TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘TBI Survivor’

New NEWS: . . . . . . . . . . . . . . . . New Website for Prisoners without Bars: A Caregiver’s Tale

New NEWS: Prisoners without Bars: A Caregiver’s Tale – New Website

presented by

Donna O’Donnell Figurski

I launched a new website dedicated to my Writing Life. It’s simply called, “donna o’donnell figurski – Author.”

Donna Figurski Website Banner

It tells about Me, Me, Me. Who Am I anyway?

You can learn about my books here.

The site includes my online and print publications. You can even find the links to the articles so you can read them right now.

It shares some of my favorite books–both for adult and for children. How many have you read? What’s your favorite?

It lists Praise for Prisoners. Oh MY Gosh — I can’t believe what folks are saying about Prisoners.

Thanks for reading my book, Prisoners without Bar: A Caregiver’s Tale. Did you know that there aren’t many books about brain injury? But, here are a few good ones.Prisoners without Bars

 

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Survivors SPEAK OUT! Kuna Williams

Survivors SPEAK OUT! Kuna Williams

presented by

Donna O’Donnell Figurski

 

Kuna WIlliams1. What is your name? (last name optional)

Kuna Williams

2. Where do you live? (city and/or state and/or country) Email (optional)

I currently live in Tempe, Arizona. At the time of my accident, I was a homeowner in Surprise, Arizona.

3. On what date did you have your brain injury? At what age?

I received my traumatic brain injury (TBI) on July 27, 2006. I was 26 years old.

4. How did your brain injury occur?

I was involved in a motorcycle accident a couple blocks up the street from home. I was on my way to play a game of billiards.

5. When did you (or someone) first realize you had a problem?

When I was hit, a gentleman found my cell phone and called the phone number titled “Mom.” My mother and my father drove from Glendale to the scene of the accident – Surprise. I was taken to the hospital while in a coma. The following morning my mother was advised that, among other injuries, I had received a traumatic brain injury.

6. What kind of emergency treatment, if any, did you have?

I received emergency treatment and was ambulanced to the hospital. I was unresponsive at the scene of the accident, and therefore I was intubated. My left lung was collapsed (left pneumothorax) for which a chest tube was inserted. My left wrist was broken. (I had an open left distal radius and ulna fracture.) It was repaired with multiple screws. An EVD (external ventricular drain) was made for a closed head injury and remained for two weeks. I received a trache (tracheostomy tube) and was placed on a ventilator. (A tracheostomy tube is inserted into the trachea for the primary purpose of establishing and maintaining an airway.) A GJ-tube (gastro-jejunal tube) was also inserted. (GJ-tubes can be used to bypass the stomach and feed directly into the second portion of the small intestine.)webpage-clipart-hospital9-1

7. Were you in a coma? If so, how long?

I was in a medically induced coma for twelve days. About four months after my accident, they put in a ventriculoperitoneal (VP) shunt (which redirects excess fluid away from the brain to the abdomen, which can more easily tolerate surplus fluid). They also installed an inferior vena cava (IVC) filter (used to prevent blood clots from moving through the blood into the lungs), which will stay inside for the rest of my life.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I had both inpatient and outpatient rehab. Inpatient rehab was for three months and included physical therapy, occupational therapy, and speech therapy. Holistic outpatient rehab included physical therapy, occupational therapy, cognitive therapy, and speech therapy. Holistic rehab was for a total of eighteen months. I continue to see a neuropsychologist.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?th

Due to my TBI, I have memory issues, changes in the speed of processing, a field cut (vision loss), and balance issues.

10. How has your life changed? Is it better? Is it worse?

Certain aspects of my life are better. I have more of an appreciation for what life has to offer, and I am more optimistic about what can be achieved. My feeling of optimism comes from my Faith, the many resources that are provided, and networking.

11. What do you miss the most from your pre-brain-injury life?

I miss cruising custom cars.

12. What do you enjoy most in your post-brain-injury life?

Kuna Williams and Evie

Survivor of Brain Injury – Kuna Williams & wife, Evie

I enjoy spending time with my wife, drawing, attending brain injury events, participating in church, and – best of all – being a caregiver and helping others who have physical and/or mental challenges.

13. What do you like least about your brain injury?

I don’t have much that I don’t like. It’s just sad how it took an accident to bring this new outlook on life.

14. Has anything helped you to accept your brain injury?

What helps me with acceptance is that I realize It can always be worse. I attend support-groups. Others with the similar conditions share with you their compensations, and you share your tips and tricks. You feel good about how you can help someone. I accept my challenge and realize I can use compensations. Acceptance is tough, but, once you have accepted your circumstance, think Oh well. Move on … things WILL get better!

15. Has your injury affected your home life and relationships and, if so, how?

Yes. What has changed is that I’m not out gallivanting and abusing substances. What has also changed is my financial life and spending tactics.

16. Has your social life been altered or changed and, if so, how?

See my answer to the previous question.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I am a survivor, but I also work as a caregiver. My main consumer has a TBI (just like me), and the other gentleman was born with challenges and wasn’t expected to live as long as he has. I treat them as friends that I can relate to. I don’t make their challenges a characteristic.

logo18. What are your plans? What do you expect/hope to be doing ten years from now?

I have previously done computer-aided drafting before and after my injury occurred. I also worked retail before I got back into drafting. After my TBI, I was no longer good at drafting. But, I am good at talking to people, and I love to draw. So, that is what led me to being a caregiver part-time and designing T-shirts part-time.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Kuna Willaims & Evie 2

Survivor of Brain Injury – Kuna Williams & wife, Evie

Survivor of Brain Injury – Kuna Williams & wife, Evie

I’ve learned from my rehab that “Things Take Time.” Don’t rush things, but keep trying. Show steady persistence until you develop a routine for something. Find something you are good at or something you want to do.

20.What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Find your Niche!

 

You can learn more about Kuna at the following sites.

SortaFixd

weremovingforward

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Sneak Peeks for Prisoners

My book, Prisoners without Bars: A Caregiver’s Tale, will be released to the public on November 1, 2018 by WriteLife Publishing of Boutique of Quality Books Publishing Company.  Here are pre-order links for Amazon, Barnes & Noble, and IndieBound.

Excerpt 7

Chapter 21

“Don’t Worry” Means “Worry”

presented by

Donna O’Donnell Figurski

woman_on_cell_phone_3… I always screened the messages, so I stopped before I closed the door and listened. My skin prickled as I heard a familiar voice. Dr. Bradofsky from Radburn was leaving a message. He said not to worry—everything was okay, which, of course, meant I would worry and that everything was not okay. Doctors rarely call with good news. I dashed up the stairs, snatched the phone from the cradle, and identified myself.

Dr. Bradofsky said that David had fallen out of bed and landed on his head! Though it man-s-head-bump-cartoon-stars-56250235didn’t appear to be serious, he expected a large goose egg on David’s right temple. He said he would observe him. He also had arranged for an ambulance to transport David to an imaging facility the following day for a CT scan to rule out additional trauma. I “calmly” accepted his news, told him I was on my way, and hung up.

About half way to the hospital, I lost it. I was terrified this “bump on the head” would cause more brain injury. I pounded the steering wheel and screamed, “Why? Why? How could this happen? Why!” as I wiped the nonstop flow of tears from my eyes. I could not get to the hospital fast enough Calm Womanand prayed that the expressway would be rid its usual overwhelming commuter traffic that morning. I underwent a minor breakdown. By the time I reached the hospital, I was composed and ready to handle the situation …

 

Please leave a comment/question. I will respond.

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As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Please follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

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Sneak Peeks for Prisoners

My book, Prisoners without Bars: A Caregiver’s Tale, will be released to the public on November 1, 2018 by WriteLife Publishing of Boutique of Quality Books Publishing Company.  Here are pre-order links for Amazon, Barnes & Noble, and IndieBound.

Excerpt 6

Chapter 15

Emotional Roller-coaster

presented by

Donna O’Donnell Figurski

nurse-clipart-2645bff0709e4cf23bcaff6690965816-1… A few days later, on January 26th, David gave his night nurse a scare, which in turn frightened me. When David’s night nurse Melody checked on David in the middle of the night, she found him sitting up in bed. That’s not so scary, except that David had no control over his body. He was unable to move, and his muscles were slack, but somehow he had found the bed controls that raise and lower the sick-clipart-sick-person-12mattress and fiddled with them enough to bring his upper mattress to a dangerously high, perpendicular position. He was seated precariously upright—nearly flopping over like a Raggedy Andy doll.

When Melody, whom I absolutely adored, told me of the incident the next morning, I detected a barely perceptible grin on David’s face. He had enjoyed his unwitting prank …

 

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Survivors SPEAK OUT! . . . Su Meck

Survivors SPEAK OUT! Su Meck

presented by

Donna O’Donnell Figurski

 

 

1 Su Meck 10862625_10204051895112757_5004286472948685848_o

Su Meck – Brain Injury Survivor & Author of “I Forgot to Remember”

1. What is your name? (last name optional)

My name is Su Meck.

2. Where do you live? (city and/or state and/or country) Email (optional)

I currently live in Northern Virginia (USA) outside of Washington D.C.

On what date did you have your brain injury? At what age?

3. My brain injury occurred on Sunday, May 22, 1988. I was twenty-two years old at the time.

4. How did your brain injury occur?

A ceiling fan in my kitchen fell and hit my head, knocking me down. As I fell, my head hit the kitchen counter, and then hit the floor.ceiling-fan-clip-art-1160226

5. When did you (or someone) first realize you had a problem?

My husband, Jim, was sitting right there at the kitchen table reading the Fort Worth Star Telegram when the ceiling fan fell on me. He saw the whole thing.

6. What kind of emergency treatment, if any, did you have?

Jim called 911 right away. The ambulance came and took me to the closer (smaller satellite) hospital. But it was quickly determined that I needed to be at the bigger downtown Forth Worth hospital because that hospital actually had an MRI (magnetic resonance imaging) scan machine.

7. Were you in a coma? If so, how long?

Whether or not I was in a coma depends upon which pages of my (handwritten) medical records one reads. I was definitely in and out of consciousness for a few days, but I am unsure as to if I was in an actual coma.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

Rehab? In Texas? In 1988? LOL! The “rehab” that I had was terribly inadequate, especially by today’s standards. I was assigned a physical therapist and an occupational therapist, but it is unclear what specifically those people did with me.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?Forget

The most significant loss for me was experiencing total retrograde amnesia, which means I lost all of my memories of roughly the first twenty-two years of my life. Initially, both short- and long-term memory were affected. I did not recognize my husband, my two children (ages 2 and 1), any other family members, or friends. I also couldn’t walk, read, count, brush my teeth or hair, feed myself, etc. My personality post accident is the opposite of my personality from before the accident.

10. How has your life changed? Is it better? Is it worse?

My life totally changed. Better or worse? It’s way more complicated than that. I don’t personally know what my life was like before the accident. I have to rely on the memories and stories of others who knew me. Which, by the way, really kind of sucks.

11. What do you miss the most from your pre-brain-injury life?

I don’t have any memory of anything from my life pre TBI (traumatic brain injury): all of my childhood/teenage/early adulthood memories, learning how to ride a bike, birthdays, grandparents, learning how to play piano and drums, vacations, my first crush, my first kiss, pets, losing my virginity, college-looking (the first time), sorority rush/initiation/parties/friends, meeting and falling in love with my husband, my wedding, the pregnancies of my two boys and their first years, and so many, many, many more …

12. What do you enjoy most in your post-brain-injury life?Speaker

Advocating for my fellow TBI survivors. I love speaking to groups of survivors, caregivers, and anyone really about what it is like to live with a TBI.

13. What do you like least about your brain injury?

Nearly everything else

14. Has anything helped you to accept your brain injury?

Even though there are still some days that I feel as though I can’t do, or understand, or remember a damn thing, the process of writing my book helped me to come to terms with how far I have actually come since my accident.

15. Has your injury affected your home life and relationships and, if so, how?

Oh yes! I don’t feel as if I am part of my family (my parents’ and siblings’ family). I think of my kids as more like my siblings. And my husband? Well … We are still married (33 years) … But since my accident, there have been some genuinely shitty times!

16. Has your social life been altered or changed and, if so, how?

I’m sure it has changed in many ways, but one thing that comes to mind (and the thing that was most noticeable when I was in college at both Montgomery College and then at Smith College) is the fact that I feel way more comfortable around people in their 20s and 30s than I do around people my “real” age (50s).

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

Jim, my husband, is my main caregiver now. But at times, my children often took on the caregiver role because Jim traveled so much.

3 Su Meck & Jim 10835181_659603147482572_2314662174685025134_o

090518 PressKit_DonnaODonnelFigurski dmf3 091218

18. What are your plans? What do you expect/hope to be doing ten years from now?

Wow! This is a tough one. I would love to continue writing (and publishing) stories, essays, lyrics, whatever. I always wanted to be part of a working/performing rock band, playing drums as well as singing. I want to become more proficient on the guitar, uke, and piano. I’d love to travel around speaking and educating people about what it is like to live in this crazy world as a TBI survivor. I’d love to move back to New England. I want to ski, and hike, and learn to swim. I’d love to have a dog (a service dog would be great to keep me from wandering). I want to take long extended vacations to Australia, New Zealand, England, Ireland, and even Canada.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Be happy with who you are now, even if you are one hundred percent different from the person you were before. Be honest with yourself and others. It is okay to ask for help. Graduating from Smith College in 2014 was a huge accomplishment for me. In fact, Smith almost did me in physically, mentally, and emotionally. But Smith also gave me a tremendous gift: An enthusiastic love of reading and learning. Keep learning!

I forgot to Remember Book Cover20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Please buy and read my book, I Forgot to Remember: A Memoir of Amnesia. (I’m shameless!) And, if you like it, please write a positive review on Amazon and/or Goodreads. (Yes, I’m truly shameless!)

 

 

Please check out Su Meck’s book. It’s a great read!

 

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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SPEAK OUT! . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

Itty-Bitty GIant Steps for Blog

 

 

SPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at donnaodonnellfigurski@gmail.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

Heather Sivori Floyd & TJ

Brain Injury Survivor, TJ and Mom, Heather Sivori Floyd

Heather Sivori Floyd (caregiver for her son, TJ) … TJ was finally able to get out of the bath on his own! We will always celebrate the little, yet big, milestones because they matter. It matters simply because these moments are the reasons to keep going when it’s very hard. (Keep it up, buddy! You’ll hit those goals because you are determined.) So very proud of him and his never-ending drive to keep going.

Heather Sivori Floyd

Heather Sivori Floyd – Caregiver for son, TJ

 

YOU did it!

Congrats to TJ!

 

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Please leave a comment by clicking the blue words “Leave a Comment” below this post.

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Survivors SPEAK OUT! . . . Gage Mabry

Survivors SPEAK OUT! Gage Mabry

presented by

Donna O’Donnell Figurski

 

Gage Mabry 1

Gage Mabry – survivor of brain injury

1. What is your name? (last name optional)

Gage Mabry

2. Where do you live? (city and/or state and/or country) Email (optional)

Missouri, USA

3. On what date did you have your brain injury? At what age?

October 24, 2015  I was 20 years old.

4. How did your brain injury occur?

I was working, and a fifteen-pound scanner fell from a twelve-foot ladder overhead. It landed on top of my head.

5. When did you (or someone) first realize you had a problem?

Immediately. I knew that I took a good hit to the head. It was like being a cartoon character in a slow-moving cartoon.

6. What kind of emergency treatment, if any, did you have?

There was no emergency-care immediately after the accident. I continued to work the rest of my shift. I was disoriented, my vision was blurry, and I developed a massive headache. It wasn’t until my mom tried to wake me up that we realized there was a problem.1304_Symptom_12

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I was sent to a company doctor, who at first diagnosed my injury as a concussion. When my symptoms continued to persist and worsen over the next few weeks, the company sent me to have a CT (“cat”; computerized tomography) scan, which showed no abnormalities. Over the next three months of “rest,” my symptoms continued, and new ones developed. So now, my brain injury was diagnosed as Post-Concussion Syndrome. I was sent for neurological testing, which showed deficiencies in brain function. I was then referred for further treatments to involve pain management, balance therapy, and counseling. But, due to the situation, I never received any treatment other than what my family could try and provide. Now after two years and an independent medical exam, I’ve been diagnosed as having “Diffuse TBI” (traumatic brain injury).

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

headacheI have severe migraines that last for days, photophobia, sensitivities to loud sounds and to certain smells, and balance issues. I also have issues with depression, anxiety, anger, and fatigue that are so bad that I can’t even function some days.

10. How has your life changed? Is it better? Is it worse?

This is a hard one. My old life is gone, but my new one is filled with good and bad … it’s a work in progress!

11. What do you miss the most from your pre-brain-injury life?

Activities I used to do; my friends.

12. What do you enjoy most in your post-brain-injury life?

All the possibilities

Gage Mabry 2

Gage Mabry – Brain Injury Survivor

13. What do you like least about your brain injury?

The headaches

14. Has anything helped you to accept your brain injury?

My mom!

15. Has your injury affected your home life and relationships and, if so, how?

This has been a roller-coaster ride. It has devastated my family financially, but it has brought us together – with more love and support for each other that we had before. My friends and girlfriend have their lives to live, and I just wasn’t part of their plans anymore.

16. Has your social life been altered or changed and, if so, how?

This difference has been the hardest for me to accept. I went from being a popular, outgoing, and athletic person to a withdrawn, angry, and depressed person overnight. Social anxiety has been the hardest things to try and overcome, but I’m doing it day by day. Finding humor in that anxious setting has been the best medicine ever! I explain it to people as an “EMP” … electrical magnetic pulse … when I can’t remember my left from my right or forget how to speak. It eases the tension.

Mabry, Darlene Watson Caregiver

Darlene Watson Mabry – Caregiver

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My MOM! And, yes, it has been so hard for her. I don’t know how she does it. She’s a

superhero to me!

18. What are your plans? What do you expect/hope to be doing ten years from now?

I still have my dreams that I will fulfill. They have just been altered. Instead of a “Game Designer” … it’s a “Game Broadcaster”; my physical-fitness regimens have been modified to walking instead of running. “Compromise” is what my mom calls it!

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

You may have setbacks, but that doesn’t mean the game is over!

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Never give up – regardless of how bad it gets – because you belong to a special group now … you are a Survivor!

 

Gage’s mother wrote a moving “Faces of Brain Injury”  Click to read

Please leave a comment/question. I will respond.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it (intact) with your enemies. I don’t care!

Feel free to “Like” my post.

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