TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘SPEAK OUT!’

Covid-19 — It’s Everywhere . . . . To Open or Not to Open

COVID-19 . . . To Open or Not to Open

by

Columbia University Professor Emeritus, Dr. David Figurski

presented by

Donna O’Donnell Figurski

COVID-19

David H. Figurski, PhD — Brain Injury Survivor — Professor Emeritus of Microbiology & Immunology — Columbia University

 

Some governors say “Open.” Scientists say “Don’t open.” Whom do you believe?

I’m a scientist.  I know where I stand.

Below are some facts to help you decide.

For those of you in the west, the coronavirus infections have just begun.  You can see from the map of May 19 (see below) that infections are still moving westward.

Coronavirus Map – New York Times – 05/19/20

Many people, particularly those in the west, don’t seem to understand that the US is still in the early stages of this pandemic. They are lulled by the low number of cases in their state. The numbers are misleading for two reasons.

(1) Only seriously symptomatic (mostly hospitalized) people and celebrities are being tested because the US is seriously in need of more testing.  (2) The virus has not reached you yet. (That’s the especially true in the western half of the US.)

New York City is still very bad, but strict social-distancing guidelines have produced a significant drop in new cases.

Washington State had the potential to become a major hot spot, but they acted quickly and aggressively.

In contrast, several states are opening up and relaxing guidelines, despite a continued rise in new cases.  (That’s the case here in Arizona, where Governor Ducey allowed restaurants to open this week. This decision is particularly horrifying because the pandemic hasn’t really reached us yet.)

Reported cases in the United States

(Every red dot represents a cluster of infections – probably started by an infected asymptomatic traveler.  Right now, most cases are in the east, but every day you see more red dots in the western half of the US.)

David H. Figurski, Ph.D & Survivor of Brain Injury

Stay Safe and Healthy!

 

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COVID-19 . . . It’s Everywhere! Columbia University Professor Emeritus, Dr. David Figurski Talks about Coronavirus

COVID-19 . . . It’s Everywhere!

Columbia University Professor Emeritus, Dr. David Figurski

Talks about Coronavirus

by David Figurski, Ph.D

presented by

Donna O’Donnell Figurski

 

coronavirus-covid-19-design-vector

Because the COVID-19 pandemic has affected everyone, including the brain injury community, I have added a new category called “COVID-19” to this blog. This category is for posting much-needed information and facts on the new coronavirus and the global pandemic it has caused.

The major reason I added the COVID-19 category is that I have unique access to a survivor of brain injury who is knowledgeable about this pandemic.

David Figurski

David H. Figurski, Ph.D & Survivor of Brain Injury

For 35 years, my husband, David, was a professor and did research in the Department of Microbiology & Immunology at Columbia University. He retired on September 1, 2013. In January 2005, David had a cerebellar hemorrhage. He survived a three-week coma and three brain surgeries in the first two weeks of his coma. Unfortunately, he was left with many physical disabilities, but his cognitive brain was untouched, allowing him to return full-time to the faculty after 19 months. (Those 19 months are described in detail in my book Prisoners without Bars: A Caregiver’s Tale.) For 45 years, David did research on the molecular genetics of various microorganisms, including viruses.

02 Fork Yield Banner copyTo allow you to be introduced to David, I am reposting the link to my radio show of April 19, 2020, on the Brain Injury Radio Network called,  “Another Fork in the Road: BI Survivor/Columbia Prof Dr. David Figurski & Covid19.” (The link first appeared in my post on May 4, 2020.) David was my guest, and I interviewed him about his brain injury and about COVID-19. (Our discussion of COVID-19 begins at 49:50.)

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On the Air: . . . . . . . . . . . . . . . Guest: Dr. David Figurski

On the Air: Guest: Dr. David Figurski

presented by

Donna O’Donnell Figurski

David Figurski

David H. Figurski, Ph.D & Survivor of Brain Injury

 

Dr. David Figurski, retired professor of microbiology, talks about his brain injury and COVID-19

I don’t often publicize my radio show on the Brain Injury Radio Network, but one of our brain injury survivors is knowledgeable about the COVID-19 pandemic, which I’m sure is on your mind.  Like me, you probably have lots of questions.

My guest on the April 19th show was my husband, Dr. David Figurski.  David has been living with several physical disabilities since January 2005, when he had a brain hemorrhage, but, fortunately, after three brain surgeries in two weeks, he was unaffected cognitively.  For 35 years, including eight years after his traumatic brain injury, David was a professor in the Department of Microbiology & Immunology at Columbia University, where he also had a research lab.  David has done research on bacteria and viruses for 45 years.  Unsurprisingly, he has been very interested in the new human coronavirus and the global pandemic it has caused.news-clipart-news-anchor-4

My 80-minute show was live on April 19th, but it was recorded and can now be listened to at any time as a podcast.  My interview of David has two parts.  From 9:30 to 49:50, David and I talk about life with his brain injury.  From 49:50 to the end, David and I discuss the COVID-19 pandemic.

To Listen Go To:

SPEAK OUT! On the Air with . . . Brain Injury Radio Show Menu “Another Fork in the Road”

blogtalkradio.com/braininjuryradio/2020/04/20/another-fork-in-the-road-bi-survivorcolumbia-prof-dr-david-figurski-covid19

 

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Caregivers SPEAK OUT! Harriet Hodgson – Caregiver and Author

Caregivers SPEAK OUT! Harriet Hodgson (caregiver for husband)

presented by

Donna O’Donnell Figurski

(Author of Prisoners without Bars: A Caregiver’s Tale)

 

Harriet Hodgson – Caregiver for her husband, John – Author of many books.

1. What is your name? (last name optional)

Harriet Hodgson

2. Where do you live? (city and/or state and/or country) Email? (optional)

Rochester, Minnesota, USA      harriethodgson@charter.net

3. What is the brain-injury survivor’s relationship to you? How old was the survivor when he/she had the brain injury? What caused your survivor’s brain injury?

I cared for my mother, who had been a brilliant woman before her Vascular Dementia. At the time, nobody knew mini-strokes continued to spread.

4. When did you begin care for your brain-injury survivor? Were you the main caregiver? Are you now? How old were you when you began care?

I started caring for my mother after she was found wandering in a department store. Interestingly, my mother called from Florida to tell me this story. “The clerk told me cars are parked outside the store.” In my fifties, I moved my mother from Melbourne, Florida, to Rochester, Minnesota, to care for her.

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

I wasn’t caring for anyone else at the time.

6. Were you employed at the time of your survivor’s brain injury? If so, were you able to continue working?

Yes. I was a freelance writer. Continuing to write was difficult. My mother lived with us for a month, while her apartment in an assisted living community was being readied for her. If I sat down at the computer, she stood behind me and literally breathed down my neck.

7. Did you have any help? If so, what kind and for how long?

I moved my mother into an assisted living community. Also developed a weekly schedule of care: shopping day, medical/dental day, errand day, out to lunch day, etc.

8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

On a frigid night, when the temperature was 35-below and the wind chill was 50-below, my mother called and said she was going back to Long Island to be with friends. All of the people she mentioned were deceased. I called her physician, and he wrote orders sending her to nursing care, a locked ward.

9. Was your survivor in a coma? If so, what did you do during that time?

No coma. Profound confusion.

10. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? How long was the rehab? Where were you when your survivor was getting therapy?

No rehab. There was no way to fix my mother’s mind.

11. What problems or disabilities of your brain-injury survivor required your care, if any?

Complained to management. Social services came and evaluated her. Mom couldn’t answer any of the questions on the Mini Mental Status Exam. Worse, she said, “My daughter put me in here.”

12. How has your life changed since you became a caregiver? Is it better? Is it worse?

Years later (maybe ten), caregiving took over my life. I’ve cared for three generations of family members: my mother, my orphaned twin grandchildren, and now my husband, who has a spinal cord injury. This prompted me to write a series of books for family caregivers.

13. What do you miss the most from pre-brain-injury life?

I miss the freedom of my old life and being able to do what I want. Am also physically and emotionally tired.

14. What do you enjoy most in post-brain-injury life?

Being even closer to my husband. We are devoted to each other.

15. What do you like least about brain injury?

I hate the unpredictability of brain injury. For example, my mother would call my phone number repeatedly and hang up repeatedly because she didn’t recognize my voice.

16. Has anything helped you to accept your survivor’s brain injury?

Learning about Vascular Dementia and writing have helped.

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

Eventually my mother’s brain shut down. She couldn’t read, couldn’t speak (grunts), didn’t recognize me, and thought I had come to harm her. This was heartbreaking.

Harriet Hodgson – Caregiver and Author; Dr. John Hodgson

18. Has your social life been altered or changed and, if so, how?

I don’t really have a social life.

19. What are your plans? What do you expect/hope to be doing ten years from now?

My plans are to care for my husband until one of us dies. Both of us are 84 years old.

20. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add? 

Be kind to yourself, and be on the lookout for Compassion Fatigue.

 

If you would like to learn more about Harriet, please visit her website;

Harriet Hodgson

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Survivors SPEAK OUT! . . . Thomas Hopkins, Jr (Tommy)

Survivors SPEAK OUT! . . . Thomas Hopkins, Jr (Tommy)

presented

by Donna O’Donnell Figurski

Tommy Hopkins, Jr Survivor of Brain Injury

 

 

1. What is your name? (last name optional)

Thomas Hopkins, Jr.

2. Where do you live? (city and/or state and/or country) Email (optional)

Mountain Home, Idaho, USA (originally from Wisconsin)

3. On what date did you have your brain injury? At what age?

I was 19 years old.

4. How did your brain injury occur?

I have had several head traumas that led to my brain injuries. I’ll discuss the main ones. I have two injuries from February 2003. The first was due to a JDAM bomb (Joint Direct Attack Munition – a guidance kit that converts unguided bombs into all-weather precision-guided munitions). The second was from an explosion in a unit I was working with. In 2006, on my 4th tour, I had gotten a hammer to the head. I do not recall this incident at all. My fourth injury was in May 2007. I was still on my 4th tour. Our camp got morning RPG/mortar hits. The shop I was working in had one hit close by that shook the shop. The 40-lb. equipment I was working on fell over and hit me in the back of the head.

5. When did you (or someone) first realize you had a problem?

I started noticing issues after my first injury back in 2003 – daily headaches, ringing in my ears, light sensitivity, plus I would invert numbers.

6. What kind of emergency treatment, if any, did you have?

Due to the units I was in, I did not get treatment. I’ll rephrase that – due to the units I was part of, unless you lost a limb, your sight, etc. or your life was in danger, you were not allowed to seek medical treatment.

7. Were you in a coma? If so, how long?

No coma

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I started seeking help once I got out of the army. I started at the VA (medical care at hospitals of the Veterans Administration). It was not the best outcome.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have convergence insufficiency (a condition in which your eyes are unable to work together when looking at nearby objects, creating double or blurred vision),

photophobia, daily headaches that turn into migraines, and constant tinnitus. One doctor said I have damage to the autonomic and limbic systems in my brain. Other doctors have said that I don’t even have a brain injury! (LOL) I have no concept of time; I experience jerks (involuntary muscle movements); I search for words; my speech is slurred; my brain often won’t let me get my words out; and I have a poor memory. I do not feel 60+% of my body, and my lower limbs do not work a lot of the time. “Partial Para” is what they call it. At times, I need to be in a wheelchair.

10. How has your life changed? Is it better? Is it worse?

Worse

11. What do you miss the most from your pre-brain-injury life?

I miss my memory. It used to be photographic.

12. What do you enjoy most in your post-brain-injury life?

Retirement (LOL) … Driving my wife nuts (LOL) … Um, working my brain in different ways to work on problems and situations that come up in my hobbies

13. What do you like least about your brain injury?

I’m not Johnny-on-the-spot anymore. I miss my memory. My body is going to shit.

14. Has anything helped you to accept your brain injury?

MY WIFE. Even though most of my injury is “invisible,” she showed me that I also have physical scars that I and others can see.

15. Has your injury affected your home life and relationships and, if so, how?

Yup. That’s a very long answer.

16. Has your social life been altered or changed and, if so, how?

Yup. We lost a lot of friends and family because I was not the same Tommy I was before I was brain-injured in the war.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

Tommy Hopkins, Jr. Brain Injury Survivor
Caregiver – Kristina Hopkins

MY WIFE! I have a rough idea of some of what she does for me, but I have no clue of what all she does.

18. What are your plans? What do you expect/hope to be doing ten years from now?

My “plan” is to maintain what I have and live each day as if it is my last.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Yes. You have to adapt to your new self. That old person is gone. I had to realize I will never be as I once was, BUT I am still able to do most things with adaptation.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

My advice: Good days come and go. Work with the day you have because you don’t know what tomorrow will bring.

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(Photos compliments of contributor.)

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Past Blast – “Guest Blogger … Ken Collins – 38 Tips for Living with a Brain Injury”

Past Blast  (originally published December 29, 2014)

SPEAK OUT! Guest Blogger: Ken Collins

(Host on the Brain Injury Radio Network)

offers

38 Tips for Living With a Brain Injury

 

Boy Blogger thOn December 31st, I will have lived with a traumatic brain injury for 38 years. I have used several strategies for co-existing with and minimizing the effects of my TBI. I know now that the brain-injury recovery process is ongoing and that there are four major areas to work on during recovery: (1) Getting Organized, (2) Being Responsible, (3) Following Through, and (4) Moving On. I learned a lot over the years, and I want to share my experiences. I have listed 38 tips (one for each year) that could be helpful to you.

 

1. Regain trust in yourself and in others.

2. Try not to be critical of mistakes you make. In the early years of your recovery, there will be too many of them to count. Learn from these mistakes and move on.

3. Find purpose and meaning in your life again. This will make it easier to get out of bed in the morning. Having a sense of purpose and meaning will give you something to live for and will help you feel worthwhile, help motivate you, and improve your recovery process. You will start feeling better about yourself.

4. Keep stress and anxiety to a minimum every day. Reducing stress and anxiety will Stress free zoneincrease your self-esteem and make life easier. Stress and anxiety trigger the fight-or-flight response in the mid-brain. You don’t have any control over this response because it is part of the Emotional Nervous System. When the fight-or-flight response is activated, it increases confusion and makes it harder to process information.

5. Regain your self-confidence and self-respect.

6.Be proactive.

7. Stay focused, calm, and relaxed as much as possible. This will make it easier to think, and you become less dependent on others to remind you. Becoming more responsible for yourself will build good habits on your part and will improve your self-esteem and self-confidence in the long run.

8. Get a large calendar. Put it up on your wall and use it. Make sure it’s in a location where you will always see it. An iPad (or clone), a smart phone, or a note pad with a calendar and alarm does the same thing. A calendar will also relieve stress and anxiety by helping you stay on task and not forget.

Key rack9. Get a key-holder and put it by your door to put your keys on when you come home. Do this every night so you won’t have to look for your keys in the morning. Starting your day off on the right foot will make your day easier and help to relieve stress and anxiety.

10. Make a “To Do” list to help you stay organized. iPads, iPhones or other smart phones, and note pads work wonders with this. The list will help you and make you feel good about yourself.

11. Making a list before you go shopping will save you money by cutting down on impulse-buying. It will also help you become more responsible and less dependent on others. Being less dependent on others improves your self-esteem.

12. Get lots of rest, and slow down. Many times we try to do too many things at once, and nothing gets done. Sleeping on an issue or concern can be the best way to help you figure it out. Getting enough rest will give you valuable energy to think better and solve difficult situations. Sufficient rest will also relieve stress and anxiety.

13. Set up a routine and stick to it. A routine will make it easier for you to follow through with what you have planned for the day. By doing the same thing every day, you will start building trust in your capabilities again.

14. Eat healthy foods, and get lots of exercise. Doing these things will help you get the blood with its oxygen circulating to your brain.Healthy Foods

15. Get a dog and take it for walks. In my case, I have nine dogs, and they take me for a walk every morning and night! They also give me the unconditional love and companionship I need to feel good about myself and be happy.

16. Find ways to relax that aren’t counterproductive to your well-being. Abusing alcohol and drugs to “relax” is counterproductive. Long walks, yoga, and Tai Chi are much better for you and will make processing and problem-solving much easier. Stress and anxiety will be reduced.

17. Be patient.

18. Pay attention and become an active listener. Actively “hearing” what people have to say is more important than passively “listening” to what they say. Watch their body language. When I get distracted, sometimes it is harder to understand what a person is saying. Stay relaxed and focus. Take deep breaths – nothing works better than getting oxygen-filled blood to your brain.

19. Be around positive people and people who care about you. Nothing is more depressing than listening to someone who’s always complaining about his or her life or about what is going wrong in the world. Become active. Don’t just sit around hoping things will get better. Quit talking about a problem, and do something about it instead.

20. Don’t take criticism personally. When people don’t understand things, they criticize them. Constructive criticism can make you a better person in the long run.

21. Keep an open mind. Remember that your family and friends want to help, but sometimes they don’t know how. Many people don’t understand what you are going through, so don’t hold them responsible for this.Breathe

22. Stay calm; stay relaxed; take deep breaths; and move on!

23. Be careful of those you hang out with because they will set the stage for how you act. Friends who judge others and criticize you aren’t “friends.”

24. Grudges will only hold you back. They will be like anchors and keep you from being able to move on.

25. Lighten up on yourself, your family, and friends who want to help you.

26. Worry less and smile more.

27. Be content with what you have. Others have it much worse than you.

28. Find ways to stay active and be less isolated. Get out of your head and into the outside world.

Never Give Up29. Don’t give up – embrace adversity. Have adversity give you the resolve it will take to get better and improve your life. This will be up to you and no one else. People will be there to help you, but all of the work will be up to you. Use it or lose it!

30. Take ownership of your recovery. Remove the word “can’t” from your vocabulary.

31. Life is hard for most people. Life after a brain injury will definitely be hard, but not impossible. It will get easier over time – be patient! Make the best of every day and move on.

32. Thinking too much about a problem or issue can cause depression. This will trigger the fight-or-flight response, and you will be like a dog chasing its tail.

33. Be good to yourself.

34. Don’t take life too seriously.

Ken Collins for Blog

35. Don’t let the little things get you down. When you think about them too long, they seem bigger than they really are.

36. Don’t beat yourself up over things you can’t control. This will only increase your stress and anxiety and trigger the fight-or-flight response.

37. Be happy with yourself and don’t try to live up to others’ expectations.

38. Most importantly – don’t set unrealistic expectations for yourself. Be strong. Find hope – because with hope, anything is possible!

Stop by the Brain Injury Radio Network to hear Ken. His show airs every 1st Thursday of each month from 5:00p to 6:30p Pacific Time.

Thank you, Ken Collins.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

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Survivors SPEAK OUT! . . . John Bradshaw

Survivors SPEAK OUT! . . . John Bradshaw

presented

by Donna O’Donnell Figurski

 

1. What is your name? (last name optional)

John Bradshaw

2. Where do you live? (city and/or state and/or country) Email (optional)

Apple Valley, California, USA

3. On what date did you have your brain injury? At what age?

July 4, 2012     Age 56

4. How did your brain injury occur?

Car accident

5. When did you (or someone) first realize you had a problem?

The impact was immediately known to be serious. I was in a coma at the scene of the accident.

6. What kind of emergency treatment, if any, did you have?

I was air-lifted from the scene of the accident. My condition was assessed. I had CT (computerized tomography) and MRI (magnetic resonance imaging) scans, and I was put on a respirator.

7. Were you in a coma?

Yes

If so, how long?

Deep coma: 1 week; sleep coma: 3 weeks

8. Did you do rehab?

Yes

What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I had my therapies – occupational, physical, and speech – both as an inpatient and as an outpatient.

How long were you in rehab?

My therapies basically lasted 1+ years. I still do physical therapy every year to help with balance and strengthening.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have problems with balance and perception. I have a personality disorder, a mood disorder, memory-loss, and nervousness, to name a few issues.

10. How has your life changed?

There is no normal. Every day is different.

Is it better?

No

Is it worse?

Yes

11. What do you miss the most from your pre-brain-injury life?

In general, I miss knowing where I am, my quick train-of-thought, and my memory.

12. What do you enjoy most in your post-brain-injury life?

I enjoy the people I have connected with through support groups and rehab.

13. What do you like least about your brain injury?

I dislike not knowing things in general and not understanding why I am like this.

14. Has anything helped you to accept your brain injury?

Yes. Jesus sent me back to let everyone know he and his father are alive. They love us, so it doesn’t matter what church you go to. They want to see us come home.

15. Has your injury affected your home life and relationships and, if so, how?

Yes

16. Has your social life been altered or changed and, if so, how?

Yes. I find it very difficult to interact with others now.

17. Who is your main caregiver?

My wife

Do you understand what it takes to be a caregiver?

No

18. What are your plans? What do you expect/hope to be doing ten years from now?

I have no plans for the future. I take it one day at a time.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

(No answer)

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Life will never be the same. Take it one day at a time, and believe it does get better with time. My wife’s favorite reminder motto is: “I am not what has happened to me … I am what I choose to become.”

 

 

(Photos compliments of contributor.)

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