TBI – Survivors, Caregivers, Family, and Friends

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Prisoners without Bars: A Caregiver’s Tale

presented by

Donna O’Donnell Figurski – author

Donna & David with ARC of Prisoners without Bars: A Caregiver’s Tale

 

My memoir, Prisoners without Bars: A Caregiver’s Tale, is not only a story of David’s and my struggles after his traumatic brain injury, but it is also a love story. Though my memoir addresses a dire topic, it is peppered with comedic situations. They say laughter is the best medicine, and again, they are right.

Prisoners without Bars is a heart-wrenching memoir that will make you laugh, cry, and G-A-S-P. I promise!

 

Boy Laughing

 

Girl Crying girl-crying-clipart-34

Girl Gasping 2

It’s not a beach read, but it reads like one. It’s fast! It’s easy! It’s fascineasy. I mean fascinating.

What Readers are Saying!

Jackie said – “A beautiful and touching story.”

Anonymous Amazon Customer said – “I loved this book. almost couldn’t put it down.

jlgwriter said – “I found the story powerful and compelling.

Todd & Kim said – “This is such an inspirational story of survival! The book is a very easy read and informative as well as inspiring!!”

Judy said – “Donna O’Donnell Figurski tells her story of grace, love, frustration, anger, disappointment, strength, joy, and above all hope.”

Marge said – “I read it in one fell swoop… I guess the word that would describe your book, your life, and who you are is SUPERCALIFRAGILISTICEXPIALIDOCIOIUS.”

Anonymous said – “This book pulled me in immediately and didn’t let me go until the end! ”

Helen said – “Could not put this book down. Written for easy reading. It was like having a conversation with a friend.” “I finished it in one day with some teary moments along with some chuckles. A must read!!”

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Survivors SPEAK OUT!

presented by

Laura Miller – Brain Injury Survivor

1. What is your name? (last name optional)

Laura

2. Where do you live? (city and/or state and/or country) Email (optional)

London, Ontario, Canada     brainsageyoga@gmail.com 

3. On what date did you have your brain injury? At what age?

My first motor vehicle accident that caused a TBI (traumatic brain injury) with memory loss was June 5, 2002. I was 28. 

4. How did your brain injury occur?

I was rear-ended while I was stopped at a red light. I woke up to people around me and looking at me. They didn’t help whatsoever. My vehicle was seized, and I was very unsure of everything. At first, I didn’t even know I had had an accident. I didn’t know anything about my personals, like phone numbers, etc. All I saw when I tried to think was blackness. I was so cognitively impaired that finding the right words was very difficult. I didn’t know what my past was. I had no awareness or memories of events in my life, my child, or my child’s father.

5. When did you (or someone) first realize you had a problem?

At work, the customers noticed. It was thought that time off would help. But I went to the doctors a few weeks later. I thought I was concussed. It wasn’t my first concussion, so I thought it would get better. But I wasn’t getting better. The concussion was responsible for humiliating incontinence at night. I incorrectly thought I could handle the headaches, the noise, not understanding the concept of time, and the daily forgetting to do my pre-TBI mom and wife duties. I had a high-volume job with a multi-million-dollar company, but I had no memory of how to conduct my managerial duties. Unfortunately, in the grief of my confusion, I resigned. To this day, I consider that to be one of the worst mistakes of my life. All because of my accident and the brain injury.

The doctor then set up MRIs (magnetic resonance images), CAT (computerized tomography) scans, and a few other appointments, and I found a lawyer as well. The lawyer set up neuropsychology testing. In the year following my accident, a diagnosis was made. I had a moderate traumatic brain injury (whiplash 3) with amnesia. I couldn’t remember how long the doctor had said it might take me to “heal” to my pre-TBI state. The neuropsychologist highly doubted I would ever return to my pre-TBI level of function. He said that, in his expert opinion, my brain injury was catastrophic and permanent. 

6. What kind of emergency treatment, if any, did you have?

I had no emergency treatment. I should have had first responders immediately, but I didn’t for some reason. But a legal case was set up soon after the accident. The lawyer had me take tests, and several people were involved: a nurse case manager, a rehabilitation therapist, and a physiotherapist. Therapy was scheduled for my neck and shoulder and for speech. (My stutter was pretty bad, and, when my breathing got in the way of thinking, the stutter would get worse. I would start crying when my breath stopped from the panic of having no thoughts. My neck injury meant that my tongue couldn’t lift properly to pronounce certain words.) My personal research indicated that I may have a neurological hairline fracture, which can affect several parts of the brain. If so, it could explain my symptoms. Also, I had already had a pre-existing severe frontal lobe concussion when I was a child. I and others thought that this may have been responsible for my learning difficulties – not the learning disability I was diagnosed with. But my new injuries in 2002 stopped my learning dramatically. My TBI made a mess of my life. Like many other survivors, I had to do combat with my insurance company.

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I had occupational therapy, a rehabilitation therapist, speech therapy, counselling, physio, massage, chiro, and gym. I had a team of about ten individuals. I feel to this day my therapy was very well organized. 

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I had many difficulties with balance and my gait at first. I had throbbing headaches. 

Smells would make me vomit. My heart felt like it was going to jump out of my chest. I had no sense of direction, and I was completely unorganized. I couldn’t lift my right leg fully to get into the tub or to walk, so I had assistants for the first few years. I slept in a chair for almost three years because I couldn’t sit up or roll out of bed.

10. How has your life changed? Is it better? Is it worse?

From 2002 to 2005, I had an additional three accidents, with a pregnancy loss in one of them. My marriage broke up. (I was married for ten years, but I had no memories of this marriage.) I was diagnosed as having clinical depression, and I was extremely suicidal. The medications helped neither. So, needless to say, my life got worse.

11. What do you miss the most from your pre-brain-injury life?

I don’t know. I have no clear memories.

12. What do you enjoy most in your post-brain-injury life?

I started having a better view of life with in-depth yoga. I also used my free time from being unable to work to see if maybe in the future I could become a teacher and be an inspiration to others in the brain injury and mental health communities. Yoga has the ability to calm the autonomic nervous-response system; calm the vagus nerve, which transmits information from the surface of the brain to tissues and organs elsewhere in the body; and chill out PTSD (post-traumatic stress disorder) and anxiety. (My anxiety was always heightened, but with my rehabilitation therapy of thought process, yoga, and meditation, my anxiety is now probably 50% controllable most days.)

13. What do you like least about your brain injury?

I dislike the grief. The grief of all my losses is still pretty hard for me.

14. Has anything helped you to accept your brain injury?

Not really, but I am doing work to try and accept my brain injury. My child is super-supportive and has been guiding me to be independent and to try a new way of life. I do yoga. I am going to neurology school. I now see that I am worthy of something in life. I work on acceptance multiple times a day.

15. Has your injury affected your home life and relationships and, if so, how?

Yes! My daughter and I still have struggles. She was under 10 when I was injured, and she had no true support other than her dad. I am thankful he was a good dad for her. Looking at her with no memory is a heartbreaking lens to deal with. As for romance, I haven’t had a real relationship since my divorce. I haven’t been in the right frame of mind. One day I hope the universe will align with my life and help me find true love.

16. Has your social life been altered or changed and, if so, how?

I don’t do much socially, mostly because of my PTSD and my financial situation. I’m integrating my yoga life into volunteer work.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My daughter helps me and assists me with the big decisions. I also have about five other family members who keep regular contact. Even though it’s difficult, they will help if needed. But it’s important for me to be in charge of my own care and to live independently. This helps with my depression.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I’m trying to see how this yoga business will work out for me. I want to do workshops and classes. Maybe I could work alongside a rehabilitation therapist for TBI patients. I am writing an autobiography. I’d like to better my financial situation so my child will be set just in case. And I hope to be in a loving forever relationship as well.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Talk! No matter the dark thoughts, talk! I wouldn’t be here now if I hadn’t been honest about my thoughts of suicide. Keep negative friends away. Participate, even when your mood doesn’t want to! Know that one day, things will click, and your life will begin to change for the better. Your responsibilities for daily living may seem overwhelming at times, but never stop planning. It can be a time saver. (I plan all my meals in advance and make them on the weekend. I save at least eight hours a week by having my meals already made.)

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Do yoga and meditate! Seriously, they’re life-changing.

Be educated on what depression medication does with TBI. (I plan to give a workshop on this topic.)

Stop repetitive thinking. (You can do this by smelling essential oils, having positive thoughts, or by doing deliberate simple actions, like moving a limb or picking up a picture.)

Learn how to breathe. (Proper breathing is so important to brain injury problems, like PTSD and anxiety.) I have a saying: “Once we own our breath, no one can steal our peace.”

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Donna O’Donnell Figurski

Survivors SPEAK OUT! Marcia Pelletiere

 presented by

Donna O’Donnell Figurski

4 Marcia Pelletiere

1. What is your name? (last name optional)

Marcia Pelletiere

2. Where do you live? (city and/or state and/or country) Email (optional)

New Jersey, USA

3. On what date did you have your brain injury?

June 2006

At what age?

52 years old

4. How did your brain injury occur?

I was stopped at a red light in the rain, when I was rear-ended by a Mack truck, since its brakes didn’t work well in the rain.4cf071c5aa7eb3f1cf526f24c8d8cdcf

5. When did you (or someone) first realize you had a problem?

Right away

6. What kind of emergency treatment, if any, did you have?

I went to the Emergency Room. They gave me pain meds and released me – without an MRI (magnetic resonance imaging) or any other scans or tests.

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

Yes. I had physical, visual, and cognitive therapies. (Outpatient only)

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

A balance problem, body pain, vertigo, visual perception issues, short-term memory loss, and many other things.R29bb7d92f62ec64ba9bd5ff941bbb04d

10. How has your life changed? Is it better? Is it worse?

After 15 years, my life is largely repaired. I learned a lot of valuable lessons. I credit some of the people who helped me with making my new life possible.

11. What do you miss the most from your pre-brain-injury life?

I miss being able to trust my brain to be reliable with dates and my eyes, with visual perception … things like that.

12. What do you enjoy most in your post-brain-injury life?

I appreciate what I have so much now. Everything is more precious.

13. What do you like least about your brain injury?

I dislike the way it caused me to spend so many years feeling disoriented and isolated. I was frustrated from not being able to communicate my inner “mess” and distress, from my visual and audio processing problems, and many other issues. Nowadays I live with only a few “leftovers” from the brain injury, and I’ve learned to manage those.

14. Has anything helped you to accept your brain injury?

My cognitive therapist was essential in my recovery. Also, my meeting other TBI (traumatic brain injury) patients was a huge help in accepting the reality of TBI.

15. Has your injury affected your home life and relationships and, if so, how?

Having a TBI is a strain on all relationships. Everything was much more difficult, and that made relaxed relating harder, to say the least!

16. Has your social life been altered or changed and, if so, how?

Now I prioritize my relationships and appreciate the support that family and friends and brain-injury caregivers gave me when I needed it most.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I have been a caregiver, and I have had caregivers, so I understand a lot about caregiving – and about caregiver burnout! I am my own caregiver now, thank goodness! (I function very well these days. I feel very lucky.)

18. What are your plans? What do you expect/hope to be doing ten years from now?

Marcia Pelletiere

Marcia Pelletiere’s books and recordings

I am doing what I want to do right now. I’m doing creative work; I’m also teaching; and I’m spending time with friends and family. In ten years, I hope to have enough health to still be doing creative work, to still be spending time with loved ones, and to be traveling.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.3 Marcia Pelletiere Survivor 2 Author 062021

Listen to your body. Make sure to keep trying to communicate what is happening, if you can. Find doctors and other caregivers who know about brain injury and who will listen to you and take your symptoms seriously. Check out problems (vision, balance, nausea, etc.) with neuro-optometrists and ENTs (ear, nose, and throat specialists).

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Every brain injury is different. You are the expert on what your brain injury feels like. Don’t devalue your own experience! Your input with doctors and others is important.

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Survivors SPEAK OUT! Danielle Skranak

 presented by

Donna O’Donnell Figurski

Danielle Skranak 1 051621

1. What is your name? (last name optional)

Danielle Skranak

2. Where do you live? (city and/or state and/or country) Email (optional)

Washington DC, USA

3. On what date did you have your brain injury? At what age?

October 26, 2014     I was 19.

4. How did your brain injury occur?

I fell during Army Basic Training.

5. When did you (or someone) first realize you had a problem?ce3f3b31921bb023c9c1c8c8dcbb8f34

It was witnessed by my entire company.

6. What kind of emergency treatment, if any, did you have?

I did not receive any emergency treatment.

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I did not attend rehab or have any other outpatient therapy.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I had long-term and short-term memory loss, vertigo, and aphasia.

10. How has your life changed? Is it better? Is it worse?

It’s neither better nor worse, just different. It made me become more independent, I suppose.

11. What do you miss the most from your pre-brain-injury life?

Easily remembering things and my memories 

12. What do you enjoy most in your post-brain-injury life?

Speaking about my injury and meeting other survivors 

13. What do you like least about your brain injury?

remember-note-wqq-hiI dislike how easily I forget stuff and having to constantly ensure I’m eating right – so my brain is working at its optimal capacity.

14. Has anything helped you to accept your brain injury?

Time, really. Nothing else has contributed. 

15. Has your injury affected your home life and relationships and, if so, how?

I was more easily manipulated. I was involved in a domestically violent relationship that did not end well.

16. Has your social life been altered or changed and, if so, how?Danielle Skranak 2 Ms Gilbert 051621

I used to easily trust people because so many wanted to help me, but I’ve since learned that you cannot trust everybody. That was a hard lesson for me to learn. 

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

N/A

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to be fully recovered and to help those who need help. Perhaps in the next few years, I will have earned my Juris doctorate.

Ra3aca9d8126fdc212dc543ced6b1071219. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

I wish I would’ve known early on that not everyone’s recovery is the same. Some are longer; some, shorter. There’s no magic pill you can take to make recovery shorter. 

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Take everything slowly. It’s not a sprint to recover.

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Holy Jumping Jugglers!

Remember when I told you I entered a children’s picture book contest, Spring Fling Kidlit Contest 2021? I had to write a story from scratch with only 150 words – no more!

I posted my story, BETSY’S RAINBOW BALLOONS, on Bookity Blog several weeks ago and forgot about it. Tonight one of my CPs (Critique Partners) sent me a message to tell me that I won an honorable mention for my story.

Holy Giggling Grasshoppers!

I can’t believe it. Just like my first graders always jumped for joy when they accomplished something fun, I am jumping for joy now. Yippee!!!

Holy Bopping Balloons!

Congratulations to the WINNERS and the other HONORABLE MENTIONS. Heck, congratulations to all who entered.

AND…. Drum Roll….THE WINNERS ARE!

A big RAINBOW thank you to the contest organizers, Kaitlyn Sanchez and Ciara O’Neal. What a lot of work!

Read more stories at Bookity Blog.

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COVID-19: Vaccines (Part 2 of 3): Protection by Antibodies is Only Part of the Story
by
Columbia University Professor Emeritus, Dr. David Figurski
presented by
Donna O’Donnell Figurski

(Disclaimer: The World Health Organization <WHO> has officially named the new coronavirus as SARS-CoV-2 and the disease it causes as COVID-19.  Because the majority of people, including much of the press, commonly refer to the virus as “COVID-19,” to avoid confusion, I use COVID-19 as the name of the virus.)

 

David H. Figurski, Ph.D & Survivor of Brain Injury

Vaccination against COVID-19 primes your immune system to be ready to use every defense it has to fight the virus. It stimulates the creation of a potent and specific defense tailored to fight the COVID-19 virus.

Vaccination has been shown to be amazingly effective. All three vaccines for COVID-19 that have been used in the US (Moderna, Pfizer, and Johnson & Johnson) are 100% effective in preventing both hospitalization and death.

When people think of vaccination, they usually think only of antibodies. But this ignores the stimulation of an equally potent arm of immune system.

The bottom line is that vaccination (1) stimulates the production of antibodies that bind to the virus to prevent infection and (2) creates and activates “killer” T cells that destroy cells that have been infected.

Because antibodies are only part of the defensive power of your immune system, no one should be worried about variants, despite hysterical articles by a largely ignorant press.  We should certainly continue to monitor variants, but there is nothing to be worried about yet.  The antibodies are less able to block virus, but they still work.  Importantly, the killer T cells are unaffected by any variant.

The T cell response after vaccination against COVID-19 is as potent as the antibody arm of the immune system.  Some people cannot make antibodies, yet they do well after infection by COVID-19.

Some facts:

Your immune system is composed of two parts.  A first line of defense (Innate Immunity) acts immediately against any foreign substance.  It is non-specific.  After about a week, a specific and more potent immunity (Adaptive Immunity) has developed. The adaptive arm uses antibodies and T cells.

Vaccination stimulates your adaptive immunity, so the antibodies and T cells are ready before infection.

Scientists don’t yet know how long the anti-COVID-19 antibody levels remain high, but data show that antibodies have remained high for six months so far.  You may need to get vaccinated every year, as you do for the flu virus.

The antibody level will eventually go down, but your immune system maintains a few “memory cells” of the antibody-producing cells. These cells make antibody-producing cells immediately after infection.  So your immune system is fully armed in 2-3 days.

I strongly urge you to listen to minutes 6:25-22:00 of the interview TWiV 736 <March 28, 2021>of Dr. Alessandro Sette, a world-renowned expert on T cells and COVID-19 from The La Jolla Institute for Immunology, by Dr. Vincent Racaniello, a virologist and expert on COVID-19 from Columbia U.  Dr. Sette gives a basic explanation of T cells, the response to COVID-19, and vaccination.

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Survivors SPEAK OUT! Annie Ricketts

presented by

Donna O’Donnell Figurski

Annie Ricketts – Survivor of Brain Injury

1. What is your name? (last name optional)

Annie Ricketts

2. Where do you live? (city and/or state and/or country) Email (optional)

Isle of Wight, United Kingdom

3. On what date did you have your brain injury? At what age?

July 23, 2000    Age 36

4. How did your brain injury occur?

I flew off a horse.

5. When did you (or someone) first realize you had a problem?

I was diagnosed with a severe TBI (traumatic brain injury) in the hospital.

6. What kind of emergency treatment, if any, did you have?

None! On the day of the injury, I was left in the waiting area alone and unconscious for four hours. The next day, I was taken back to the hospital by ambulance and admitted. I had no scan – no observational tests were taken at all. I was sent home three days later without seeing a specialist.

7. Were you in a coma? If so, how long?

I was unconscious after the accident, but never in a coma.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

As an outpatient, I had occupational and speech therapies from year 5 to year 6.5 post injury. These therapies were repeated in years 10, 14, and 18.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

My problems are complex and multiple, but there is no visible physical impairment.

10. How has your life changed? Is it better? Is it worse?

It is fabulous!

11. What do you miss the most from your pre-brain-injury life?

Nothing

12. What do you enjoy most in your post-brain-injury life?

Living life with a purpose

13. What do you like least about your brain injury?

My executive-function impairments intrigue and fascinate me. There is nothing I like least. I accept everything and continue to work on improving.

14. Has anything helped you to accept your brain injury?

I had a total loss of self-awareness, so I didn’t ever have any problems with acceptance. It is a different journey.

15. Has your injury affected your home life and relationships and, if so, how?

My family didn’t understand – it took a lot of time. Now, I get a lot of understanding and support.

16. Has your social life been altered or changed and, if so, how?

I have been isolated since the injury, and I want to remain this way. I had a normal social life before.

17.Who is your main caregiver?

My daughter.

-Do you understand what it takes to be a caregiver?

Yes, absolutely.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to be doing what I am doing now – only less hours!

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Annie Ricketts – Brain Injury Survivor

Neuroinflammation starts straight after injury. It is like a switch being flicked ON. For many people, this inflammatory response continues until it is addressed. Research shows it can last upward of 17 years post injury. If you would like to know more about this and how inflammation creates and exacerbates symptoms, please visit globalbia.org.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Take care of your body – it is connected to your brain.

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Long COVID and Children
by
Columbia University Professor Emeritus, Dr. David Figurski
presented by
Donna O’Donnell Figurski

 

(Disclaimer: The World Health Organization <WHO> has officially named the new coronavirus as SARS-CoV-2 and the disease it causes as COVID-19.  Because the majority of people, including much of the press, commonly refer to the virus as “COVID-19,” to avoid confusion, I use COVID-19 as the name of the virus.)

David H. Figurski, Ph.D & Survivor of Brain Injury

It has been accepted that the infection of teens and children with COVID-19 rarely results in significant symptoms, but it’s worrisome that they may be as susceptible as anyone else to a recently identified effect of COVID-19 – a syndrome called “long COVID.”

Children with the virus often show no signs of infection, and sometimes they (and their parents) are not even aware that they have been infected.  Contrast that with the experiences of the very old.  Infection of the elderly often leads to severe disease and can result in death.  Nobody has yet been able to explain how age results in the radical difference in sensitivity to the effects of the virus.

Doctors and scientists are also unable to explain the onset of the delayed symptoms of long COVID.  In one study, 10-13% of children who knew they were infected thought they had recovered.  They tested negative for the virus, and most of their symptoms were gone. In some cases, there were several weeks of good health. But weeks or months later, they showed new symptoms. (Adult symptoms include fatigue; fever; cough; sore throat; chest pain; shortness of breath; neurocognitive problems with memory, concentration, processing, or finding words; diarrhea; headaches; insomnia; dizziness; heart palpitations; abdominal cramps, rashes; tinnitus; joint pain; depression; and anxiety.) The symptoms may last weeks or months, and some people still have symptoms after several months.

Particularly worrisome is the fact that mild or asymptomatic acute infections can still lead to long COVID.  This means that children, who were thought to be unbothered by infection, are, in fact, sensitive to long COVID.

I haven’t seen the data, but I suspect that the 10-13% number came from people who either had an obvious symptom or tested positive.  If we include the number of asymptomatic infections, the percentage of infected children who get long COVID will likely go down significantly.  If you and your children are using masks and social-distancing, then you’re already at a low risk of even getting infected.

The bottom line is that this virus still shows surprises. It’s definitely too early to relax.

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Prisoners without Bars: A Caregiver’s Tale

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COVID-19: Vaccines Part 1 of 3: If Enough Get Vaccinated, Society Can Return to Normal

by
Columbia University Professor Emeritus, Dr. David Figurski

presented by

Donna O’Donnell Figurski

(Disclaimer: The World Health Organization <WHO> has officially named the new coronavirus as SARS-CoV-2 and the disease it causes as COVID-19. Because the majority of people, including much of the press, commonly refer to the virus as “COVID-19,” to avoid confusion, I use COVID-19 as the name of the virus in this post.)

David H. Figurski, Ph.D & Survivor of Brain Injury

Vaccination is happening on a large scale in the US. President Biden has said that all adults can be vaccinated by the end of May.

Amazingly, in one year, three vaccines have been approved by the FDA (Food and Drug Administration). A fourth is ready, and more are close to finishing their clinical trials.

Why get vaccinated? 

Everybody knows that you will protect yourself from serious disease, so there will no longer be the risk of hospitalization and/or death.

The amount of virus in the body will be lower (and sooner at zero), so you are less likely to infect a sensitive person.

And there is a major benefit to everyone – most people don’t consider this.

Some people are irrationally worried about the vaccines and will not get vaccinated. This is a problem because vaccination is not just a personal decision. The entire population – vaccinated and unvaccinated – is adversely affected.  Let me explain.

When 70-80% of the people become immune, the pandemic will be defeated. (The virus will still be around because the 20-30% who are not immune will allow the virus to stay with us – but in lower amounts.  The 70-80% number comes from virologists (including Dr. Fauci) who understand that the population achieves “herd immunity” at that level.  Herd immunity will allow us to get back to normal – no lockdowns or self-quarantining, no avoiding contact with other people, no social-distancing, and no masks.

So if we want to get back to normal, we need to achieve herd immunity.

There are two ways to become immune – (1) infection with the virus and (2) vaccination.  Infection is iffy and dangerous.  Vaccination is guaranteed.

The former President was sometimes influenced by Scott Atlas – a notoriously incompetent COVID-19 Task Force member. Atlas was convinced that the best way to achieve herd immunity was to let everybody get infected.  The first problem is the number of deaths that policy would cause. (At a death rate of 1%, infection of the 330 million people in the American population would lead to 3.3 million deaths.) The second problem is that some infections (probably some of the asymptomatic infections) lead to poor immunity that’s not protective.  We know that some individuals who have recovered from COVID-19 have no antibodies to the virus. (The “innate” immune system – our first line of defense – was probably good enough.)

Vaccination is guaranteed to provide protective immunity.  FDA approval is based on a vaccine’s protective effect in the clinical trial.  (The Phase III clinical trial involves ~30,000 people.)

A decision to be vaccinated benefits not only you, but also everyone.  

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

Prisoners without Bars: A Caregiver’s Tale

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Do You Know Someone with a Brain Injury? I Do!
presented
by
Donna O’Donnell Figurski 

Chances are you know someone who has suffered a traumatic brain injury (TBI.) More than 1.7 million Americans each year sustain a brain injury.  I personally know five people who are living with some form of TBI. In fact, I’m living with one.

My husband, David, had his brain injury in 2005. A professor friend of ours from Brigham Young University has one. So do my nephew, an actor/director friend from my local community theater, and the husband of my friend, Judy.

A brain injury can occur in the blink of an eye. Brain injury is not discriminating. It cares not about color, race, or creed. It can happen to a child or an octogenarian and everyone in between. A child may fall off his bike or off her swing.  A teenager may meet up with a TBI on the soccer or football field or a gymnastic mat. Car and motorcycle accidents are common causes of traumatic brain injuries. An assault in a dark alley or domestic abuse in your home can result in brain injury too. One can even have a traumatic brain injury while exercising (e.g., while doing chin ups in the wee hours of the morning after doing Tai Chi while listening to Deuter or some other new age CD). David did!

Like snowflakes, no two brain injuries are the same. Each survivor is different too and each method of healing is unique to the person who is struggling to regain his or her former life. With a lot of hard work, patience, and persistence many survivors can enjoy a “new normal” life.

Check out this article, Facts About Traumatic Brain Injury, for more information.

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Survivors SPEAK OUT! Meghan Beaudry

presented by

Donna O’Donnell Figurski

Meghan Beaudry – Brain Injury Survivor

     1. What is your name? (last name optional)

     Meghan Beaudry

     2. Where do you live? (city and/or state and/or country) Email (optional)

     Houston, Texas, USA        meghan_wang@yahoo.com

     3. On what date did you have your brain injury? At what age?

     In 2009, I developed lupus, an autoimmune disease, that turned into brain inflammation. I was      twenty-two. Five years later, in 2014, I had another severe brain inflammation flare in which I forgot both how to walk and much of my past.

4. How did your brain injury occur?

Lupus is an autoimmune disease.

5. When did you (or someone) first realize you had a problem?

I first realized something was wrong when I began to struggle in grad school.

6. What kind of emergency treatment, if any, did you have?

A female Doctor.

A female Doctor.

I had a difficult time getting diagnosed, so I did not receive treatment the first year I was sick. I saw seven doctors before I was diagnosed with lupus. 

7. Were you in a coma? If so, how long?

No.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

No.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have some short-term and long-term memory loss. While I don’t have noticeable balance problems, I have a poor sense of balance for someone my age.

10. How has your life changed? Is it better? Is it worse?

My life has changed in many ways since I’ve survived brain inflammation. In some ways, it has improved. I’m more fearless and confident. Because living with brain injury and lupus takes up so much energy, I have little energy for negative thoughts and people who might hold me back

11. What do you miss the most from your pre-brain-injury life?

I miss being able to memorize information quickly and with little effort.

12. What do you enjoy most in your post-brain-injury life?

I never would have started writing if I hadn’t developed a brain injury. It’s been an honor to be able to share my experience so that others with brain injuries can feel less alone.

13. What do you like least about your brain injury?

I dislike the fatigue that comes with lupus, as well as worrying that I will have a memory slip when speaking, presenting, or performing.

14. Has anything helped you to accept your brain injury?

What has helped me let go of my grief is understanding that, while living with brain injury is not a choice, grief is. I’d rather only live with one chronic condition than with two.

15. Has your injury affected your home life and relationships and, if so, how?

It took a while for my family to accept that my abilities and needs were different after my diagnosis. My second episode of brain inflammation led to my divorce because my husband was emotionally unable to handle it.

16. Has your social life been altered or changed and, if so, how?

I’ve been lucky to know friends who understand my limitations, especially because of the fatigue I experience daily. In many ways, brain inflammation has deepened many of my existing friendships.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

When I was very sick and bedridden with the second brain inflammation flare, my mother-in-law moved into my house to take care of me. Her selflessness and positive energy were huge factors in my recovery.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to have published a memoir about my experience.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

I use my phone to help me remember everything. There are so many apps to help you keep track of your life.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Always remember that the lowest point in your injury/life is not the point at which you will stay forever.

 

Get Your Copy Now

Read It! Review It! Listen to It!

 

Click Links under Book

PAPERBACK!   Read it Now!     e-BOOK!   Read it Now!

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Stay Safe and Healthy!

Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

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