TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘TBI Survivor’

SPEAK OUT! . . . . . . . . . . . . . Faces of Brain Injury . . . . . . Darlene Watson Mabry (caregiver for her son, Gage)

SPEAK OUT! Faces of Brain Injury

Darlene Watson Mabry (caregiver for her son, Gage)

presented by

Donna O’Donnell Figurski

Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

Darlene Watson Mabry (caregiver for her son, Gage)

Mabry, Darlene Watson Caregiver

Mabry, Darlene Watson – Caregiver

 

My son, who is now 22, suffered his TBI (traumatic brain injury) two years ago in a work-related accident. That’s when the nightmare began, and our lives were forever changed.

This altered state of reality is so overwhelming at times that I just have to sit down and cry. There are good days, but it seems like for every good one, there are three bad ones – for every advancement, there comes a setback. The everyday struggle to maintain wears you down. It’s like going the wrong way on a one-way street.

Right Way Wrong Way
The company that my son was working for when the accident happened is still fighting this, and Worker’s Compensation in Missouri is unscrupulous! For the last year-and-a-half, they have refused to pay for treatment and prescriptions or provide temporary-disability pay. Resources are limited in this situation until this claim is settled, so, financially, we are bankrupt. Not only are they making my son’s already-burdensome recovery more difficult, but they are actually hindering it. I have cried, thrown fits, prayed, been depressed, and had anxiety attacks that I thought were heart attacks, and that was just today.

Darlene Watson Mabry & Son, Gage

Darlene Watson Mabry – Caregiver for son, Gage – Brain Injury Survivor

Crayon

So, I have erased this, and tomorrow we will begin again. (I’m thinking of using a crayon, so I can color outside the lines – LOL.)

At the end of the day, I’m grateful – my son is alive and highly functional, unlike some who have suffered this type of injury. God has blessed us with another day, and for that I’m thankful.

 

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

 

Advertisements

Survivors SPEAK OUT! Geo Gosling

Survivors SPEAK OUT!  Geo Gosling

presented

by

Donna O’Donnell Figurski

 

Geo Gosing 1

Geo Gosling – Brain Injury Survivor

1. What is your name? (last name optional)

Geo Gosling

2. Where do you live? (city and/or state and/or country) Email (optional)

St. Helena, California, USA     goose3@wildblue.net

3. On what date did you have your brain injury? At what age?

In 1995 at the age of 25

4. How did your brain injury occur?

I was riding my bicycle 40-45 mph down a steep hill. (That’s pretty fast on a bicycle.) It was dusk, and I didn’t have a bike-light. A car going in the opposite direction was at the bottom of the hill, didn’t see me, and turned left onto a street. I hit her. In auto accidents, this would be referred to as a “T-bone.” So, while on my bicycle, I “T-boned” a car at about 40 mph.bike

5. When did you (or someone) first realize you had a problem?

Pretty soon thereafter

6. What kind of emergency treatment, if any, did you have?

I was transported by ambulance to Queen of the Valley Hospital in Napa. (It should be noted that my crash occurred only a few hundred feet from the St. Helena Hospital and Health Center, but the ambulance was routed to Napa – about 25 min. south of where I was – because “The Queen” is much better prepared for head trauma.) I had a tracheotomy, and my right shoulder was pretty smashed. I fractured two neck vertebrae, so I had a broken neck. Some ribs were broken also. That all pales in comparison to the TBI (traumatic brain injury), however.

7. Were you in a coma? If so, how long?

I was technically never in a coma, but I was unconscious for either six or eight days – I don’t remember which. (Funny story – I think: I was technically never in a coma because I would respond to outside stimuli. The doctor demonstrated this by talking loud at me or yelling or saying bad things or something, and I would just lie there in bed give him the finger. I just lay there and flipped him off. I later found out the doctors thought this to be rather amusing.)

Geo Gosling 1

Geo Gosling – Brain Injury Survivor

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I had both inpatient and outpatient therapy. Both in- and outpatient therapy consisted of occupational therapy, physical therapy, speech therapy, and “thought” therapy. (I had to see a psychologist because I was rather … ah … depressed. I called it “thought therapy.”) I was in rehab for years. In fact, I still go to massage therapy because my muscles don’t seem to relax too well anymore. Speech therapy helped, but not much because, as a result of my TBI, I have dysarthria, which is basically paralyzed facial muscles. As a result, I have trouble speaking clearly, and I sound a wee-bit tipsy most of the time.

How long were you in rehab?

Years. I still go to massage therapy twice a month.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

Let’s see … where to begin? I’m in constant pain. The part of my brain that is responsible for, or connected to, the gums on the left side of my mouth is injured or damaged or whatever. Anyhow, my brain thinks my gums on the left side of my mouth are telling it that they hurt because something is wrong. Well, something is wrong, but not with my gums. It’s my brain that is confused. My brain “thinks” my gums hurt. So, I just think my gums hurt, but they don’t. (Don’t think about that too long, or you will need to see a shrink.) I don’t like people anymore. I’m pissed off all the time. I haven’t had a date in 20+ years. That could also be why I’m pissed off and don’t like people. I can go from being “happy as a clam” to extremely furious in about ten nanoseconds. (I was never like that before.) My balance is terrible – I fall over very easily. (I couldn’t run to save my life – assuming I wanted to save it. I can’t even walk fast.) I have arthritis in my neck – hurts like hell. My lower back hurts often.

10. How has your life changed? Is it better? Is it worse?

Is this a trick question?

11. What do you miss the most from your pre-brain-injury life?

I miss a career I enjoyed, laughing, hope, feeling good, living, friends.

12. What do you enjoy most in your post-brain-injury life?

Is this another trick question?

13. What do you like least about your brain injury?

Let’s see … where to begin? I dislike my speech. I hate the constant pain. I’m unhappy with having no friends, no job, little money, and no hope. That about covers it.

dT76zBKac14. Has anything helped you to accept your brain injury?

Passage of time, but nothing really helped. I just realized shit happens, and you have to deal with it.

15. Has your injury affected your home life and relationships and, if so, how?

I live alone and always will. I can’t really deal with people anymore. I don’t trust anyone, the reason being that my psychologist lied to me. As a result, I ended up in the mental ward of St. Helena Hospital and Health Center for two nights and three days. I also had a therapist call the police after I had done what SHE SAID I SHOULD DO!

16. Has your social life been altered or changed and, if so, how?

I used to have somewhat of a social life, but now, the only person I do anything with is my mom. That’s a tad depressing.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I don’t really have one now.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I have no future plans. I will probably be doing the exact same thing ten years from now – nothing.

Geo Gosling 3

Geo Gosling – Brain Injury Survivor

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Just deal with it the best you can.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Do as much stuff for yourself as you can. Doing “everyday living” stuff is the best therapy. If you can walk, walk as much as you can.

Check out these books by Geo Gosling.

 TBI Hell by Geo Gosling 4      TBI Purgatory by Geo Gosling 5

 

 

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

Survivors SPEAK OUT! . . . Jason Westhoff

Survivors SPEAK OUT!   Jason Westhoff

presented

by

Donna O’Donnell Figurski

 

Jason Westhoff IMG_9574

Jason Westhoff – Brain Injury Survivor

1. What is your name? (last name optional)

Jason Westhoff

2. Where do you live? (city and/or state and/or country) Email (optional)

Phoenix, Arizona, USA     jrwesthoff1@gmail.com

3. On what date did you have your brain injury? At what age?

March 11, 2012     Age 29

4. How did your brain injury occur?

I was assaulted after leaving a club in Peoria, Illinois.

5. When did you (or someone) first realize you had a problem?

I realized I had a problem around eight months after the assault. I was in the Emergency Room and honestly realized I had lost all control. I had no clue how to go about regaining that control and made many wrong attempts over the next five years.

6. What kind of emergency treatment, if any, did you have?

Hospital thI was knocked unconscious from the assault, and I was transported by ambulance to the hospital. The medical staff noticed the swelling, and, as a result, I was taken into emergency surgery. I had a craniotomy to relieve the swelling.

7. Were you in a coma? If so, how long?

After the emergency surgery, I was placed in an induced coma for approximately three weeks. I had another two surgeries during this time.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I had approximately three weeks of inpatient rehab before I was discharged. Afterwards, I continued physical, occupational, and speech therapies on a twice-weekly basis for approximately three months before I returned to school. At this time, I knew something was different, but I did not understand the battles I was fighting.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

After my TBI (traumatic brain injury), I was a completely different person. It took me years to realize the extent of my injury. My balance and normal body functions were the easiest to check and the most obvious. The major changes, which I am still trying to adjust to daily, are my personality and perception during normal life-events. My injury has placed strains on every previous relationship I had and the new ones I have developed. I honestly feel like two completely different people. I still have the same general personality, but my ability to adjust to unplanned change is the ability most affected. I have a problem with the skill of adjusting in the moment.

10. How has your life changed? Is it better? Is it worse?Better Worse

My life has been extreme on both sides. It seems as if everything is extremely better or extremely worse on a rotating cycle. I am thankful on the whole because of the strength I have found to deal will all issues that have occurred. I am still working every day on my recovery, but I know, through this fire, I will become a better human being.

11. What do you miss the most from your pre-brain-injury life?

I miss my intellect and communication skills. It always feels as if I’m grasping for, but never quite reaching my projected goal.

12. What do you enjoy most in your post-brain-injury life?

I enjoy the communities I never knew about and the social interaction within the “brain-injury-support community”. There is a bond, which I have never quite been able to explain to others, of just knowing how something feels.

13. What do you like least about your brain injury?

Medicine side-effects!Medicine bottle 7Ta6Ezr8c

14. Has anything helped you to accept your brain injury?

Time. It has been extremely difficult to adjust and accept my brain injury.

15. Has your injury affected your home life and relationships and, if so, how?

Yes. It has been hard to be a successful father without the resources desired. Relationships in general have been a struggle because I don’t completely understand myself at all times. There is a constant unbalance in my life since the injury.

16. Has your social life been altered or changed and, if so, how?

Yes. I had struggles – extreme struggles – in my social life, primarily involving drugs and alcohol. Alcohol was a bigger problem than the drugs. I often get so stressed and/or anxious I want to drown my thoughts away. It is very easy just to give up at times.

Jason Westhoff Sheria & Darryl Eubanks

Jason Westhoff – Brain Injury Survivor with Parents, Sheria & Darryl Eubanks

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My parents have been my main caregivers, my mother in particular for emotional support, which is where it has been needed most. It took me 2-3 years to start to comprehend the stress involved in being a caregiver, until I really tried to manage Jayla (my daughter) by myself for an extended period of time.

18. What are your plans? What do you expect/hope to be doing ten years from now?

My plans as of this moment are just trying to get my medications set and lowering my mental-fatigue issues. My focus is primarily on understanding my new mind and body so I then have the ability to make the proper adjustments. I love it here in Arizona! By the time I do my radio interview with Donna, I will have been in Arizona for fourteen months. I am currently looking forward to doing more work in the brain-injury community.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Listen! Listen! Listen! I am one of the worst listeners. I have proved this point time and time again. I would suggest to swallow your pride and let people help you.Ear_clip_art-1

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

My best advice to give to any survivor is to never stop growing. Don’t become content with your situation. We can always improve!

 

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

 

SPEAK OUT! . . . . . . . . . . . . . Guest Blogger: Erin Lieben

Inspiring Other Survivors

by

Erin Lieben

presented by

Donna O’Donnell Figurski

 

Girl Blogger cartoon_picture_of_girl_writingIt’s okay to lose hope sometimes. We will never be the same as before. You’ll get used to the “new you,” and you’ll be a tough, beautiful, brave individual who knows what it’s like to feel hopeless. And, that is what makes it all worth it – because you can give hope to others.

bigstock_hope_2576413Tell other survivors that it’s okay to be the “new you” and to not necessarily meet the status quo or the goals they were striving for before their brain injury. Tell them to just make a new game-plan and to be exceedingly thankful for the little things they previously took for granted.

23804465_1469432809758930_2026712132_n

Erin Lieben – Brain Injury Survivor

When I present my story to others, my goal is for them to feel inspired. I don’t want pity, and I don’t want to bring others down. I’ve been given a gift, and I’ve worked like hell to be able to pass that on to others. There is always hope.

Cherish each passing moment as if it’s your last – because you know that it very well could be. It might sound crazy, but, when I’m at my lowest, that’s the time when I can lift others up. And, it lifts my spirit as well! My heart is with you all.

 

Thank you, Erin Lieben.

 

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Erin Lieben.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it (intact) with your enemies. I don’t care!

Feel free to “Like” my post.

SPEAK OUT! . . . . . . . . . . . . . Faces of Brain Injury . . . . . . Christine Durant (survivor)

SPEAK OUT! Faces of Brain Injury

Christine Durant (survivor)

presented by

Donna O’Donnell Figurski

Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

 

Christine Durant (survivor)

Christine Durant Survivor 040817

Christine Durant – Brain Injury Survivor

I had brain surgery in 1983, during the second semester of my senior year of college. As a result, I came home with no degree. I was forced into a full-time job by my mother in addition to going to school full time. I received my first graduate degree a year later, adapting for differences all by myself. I had a great 30-year career and finished three more graduate degrees while working full time.

However, a car accident 20 years ago derailed my career. I couldn’t work because of pain-management issues. But that worked out. car-accident-clipartApparently, the neurosurgeon hadn’t put things back together in an appropriate manner. So, I needed another brain surgery. It would have been hard to do if I were working full time. My wife and my friends saw me through it.

In April, I celebrated my “Sweet 16” – sixteen months post-op and seizure-free! My wife and I also celebrated 25 years in May. We travel a lot on the accident money. Life is good.

 

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

 

SPEAK OUT! NewsBit . . . . . . High School Football Game Forfeited After Nine Head Injuries

High School Football Game Forfeited After Nine Head Injuries

presented

by

Donna O’Donnell Figurski

 

football-teamA high school football team from Moncton, New Brunswick, Canada, forfeited its game after nine players left the game with possible head injuries. The coach took the precaution of having all players checked at the hospital. Before going to hospital, four players had already displayed symptoms of having a serious concussion (nausea, vomiting), and they still showed symptoms two days later when the article was written.

Illegal hits were not the problem, but the violence of football became even more obvious when the forfeiting team was clearly outmatched by its opponent.  The score was 35-0 about halfway through the game.

football13It is now known that players of US and Canadian football have a high risk of developing a brain injury, and the problem is particularly serious for youth, with their still-developing brains.  Concussions are the most obvious brain injury, but the multiple subconcussive hits common in US and Canadian football can also lead to brain damage, which may not become apparent for several years.  A highly-cited research paper in the Journal of the American Medical Association showed that the degenerative brain disease CTE (chronic traumatic encephalopathy) was found in a low but significant fraction (21%) of players who only played football through high school. CTE was more commonly found (>90%) in the autopsied brains of players who played professionally or only through college. Even with a possible bias in the brains studied, the findings are alarming. As a result of the new knowledge, some players are retiring early (1,2), and parents are becoming concerned. (1. Full story and 2. my radio interview of Cyndy Feasel, Mary Seau, and Debra Pyka, all of whom lost a loved one to football)

onair

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it (intact) with your enemies. I don’t care!

Feel free to “Like” my post.

TBI Tales . . . . . . . . . . . . . . . . . . TBI to “Victory” . . . . . . . . . . . . . by Daniel Mollino

TBI to “Victory”

by

Daniel Mollino

presented by

Donna O’Donnell Figurski

 

Daniel Mollino – Brain Injury Survivor – Red Bull Athlete

Well, what a year I have had! I watched as all my competitions were abandoned due to blood clots (DVT, deep vein thrombosis: a blood clot that forms in a vein deep in the body), which laid me up for three months. But one race continued to call to me – the Red Bull 400 in Park City. See, I am a cyclist not a runner, but last year I took on the Red Bull 400 in Park City to simply see how I would do, and I completed it. I did no special training outside my usual for cycling. However, the Red Bull 400 in Park City is a whole new world of insanity in racing!

I initially went into this year with the push to try and race all the Red Bull 400s around the globe in a single year. But then medical issues struck.

The Park City race, however, still called for me. My wife wanted to run it. She has never run an event of any kind before, and I needed to get at least one competition in for the year. I was medically cleared a couple of weeks before the race. But I hadn’t done a bit of training of any kind to prepare.

Daniel Mollino -Brain Injury Survivor & Red Bull 400 survivor with spouse, Amby Silex

Nevertheless, I took it on. Now just crossing the starting line is an accomplishment, considering. I honestly hoped I would at least make it to the top somewhat close to the time I had the previous year. Sadly, that did not happen.

I did finish, eventually. My time this year was a little over 39 minutes. (I had to take the steps for the last half.) This is over double the time of last year. Still, I did cross the finish line and have an official time.

We ran and we finished. Last year’s time was much better, but it was a victory nonetheless considering the medical issues I had this year. Onward and upward ….

 

READ MORE about Daniel Mollino and the “Red Bull 400” results here.

 

(Disclaimer: The views or opinions in this post are solely that of the author.)

If you have a story to share and would like to be a part of the SPEAK OUT! project, please submit your TBI Tale to me at neelyf@aol.com. I will publish as many stories as I can.

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.anim0014-1_e0-1

Please follow my blog. Click on “Follow” on the top right sidebar. (It’s nice to know there are readers out there.)

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

(Clip Art compliments of Bing.)

Tag Cloud

Ten Thousand Days

The long and winding journey after loss

Wordcrafter9's Blog

Just another WordPress.com weblog

Tripambitions

It contains the world best places and things.

No memory of the day that changed my life

My name is Michelle Munt and this is my story about surviving a brain injury and what I continue to learn about it. This is for other survivors and their loved ones, but also to raise awareness of what can happen to those in an accident. This invisible injury too often goes undiagnosed and it can be difficult to find information about it. I will talk about things that have helped me as I continue to recover and invite others to see if it works for them too.

Everything and nothing. GM1123 😊

Bienvenue. I’m thinking this is the spot where I am to write a witty, flowery personal section that pulls you in......I got nuthin’

Teresa472002's Blog

Just another WordPress.com site

The Concussion Blog

An Education and Communication Outpost from an Athletic Trainer's Perspective

Howdy Hydrocephalus

Understanding my unique gyroscope

Recoveryofthemind.com

Head Injuries Change Everything

Sheri Lawrence de Grom

From the literary and legislative trenches.

With Grace ALWAYS

...doing my best to live a life of grace...

Mild to Moderate

TBI - Survivors, Caregivers, Family, and Friends

Hope for Trauma

TBI - Survivors, Caregivers, Family, and Friends

Lisabeth Mackall

Finding our way back

My Broken Brain

Putting the pieces back together again after encephalitis

%d bloggers like this: