TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘blogtalkradio.com/braininjuryradio’

Brain Injury Resources . . . . . “Explaining Brain Injury, Blast Injury and PTSD to Children and Teens “

Explaining Brain Injury, Blast Injury and PTSD to Children and Teens

by
Marilyn Lash, M.S.W., Janelle Breese Biagioni and Tonya Hellard 
(offered by Lash & Associates Publishers)

presented by
Donna O’Donnell Figurski

EBIB Cover copy

When a parent is injured, sons and daughters often feel confused, scared, anxious, and angry. This guide helps parents explain the physical, cognitive, behavioral, social, and communicative changes that can follow a brain injury, blast injury, or PTSD. Using examples from children of all ages, it helps children understand their emotional reactions to a parent’s injury or PTSD. Each chapter has an exercise for children and practical tips for children, parents, and professionals.

To locate additional books pertaining to brain injury, please check out Lash & Associates Publishing/Training Inc.

Marilyn Lash – Author – President of Lash & Associates Publishing

Tonya Hellard – Author (no photo available)

Janelle Breese Biagioni – Author

 

 

 

 

 

 

 

(Clip Art compliments of Bing.)

As I say after each post:

Feel free to leave a comment by clicking the blue words “Leave a Comment” below this post.

Please follow my blog. Click on “Follow Me Via eMail” on the right sidebar of your screen.anim0014-1_e0-1

If you like my blog, click the “Like” button under this post.

If you REALLY like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. That works for me too!

SPEAK OUT! . . . . . . . . . . . . . . . Faces of Brain Injury . . . . . . . . Jennifer Stokley (survivor)

SPEAK OUT! Faces of Brain Injury Jennifer Stokley (survivor)

presented by

Donna O’Donnell Figurski

Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

Jennifer Stokley – Brain Injury Survivor

Jennifer Stokley (survivor)

On May 10, 2007, I fell out of a second story window of my home to the sidewalk below. I broke nine major bones (including my neck), I ruptured my bladder, I punctured my lung, I went into two cardiac arrests, and I had a severe TBI (traumatic brain injury) that sent me into a three-week coma. And yet I survived! They didn’t think I would. Then they didn’t think I would have any cognitive abilities at all. Then they thought I would be paralyzed from the neck down.

I now live independently on my own. I take care of everything except driving. I walk with a cane only when I leave the house. The rest of the time, I am mobile just fine. It’s been nine years of “Think I can’t? I know I can. Just watch me!” Don’t get me wrong -these have been the hardest years I’ve ever experienced. But, they were totally worth every moment!

Making MemoriesI did lose my pre-TBI long-term memory, but that’s all in the past anyway. I’m not going backward – I’m only going forward. I’m making new memories – I’m not worried about lost memories.

 

Thank you, Jennifer Stokley, for sharing your story.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

Survivors SPEAK OUT! Rodney Smith

Survivors SPEAK OUT!  Rodney Smith

presented by

Donna O’Donnell Figurski

1 Rodney Smith

Rodney Smith – Brain Injury Survivor

1. What is your name? (last name optional)

Rodney Smith

2. Where do you live? (city and/or state and/or country) Email (optional)

Ravenswood, West Virginia, USA

3. On what date did you have your brain injury? At what age?

It happened on May 14, 2008. I was 52.

4. How did your brain injury occur?

It was just another day – Wednesday, May 14th, 2008. Really, it was just another day – in the middle of the week, in the middle of the month, and almost in the middle of the year. It was beautiful weather, a little cool maybe, but a great morning for a quiet ride to work. Little did anyone know it could have been my last

I showered, shaved, and got ready for a day at the office like I had for the last eight years. I got on my motorcycle like I did most days for the last four years. I chose the Yamaha TW200 this day for reasons I will probably never remember. (I actually hope I never do.) I rode to the end of our dirt road and then headed west on Georgia 16. My wife left about the same time or shortly after, but she headed east on Georgia 16.th

About 10 miles down the road, my wife saw a Georgia State Police car speeding west with its blue lights flashing. Immediately, she felt sick in the pit of her stomach. She resisted a strong urge to turn around and follow the trooper. She said to herself that she had no way of knowing where the police car was going, but she felt deep in her heart that she was sure what had happened. The only question was “How bad was it?” My wife kept driving, and less than a mile down the road, a Spalding County sheriff’s car in front of her flipped on its blue lights, pulled a U-turn, and flew past her, going west on 16. The sickness in my wife’s stomach got worse, but once again, she fought the urge to turn around. She didn’t know anything for sure, and cops do that all the time, so she kept driving.

Shortly after, my wife’s cell phone rang. She looked at the number, and it all but confirmed her worst fears. It was from my cell phone, and I never used my phone while I was riding. Since I had left the house less than 20 minutes earlier and since it is at least a 30-minute ride to my office, this couldn’t be good. Still she had hope that maybe I forgot something or just broke down and was calling to let her know. But, as soon as she heard the voice on the other end, she knew. A man’s voice confirmed what she suspected when he asked, “Do you know an older gentleman who rides a motorcycle?” All she could say was “How bad is it? Is he alive?”

He told her I was alive. My wife said she was on her way there, but he told her not to come out 16 because the whole road was blocked. He told her to head for downtown Atlanta because they were life-flighting me there. He didn’t know which hospital yet, but he would call and let her know as soon as he found out.

This all seemed to be happening in slow motion, but the next few hours were a blur. My wife doesn’t remember stopping to turn around, but she found herself headed back to the house to get things she knew she would need – like the phone numbers of family and my office. She was not a person who prayed much, but she took time to ask God to help and keep me alive if He could. My wife did not give much more thought to that prayer, but God apparently did.

The only thing resembling a clear memory between the Sunday before the accident and the first week of August is of a canyon I was looking into. I was about to step in or float in or something when I felt a beautiful and powerful presence surround me and pull me back from the edge. I don’t know how I knew, but I knew it was my wife, Bonnie, pulling me back from wherever I was headed.

I believe with all my heart that that happened when I was in the life-flight helicopter. The medical reports say they had to revive me twice while flying me to Atlanta. I feel that, during that time, God heard my wife’s simple and sincere prayer and sent her spirit to the edge of the Valley of the Shadow of Death to bring me back because He was not finished with me yet. He wasn’t finished with either one of us.

5. When did you (or someone) first realize you had a problem?

I didn’t fully realize anything for about two and a half months. On the second or third day I was in the hospital, my wife, Bonnie, knew something was not right. She told the kids, “He’s not in there.”

2 Rodney Smith ICU

Rodney Smith – Brain Injury Survivor

6. What kind of emergency treatment, if any, did you have?

I was treated at Grady Memorial Hospital in Atlanta, Georgia. Grady is a very good trauma center. It’s staffed with Emory University doctors. They did a great job with my broken jaw and broken wrist, fixing those with titanium plates and screws. They did a CT (computerized tomography) scan and found some bleeding on the brain. Since I could talk and tell them a birth date (actually, a wrong one), they didn’t refer me for any kind of rehab. Bonnie kept telling them that something was wrong. On the day of my discharge, they had an evaluation done and decided to refer us to a neurologist.

7. Were you in a coma? If so, how long?

Maybe 36 hours

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

After working our way around the medical system for two and a half months, we finally got to a neurologist who at least knew she couldn’t effectively evaluate me. We were referred to Shepherd Center in Atlanta. This was the turning point in my recovery. Shepherd Center is one of the top ten rehabilitation hospitals in the country. They specialize in spinal cord and brain injury rehab.

3 Rodney in HospitalHow long were you in rehab?

I spent about three months in the Shepherd Pathways Day Program, which is their outpatient brain injury rehab. I had sessions three times a week in speech therapy, occupational therapy, and physical therapy.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have short-term and working memory problems. I lost most of my ability to multitask. I have problems with balance. Problem-solving takes much longer than it did pre accident. I have issues with dyslexia. I tend to cry more easily.

10. How has your life changed?

Is it better?

My life is better in that I appreciate things more and care more about things that really matter. I care less about things that don’t matter. My attention to detail is better when it comes to the one detail I can focus on (see how my life is worse).

Is it worse?

My life could be considered worse because I can only focus on one thing at a time. Because of this, people around me can’t depend on me the way they used to. But, there’s a flip side to that. When I work on a project, my single-mindedness allows me to focus on what I am doing and be more precise than before the injury. Those days, my mind was often on many things at the same time.

11. What do you miss the most from your pre-brain-injury life?

I miss being able to solve problems quickly.Decisions

12. What do you enjoy most in your post-brain-injury life?

I enjoy spending quality time with my wife, Bonnie, and my kids and grandkids. I also enjoy building things and working at my own pace.

13. What do you like least about your brain injury?

I don’t like that it is still very difficult to make decisions. It takes me what seems like forever to weigh options and decide on anything. Bonnie makes a game of it, sometimes continuing to give me options. That’s frustrating, but amusing.

14. Has anything helped you to accept your brain injury?

I accept it because I see that God has a plan, and I’m still part of it.

15. Has your injury affected your home life and relationships and, if so, how?

Yes. Bonnie and I are closer now. But, her life is more difficult because she doesn’t know what I will remember and what I won’t, so she has to remember everything just in case.

16. Has your social life been altered or changed and, if so, how?

Not really. My social life is not much different, since I was kind of a loner and spent most of my time with family anyway.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

Bonnie is my main caregiver and my angel. I know it is a very difficult task. I am very thankful every day for what she does.4 Rodney Smith Sideboard

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to be building furniture and fixing things for many years to come.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

One thing Bonnie and I have discovered is that, since my memory can’t be relied upon, I now use my camera phone and take pictures of everything I might need to refer to later.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

There is hope and purpose after brain injury.

 

Thank you, Rodney for taking part in the SPEAK OUT! project

To learn more about Rodney Smith, visit his website, Hope After Traumatic Brain Injury

Take a few moments and pop over to Lash & Associates Publishing to read Rodney Smith’s article, “Brain Injury Adjustments: Self-Reinvention.”

**********

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

SPEAK OUT! . . . . . . . . . . . . . . . Faces of Brain Injury . . . . . . . . Shauna Farmer

SPEAK OUT! Faces of Brain Injury Shauna Farmer (survivor)

presented

by

Donna O’Donnell Figurski

 

Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

Shauna Farmer (survivor)

Shauna Farmer 2 Survivor 032417I rolled a 4-wheeler. My head hit a tree (we think), and I was not wearing a helmet. I kept rolling, ensuing broken bones – ribs, clavicle, and three vertebrae in my back. The TBI (traumatic brain injury) I sustained is that of “shaken-baby syndrome,” aka “diffuse axonal injury” (damage to neuron connections over a widespread area). The prognosis was that I wouldn’t walk, talk, or even wake up. But, I walked out of the rehab hospital five weeks later. Unassisted, thank you very much! I am hoping to be able to drive soon. th

This journey of TBI is a long and arduous one. It’s a little bit easier if you have people who know firsthand what you are dealing with. So, keep on swimming, Gladiators! You got this.

 

Thank you Shauna Farmer for sharing your story.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

Survivors SPEAK OUT! Bonnie Weikel

Survivors SPEAK OUT!  Bonnie Weikel

presented by

Donna O’Donnell Figurski

Bonnie Weikel – Brain Injury Survivor

1. What is your name? (last name optional)

Bonnie Weikel

2. Where do you live? (city and/or state and/or country) Email (optional)

New Bethlehem, Pennsylvania, USA

3. On what date did you have your brain injury? At what age?

I was 47. My brain hemorrhage was in 2004.

4. How did your brain injury occur?

I had a subarachnoid hemorrhage (blood leaking into the space between two of the membranes that surround the brain; mine was from a ruptured brain aneurysm). I always like saying the correct medical terminology because I can actually remember how to spell it. For the majority of the time, I refer to it as “My head blowing up.” I also had a stroke during my craniotomy.

5. When did you (or someone) first realize you had a problem?

I was aware of my problems after I woke up from surgery. (The doctor wasn’t able to guarantee what kind of shape I would be in if I survived the surgery.)

6. What kind of emergency treatment, if any, did you have?

First, the hospital ruled out a stroke, and, because I complained of “the headache from hell,” they did a CT (computerized tomography) scan and found the bleed on my brain. They packed me up and transported me to Allegheny General Hospital in Pittsburgh, where I had my brain surgery done.

operating-theatre-illustration-surgeon-patient-hospital-41734906.jpg7. Were you in a coma? If so, how long?

No, thank God. I recognized everyone when I came out of surgery. I just couldn’t remember who was there to visit from one minute to the next. My daughter took pictures of me with everyone who came to see me.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I was in inpatient therapy for a month and then in outpatient therapy for about five weeks. I had to learn to do everything all over again – starting with feeding and dressing myself.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have short-term memory loss and issues with balance, vision, and hearing. I have worked very hard over the past ten years to get to where I am today, and I did it all by myself.

10. How has your life changed? Is it better? Is it worse?

My life has changed dramatically. It is better. I love the “new” me much better than the old version. I also found out who my true friends are.

11. What do you miss the most from your pre-brain-injury life?

I did lose one thing I used to love to do. I used to sew for hours. I had my own sewing business. I made anything from window treatments to wedding gowns, and I was good at it. I lost all desire to sew; it is no longer something I love to do. It is more of a chore.

12. What do you enjoy most in your post-brain-injury life?

I like that I am back in school. I am taking college courses online. It is the biggest challenge I have taken on since the TBI (traumatic brain injury).

13. What do you like least about your brain injury?

I have an invisible disability, and some people think I am faking it and living off the system.

14. Has anything helped you to accept your brain injury?

Yes. Changing my attitude about people and life in general has helped. One day, I decided I could sit and cry for the rest of my life about all that I have lost, or I could be happy with my new life and live it.

15. Has your injury affected your home life and relationships and, if so, how?

My home life has been affected, but in a positive way.

I take pride in myself and in my accomplishments. Relationship-wise, it’s been a curse.

I haven’t been able to find people who can deal with my issues because they just do not understand. I am thankful they don’t understand how life is for a TBI survivor because, if they did, it would mean they also suffered a TBI. (The only way anyone can truly understand what life is like for a survivor is to live it themselves.)

16. Has your social life been altered or changed and, if so, how?

Yes. My social life has changed a lot. During the first year, I found out who my real friends are. Now I have a small circle of friends who I know I can trust. I go out dancing once a week with friends. I do this because I still can.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

After living with my daughter for about a year, I am now on my own. I do everything myself – I am even back to driving. I will say this much: I thank God for my GPS! Ha, Ha! Yes, I understand what it is to be a caregiver, and it takes a special kind of patience for a caregiver of someone with a TBI.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I am working on a Communications degree and changing to Community Service and Social Work. My goal is to work with other survivors as a life-coach/advocate. I am getting better grades now than I ever did in high school. I can only handle two classes a semester, so it will take twice as long as normal to get my degree. But, I will see it through to the end.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

It didn’t take me as long as it does for some others, but learning to love your new self and accept your new life is, I believe, the secret to moving on. Love and acceptance of yourself is the base you can grow from.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

I highly recommend that brain-injury survivors seek out other survivors. It was such an awesome feeling the first time I spoke to someone who “Gets it.” It was like someone turned my light back on. I felt free and almost normal again. I was no longer alone. I have a motto I live by. It was written from one of the first survivors I met – in a Yahoo health and wellness chatroom. I think he went by “Rhino.” Anyway, here it is. “Mourn what you lost. Use what you have. Anyone can quit.” My strongest advice to other survivors is “NEVER GIVE UP!”

 

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

 

Survivors SPEAK OUT! Mark Moore

Survivors SPEAK OUT!  Mark Moore

presented by

Donna O’Donnell Figurski

moore-author-photo

Mark Moore – Bran Injury Survivor & Author

1. What is your name? (last name optional)

Mark Moore

2. Where do you live? (city and/or state and/or country) Email (optional)

McLean, Virginia, USA     mark@mbmoorefoundation.org

3. On what date did you have your brain injury? At what age?

2007   At age 46

4. How did your brain injury occur?

I had two strokes.

5. When did you (or someone) first realize you had a problem?

I was coaching my son’s baseball practice, and I began to lose my balance.

6. What kind of emergency treatment, if any, did you have?

I had a craniectomy (brain surgery in which a piece of the skull is removed, but, unlike a craniotomy, is not returned to its original location) to relieve the pressure on my brain.

7. Were you in a coma? If so, how long?

Yes. I was in a coma for four weeks.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

Yes. I had physical therapy, occupational therapy, and speech therapy as an inpatient for two weeks and then as an outpatient for two months.

8. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

Initially I had significant diminished use of my left side and loss of peripheral vision in my left eye. I couldn’t walk or speak.

10. How has your life changed? Is it better? Is it worse?

Having a stroke was the worst day AND the best day of my life. It was the worst day because it was scary and it was one of the first times I realized that I had no control over the outcome. It was scary for my wife and my family. When I found out that I had basically been “asleep” for nearly six weeks, I was scared all over again. I had to face the fact that I might not walk, talk, or think like Mark Moore ever again. In fact, I had to recognize that the “old” me might actually be gone. At that moment, it felt like the worst thing I could imagine.

Mark & Brenda Moore with Obamas.jpg

Mark & Brenda Moore with President & Mrs. Obama

As I struggled with those concerns though, I remembered my mother’s words – words I had forgotten, words she had spoken to me during her own health crisis. She said, “Mark, God will never give you more than you are able to handle.” Those words impacted me and turned me around. I was slowly able to stop thinking just of myself. I started thinking about God and what He could do and would do with my life now. He could pick up the pieces of this broken version of me and heal me – create in me the person he meant for me to be. That thought began to work in me, and though I knew it wouldn’t be easy, I also knew that, with God’s help, I could let go of the old Mark and become a new man.

11. What do you miss the most from your pre-brain-injury life?

Riding rollercoastersroller-coaster-thought-of-the-day-jewels-art-creation-clip-art

12. What do you enjoy most in your post-brain-injury life?

I enjoy my relationship to God.

13. What do you like least about your brain injury?

I dislike the constant scanning to drive

14. Has anything helped you to accept your brain injury?

Having a stroke meant I had to learn to surrender. I had to face the fact that my abilities as a “fix-it guy” were not going to come to the rescue. I had to do something that was hard for me to do. I had to be willing to give up my illusions of who Mark Moore was and hold on for dear life to who God is. That’s surrender! That’s where everything you thought you knew comes to a halt and God finally has enough of your attention to help you become what He planned all along.

When I first looked at what was going to be required of me in the recovery process, I did not want to do it. I thought it would simply be easier if God just shut me down, packed me up, and sent me back to His house. But, He didn’t do that! He kept me in the hospital for several weeks and then sent me back to my house. He showed me that recovery meant I had to totally trust Him and my wife, Brenda, and the therapists, who would bring me back to good health.

mark-moore-brain-injury-survivor-dc-marathon

Mark Moore – Brain Injury Survivor – 5K Race

Starting therapy looks daunting. It is daunting, and it’s even frightening! Everything in me resented that I had to be there and that I had to learn all over again things I’d known all my life. If you’re facing therapy and recovery now, all I can tell you is to do what you’re told to do. Make the effort. Try harder than you’ve ever tried in your life, and lean on the people who love you. Open your heart and mind to all that can still be possible for you. That’s what surrender requires. That’s what trusting God is all about. You’ll be in recovery for a long time (maybe the rest of your life), but you’ll be in good hands in the process.

15. Has your injury affected your home life and relationships and, if so, how?

One day (May 12, 2007), I had a stroke, which was followed by another one. I was fine one minute and fighting for my life the next. In the process of recovering from those strokes, I discovered something I had not fully realized before. God had a plan for my life. He had a purpose for me, and I was not on the path He preferred. In one day, my life changed, and my purpose changed with it. To be honest, when I discovered God wanted something more from me, I was relieved. Clearly, there was more I could do, and it didn’t always revolve around the work I had carved out for myself. I was relieved to know that I could step back from the life I designed and be far more comfortable in the one He designed.

basketball-clipart17My friends were amazed when I did not show any interest in simply going back to work. They thought it was strange that I did not want to play basketball, a game I had loved playing all my life. What I did want to do was to please God. What energized my spirit and resonated with my soul was to do the things God wanted – to fulfill His purposes in me.

What a difference a day makes! What joy it is to my heart that God was with me through the strokes and is with me now to guide me into being the Mark Moore He always knew I could be. What a joy it is to live more intentionally and more fully awake to the places He would have me go.

16. Has your social life been altered or changed and, if so, how?

Not really

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I don’t have or need a caregiver.

18. What are your plans? What do you expect/hope to be doing ten years from now?

When God had my attention as I lay in a hospital bed, He asked me a new question. Whose job is it to help others? Whose job is it to make a difference? Whose job is it to spread the gospel? The answer was the same in every case. It was MY job! God had blessed my work and made it possible for me to bless others. He took me out of the race in which I’d driven laps for twenty years and said, “I have something new for you. I want you to slow down and hear what I have to say.” I stopped then and listened.

God didn’t “give me a stroke.” He used the stroke to give me a new purpose. He used the situation to help me hear His voice more clearly and to understand the job He had in mind. Whose job is it … to do good, to help others, to lend a hand? It’s mine, and it’s yours! Let’s use whatever resources we have been blessed with to help those around us. It will fulfill our life-purpose like nothing else can do.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

It was interesting to me after my stroke experience to discover that I did not want to be “naked” in front of my family – in front of the people who knew me the best. Like Adam and Eve, I wanted to hide so they would not discover my fear and sense my weakness.

As I looked back at my initial reactions to my strokes, I realized we can’t hide from the people who know us well and love us any more than we can hide from God.

mark-brenda-moore

Mark & Brenda Moore

My wife did not want me to hide from her. She was ready to help me – ready to stand beside me and offer me her strength. My friends were like that too. Caregivers and hospital personnel were set to help me, but I had to be willing to be “naked.” I had to be willing to let them see my weaknesses and my vulnerability. I was not the person I had been; I needed their strength.

Another thing that was extremely helpful during my stroke recovery was that I began to regularly put on my headphones to listen to gospel music. The effort to re-establish my fine-motor skills was sometimes grueling, and I wasn’t always sure I could do it. Gospel music comforted me and helped me get through the ordeal. It reminded me over and over again of what Jesus did to give me life, to lift me up, and to restore my soul. It also reminded me that there was nothing I was going through that Jesus did not experience. He paid the price so that I could be restored eternally, spiritually, and physically to this day.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

One thing I tell everybody is that you can’t recover from a stroke or any debilitating illness without the help of your family, your friends, and your faith. It can take days, weeks, or months to see any real change in the things you are able to do physically. That means that mentally and emotionally you have to lean on the things that boost your morale and make a difference in your attitude. When it comes to the kind of help your family, friends, and faith can give in your recovery, it all depends on YOU!

I say it depends on you because you are the only one who can let others in to help make a difference. Your spouse can come to your aid every day and cheer you on and encourage you, but it won’t do any good unless you’re willing to receive it. I can admit that there were times when I didn’t really let my wife, Brenda, in. I was scared, and I didn’t want her to know it. I didn’t want to have to tell her that I didn’t think I could do what it took to recover. She had known me as a guy who was a go-getter – someone who rose to the occasion to get things done. After the stroke, though, I didn’t always believe that I had that same courage.

Friends stood beside me as well and helped me get the message that a lot of people cared and were rooting for me. They wanted me to get better and to become the old Mark again.

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

SPEAK OUT! . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

presented by

Donna O’Donnell Figurski

Itty-Bitty GIant Steps for BlogSPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at neelyf@aol.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

 

Here is this week’s Itty-Bitty GIANT Step

johnson-richard-la5-seqbctqtwxpuelqm7w3zpspra73-btysv2tzfrmhjlfsj8cadfvj1wnfejetg2tstj4rfqdvol9omi_160cym__3h82mwgki2qevhzyz8zlyhqad7iswyoqj_li8nobqrokqqzvt95fkknyw4ond7a0fskhymnexzhzebcwpbattvzu5li

Ric Johnson – Brain Injury Survivor

Richard Johnson (survivor) … With two new grandsons, my wife and I decided we needed a baby crib in our house. So, we went to a store, bought one, drove it home, and then had to put it together. It should have been easy, but not so much after a traumatic brain injury.crib

First, it was hard to focus in the store – too much noise and too many lights. Then, having short-term memory issues and only two hands, I took four hours to put it together.

YOU did it!

Congratulations to contributor!

(Clip Art compliments of Bing.)

(Photos compliments of contributors.)

As I say after each post:anim0014-1_e0-1

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

Tag Cloud

No memory of the day that changed my life

My name is Michelle Munt and this is my story about surviving a brain injury and what I continue to learn about it. This is for other survivors and their loved ones, but also to raise awareness of what can happen to those in an accident. This invisible injury too often goes undiagnosed and it can be difficult to find information about it. I will talk about things that have helped me as I continue to recover and invite others to see if it works for them too.

Everything and nothing. GM1123 😊

Bienvenue. I’m thinking this is the spot where I am to write a witty, flowery personal section that pulls you in......I got nuthin’

Teresa472002's Blog

Just another WordPress.com site

The Concussion Blog

An Education and Communication Outpost from an Athletic Trainer's Perspective

Howdy Hydrocephalus

Understanding my unique gyroscope

Recoveryofthemind.com

Head Injuries Change Everything

Sheri Lawrence de Grom

From the literary and legislative trenches.

With Grace ALWAYS

...doing my best to live a life of grace...

Mild to Moderate

TBI - Survivors, Caregivers, Family, and Friends

Hope for Trauma

TBI - Survivors, Caregivers, Family, and Friends

Lisabeth Mackall

Finding our way back

My Broken Brain

Putting the pieces back together again after encephalitis

The Visger Group

TBI - Survivors, Caregivers, Family, and Friends

melissacronin.com

TBI - Survivors, Caregivers, Family, and Friends

Inside Danielle's mind

Striving for serenity

In An Instant Your Life Can Change Forever

Brain Injury Association of Massachusetts Blog

Broken Brain - Brilliant Mind

Learning to live all over again after Brain Injury and Concussion

%d bloggers like this: