TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘motor vehicle accident’

Survivors SPEAK OUT! . . . Pamela Ann Taylor

Survivors SPEAK OUT!   Pamela Ann Taylor

presented 

by

Donna O’Donnell Figurski

 

Pamela Ann Taylor Survivor 092417

Pamela Ann Taylor – Brain Injury Survivor

1. What is your name? (last name optional)

Pamela Ann Taylor

2. Where do you live? (city and/or state and/or country) Email (optional)

Mansfield, Ohio, USA     Teach621@aol.com

3. On what date did you have your brain injury? At what age?

Age 55

4. How did your brain injury occur?

I have been in three accidents in my life. The last one was a rollover.

5. When did you (or someone) first realize you had a problem?

I had some issues with balance and vision after the second accident, but more recently it has become far worse. This is due to the rollover-accident.

6. What kind of emergency treatment, if any, did you have?0016

I was transported to a Trauma Center in an ambulance, where they found I had a concussion. I was released and told to go home. They had done some tests, but, because they had given me pain meds, they thought that I was throwing up due to the meds and not the concussion. I was throwing up in the wheelchair all of the way to the car, but they still sent me home.

7. Were you in a coma? If so, how long?

N/A

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I have had occupational, physical, and speech therapies.

How long were you in rehab?

My first round of physical therapy lasted a few months and helped somewhat with back pain, neck pain, and headaches. I am now in rehab again. I have been going for about four months, and I’m still working with an Occupational Therapist and Physical Therapist. Speech therapy did not last as long. I found these places myself through searching and asking my doctor for referrals. A general doctor in my area seemed not to know of TBI (traumatic brain injury) treatments much at all. Be a self-advocate if you can.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have issues with vision, balance, perception, and personality. I’m more aggressive – things escalate more easily. My eyes are like that of a 6-month-old baby – not coordinated.

10. How has your life changed?

I cannot work and cannot drive. I have no income (as the disability stuff is still in process), and I don’t know when I will get an income. I do not go to crowded places or shop for long in fluorescent lighting. I have lost connection with some friends, as I cannot get to them to visit now, etc.

Is it better?

I am home more.

Is it worse?

I get bored, and at times I’m lonely. I wish I could go out to lunch or drive to a friend’s house.

11. What do you miss the most from your pre-brain-injury life?

I miss feeling like I make a difference in the world. I used to travel and do missions work, but now, without an income and a way to get myself to the locations to serve, it is a real challenge to help others. It is forcing me to focus more on myself.

12. What do you enjoy most in your post-brain-injury life?no-noise-1

I do enjoy the solace in that I cannot tolerate noise, etc. much anymore. I am finding ways to write like I used to, and I am finding more time to pray, which I do like.

13. What do you like least about your brain injury?

People don’t understand – I don’t look sick.

14. Has anything helped you to accept your brain injury?

I’ve been helped by prayer and focusing on those who love me unconditionally. Baby steps forward bring joy as well.

15. Has your injury affected your home life and relationships and, if so, how?

The house is more organized and cleaner (LOL). I have made a new friend through needing a driver to take me to therapy sessions. She is a real gem.

16. Has your social life been altered or changed and, if so, how?

My social life is near nil. I can’t get to the places I used to go to.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I do most things for myself, but the financial burden is all on my husband. I would rather it be 50:50 like it used to be.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to be able to travel again. I am beginning to work on my physical healing, including walking more, etc. I have put on weight and need to get back in shape. I also see myself being with my grandchildren more. I hope to be able to drive to local places and get out more with them and others I care about. I am beginning to blog, and I’m hoping that takes off and helps others. Perhaps I will publish another book one day. (I had a book coming out when the accident happened under a pen name – Phoebe Siylor; the book – Molding Sharon.)

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Pamela Ann Taylor & dog

Pamela Ann Taylor – Brain Injury Survivor

I would tell you to be an advocate for yourself or your loved one. Seek out what you need. It does not seem as if those in the medical field know what to do. I should have stayed at the hospital and not gone home. Also, I should have been told about therapy and not had to find it on my own. Seek, and you will find some answers. It is a process, and it takes time. Be patient, and keep moving forward.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Find a therapist who knows how to help you. If he or she does not seem to be the right fit, move on. When people comment things, like how long do you expect me to support you in the system, remember that you paid into that system, and it is your right to get help if you need it. Don’t let them kick you down – rise up and be strong. It is hard, but you can do it. Pray – connect with a church and with God – He will always love you unconditionally. I fall back on Him a LOT.

 

HUGZ

You can learn more about Pamela Ann Taylor on her blog. Pamela Ann Taylor Blog.

 

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

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Survivors SPEAK OUT! … Jo Dalton

Survivors SPEAK OUT!   Jo Dalton

presented

by

Donna O’Donnell Figurski

Jo Dalton – Brain Injury Survivor

1. What is your name? (last name optional)

Jo Dalton

2. Where do you live? (city and/or state and/or country) Email (optional)

Switzerland

3. On what date did you have your brain injury? At what age?

Age 28

4. How did your brain injury occur?

Traffic accident – head-on collision at 50 mph

5. When did you (or someone) first realize you had a problem?

My car was smashed up, and it was obvious that I was injured. My husband was driving his car behind me and was terrified that I was dead.

medical-helicopter6. What kind of emergency treatment, if any, did you have?

I was helicoptered to the Emergency Room. I became very agitated, and it took three men to get me into the helicopter.

7. Were you in a coma? If so, how long?

Yes. Around 45 minutes

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I was released from the hospital after five weeks: three weeks in one hospital and two weeks in another. I remember very little of it. My physical therapy was five weeks with a couple of “islands of memory.” I had some neuropsychology, although I don’t remember it. At the second hospital, I believe I had some physiotherapy. At two months post TBI (traumatic brain injury), I saw the treating-neurologist from the first hospital. That doctor said that I “could go back to work and forget all about it”! The treating-doctor from the second hospital saw me as an outpatient, and she was not happy. She organized six neuropsychology appointments for me. That was the only rehab I had.

9. What problems or disabilities, if any, resulted from your brain injury (e.g., balance, perception, personality, etc.)?

Initially, I had phobias about closed doors and the dark. My balance was a little out. I was told by one psychiatrist that my personality caused depression and insomnia; by another, that if I was tired, I would sleep. I found it incredibly hard to teach – I had forgotten everything I learned in college and in five years of teaching. I felt I had lost my identity. I was assessed by a neuropsychologist recently. I was told that I am slow to respond, that I have aphasia, that I get tired very quickly, and that I don’t deal well with stress.

10. How has your life changed? Is it better? Is it worse?girl_teaching

I was an ambitious, full-time, Primary School teacher. I loved my job, and I was studying for a Master’s Degree in Education to achieve promotion. Because of my brain injury, it was impossible to continue either. I was confident and outgoing. I was enjoying living in a new country (I’m English, and I wanted some experience abroad). My life has changed entirely, but not all for the bad. I appreciate the small things in life (for example, fresh air, my dogs, reading (though it’s harder now to concentrate), clean bedding, and the beauty of nature (quite easy to appreciate here in Switzerland!). I also appreciate my friends and see the importance of supporting other people.

11. What do you miss the most from your pre-brain-injury life?

I miss quite a lot really! I miss the ambition and energy that I had, the love of my job, and my independence.

12. What do you enjoy most in your post-brain-injury life?

I enjoy getting outside with my dogs, exercising, and being involved in forums to help TBI survivors.

13. What do you like least about your brain injury?

I dislike the fact that I am slow; that I have insomnia and depression, for which I’ve been taking benzodiazepines and antidepressants on and off for the last sixteen years; and the inability to have children unaided – my periods stopped and have only restarted since I stopped work. I’ve miscarried five times – presumably due to stress. I wanted to have two children, but I am lucky to have the one daughter whom I do have.

clock-clip-art-4ib4bm5ig14. Has anything helped you to accept your brain injury?

Time! To me, it’s the biggest healer. Time passing has put things into perspective and allowed me to accept that I cannot have my life back as it was. But, there are other things I can do. I am currently in the process of making a claim for help from the state, and if I receive an allowance, I would like to work with just one dyslexic student.

15. Has your injury affected your home life and relationships and, if so, how?

Thankfully, I am extremely lucky to have a supportive husband and family. I found out who my true friends are, and I am lucky that they have been so much help. The ones who weren’t were clearly not really friends.

Jo Dalton - Brain Injury Survivor

Jo Dalton – Brain Injury Survivor

16. Has your social life been altered or changed and, if so, how?

For the first five or six years after the accident, I didn’t really have a social life – talking to more than one person was impossible. I became tired very quickly and had to leave, straight away. I was not keen to have too much noise around me. I spent quite a lot of time watching films in my apartment, as I was not keen on going out during the day. I live in a French-speaking area and lost a lot of confidence with language. In the last two years, I’ve rediscovered the need for a social life. I go out a couple of times a month, easier since I stopped work after a seizure in September 2015.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My husband is my main caregiver. We are both currently coming to terms with what this has meant for both of us at different stages in my recovery. He is now seeing a psychologist to give him some direction and help.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I would like to be doing dyslexia tutoring on a small scale, raising awareness of TBI by talking in schools, and perhaps doing some voluntary work.

18. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

As a survivor, you need to educate yourself, accept that recovery is a long, long haul, and find online support. We are talking years of recovery. And, hard as it is to hear, it is very unlikely that you will get back to how you were. On the other hand, the strength you gain from dealing with life after a brain injury is enormous and empowering. I would also say that you shouldn’t accept what every doctor tells you. Very few “get” brain injury, and you must not allow anyone to make you feel that it’s your fault in some way.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

See my answer above. Also, know that [time] + [acceptance] = [ease in life]. Oh, and don’t push yourself too far, too fast. It doesn’t produce good results, as I’ve discovered!

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

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(Photos compliments of contributor.)

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SPEAK OUT! . . . . . . . . . . . . . Guest Blogger . . . . . . . . . . . . . . . Karen Dickerson

Never Give Up!

by

Karen Dickerson

presented by

Donna O’Donnell Figurski

Girl Blogger cartoon_picture_of_girl_writingOn March 2nd, 2014, I was involved in a car accident that changed my life forever. My speech was slurred; I couldn’t read; I couldn’t even write my own name.

dickerson-karen-survivor-120315-1

Karen Dickerson – Brain Injury Survivor

Two months after my accident, I was so proud to write my name again that I signed divorce papers I couldn’t comprehend. I also signed so that my brain injury wouldn’t be used to take my children away. For fifteen years, I was married – and in an abusive relationship. I had three children, and I was left with nothing. Not even child support. I had lived a fairly comfortable life, financially speaking. I just wanted out and couldn’t take the confusion of court proceedings, but yet I couldn’t understand why. Everyone said I looked “normal.”

I struggled to feed my children. I swallowed my pride even when I was standing in line at a food pantry. I walked dragging my left leg to my speech, physical, and occupational therapy sessions, thinking that my leg problem would just go away in a few weeks. A friend helped me buy a car with what little money I had. I spent a few cold nights sleeping in it, confused as to where I was, what I was doing, and when my next appointments were. I’d yell at anyone who crossed my path – losing friendships. Family left me all alone. I fought with my auto insurance company for my rights in a no-fault state, and, after several months, I finally received compensation for wage losses.

I’m not sure how it happened (as things are a complete blur at times), but I finally found a good doctor and a nurse case-manager to help me. I was put into a neuro rehab program an hour away from home. (I had to let my children go live with their dad.) Seven days a week, I learned basic living skills and tried to control my anger and frustrations and emotional outbursts. I had constant legal issues, as I was beginning to realize that what I had signed in my divorce was not what I thought. The settlement was not good for me. As a result, I had to fight for my children and for child support. After a few battles, I won their support! After getting through those struggles, I finally realized I needed to take this TBI (traumatic brain injury) head on and fight to get my life back.counsleing

I was angry that I couldn’t do the simple things a child could do, and I was frustrated that I had tested intellectually as lower than high-school level. As hard as it was, I learned coping skills to control my damaged frontal lobe and to try to focus. After my rehab program ended, I moved back home to be with my children. I went to all my therapies (three times a week) and to numerous tests and doctors. I got my kids to and from school every day. I learned how to cook again. After almost two years, I was finally beginning to live a somewhat normal life again. I was even able to meet a wonderful, humble, and understanding man. What were the chances that his own brother-in-law had a TBI? The new man in my life knew exactly what I was going through and accepted my flaws and deficits.

I then started to get interested in learning about this misunderstood injury. I attended the BIAMI (Brain Injury Association of Michigan) meetings in Lansing, Michigan. Using social media as a tool, I advocated and educated others. Hearing good vibes from all over the country and the world, I began to realize how many people just like me were out there. I had to do something about brain injury, as I was so misunderstood and I was tired of being called “crazy.”social-media

I began to excel in all my therapies, which moved me into vocational training. I was asked to put my résumé together. I did – I looked at it and saw that I never had the opportunity to go to college. I was a single mom at nineteen, and I married someone who wouldn’t allow me to grow. I could have gone back to real estate, but how was that helping people? I could have returned to the ophthalmology career that I had for years, but I was limited by the small area I live in. I had already worked for the one surgeon, but he told me that he didn’t trust me with his patients anymore because of my TBI.

th-1As hard as occupational therapy was for me, it was also fun. I gained friendships with my occupational and speech therapists. Even if I couldn’t do their tasks that day, they were still there for me to talk. They comforted me and encouraged me to keep on going. I looked into the OTA (occupational therapy assistant) program and thought Why not see if I can try it? With my disability, there should be some accommodations, and, after what I’ve been through with so many occupational therapy sessions, I thought I might just know a little about it!

I took the test and was accepted to Baker College! (Two years and five months post TBI.) I went to orientation yesterday and teared up as I walked on campus.

Karen Dickerson - Brain Injury Survivor & College Student at Baker College

Karen Dickerson – Brain Injury Survivor & College Student at Baker College

As I sat in a loud room with others picking their classes, I struggled to drown out the noise, as audio is still a daily struggle. The abbreviations and so much on the class schedule – even with military times, were problematic. I thought for one second I can’t do this. Then I remembered all those times I did “do it,” and I focused and got my class schedule done. At 39 years old, a TBI survivor, a domestic-abuse survivor, and a mother of three, I am a college student!

This program is offered near Grand Rapids, Michigan, over three hours away. As I checked in, I met the president of the college, and he noted where I was living. All I could say was, “I’m going to do this.” It is in my heart. God has gotten me this far. I will NOT give up!

SPEAK OUT! . . . . . . . . . . . . . Faces of Brain Injury . . . . . . . . . Natalie Collins (survivor)

SPEAK OUT! Faces of Brain Injury – Natalie Collins (survivor)

presented

by

Donna O’Donnell Figurski

Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

Natalie Collins - Brain Injury Survivor

Natalie Collins – Brain Injury Survivor

Natalie Collins (survivor)

I am officially two years away from the day of my car wreck. My “new birthday” was a few weeks ago. So much has changed in my life. I see life so differently than most people. I know what it’s like to face death. That changes who you are. Not only do I have memory problems, trip all the time, have constant headaches, and have less proficient reading and comprehension skills, but also emotionally I’m a different person. I’m less tolerant of things that don’t make me happy. There’s a dark side as well. Total recovery isn’t ever expected to happen. I’ve lost many friends, found out who my real friends are, and have been in roseneed more times than not. (I try to do things on my own, but I have accepted that I need assistance with some things. I attempt to hide that part of this traumatic change in my “new” life.) I understand life isn’t always pleasant. It’s “a bunch of roses,” and roses have thorns. I get stuck many times, but I simply walk away. This is part of the change. Overall, I’m just me.

Thank you Natalie Collins for sharing your story.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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SPEAK OUT! . . . . . . . . . . . . . Guest Blogger . . . . . . . . . . . . . . . Deb Angus – Just Blew Me Away

Just Blew Me Away …

by

Deb Angus

presented

by

Donna O’Donnell Figurski

 

Girl Blogger cartoon_picture_of_girl_writingMy husband and I used to be avid bicyclists all throughout the trail system here in Calgary (in Alberta, Canada). Sometimes we would be out and about for the whole day, putting on as much as 50 km (31 miles). Mostly this was back in ‘83 to ‘88. Then we bought a house. The trail system wasn’t as good in that neighbourhood. As a result, we only went sporadically over the following years.

Even that came to an end in 2001, when I sustained a TBI (traumatic brain injury) at the hands of a distracted driver who hit us while we were stopped at a red light. Because of ongoing balance issues, I no longer had the desire to ride my bike again. (So sad the things we lose because of TBI.)

Deb Angus - brain injury survivor and author of “Regaining Consciousness: My Encounter with Mild Brain Injury--the Silent Epidemic"

Deb Angus – brain injury survivor and author of “Regaining Consciousness: My Encounter with Mild Brain Injury–the Silent Epidemic”

Then in 2006, I had an idea about someday getting myself an adult tricycle. That way I would not have to worry about my lack of balancing skills – especially when you have to do a shoulder check (scanning over your shoulder without making the bike swerve). But because we were then living in apartments, storage was an issue. My dream of getting a trike never came to fruition … until this year!

My husband was diagnosed with stage IV colorectal cancer in March 2015. He died April 1, 2016. It has been pretty rough. We had been together for 37 years. I have also been dealing with my own kidney failure since August 2013, and I do peritoneal dialysis every night for 8-9 hours. The waiting list for a transplant in our province is 6-8 years, so I have a ways to go yet. With my husband’s passing, I wanted to start doing things that would get me outside more often and be more active. I also wanted to do something to keep me busy for our wedding anniversary and my birthday, which were coming up on June 30. So I came up with a grand idea that if I could find a “folding” trike, I could then store it in the back of my car. And that is exactly what I’ve done. I wasn’t able to find such a trike locally, so I had to mail-order one and put it together.

Deb Angus - Brain Injury Survivor and her Trike

Deb Angus – Brain Injury Survivor and her Trike

On my very first ride, I drove down to the area of the city where my husband and I used to live back in ‘86 and ‘87. Talk about a trip down memory lane! Within seconds of riding my trike, I felt like I was 32 years old again – whizzing down the tails we used to ride with wind blowing through my helmet and hearing the birds singing and chirping along the way. The freedom I felt at being able to ride again … was fantastic! Then tears came to my eyes because my husband wasn’t here to enjoy this with me …. But as I was heading back to the car after about an hour of riding, I noticed in big letters written in chalk on the asphalt trails the words Love U. I knew then that my husband was there in spirit. I felt that he was so proud and happy that I had finally managed to get my trike and that I will enjoy many more great rides.

 

Thank you, Deb Angus.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Deb Angus.)

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Survivors SPEAK OUT! . . . Gretchen

Survivors SPEAK OUT! Gretchen

presented

by

Donna O’Donnell Figurski

Gretchen - Brain Injury Survivor

Gretchen – Brain Injury Survivor

1. What is your name? (last name optional)

Gretchen

2. Where do you live? (city and/or state and/or country) Email (optional)

Louisiana, USA

3. On what date did you have your brain injury? At what age?

I had just turned 20.

4. How did your brain injury occur?

My brain injury is from a car accident. My best friend was driving. I was sitting on the console and flew into the backseat. The driver was ejected, and she was killed instantly. Another friend with us, who was sitting in passenger’s seat, just had stitches.

5. When did you (or someone) first realize you had a problem?

I was medevacked to a hospital right away and stabilized. I was then flown to a larger hospital. I knew one of the emergency responders, and he said he recognized my brain injury from the way I was breathing. I was also erratic and trying to move and fight and get up, but I had a head injury. Another responder told me that he had to almost lie on me to keep me still.

6. What kind of emergency treatment, if any, did you have?

I had a PEG (percutaneous endoscopic gastrostomy) tube (to add nutrition directly into the stomach), a halo brace (a metal ring attached to the head and shoulders to immobilize the spine) because I had a broken neck (fracture of the C2 vertebra), a tracheotomy, and the usual IVs and ports.

Gretchen with Halo Brace

Gretchen with Halo Brace

7. Were you in a coma? If so, how long?

Yes. I was in a coma for three and a half weeks.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

Yes. I had some physical therapy, but mostly I had cognitive therapy. I had both inpatient and outpatient rehab.

How long were you in rehab?

Inpatient rehab was about a week. Outpatient rehab was for several weeks (a couple of times a week).

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have no physical problems; they’re mostly cognitive. I have some personality changes. My family has voiced this to me. I have no control over it, but I do feel it, and I feel so uncomfortable with it. I’m not happy and confident and wonderful. That doesn’t come naturally to me anymore.

10. How has your life changed? Is it better? Is it worse?

Worse. I am almost always anxious and uncomfortable.

11. What do you miss the most from your pre-brain-injury life?

I miss my friend and my carefree and happy self.

12. What do you enjoy most in your post-brain-injury life?

I guess I just have to enjoy living life. That’s all I have. I take it one day at a time.

13. What do you like least about your brain injury?

My brain injury took a part of me that I was happy with – my confidence and my peace. I hate that about it.

14. Has anything helped you to accept your brain injury?

I just do. I have to accept it.

15. Has your injury affected your home life and relationships and, if so, how?

My relationships have definitely been affected – both romantic and friendship. I fought the change with my boyfriend at the time, but he recognized it. We ended up breaking up after several years. My friendships are also different. I find it difficult to talk and keep in conversation. It’s hard to find stuff to say to people I was so close to before. It makes me so uncomfortable, although it could also be from our drifting apart naturally. It’s like I feel cold to them, but I don’t intentionally try to act that way.

16. Has your social life been altered or changed and, if so, how?

Yes. I’m so anxious all the time. I’m very uncomfortable with myself.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My aunt was my caregiver right after I got out of the coma. I am my own caregiver now. I live on my own. My dad has to work, and my mom didn’t feel comfortable doing it. We live right next door to each other, though.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I want to be happy. I have a degree in English. I hope to write more. I have been published twice, but I haven’t gotten back an email or a response. I was a French major, but I lost it all after the accident. I was heartbroken.

Gretchen - Brain Injury Survivor

Gretchen – Brain Injury Survivor

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Nothing I can think of

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Take it one day at a time, and don’t be hard on yourself. Love yourself. Again – don’t be hard on yourself!

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

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(Photos compliments of contributor.)

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SPEAK OUT! . . . . . . . . . . . . . Faces of Brain Injury . . . . . . . . . Bob Bernardi (survivor)

SPEAK OUT! Faces of Brain Injury –  Bob Bernardi (survivor)

presented

by

Donna O’Donnell Figurski

Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

 

Bob Bernardi - survivor

Bob Bernardi – survivor

Bob Bernardi (survivor)

Recently was an anniversary. It’s been 24 years since that terrible day back in 1992, when I lost control of my car and suffered my traumatic brain injury. Needless to say, I have experienced a lot of life’s lessons – both good and bad. I am still here, and I have accepted my standing in life, but that is not to say that I am not a fighter. If I feel that something is not right with my care or if I have questions, then believe me when I say I am going to express my concerns or ask my questions! I have had the very best in medical care and some of the worst, and, for that reason, I will not just “go with the flow.” I am sure that most of you know that, when the human brain is hurt and damaged, that alteration is an alteration to “us.” Our brain is “us.” Just trying to get back to our original selves is what we strive for. I know I can be a pain to many of my friends outside of the brain-injury community with how I view everyday life. But all that we have shared in the brain-injury community make us friends. I know that I depend on their views. I would be lost without the brain-injury community, and for that I am thankful!

 

Thank you Bob Bernardi for sharing your story.

 

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

 

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