury survivor required your care, if any?

Jason needed our care for everything but feeding himself and bathing. However, my husband had to be near the bathroom due to Jason’s issues with mobility and stability.

Jason Westhoff – Brain Injury Survivor with Parents, Sheria & Darryl Eubanks

12. How has your life changed since you became a caregiver? Is it better? Is it worse?

Since I’ve been a caregiver, I treasure life more. I’ve experienced a lot of anxiety. I’ve had to learn my new Jason. I really can’t characterize life as “better” or “worse.” It’s just our new normal.

13. What do you miss the most from pre-brain-injury life?

It’s not what I miss for me. It’s what I miss for my son. I miss his stamina – both physically and mentally.

14. What do you enjoy most in post-brain-injury life?

I enjoy Jason’s heart for people, his heart to help.

15. What do you like least about brain injury?

I don’t like the constant restarts.

16. Has anything helped you to accept your survivor’s brain injury?

Yes. The Fathers and Sisters at St. Francis helped me remain focused on one moment at a time. This is what it is!

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

Yes, it has. We talk to Jason a lot more. We’ve had good times and bad times. I believe that our family is stronger post injury. I don’t take tomorrow for granted.

18. Has your social life been altered or changed and, if so, how?

Initially my social life was altered, but not now.

19. What are your plans? What do you expect/hope to be doing ten years from now?

Ten years from now, I will be retired and hiking in Arizona.

20. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add?

I would strongly advise other caregivers of brain-injury survivors to get connected with a support-group. You must take care of yourself to be able to support and care for your loved one. Take people up on their offers of help.

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Caregiver Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

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Caregivers SPEAK OUT! . . . . . Charity Hamilton (caregiver for momma)

Caregivers  SPEAK OUT!  Charity Hamilton

(caregiver for her momma)

presented by

Donna O’Donnell Figurski

 

Charity Hamilton – Caregiver for her Momma

1. What is your name? (last name optional)

Charity Hamilton

2. Where do you live? (city and/or state and/or country) Email? (optional)

Shippensburg, Pennsylvania, USA

3. What is the brain-injury survivor’s relationship to you?

The survivor is my momma. 🙂

How old was the survivor when he/she had the brain injury? What caused your survivor’s brain injury?

My mother’s affliction is brain cancer and seizures. It was diagnosed in 2012 when she was seen after a car accident. (She didn’t remember what happened.) The hospital was going to let her leave, but we demanded a CT (computerized tomography) scan and an MRI (magnetic resonance imaging), as her husband (now deceased) knew something was wrong. That’s when the cancer was found. It had apparently started as a child!

4. On what date did you begin care for your brain-injury survivor? Were you the main caregiver? Are you now? How old were you when you began care?

I became my mother’s only caregiver in 2016, as her husband helped care for her, but he recently passed due to bad health. I am now her full-time caregiver. I am 24.

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

I have three beautiful children of my own, whom I care for.

6. Were you employed at the time of your survivor’s brain injury? If so, were you able to continue working?

I was then and am now a full-time employee.

7. Did you have any help? If so, what kind and for how long?

I had no help after my mother’s husband passed.

8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

I began care immediately after my mother was diagnosed.

9. Was your survivor in a coma? If so, what did you do during that time?

No

10. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? How long was the rehab? Where were you when your survivor was getting therapy?

My mother had no rehab.

11. What problems or disabilities of your brain-injury survivor required your care, if any?

My care was needed whenever my mother had seizures. I also helped her deal with memory loss. I assisted her with medications, and I helped her with showers.

12. How has your life changed since you became a caregiver? Is it better? Is it worse?

With everything I have on my plate, my life is complicated and very busy. Only brain-injury-caregivers truly understand.

13. What do you miss the most from pre-brain-injury life?

I miss not being so busy!

14. What do you enjoy most in p

Charity Hamilton – Caregiver for Mom, Jean Jones

ost-brain-injury life?

I enjoy talking to mom and going out and about with her.

15. What do you like least about brain injury?

I don’t like the tons of errands and feeling like the parent.

16. Has anything helped you to accept your survivor’s brain injury?

Caregiving came naturally because she’s my mother and I would never let her be alone.

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

Yes. My mother’s brain injury has made home-life and relationships tough and stressful sometimes, as they don’t understand I HAVE to care for my mother – no one else will.

18. Has your social life been altered or changed and, if so, how?

Not really. I didn’t have a social life before my mother’s diagnosis.

19. What are your plans? What do you expect/hope to be doing ten years from now?

My future is nursing.

20. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add?

Have patience!!

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Caregiver Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

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Caregivers SPEAK OUT! . . . . . Lori Strauss Heckman

Caregivers  SPEAK OUT!  Lori Strauss Heckman

(caregiver for her son, Bartholomew Wayne Nathaniel),

presented by

Donna O’Donnell Figurski

lori-strauss-heckman-caregiver-012017Three years ago, our lives were turned upside down when my then 21-year-old son had his accident. It has been a long road with many hurdles to overcome, but I am so proud of him. He is my hero and my greatest blessing. And, proof to never give up. We were told that he would probably not make it that night. We were also informed that, if he did, he would not have any quality of life. But, he proved everyone wrong! Many prayers were prayed and many tears were shed, and my son is still with us – and doing very well. The first and second photos are of my son after the accident; the third is him wearing a helmet in recovery; and the fourth photo is of him with his car. (Yes, my son is driving, and his seizures are under control.)

Meet Bartholomew Wayne Nathaniel

bartholomew-wayne-nathaniel-survivor-hospitalbartholomew-wayne-nathaniel-survivor-012017

16143907_1195056253863255_689473837_n

bartholmew-wayne-nathaniel-survivor-car

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Caregiver Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

SPEAK OUT! . . . . . . . . . . . . . Faces of Brain Injury . . . . . . . . . Carol Starke-Pyle (caregiver of her son, Thomas)

SPEAK OUT! Faces of Brain Injury – Carol Starke-Pyle

(caregiver of her son, Thomas)

presented

by

Donna O’Donnell Figurski

Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

Carol Starke-Pyle (caregiver of her son, Thomas)

carol-starke-pyle-1

Carolyn Starke-Pyle – Caregiver for Brain Injury Survivor

 

This is my son’s story. Thomas was 43. He trained/rode horses for a living. He was very athletic, vivacious, funny, etc. He came to visit me one Sunday, and, as the day wore on, he became more and more delusional. I called an ambulance. My son knew his name, knew where he was, and walked to the ambulance. I followed to the Emergency Room. I was able to see Thomas twenty minutes later, as he was waiting in the cubicle. He could not talk – he babbled incoherently. He could not sit up or walk. He didn’t know me. He was admitted and was given many tests: a CT (computerized tomography) scan, an MRI (magnetic resonance imaging), and a spinal tap. The CDC (Centers for Disease Control) was called in. It was concluded that Thomas had brain damage. After two weeks, Thomas was transferred to a neurological center. He didn’t know how to swallow, he knew NO ONE, he was in a huge crib, and he was in diapers. More the-brain-hispinal taps and more MRIs. I was told his frontal lobe looked as if a bag of M&Ms had been tossed into it. Infectious/viral disease had been ruled out. It was determined that, due to numerous concussions from falls off horses, his brain had suffered too much damage – which was IRREVERSIBLE! I collapsed when his doctor said, “The Thomas you knew a month ago is no longer with us.” He continued to tell me that my vibrant son would need a nursing home for the rest of his life.

I went onto Facebook and shared my anguish and pleaded for prayers. A prayer chain encircled the globe. Meanwhile, I attended TBI (traumatic brain injury) seminars and met with social workers and more doctors to find a special nursing home for Thomas. Two months later, on my visit, his nurse grinned and said she had a surprise. Thomas was standing up! The next week, he was walking, then talking (he made little sense, but … !), then recognizing us, and then eating by himself. As I was a teacher, I chose to stick up all sorts of stimuli – photos of family, friends, pets, and horses. horse_adoptable_bay_animated_by_hikari_yumi-d5hrf17Thomas slowly improved (contrary to the opinions of ALL specialists). After four months, with short-term memory loss and some loss of intelligence, Thomas was released. I asked his doctor to explain. He looked at me and quietly said, “It is a miracle!”

My son is back to work with horses, has absolutely NO memory of the hospital, has a touch believe-clip-art-at-clker-com-vector-clip-art-online-royalty-free-qep8hi-clipartof short-term memory loss, and is as bright as he always was. BELIEVE IN MIRACLES! I am praying for YOU ALL!

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Caregiver Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

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Survivor/Caregiver ………… SPEAK OUT! Cyndy Davy Feasel, wife of Grant Feasel

Survivors/Caregivers  SPEAK OUT! 

Cyndy Davy Feasel, wife of Grant Feasel

presented by

Donna O’Donnell Figurski

Note: This interview is by Cyndy Feasel, the wife of Grant Feasel, who died of brain disease obtained from playing football. Some answers apply to Cyndy, and some, to Grant. I have made it obvious to whom the answer applies.

 

Cyndy Davy Feasel - spouse of Grant Feasel, a former Seattle Seahawks Center

Cyndy Davy Feasel – spouse of Grant Feasel, a former Seattle Seahawks Center

1. What is your name? (last name optional)

My name is Cyndy Davy Feasel, wife of Grant Feasel, who succumbed to brain disease.

2.Where do you live? (city and/or state and/or country) Email (optional)

Ft. Worth, Texas, USA

3. On what date did you have your brain injury? At what age?

There was no single event that was responsible for Grant’s brain injury. It occurred from years of playing football. Concussions had a role.

4. How did your brain injury occur?

Playing football (See the answer to the previous question.)

5. When did you (or someone) first realize you had a problem?

We knew Grant had a problem about age 40.

6. What kind of emergency treatment, if any, did you have?

Grant Feasel, former Seattle Seahawks Center diagnosed with CTE

Grant Feasel, former Seattle Seahawks Center diagnosed with CTE

None. Grant used drugs and alcohol to numb the pain.

7. Were you in a coma? If so, how long?

Grant was never in a coma.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

No

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

Grant had some speech difficulties. He stuttered often and repeated himself as the CTE (chronic traumatic encephalopathy) worsened. Grant also had problems with his vision and balance. His personality changed over the years. He had difficulty thinking and completing tasks. He showed impulsive behavior, irritability, and aggression towards me!

10. How has your life changed? Is it better? Is it worse?

(No answer)

11. What do you miss the most from your pre-brain-injury life?

Cyndy: I miss my normal family life.

12. What do you enjoy most in your post-brain-injury life?

(No answer)

13. What do you like least about your brain injury?

Cyndy Davy Feasel and spouse, Grant Feasel former Seattle Seahawk

Cyndy Davy Feasel and spouse, Grant Feasel former Seattle Seahawk

Cyndy: Grant died in 2012. I miss who he was when we met in 1982.

14. Has anything helped you to accept your brain injury?

Cyndy: Raising awareness is helping to ease the pain of a lost life.

15. Has your injury affected your home life and relationships and, if so, how?

Cyndy: My family was destroyed.

16. Has your social life been altered or changed and, if so, how?

Cyndy: I was sad for years about the life I lost in the midst of Grant’s brain damage.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

(No answer)

18. What are your plans? What do you expect/hope to be doing ten years from now?

Cyndy: I intend to be an advocate who increases awareness about concussions and brain injury.

After the Cheering Stops by Cyndy Davy Feasel

“After the Cheering Stops” by Cyndy Davy Feasel

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Cyndy: Educate yourself! Please ask your doctor for his or her opinion about your child’s safety before your child plays a head-banging sport.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Cyndy: Seek knowledge! Find a group for support.

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Caregiver Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

 

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

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