TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘blogtalkradio.com/braininjuryradio’

Caregivers SPEAK OUT! . . . . Carol . . . (for her husband, Andy)

Caregivers SPEAK OUT!

Carol (caregiver for her husband, Andy)

presented by

Donna O’Donnell Figurski

 

Carol1. What is your name? (last name optional)

Carol

2. Where do you live? (city and/or state and/or country) Email? (optional)

Toronto, Ontario, Canada

3. What is the brain-injury survivor’s relationship to you? How old was the survivor when he/she had the brain injury? What caused your survivor’s brain injury?

Andy is my spouse. He was 53. He was in a motorcycle accident on his way to work.th

4. On what date did you begin care for your brain-injury survivor? Were you the main caregiver? Are you now? How old were you when you began care?

I began care the day of the accident. I was in the hospital every day for eight to ten hours waiting for Andy to wake up. We finally came home after five months. I became his full-time caregiver, and I still am. I was 50; I just turned 52.

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

No

6. Were you employed at the time of your survivor’s brain injury? If so, were you able to continue working?

Yes. I was working full-time, but I resigned after the accident.

7. Did you have any help? If so, what kind and for how long?

We were lucky to have a full team of therapists. But, we had no support-workers because Andy felt that the people were invading his privacy.

8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

Immediately. I was in the hospital every day to give my husband moral support and the healing effect of touch.

9. Was your survivor in a coma? If so, what did you do during that time?

My husband’s coma was induced. I was in the ICU (intensive care unit) with him all day. Holding his hands. Playing his music.e799afda1f4dee4bd0c8c6e0606325b1

10. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? How long was the rehab? Where were you when your survivor was getting therapy?

My husband was admitted to rehab for almost three months. It was exceptionally long. But, he was not in a position to benefit from all the therapies. He suffered from seizures, and the medication made him tired. He slept most of the days. I was at rehab with him all day. I tiptoed out for coffee breaks, but I didn’t go far.

11. What problems or disabilities of your brain-injury survivor required your care, if any?

I help with Andy’s problems with gait, balance, cognitive functions, memory, and emotional lability (involuntary, sometimes inappropriate, emotional displays of mood, which are overly rapid and exaggerated). I take care of meals, finances, housekeeping, and Andy’s soiled beddings. After continuing physio three times a week, Andy found that his gait and balance improved. The problem with his urinary tract got better on its own. I still accompany him to all his therapy sessions because of his memory problem.

12. How has your life changed since you became a caregiver? Is it better? Is it worse?

Life has become simpler. No running after unnecessary things. This gave me the chance to notice more, and I realized that there all lots of kind and helpful people around the community. Our roles changed – I have to deal with the house and finances.

13. What do you miss the most from pre-brain-injury life?hotel-clipart-transparent-background-4.png

We travel together two or three times a year. Andy was the one who used to plan and book the trips and accommodations. I miss him sharing his ideas about everything.

14. What do you enjoy most in post-brain-injury life?

Being with him. Seeing the progress every day. Listening to his fears and seeing him happy.

15. What do you like least about brain injury?

A lot of people are not aware of TBI (traumatic brain injury). I myself never heard of it until my husband was diagnosed as having a TBI. It has drastically changed his life. I have to deal with all the house work and repairs. I have to make the final decisions.

16. Has anything helped you to accept your survivor’s brain injury?

Yes. Andy used to tell me that there are no regrets in life. Everything is done through our own decisions. We cannot say “What if … ?”No Excuses

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

Yes. My role is now changed. My two children and I miss Andy’s ideas, suggestions, and guidance.

18. Has your social life been altered or changed and, if so, how?

Yes. I have become overprotective. I don’t want to leave my husband alone. My friends are all working, so not only is there no time to meet, but it’s also not easy for me to leave the house without him.

volunteers19. What are your plans? What do you expect/hope to be doing ten years from now?

I would love to volunteer and help other people.

20. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add?

Be patient; time heals. It’s a learning process to both the survivor and the caregiver. And, it’s absolutely worthwhile! It changed my perspectives in life.

 

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it (intact) with your enemies. I don’t care!

Feel free to “Like” my post.

 

 

 

Advertisements

SPEAK OUT! NewsBit . . . . . Blood Test Developed for Brain Injury

Blood Test Developed for Brain Injury

presented

by

Donna O’Donnell Figurski

 

th-1The Centers for Disease Control has reported that traumatic brain injury (TBI) accounts for more than 2.5 million visits to emergency rooms (ERs) in the US every year. Many people with a concussion do not even go to the ER because they have no symptoms and don’t believe that the ER can diagnose a brain injury if it’s not serious enough to be detected by a number of indirect tests. A CT (“cat”; computerized tomography) scan is usually ordered if a brain injury is suspected, but only 10% of CT scans detect a brain injury in people with a mild head injury.

thA quick, sensitive, and accurate blood test will soon be available for ERs EmergencyRoomto know if the brain has been injured. Some people will be negative. They will not need a CT scan and can go home with no worries. Others who are asymptomatic may actually discover that they’re positive for a brain injury. The ER doctor can then take appropriate action.

An objective blood test will be a game-changer for the treatment of TBIs. An obvious difference is that it will make many CT scans (and their radiation) unnecessary. On the other hand, people, especially those with a mild concussion, may discover they do have a brain injury and take appropriate steps. (Full story 1, 2)

 

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it (intact) with your enemies. I don’t care!

Feel free to “Like” my post.

Sneak Peeks for Prisoners

My book, Prisoners without Bars: A Caregiver’s Tale, will be released to the public on November 1, 2018 by WriteLife Publishing of Boutique of Quality Books Publishing Company. Here are pre-order links for Barnes & Noble and Amazon.

Excerpt 4

Chapter 4

Unthinkable Odds

presented by

Donna O’Donnell Figurski

Crazed Woman

… I must have looked like a zombie. I stood mute, wringing my hands, breathing out and in and out again. I didn’t know what to do. I felt paralyzed. Brain SurgeonMy permission was needed to operate on my husband’s brain. How could I give it? How could I allow Dr. Hulda to ­work on my husband’s beautiful, smart brain? …

 

Please leave a comment/question. I will respond.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Please follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it (intact) with your enemies. I don’t care!

Please “Like” my post.

Survivors SPEAK OUT! . . . . Cheri Marie Johnson

Survivors SPEAK OUT! Cheri Marie Johnson

presented by

Donna O’Donnell Figurski

 

Johnson, Cheri Marie Survivor 101717 2

1. What is your name? (last name optional)

Cheri Marie Johnson

2. Where do you live? (city and/or state and/or country) Email (optional)

Hayward, Wisconsin, USA

3. On what date did you have your brain injury? At what age?

September 11, 2016      I was 24.

4. How did your brain injury occur?

I fell down 27 stairs.

5. When did you (or someone) first realize you had a problem?

I was out with my dad. A person from the establishment saw me fall instead of going to the restroom. The doors to the men’s room and ladies’ room were right next to each other, but I was found at the bottom of the stairs – unconscious. So, I was life-flighted to North Memorial Hospital. It was the best TBI (traumatic brain injury) ICU (intensive care unit) near me.

6. What kind of emergency treatment, if any, did you have?

I was in an ambulance, put on a back board, given a neck brace, and brought to Spooner for a life-flight.air-rescue-clipart-14-1

7. Were you in a coma? If so, how long?

I was in a coma for three weeks in North Memorial and then put on the general floor. I was sent to Miller-Dwan in Duluth, Minnesota (of Essential Health-Duluth). I was in another coma for three weeks because I was still bleeding in my brain. It was swollen, so they couldn’t do surgery. They said I wouldn’t have lived.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

When I was sent to Miller-Dwan, it was for inpatient occupational, physical, and speech therapies. I was there for four days and then put into another coma after the coma I was in in the ICU. I had a tracheostomy, and, two weeks later, I was put on the general floor for three weeks. There I had occupational therapy, physical therapy, and speech therapy. Now I’m in speech therapy. I talk differently, and I have a hard time breathing from the intubation. I am also in occupational therapy. I have bad posture, and it’s hard to breathe that way.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have bad balance. (I recently fell out of the shower.) I am being put on life-alert (helps contact emergency services). I have vertigo when I lie down. My personality has changed – I’m like a different person. I have anger that I can barely handle. At times, it feels like a Jekyll and Hyde disorder.Split Personality

10. How has your life changed? Is it better? Is it worse?

It’s worse. I am so angry all the time. I try to talk to who I am – it seems like I talk to an old friend of the person I used to be.

11. What do you miss the most from your pre-brain-injury life?

I miss singing and working for my kids.

12. What do you enjoy most in your post-brain-injury life?

I enjoy my kids and my dad. They make me so happy.

13. What do you like least about your brain injury?

I don’t like all the confusion. It’s even hard to put one foot in front of the other.

14. Has anything helped you to accept your brain injury?

I’m glad I’m alive and still have my kids.

15. Has your injury affected your home life and relationships and, if so, how?

I can’t work anymore. I’m exhausted. I need help with almost every daily task. I barely know how to take care of myself, but I still know how to take care of my kids. Relationships are a little harder because of my anger issue.

16. Has your social life been altered or changed and, if so, how?

People like to abuse people who they know they can. I have kicked people out of my life – they tried asking me for my medicine, and I will not do that.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

NurseI have a social worker and a nurse team help me. I also have a nurse who comes over twice a week to plan my medicine box and write down my appointments. I just did a neuropsychological test, and they are saying I need a guardian.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I’m hoping to feel like I am better, then okay. I hope they can find a way to fix my throat so I don’t have to live with a tracheostomy for the rest of my life. And I hope to find a way to not be so angry.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Find things that make you happy – your kids, animals, activities, etc. It will take you out of thinking about what happened.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

I am here if you need to converse with a survivor. It’s nice to open up to someone with the same condition.

Please leave a comment/question. I will respond.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it (intact) with your enemies. I don’t care!

Feel free to “Like” my post.

 

Sneak Peeks for Prisoners

My book, Prisoners without Bars: A Caregiver’s Tale, will be released to the public on November 1, 2018 by WriteLife Publishing of Boutique of Quality Books Publishing Company.  Here are pre-order links for Barnes & Noble and Amazon.

 

Excerpt 3

Chapter 11

Hearths

presented by

Donna O’Donnell Figurski

 

figurski-1

David Figurski, PhD – a few months before brain injury

… The waiting room was huge. There were couches in clusters—some small, some large, each with a table in the middle. The groupings reminded me of The Clan of the Cave Bear by Jean Auel that I read many years ago. Auel wrote about prehistoric man, the Clan people. She told how each family gathered around its hearth at night. The hearth was a private place. It was illustration-of-a-caveman-family-dancing-around-a-bonfire_158190224-1considered impolite to peer into someone else’s hearth. That’s the way it felt in the waiting room too …

 

 

Please leave a comment/question. I will respond.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Please follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it (intact) with your enemies. I don’t care!

Please “Like” my post.

TBI Tales . . . . . . . . . . . . . . . . . . This Song Could Be a Caregiver’s Anthem

This Song Could Be a Caregiver’s Anthem

by

Donna O’Donnell Figurski

David & Donna Aunt Irene's Funeral 060718

 

I happened to hear this old hit song (“Lean on Me”) a couple of days ago. After listening to the lyrics, I realized it reflects what we caregivers do. We just want to help.

a0379e35efb379c624212808302a9194

We don’t look this bad.

As the song implies, we give much-needed help. “Lean on Me” could be our anthem. Give it a listen.

PS. I just had to dance with this man to that song and we each did a bit of “leaning on.”

 

(Disclaimer: The views or opinions in this post are solely that of the author.)

If you have a story to share and would like to be a part of the SPEAK OUT! project, please submit your TBI Tale to me at neelyf@aol.com. I will publish as many stories as I can.

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.anim0014-1_e0-1

Please follow my blog. Click on “Follow” on the top right sidebar. (It’s nice to know there are readers out there.)

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

(Clip Art compliments of Bing.)

 

Caregivers SPEAK OUT! . . . Theresa Friedle . . . . . . . (caregiver for her husband, Scott)

Caregivers SPEAK OUT!

Theresa Friedle (caregiver for her husband, Scott)

presented by

Donna O’Donnell Figurski

 

Theresa Friedle & Husband Scott IMG_20161112_102405896.jpg

 

1. What is your name? (last name optional)

Theresa Friedle

2. Where do you live? (city and/or state and/or country) Email? (optional)

Tomahawk, Wisconsin, USA     theresaj4man@gmail.com

3. What is the brain-injury survivor’s relationship to you?

The survivor is my husband, Scott. At the time of the accident, Scott and I were engaged. We were married on June 3, 2017.

How old was the survivor when he/she had the brain injury?

The accident happened two days before Scott’s 47th birthday.

What caused your survivor’s brain injury?

We were both working as truck drivers. Scott was picking up a load of plywood, which needed to be tarped. Something happened when he was on top of the load spreading out the tarp, and he fell anywhere from thirteen to nineteen feet (depending on if he was standing upright). He landed on his head on a concrete floor.

4. On what date did you begin care for your brain-injury survivor?

Scott’s injury happened on October 27, 2016. It took me ten and a half hours to get to him. I’ve been at his side ever since then.

Were you the main caregiver?

At first, the doctors and nurses were Scott’s caregivers. When he was discharged from rehab on December 22, I became his main caregiver.

Are you now?

Yes

How old were you when you began care?

I was 46 years old.

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

At home, I had a young adult daughter, who was expecting her first child, as well as my younger two children (older teenagers).

6. Were you employed at the time of your survivor’s brain injury?

Yes. I was working for the same company as my (now) husband. I had a permit for a commercial driver’s license.truck4

If so, were you able to continue working?

No. However, I was told about a program through my state called “Family Care.” I now get paid to take care of my husband.

7. Did you have any help? If so, what kind and for how long?

I learned a great deal from the doctors, nurses, and therapists who worked with Scott. I asked a LOT of questions. However, once Scott came home, other than my family pitching in with the chores – no. It’s my job.

8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

Immediately – while Scott was in the neuro intensive care unit.

Scott’s family lives quite a ways away, so, to facilitate keeping them informed of his progress, I started a Facebook page about him. It turned out to be a wonderful support system.

9. Was your survivor in a coma?

Yes. Scott was in a medically induced coma. He had a craniotomy (to allow his brain room to swell), he was intubated, and he had two ports (one for meds and the other for nutrition).

If so, what did you do during that time?

I stayed by Scott’s side – talked to him and sang to him. I prayed. I kept his family informed, etc.

10. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? Theresa Friedle & Husband Scott IMG_20170705_220110

Yes. Scott was transported to an inpatient rehab facility closer to home. They provided him with occupational, speech, and physical therapies.

How long was the rehab?

We were there for twenty-two days. Scott continues to see speech and physical therapists twice a week.

Where were you when your survivor was getting therapy?

I stayed with Scott in the rehab center.

11. What problems or disabilities of your brain-injury survivor required your care, if any?

When Scott was first home, he needed help with almost everything! He was still in a wheelchair, and he needed assistance toileting, dressing, bathing, and more. He now walks with a cane, needs occasional help toileting, can dress himself, can help cook meals, does simple crafts, etc. He can’t drive, so I also transport him to and from wherever he needs to go.

12. How has your life changed since you became a caregiver?

Our lives have changed dramatically. Everything we do revolves around Scott’s needs, doctor appointments, and outpatient physical and speech therapy appointments. We can no longer attend church services, and we cannot go anywhere where there will be loud, noisy crowds.

Is it better?

In some aspects, yes! I get to be home with my children, and I get to see my grandson more.ITheresa Friedle & Husband Scott & Grandkids MG_20170714_083217

Is it worse?

Yes. Scott is limited as to the things we can do, and we cannot drive a semi right now – if ever.

13. What do you miss the most from pre-brain-injury life?

I miss going to church and driving a semi. The semi meant super-long days and hard work strapping and tarping loads. Driving it was often scary with how some people drive around us. But, it was something I’ve wanted to do since I was a teenager!

13. What do you enjoy most in post-brain-injury life?

I love that I’m able to be home with my family! I love that I get to take care of Scott, who remains a super-loving wonderful man!

14. What do you like least about brain injury?

Scott’s constantly in pain.

15. Has anything helped you to accept your survivor’s brain injury?

AliveWhat has helped me most is being super-grateful that Scott’s ALIVE! I feel that, even if Scott stays how he is now, we still have a great deal to be thankful for.

16. Has your survivor’s injury affected your home life and relationships and, if so, how?

Of course it has! Every aspect of our life has changed. We had to move our bedroom to the dining room because Scott cannot climb up and down the fifteen stairs to the upper level. Our laundry room is currently being remodeled so that Scott will have a shower. Now, I have to give him sponge baths in the kitchen. My children are happier because we’re home most of the time now. Through the Facebook page I created, I was able to develop a relationship with Scott’s family. They are so warm, loving, and welcoming.

17. Has your social life been altered or changed and, if so, how?

We seldom eat at restaurants anymore. The busyness of them overwhelms Scott. We can’t go to church for the same reason. Social events are out. Friends can only stay for an hour or so, otherwise Scott’s exhausted. At this point, most of my social life is through Facebook. Honestly, we’re NOT dwelling on that!

18. What are your plans? What do you expect/hope to be doing ten years from now?

We’ve discussed a few options, but none that is viable at this point. Until we know how permanent various parts of Scott’s injuries are, we really cannot plan much of anything. We make tentative plans for a week or two at a time, knowing that we can only do them IF Scott is having a good day that day.

19. What advice would you offer other caregivers of brain-injury survivors?

Caregiver Tips -clipart-blackboard-helpful-tips-detailed-illustration-heplful-text-43676517This is a SUPER-hard job, as our emotions are involved!

Be gentle with yourself and super-patient with the PERSON you are caring for.

Join support-groups, even if you can’t physically attend a group. (I have found several through Facebook by entering “TBI support groups.” TBI=traumatic brain injury.)

Make sure you get the rest you need.

The hardest for me? ASK for help when you need it!

Celebrate each step forward. Little steps are STILL STEPS!

It’s going to be a very long road. Educate yourself about TBI.

Get involved with the therapists – you will get a better sense of what your loved one can and can’t do. (This helped me tremendously with selecting activities for Scott. I wanted to give him something that he CAN do – so he has a sense of ACCOMPLISHMENT. I praise his efforts, regardless of his success. I don’t live with Scott’s pain – but I can see how HARD various tasks are for him to do. When Scott is frustrated that he can’t do something that he used to do easily – Scott’s usually upset about household chores, etc. – I remind him that there is a HUGE difference between CAN’T and WON’T!)

Take notes when you go to various doctors. I have found that their records are often INCORRECT.

Life is very, very different than what we had envisioned, but “different” does NOT need to equate with “bad.”

Attitude is EVERYTHING!

It’s OK to cry.

It’s OK if all the chores aren’t completed every day. Your best IS good enough. Know that your best fluctuates every day – sometimes several times a day. One day you will be able to get everything that you want to do done! Woohoo! Another day, your best is simply getting out of bed!

YOU ARE NOT ALONE! 

20. Do you have any other comments that you would like to add?

Sometimes reading the answers to these questions sparks more questions. I would be happy to explain further.

 

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it (intact) with your enemies. I don’t care!

Feel free to “Like” my post.

Tag Cloud

Inspirational Leader

From Veteran to Paracyclist

Surviving Traumatic Brain Injury

TBI - Survivors, Caregivers, Family, and Friends

BQB Publishing

Tomorrow's Best Sellers Today

Knit Neutrality

Knit (Verb) | 'nit : to join together

Ten Thousand Days

The long and winding journey after loss

Wordcrafter9's Blog

Just another WordPress.com weblog

Tripambitions

It contains the world best places and things.

Jumbledbrain

Discover - Empower - Thrive

Everything and nothing. GM1123 😊

Bienvenue. I’m thinking this is the spot where I am to write a witty, flowery personal section that pulls you in......I got nuthin’

Teresa472002's Blog

Just another WordPress.com site

The Concussion Blog

An Education and Communication Outpost from an Athletic Trainer's Perspective

Howdy Hydrocephalus

Understanding my unique gyroscope

Recoveryofthemind.com

Head Injuries Change Everything

Sheri Lawrence de Grom

From the literary and legislative trenches.

With Grace ALWAYS

...doing my best to live a life of grace...

Mild to Moderate

TBI - Survivors, Caregivers, Family, and Friends

Hope for Trauma

TBI - Survivors, Caregivers, Family, and Friends

Lisabeth Mackall

Finding our way back

My Broken Brain

Putting the pieces back together again after encephalitis

%d bloggers like this: