TBI – Survivors, Caregivers, Family, and Friends

Survivors SPEAK OUT! . . . Alisa Marie

presented

by Donna O’Donnell Figurski

Survivor of Brain Injury
Alisa Marie

1. What is your name? (last name optional)

Alisa Marie

2. Where do you live? (city and/or state and/or country) Email (optional)

New Hampshire, USA

Truecolorsartist@gmail.com

3. On what date did you have your brain injury? At what age?

October and November 2012

But, my very first concussion was in 1998. I was 30 years old. 

4. How did your brain injury occur?

tenor

The event in October 2012 was a fall caused by vertigo. In November 2012, I was cleaning under the pool deck. I went to get up and banged my head, causing me to be knocked out. I don’t remember what happened in 1998.

5. When did you (or someone) first realize you had a problem?

My boyfriend at the time found me unconscious under the pool deck.

6. What kind of emergency treatment, if any, did you have?

I was taken to the Emergency Room, and I had rehab. I had to live with my parents for a while because they had to take care of me. I thought it was the year 2005 and my children were 5 and 10, but it was 2012 and they were 13 and 18. Also, I was going through a divorce, and my house was in foreclosure.

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I had occupational and physical therapies as an outpatient and speech therapy both as an outpatient and as an inpatient.

How long were you in rehab?

I’m not sure because I’ve been in a lot of rehabs for head injuries. I was in three in 2015. My last rehab was in 2018, as my last concussion was in 2017. (I slipped on clothes on my floor because my perception was off.)

9. What problems or disabilities, if any, resulted from your brain injury(e.g., balance, perception, personality, etc.)?

I struggle with many issues: balance, perception, personality, cognitive and executive functioning, memory, staying on task, aphasia, and impulsivity. It’s hard to make decisions and hard to be organized. I lost my independence. I lost my license for cognitive reasons back in December 2013.

Alisa Marie – Brain Injury Survivor

10. How has your life changed? Is it better? Is it worse?

I’m an artist, designer, and poet. I am also trying to have my own business, Alisa’s True Colors. I began melting Crayola crayons in 2013 when Emily, my younger daughter, showed me how to apply wax to canvas using a blow dryer and a fork.

This was helping me as art therapy, where I could take physical and emotional pain and turn it into something colorful and bright. It was all I could focus on for a while. I didn’t know it then, but the seeds of Alisa’s True Colors were being planted. It helped me learn and adapt to the new me. I was creating my ability out of my disability.

11. What do you miss the most from your pre-brain-injury life?

Freedom and independence

12. What do you enjoy most in your post-brain-injury life?

I have come to realize that we hold within ourselves the power to heal. I have learned we don’t need a superhero to save us; we need to be our own hero in our own story. We need not to be afraid to chase after our dreams. And, if one door closes keep looking for the open ones.

I am learning happiness, calmness, and patience. I am accepting the new me, and, with my limitations, I am finding new ways to adapt. I have let go of the past and my old ways of thinking of what I believed of myself.

I have gained wisdom, knowledge, self-confidence, and the courage to look fear in the eyes – to truly know that being a survivor means being a fighter and not to give up no matter how dark my world gets.

I want to awaken others to their true colors by helping them accept their new life after trauma – to help them heal through art.

13. What do you like least about your brain injury?

I dislike that I can’t stay on task or stay organized. I am forgetful, and I talk strange sometimes because I can’t remember the right word. I regret the loss of close family and friends who don’t understand.

14. Has anything helped you to accept your brain injury?

Art and poetry 🙂 

15. Has your injury affected your home life and relationships and, if so, how?

For a few years, I lost what empathy was. My emotions were all over the place. I had a lot of anger and resentment in me. You find your own “True Colors” with a brain injury or from a trauma where it can get very confusing when you are trying to find your true self. Unfortunately, the sad truth is that sometimes you see the “True Colors” of your loved ones. We can look fine on the outside, but no one can see our brain on the inside all messed up trying to find a new way of living.

16. Has your social life been altered or changed and, if so, how?

Yes. I have social anxiety at times, and I’m embarrassed when I talk and can’t find the words or when I can’t stay on task.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

Me, myself. and I

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to travel around the world with my story and products and to teach my art. And, I hope to also donate money to the Brain Injury Association of New Hampshire and other non-profit organizations.

I had to lose everything from suffering traumatic brain injuries due to repeated head injuries. I also had to deal with being diagnosed with viral meningitis in March 2015. Then in the year 2016, I lost my home, and all my personal belongings were discarded because of toxic environmental illnesses. I’m surviving by designing.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

This isn’t the ending to your life; it’s a new beginning. We all are creative. So, you just must keep trying new things, whether it be writing, poetry, drawing, photography, ceramics, embroidery, knitting, singing, or dancing. There is so much you can do – you are not your disability or a diagnosis a doctor gives you. I never gave up hope. I kept learning and reaching for my dreams when all I saw was darkness

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Every struggle, every life-lesson is a gift because it makes you go deeper into yourself to find your “true colors” – your inner strength, courage, wisdom, and confidence.

I want others to see and know that there is beauty in the darkness, that there is beauty in your pain and tears and heartache. There is beauty in the ashes. There is a rainbow after the storm. I hope people see my True Colors as a message of hope and faith and love, to give them the hope and courage and strength to show it is possible to overcome the battles we endure in this lifetime.

I never went to art school. I have no degree – just education from repeated concussions and my life-situations. My art saved my life and is continuing to do. It helps with built-up resentment, emotions, grief, and physical pain. Art teaches that you are a new person after your injury, and it teaches how to adapt to your new life. Art is my therapy. I take the physical and emotional pain I feel and I turn it into something beautiful and bright on the canvas.

3 Alisa Marie

Never give up!

To learn more about Alisa Marie, check out her website at Alisa’s True Colors.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

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Excerpt from Prisoners without Bars: A Caregiver’s Tale
in Sanctuary Magazine

presented by

Donna O’Donnell Figurski

Sanctuary is a magazine that seeks to be a catalyst for the inspiration and motivation of women. In their words, “Sanctuary is a community of like-minded women. We have evolved into a destination where our readers can find enrichment for body, mind and soul and where we can share the best of ourselves in order to inspire others.” I am proud to announce that Sanctuary Magazine has published an excerpt from my book, Prisoners without Bars: A Caregiver’s Tale by Donna O’Donnell Figurski.

Click book cover to read complete excerpt.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

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SPEAK OUT! Itty-Bitty Giant Steps

presented by

Donna O’Donnell Figurski

Itty-Bitty GIant Steps for Blog

SPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at donnaodonnellfigurski@gmail.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

Kathleen Lynx
Survivor of Brain Injury

Kathleen Lynx (survivor) … I just had to crow. It’s been nine years post TBI (traumatic brain injury), and I was able to sew a pair of PJ pants. They were originally going to be capris, but after a few errors, I have sleep pants. I goofed on measuring and had to put in eight inches of side panels so they would fit, but I finished them. It’s the first item I have sewn that fits. Yeah!

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

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Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

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YAY! I received the Book Excellence Award!

Prisoner without Bars: A Caregiver’s Tale
(a heart-wrenching, yet sometimes, hilarious love story)

presented by

Donna O’Donnell Figurski

FFI am incredibly excited to announce that I have been recognized as a Book Excellence Award Finalist for my book, Prisoners without Bars: A Caregiver’s Tale in the Caregiving Category.

Out of hundreds of books that were entered into the Book Excellence Awards competition, my book was selected for its high quality writing, design and overall market appeal. (Click Book Excellence Awards link above and scroll to page 21.)Happy Girl Book Excellence Award

Out of hundreds of books that were entered into the Book Excellence Awards competition, my book was selected for its high quality writing, design and overall market appeal.

To view my complete award listing, you can visit: Prisoners without Bars: A Caregiver’s Tale Book Excellence Honoree.

thThe book was released in 2018 and is about me, a “forever” caregiver for David, my high school sweetheart, best friend, and spouse after he had a traumatic brain injury. David was not expected to survive his three brain surgeries in January 2005, but he DID! Triple YAY!

Prisoners without Bars: A Caregiver’s Tale is perfect for survivors of brain injury and their family and friends. It will also appeal to anyone who wants to curl up and read a heart-wrenching, yet sometimes hilarious love story.

You can get a copy for yourself at:

Amazon

Barnes and Noble

Indie book store

All reviews and ratings are greatly appreciated at:

Goodreads

Amazon

Barnes and Noble

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.anim0014-1_e0-1

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SPEAK OUT! Itty-Bitty GIANT Steps – Nolan McDonnell

presented by

Donna O’Donnell Figurski

Itty-Bitty GIant Steps for Blog

 

 

SPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at donnaodonnellfigurski@gmail.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

Nolan McDonnell

 

Nolan McDonnell (survivor) … It might sound small, but I buckled up myself in the wheelchair van for my first time tonight. :

Wheelchair VanMan in wheelchair

 

 

You can learn more about Nolan McDonnell at his website:

Coach Nolan

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.anim0014-1_e0-1

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

 

 

SPEAK OUT! Itty-Bitty Giant Steps

presented by

Donna O’Donnell Figurski

 

Itty-Bitty GIant Steps for Blog

SPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at donnaodonnellfigurski@gmail.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

 

Sherrie Crusha – Brain Injury Survivor

Sherrie Crusha (survivor) … I haven’t been able to draw a whole picture since my TBI (traumatic brain injury), 31 years ago. I did my best one yet a couple of days ago.

Drawing by Sherrie Crusha

 

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

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Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

 

Brain Research in Mice May Lead to the Treatment of PTSD and Depression in Humans

presented by

Donna O’Donnell Figurski

A young Boston University professor, Steve Ramirez, a neuroscientist, has identified cells of a mouse brain that enhance the positive or negative scientist-clip-art-41a38614afbd47caca00c32a563f44defeelings of a memory.

Stimulating cells that enhance positive feelings can suppress or deaden the trauma associated with a bad memory. In contrast, stimulating cells that enhance negative feelings makes a bad memory feel worse.

The hippocampus in both the mouse brain and the human brain is the region of the brain responsible for storing memories, including all the details and emotions associated with them. Each memory activates a unique combination of cells of the hippocampus.  Some of the cells affect emotion and behavior.

mouse-clip-art-grey-pink-mouse-mdRamirez and his collaborators (including first author Briana Chen of Columbia University) used genetically engineered mice whose neurons glow when they’re activated. Those cells can later be artificially activated with laser light. The team found that a negative memory (like getting a mild electric shock to the feet) activates cells at the bottom of the hippocampus.  A positive memory (like being in the presence of a female mouse) activates cells at the top of the hippocampus.

They then were able to stimulate those same cells with a laser.  When the bottom cells of the hippocampus were activated, the mouse behaved (freezing and/or avoidance behavior) as if it were recalling the negative memory of the shock. Stimulation of the cells in the top region of the hippocampus reduced the avoidance response.51wUt-P+FKL._SL500_

This is basic research, but it is a significant first step in the eventual development of treatments for PTSD (post-traumatic stress disorder), anxiety, and depression.  (Full story)

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