TBI – Survivors, Caregivers, Family, and Friends

Archive for the ‘Survivors SPEAK OUT!’ Category

Survivors SPEAK OUT! . . . Pamela Ann Taylor

Survivors SPEAK OUT!   Pamela Ann Taylor

presented 

by

Donna O’Donnell Figurski

 

Pamela Ann Taylor Survivor 092417

Pamela Ann Taylor – Brain Injury Survivor

1. What is your name? (last name optional)

Pamela Ann Taylor

2. Where do you live? (city and/or state and/or country) Email (optional)

Mansfield, Ohio, USA     Teach621@aol.com

3. On what date did you have your brain injury? At what age?

Age 55

4. How did your brain injury occur?

I have been in three accidents in my life. The last one was a rollover.

5. When did you (or someone) first realize you had a problem?

I had some issues with balance and vision after the second accident, but more recently it has become far worse. This is due to the rollover-accident.

6. What kind of emergency treatment, if any, did you have?0016

I was transported to a Trauma Center in an ambulance, where they found I had a concussion. I was released and told to go home. They had done some tests, but, because they had given me pain meds, they thought that I was throwing up due to the meds and not the concussion. I was throwing up in the wheelchair all of the way to the car, but they still sent me home.

7. Were you in a coma? If so, how long?

N/A

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I have had occupational, physical, and speech therapies.

How long were you in rehab?

My first round of physical therapy lasted a few months and helped somewhat with back pain, neck pain, and headaches. I am now in rehab again. I have been going for about four months, and I’m still working with an Occupational Therapist and Physical Therapist. Speech therapy did not last as long. I found these places myself through searching and asking my doctor for referrals. A general doctor in my area seemed not to know of TBI (traumatic brain injury) treatments much at all. Be a self-advocate if you can.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have issues with vision, balance, perception, and personality. I’m more aggressive – things escalate more easily. My eyes are like that of a 6-month-old baby – not coordinated.

10. How has your life changed?

I cannot work and cannot drive. I have no income (as the disability stuff is still in process), and I don’t know when I will get an income. I do not go to crowded places or shop for long in fluorescent lighting. I have lost connection with some friends, as I cannot get to them to visit now, etc.

Is it better?

I am home more.

Is it worse?

I get bored, and at times I’m lonely. I wish I could go out to lunch or drive to a friend’s house.

11. What do you miss the most from your pre-brain-injury life?

I miss feeling like I make a difference in the world. I used to travel and do missions work, but now, without an income and a way to get myself to the locations to serve, it is a real challenge to help others. It is forcing me to focus more on myself.

12. What do you enjoy most in your post-brain-injury life?no-noise-1

I do enjoy the solace in that I cannot tolerate noise, etc. much anymore. I am finding ways to write like I used to, and I am finding more time to pray, which I do like.

13. What do you like least about your brain injury?

People don’t understand – I don’t look sick.

14. Has anything helped you to accept your brain injury?

I’ve been helped by prayer and focusing on those who love me unconditionally. Baby steps forward bring joy as well.

15. Has your injury affected your home life and relationships and, if so, how?

The house is more organized and cleaner (LOL). I have made a new friend through needing a driver to take me to therapy sessions. She is a real gem.

16. Has your social life been altered or changed and, if so, how?

My social life is near nil. I can’t get to the places I used to go to.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I do most things for myself, but the financial burden is all on my husband. I would rather it be 50:50 like it used to be.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to be able to travel again. I am beginning to work on my physical healing, including walking more, etc. I have put on weight and need to get back in shape. I also see myself being with my grandchildren more. I hope to be able to drive to local places and get out more with them and others I care about. I am beginning to blog, and I’m hoping that takes off and helps others. Perhaps I will publish another book one day. (I had a book coming out when the accident happened under a pen name – Phoebe Siylor; the book – Molding Sharon.)

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Pamela Ann Taylor & dog

Pamela Ann Taylor – Brain Injury Survivor

I would tell you to be an advocate for yourself or your loved one. Seek out what you need. It does not seem as if those in the medical field know what to do. I should have stayed at the hospital and not gone home. Also, I should have been told about therapy and not had to find it on my own. Seek, and you will find some answers. It is a process, and it takes time. Be patient, and keep moving forward.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Find a therapist who knows how to help you. If he or she does not seem to be the right fit, move on. When people comment things, like how long do you expect me to support you in the system, remember that you paid into that system, and it is your right to get help if you need it. Don’t let them kick you down – rise up and be strong. It is hard, but you can do it. Pray – connect with a church and with God – He will always love you unconditionally. I fall back on Him a LOT.

 

HUGZ

You can learn more about Pamela Ann Taylor on her blog. Pamela Ann Taylor Blog.

 

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

Advertisements

Survivors SPEAK OUT! Paul McMahon

Survivors SPEAK OUT! Paul McMahon

presented 

by

Donna O’Donnell Figurski

 

Paul McMahon 1 082817

Paul McMahon – Brain Injury Survivor from Down Under

1. What is your name? (last name optional)

Paul McMahon

2. Where do you live? (city and/or state and/or country) Email (optional)

Sydney, Australia

3. On what date did you have your brain injury? At what age?

I was 28 years old.

4. How did your brain injury occur?

At my birthday party, I fell 3 1/2 floors – off a building onto concrete.

5. When did you (or someone) first realize you had a problem?

The moment it occurred

6. What kind of emergency treatment, if any, did you have?

I had surgeries for my physical condition. I have had no assistance with brain injury.

7. Were you in a coma? If so, how long?

Yes. Three days, I believe

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

Yes. I was in rehabilitation during my first three months at hospital and then a required three months following my exit. It was six months in total, but I now realise that it should have gone for longer. Part of that was my own fault – by passing the neurological test at the minimum six-month recovery point (Australia). I should have waited longer – to realise the challenges I could face. I needed more time to think of how my second stage of recovery would take place.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

Paul McMahon 2 082817

Paul McMahon- Brain Injury Survivor from Down Under

I have problems with short-term memory and especially with attention to detail. Attention to detail in quick moments was a great challenge. I work in communications/policy, and so this is certainly a working issue that can’t be avoided. Also, my aura was different, and I could not connect with people as I once did. This emotional issue lasted about three years.

10. How has your life changed? Is it better? Is it worse?

It’s different. I have learnt so much. I have fewer friends, but I knew my intelligence was not taken by the accident. I started a Master’s degree and wrote my book. I am editing now.

11. What do you miss the most from your pre-brain-injury life?

I miss people’s lack of judgement about me. People assume they are helping by telling you what is wrong with you. That is 100%, and it is an instigator for suicide, as you feel no one understands, but tells you how to react. The loss of their lack of judgement is my deepest pain from the brain injury.

12. What do you enjoy most in your post-brain-injury life?

I have learned to be more compassionate. I have a deeper understanding of mental health and realise that I couldn’t understand depression or other illnesses in the same way previously.

13. What do you like least about your brain injury?

I dislike the way people handle my judgement – when you assume you are right, but others judge a situation with no thought of your opinion. It hurts and is damaging psychologically and, at times, in your economic life at work.

14. Has anything helped you to accept your brain injury?

Man Writing BookYes – writing. My book was my therapy. It is safe to say that, if I sell zero books and have zero readers, I will still be happy, as I believe writing helped me heal faster.

15. Has your injury affected your home life and relationships and, if so, how?

Yes. Many friends just ignore me or keep away to feel self-security. I guess the upcoming book tells the rest of the story.

16. Has your social life been altered or changed and, if so, how?

Yes! I felt very anti-social. While I would attempt a little, I needed people to be more open and accepting of my changes. I felt this was a lonely journey, so I took that avenue – different from my old caring self.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I don’t have one.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I will finish the book, earn a Master’s Degree, and be as different as I always am. I’ll be economically safe and live the full experiences of this world.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

From the beginning, I felt my brain injury was temporary, so all I can say is to KEEP GOING and DON’T GIVE UP! I learnt that when the accident occurred. I would also say to FOLLOW YOUR PASSIONS. Don’t do only what a therapist tells you – you know you better than any external you-decider.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Paul McMahon & Camel 082817

Paul McMahon – Brain Injury Survivor and Camel

Remember that your passion to follow your dreams may have been limited due to the accident. That does not mean STOP! It means you continue to train your brain in what you love and hold dear. Listen to you!

 

You can learn more about Paul McMahon on his Facebook site (https://www.facebook.com/paulmcmahonauthor/).

 

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

Survivors SPEAK OUT! Shauna Farmer

Survivors SPEAK OUT! Shauna Farmer

presented 

by

Donna O’Donnell Figurski

Shauna Farmer – Brain Injury Survivor

1. What is your name? (last name optional)

Shauna Farmer

2. Where do you live? (city and/or state and/or country)

I currently live in Thermopolis, Wyoming, USA, with my family. I’m originally from Portland, Oregon.

Email (optional)

sfarme0@yahoo.com

3. On what date did you have your brain injury?

August 8, 2015

At what age? 37 years old

4. How did your brain injury occur?

While not wearing a helmet, I rolled an ATV. My head hit a tree or a pile of rocks. I continued to roll, crushing more bones. Then I stopped unconscious.

5. When did you (or someone) first realize you had a problem?

I didn’t return to camp, and, after twenty minutes, my sister came looking for me.

6. What kind of emergency treatment, if any, did you have?

I was taken to the hospital by ambulance. Then I was life-flighted to a larger hospital. I spent three weeks in the ICU (intensive care unit). I had surgery to reinflate my lung, and I had a drain tube put in. Then I was sent back to the ICU.

7. Were you in a coma? If so, how long?

Shauna Farmer – Brain Injury Survivor

For roughly two weeks, I was in and out. They needed me to be awake, but when I woke up, I was lashing out at the nurses, doctors, and my family. I pulled out my tubes and detached monitors. I climbed onto a wheelchair with my head bandaged. I tried to persuade the other patients to get out of there.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

Yes. I was in an inpatient rehab facility for two weeks. I had speech, occupational, and physical therapies and some cognitive therapy. Now I do most things at home, and I go to the gym three days a week.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have a diffuse axonal injury (DAI, shaken-baby syndrome). I have chronic back pain from the crushed vertebrae. I suffer from fatigue, dizziness, and vertigo. My personality has been affected. I sometimes misconstrue what others say. Also, my temper is not what it was, nor is my patience.

10. How has your life changed?

I live with family now, which I don’t like. I love my family, but I don’t love when others have to do things for me that I can no longer do. For example, I depend on others to drive me to the store, as I’m not allowed to drive yet. I have to limit my exercise routine because of injury – no running, no jogging, no skydiving, no heavy lifting. My balance is off due to BPPV (benign paroxysmal positional vertigo; one of the most common causes of vertigo; will cause brief episodes of mild to intense dizziness), so I have to be careful with quick movements, stairs, heights, and foreign places.

Is it better? Is it worse?

No answer

11. What do you miss the most from your pre-brain-injury life?

I miss living close to the beach in my own home and being so damn independent.

12. What do you enjoy most in your post-brain-injury life?

I enjoy the sunny weather.

Shauna Farmer – Brain Injury Survivor

13. What do you like least about your brain injury?

I dislike not being able to go hiking in the forest or to go on the beach.

14. Has anything helped you to accept your brain injury?

I became editor of three Facebook online support-groups for TBI (traumatic brain injury). That helps me a lot. I feel I can give something of value to others living the same journey I am. I’m also in the works to create my own Facebook support-group, specifically for DAI (diffuse axonal injury), the injury I have. DAI is the most common and also the most devastating brain injury out there.

15. Has your injury affected your home life and relationships and, if so, how?

Yes! I lost my home, my job, and my independence. I live with family now. I do have my own room with space, but I’m not used to cooking for others or depending on others to provide for me when I did everything before. I feel like my family tiptoes around me and treats me like a fragile bird. I’m not! I can still do most things. Let me prove myself. If I don’t succeed, then maybe you can help me the next time.

16. Has your social life been altered or changed and, if so, how?

I have no friends here. The few I have are 1400 miles away, and they haven’t seen me since before the accident. I don’t know how they will feel or react when they see I’m still pretty much the same person, just a little slower when running.

17. Who is your main caregiver?

My sister was my caregiver, but after a week, she knew I could take care of myself, and I do.

Do you understand what it takes to be a caregiver?

Yes, I know it’s hard, especially if the survivor is family.

18. What are your plans?

I plan to move back to Oregon and return to school.

What do you expect/hope to be doing ten years from now?

I aspire to become a paralegal, or maybe I’ll become something with occupational therapy and assist those with brain injury.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

My advice: (1) Water is so important, and being tired is your new normal. (2) Find something positive that you like to do, and stick with it so you can move forward.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

positive-thinking-clipart-positive-thinking-world-Ng196D-clipartIt will take time to accept the new you. Find something you like, and keep doing it. Or, try something you’ve never done before, like work out regularly. I was not a fan of the gym, but I made myself go three days a week. After a month, it became routine, and now I look forward to it. My personal trainer pushes me, and I find myself looking for ways to improve to show her the next time. I have more energy, and I am happy when I accomplish things I couldn’t do six weeks ago. That’s a great feeling! Even if it takes me longer to do it, the satisfaction is still there.

 

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

 

 

Survivors SPEAK OUT! Taylor Trammell

Survivors SPEAK OUT! Taylor Trammell

presented 

by

Donna O’Donnell Figurski

Taylor Trammell – Brain Injury Survivor

1. What is your name? (last name optional)

Taylor Trammell

2. Where do you live? (city and/or state and/or country) Email (optional)

Grand Prairie, Texas, USA     taylor.dot24@gmail.com

3. On what date did you have your brain injury? At what age?

I had my brain injury on February 14th, 2010, at age 13.

4. How did your brain injury occur?

Carbon monoxide poisoning

(Donna’s note: The story of the poisoning of Taylor and her mother, Shelley Taylor, will be published later on this blog under “Faces of Brain Injury.”)

5. When did you (or someone) first realize you had a problem?

The problem was apparent the night we were poisoned.

6. What kind of emergency treatment, if any, did you have?

I was put into a hyperbaric chamber.

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

No

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

Afterward, I started to sleep poorly or not to sleep any at night. I also suffer from horrible migraines. Sometimes, when I hold on to something, I just drop it. But overall, it’s a mystery because every day could be something different.

10. How has your life changed? Is it better? Is it worse?

Now I have sleeping problems, and I get horrible migraines. But, I can’t really say if my life is better or worse. I mean, it’s not fun on some days, but at least I have a life to live.

11. What do you miss the most from your pre-brain-injury life?

I miss being able to go to a concert or an event and not having to turn away from the stage or to have my boyfriend hold my head in his chest to block the light. I miss being able to talk normally and not forget what I was saying. Most of all, I miss not being able to sleep.

12. What do you enjoy most in your post-brain-injury life?

I enjoy just living in general. I mean that because it was such a close call to be living. God saved me, so I will live my life to the fullest and not let my TBI (traumatic brain injury) hold me back.

13. What do you like least about your brain injury?

Not sleeping and my migraines

14. Has anything helped you to accept your brain injury?

Yes. I’ve been helped by knowing that God saved me and that He is always right beside me.

15. Has your injury affected your home life and relationships and, if so, how?

I’m not sure. Sometimes it’s hard for people to understand my migraines or that I’m grumpy from not sleeping.

16. Has your social life been altered or changed and, if so, how?

Yes, it has. I realize that life is short, so I try to do everything I want to do. I have fun. I love music and going to concerts, but that has changed due to the lights.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

N/A

18. What are your plans? What do you expect/hope to be doing ten years from now?

I am graduating in a few weeks with my degree in ASL (American Sign Language) Interpreting. I plan to become an interpreter and to be married next year and start our lives.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

No matter what has become the new you, you have to remember that there is a you because God saved you. I had to accept who the new me was and just roll with it. I mean, there wouldn’t be a you if you were not saved. SO, accept it, and learn what you need to do to live your life every day.

Taylor Trammell – Brain Injury Survivor

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Just remember to be thankful, even in the hardest times. Life isn’t easy, and it never will be. Be strong and be supportive to everyone because you never know what the other person is going through. I know a lot of people in my life who have no idea what I go through every day, so just be strong and remember God is with you.

 

 

Surviving Brain Injury - Stories of Strength & Inspiration

Surviving Brain Injury: Stories of Strength and Inspiration

NOTE 1:

Taylor Trammell and her mother, Shelley Taylor, are contributing authors in “Surviving Brain Injury: Stories of Strength & Inspiration,” edited by Amy Zellmer. Shelley and Taylor’s story is titled, “Our Story of Poisoning — and of Grace.” It can be found in Chapter 75 on page 299.

NOTE 2:

My story, “Nightmare in the Disability Lane,” can be found in Chapter 29 on page 114 of the same book, “Surviving Brain Injury: Stories of Strength & Inspiration,” edited by Amy Zellmer.

 

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

Survivors SPEAK OUT! Barbara Asby

Survivors SPEAK OUT!  Barbara Asby

presented by

Donna O’Donnell Figurski

Barbara Wilson Asby

Barbara Wilson Asby – TBI Survivor

 

1. What is your name? (last name optional)

Barbara Asby

2. Where do you live? (city and/or state and/or country) Email (optional)

Norfolk, Virginia, USA

3. On what date did you have your brain injury? At what age?

My brain injury happened over seven years ago. I was 41 years old.

4. How did your brain injury occur?

Pesticide Toxic Exposure

5. When did you (or someone) first realize you had a problem?

Some symptoms occurred during the first couple of days during the exposure. Symptoms gradually got worse after the following two weeks and beyond.

6. What kind of emergency treatment, if any, did you have?

hospital5I went to the Emergency Room after a week, because of shortness of breath and cognitive issues. They found an enlarged lymph node in my lung. This finding was followed up by other specialists. I had MRIs (magnetic resonance imaging), an EEG (electroencephalogram), a SPECT (single-photon emission computed tomography) scan (a test that uses a radioactive substance and a special camera to determine how an organ is functioning), and other tests, to name a few.

6. Were you in a coma? If so, how long?

No

7. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

Yes. I had occupational, speech, and vestibular therapies.

How long were you in rehab?

My therapy has been on and off from 2010 to the present.

8. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have problems with balance, perception, cognitive abilities, memory, organizational skills, and word retrieval. I am plagued with fatigue, headaches, and partial seizures.tired-woman

9. How has your life changed? Is it better? Is it worse?

I am now disabled and unable to work in my former job as an IRS (Internal Revenue Service) agent.  (This injury happened on the job.) My life is better because I realize how important life really is. It’s worse because I realize what I took for granted.

10. What do you miss the most from your pre-brain-injury life?

I miss the ability to work and have a career. I really miss not having a better memory, more energy, and the organizational and multitasking skills that I once had.

11. What do you enjoy most in your post-brain-injury life?

I am aware of the beauty that life has to offer. I see the good in life and in people.

12. What do you like least about your brain injury?

I dislike the fact that others aren’t willing to educate themselves about TBI (traumatic brain injury) or try to understand what others go through. People lose interest over time – they do not want to hear about your problems or your pain anymore. I think this is the greatest suffering from my TBI.education-clipart-9c4y5zycE-1

13. Has anything helped you to accept your brain injury?

It’s been over seven years, and I am still trying to accept my brain injury. It still changes – it’s hard to accept when it does not stay stable. Therefore, I can’t accept something when each day is different.

14. Has your injury affected your home life and relationships and, if so, how?

Yes. It has ended my marriage.

15. Has your social life been altered or changed and, if so, how?

Yes. Due to the balance and sensory issues, my social life has been greatly affected.

16. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I am my caregiver.

17. What are your plans? What do you expect/hope to be doing ten years from now?

My future plan is to write a memoir. I also want to volunteer to help others who have a brain injury.

18. Are you able to provide a helpful hint that may have taken you a long time HistoryMissionusewhereveriStock_000017322294Smallto learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

My advice is to look for support-groups and to try to reach out to others. Also, educate yourself with brain injury material.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Just reach out to other survivors – we are a big family. We understand – when others do not. TBI survivors – like other survivors – are strong. God kept you on this earth for a reason. Keep your chin up. Look to others for strength, and give others strength when it’s needed. BIG HUGS.

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

Survivors SPEAK OUT! Shelley Taylor

Survivors SPEAK OUT!  Shelley Taylor

presented by

Donna O’Donnell Figurski

 

 

Taylor, Shelley Survivor 3 050417

Shelley Taylor – Brain Injury Survivor

 

 

1. What is your name? (last name optional)

Shelley Taylor

2. Where do you live? (city and/or state and/or country) Email (optional)

Grand Prairie, Texas, USA     shelley@shelleytaylor.net

3. On what date did you have your brain injury? At what age?

I had my brain injury on Valentine’s Day seven years ago. I was 45 years old.

4. How did your brain injury occur?

Both I and my daughter, Taylor, were poisoned one night by carbon monoxide gas coming from an outside generator. We were fortunate to awaken and survive. Both of us have a brain injury as a result. (Donna’s note: Their horrific story will be published later on this blog under “Faces of Brain Injury.”)

5. When did you (or someone) first realize you had a problem?

The likelihood of carbon monoxide poisoning was first evident to the Fire Chief when the detector showed very high levels of carbon monoxide near the house. I was treated for carbon monoxide poisoning at Methodist Dallas Medical Center. Eventually it was discovered that I have a traumatic brain injury (TBI).

6. What kind of emergency treatment, if any, did you have?

I was taken to the Emergency Room at Methodist Hospital in Mansfield. I had stitches for a head wound (see story), and I was given a CT (computerized tomography) scan. A hyperbaric chamber at Methodist Dallas Medical Center was used to treat me for carbon monoxide poisoning.

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

Yes. I had occupational therapy.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have a problem breathing. I also have problems with balance, depth perception, and memory. I am plagued with migraines, vertigo, and light-sensitivity.

10. How has your life changed? Is it better? Is it worse?

My daily life has changed, with issues in breathing, balance, light-sensitivity, depth perception, noise-sensitivity, and memory. Now I also have daily headaches. (I got a migraine on February 4th, and I have not gone a day pain-free.) Life is just different. I am who I am for a reason. I’m living God’s plan for me.

11. What do you miss the most from your pre-brain-injury life?

I miss being able to remember, wearing high heels, and pain-free days.

12. What do you enjoy most in your post-brain-injury life?

Taylor, Shelley survivor

Shelley Taylor – Brain Injury Survivor

I try to live every day with a positive attitude. My daughter and I live with gratitude. We are very thankful that God saved us.

13. What do you like least about your brain injury?

I dislike coughing, falling, the light-sensitivity, the noise-sensitivity, and the memory issues. Many doctors don’t have experience with our type of injury. It’s frustrating.

14. Has anything helped you to accept your brain injury?

Yes. My relationship with Christ.

15. Has your injury affected your home life and relationships and, if so, how?

I think my family offers me an abundant amount of grace on days when my head is killing me and I’m extremely nauseous. They know I need to rest my brain a lot in the calm and quiet.

16. Has your social life been altered or changed and, if so, how?

Yes. I was an extrovert pre brain injury. Post brain injury, I’ve become an introvert. I love calm and quiet now.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

N\A

18. What are your plans? What do you expect/hope to be doing ten years from now?

I just finished writing a book, “With My Last Breath, I’d Say I Love You” – when your faith and hope slip, grace wins every time. I hope to find a publisher soon. Also, I’d love to speak and encourage others. book

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Early on, realize that you are here for a reason and make the most of each day. Our struggles are what make us stronger. Reach out to others and ask for help when necessary. Love yourself for who you are, not for what you aren’t.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

See my comments in the preceding question.

NOTE 1:

Surviving Brain Injury - Stories of Strength & Inspiration

“Surviving Brain Injury: Stories of Strength & Inspiration”

Shelley Taylor and her daughter, Taylor Trammell, are contributing authors in “Surviving Brain Injury: Stories of Strength & Inspiration,” edited by Amy Zellmer. Shelley and Taylor’s story is titled, “Our Story of Poisoning — and of Grace.” It can be found in Chapter 75 on page 299.

NOTE 2:

My story, “Nightmare in the Disability Lane,” can be found in Chapter 29 on page 114 of the same book, “Surviving Brain Injury: Stories of Strength & Inspiration,” edited by Amy Zellmer.

 

 

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

Survivors SPEAK OUT! Rodney Smith

Survivors SPEAK OUT!  Rodney Smith

presented by

Donna O’Donnell Figurski

1 Rodney Smith

Rodney Smith – Brain Injury Survivor

1. What is your name? (last name optional)

Rodney Smith

2. Where do you live? (city and/or state and/or country) Email (optional)

Ravenswood, West Virginia, USA

3. On what date did you have your brain injury? At what age?

It happened on May 14, 2008. I was 52.

4. How did your brain injury occur?

It was just another day – Wednesday, May 14th, 2008. Really, it was just another day – in the middle of the week, in the middle of the month, and almost in the middle of the year. It was beautiful weather, a little cool maybe, but a great morning for a quiet ride to work. Little did anyone know it could have been my last

I showered, shaved, and got ready for a day at the office like I had for the last eight years. I got on my motorcycle like I did most days for the last four years. I chose the Yamaha TW200 this day for reasons I will probably never remember. (I actually hope I never do.) I rode to the end of our dirt road and then headed west on Georgia 16. My wife left about the same time or shortly after, but she headed east on Georgia 16.th

About 10 miles down the road, my wife saw a Georgia State Police car speeding west with its blue lights flashing. Immediately, she felt sick in the pit of her stomach. She resisted a strong urge to turn around and follow the trooper. She said to herself that she had no way of knowing where the police car was going, but she felt deep in her heart that she was sure what had happened. The only question was “How bad was it?” My wife kept driving, and less than a mile down the road, a Spalding County sheriff’s car in front of her flipped on its blue lights, pulled a U-turn, and flew past her, going west on 16. The sickness in my wife’s stomach got worse, but once again, she fought the urge to turn around. She didn’t know anything for sure, and cops do that all the time, so she kept driving.

Shortly after, my wife’s cell phone rang. She looked at the number, and it all but confirmed her worst fears. It was from my cell phone, and I never used my phone while I was riding. Since I had left the house less than 20 minutes earlier and since it is at least a 30-minute ride to my office, this couldn’t be good. Still she had hope that maybe I forgot something or just broke down and was calling to let her know. But, as soon as she heard the voice on the other end, she knew. A man’s voice confirmed what she suspected when he asked, “Do you know an older gentleman who rides a motorcycle?” All she could say was “How bad is it? Is he alive?”

He told her I was alive. My wife said she was on her way there, but he told her not to come out 16 because the whole road was blocked. He told her to head for downtown Atlanta because they were life-flighting me there. He didn’t know which hospital yet, but he would call and let her know as soon as he found out.

This all seemed to be happening in slow motion, but the next few hours were a blur. My wife doesn’t remember stopping to turn around, but she found herself headed back to the house to get things she knew she would need – like the phone numbers of family and my office. She was not a person who prayed much, but she took time to ask God to help and keep me alive if He could. My wife did not give much more thought to that prayer, but God apparently did.

The only thing resembling a clear memory between the Sunday before the accident and the first week of August is of a canyon I was looking into. I was about to step in or float in or something when I felt a beautiful and powerful presence surround me and pull me back from the edge. I don’t know how I knew, but I knew it was my wife, Bonnie, pulling me back from wherever I was headed.

I believe with all my heart that that happened when I was in the life-flight helicopter. The medical reports say they had to revive me twice while flying me to Atlanta. I feel that, during that time, God heard my wife’s simple and sincere prayer and sent her spirit to the edge of the Valley of the Shadow of Death to bring me back because He was not finished with me yet. He wasn’t finished with either one of us.

5. When did you (or someone) first realize you had a problem?

I didn’t fully realize anything for about two and a half months. On the second or third day I was in the hospital, my wife, Bonnie, knew something was not right. She told the kids, “He’s not in there.”

2 Rodney Smith ICU

Rodney Smith – Brain Injury Survivor

6. What kind of emergency treatment, if any, did you have?

I was treated at Grady Memorial Hospital in Atlanta, Georgia. Grady is a very good trauma center. It’s staffed with Emory University doctors. They did a great job with my broken jaw and broken wrist, fixing those with titanium plates and screws. They did a CT (computerized tomography) scan and found some bleeding on the brain. Since I could talk and tell them a birth date (actually, a wrong one), they didn’t refer me for any kind of rehab. Bonnie kept telling them that something was wrong. On the day of my discharge, they had an evaluation done and decided to refer us to a neurologist.

7. Were you in a coma? If so, how long?

Maybe 36 hours

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

After working our way around the medical system for two and a half months, we finally got to a neurologist who at least knew she couldn’t effectively evaluate me. We were referred to Shepherd Center in Atlanta. This was the turning point in my recovery. Shepherd Center is one of the top ten rehabilitation hospitals in the country. They specialize in spinal cord and brain injury rehab.

3 Rodney in HospitalHow long were you in rehab?

I spent about three months in the Shepherd Pathways Day Program, which is their outpatient brain injury rehab. I had sessions three times a week in speech therapy, occupational therapy, and physical therapy.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have short-term and working memory problems. I lost most of my ability to multitask. I have problems with balance. Problem-solving takes much longer than it did pre accident. I have issues with dyslexia. I tend to cry more easily.

10. How has your life changed?

Is it better?

My life is better in that I appreciate things more and care more about things that really matter. I care less about things that don’t matter. My attention to detail is better when it comes to the one detail I can focus on (see how my life is worse).

Is it worse?

My life could be considered worse because I can only focus on one thing at a time. Because of this, people around me can’t depend on me the way they used to. But, there’s a flip side to that. When I work on a project, my single-mindedness allows me to focus on what I am doing and be more precise than before the injury. Those days, my mind was often on many things at the same time.

11. What do you miss the most from your pre-brain-injury life?

I miss being able to solve problems quickly.Decisions

12. What do you enjoy most in your post-brain-injury life?

I enjoy spending quality time with my wife, Bonnie, and my kids and grandkids. I also enjoy building things and working at my own pace.

13. What do you like least about your brain injury?

I don’t like that it is still very difficult to make decisions. It takes me what seems like forever to weigh options and decide on anything. Bonnie makes a game of it, sometimes continuing to give me options. That’s frustrating, but amusing.

14. Has anything helped you to accept your brain injury?

I accept it because I see that God has a plan, and I’m still part of it.

15. Has your injury affected your home life and relationships and, if so, how?

Yes. Bonnie and I are closer now. But, her life is more difficult because she doesn’t know what I will remember and what I won’t, so she has to remember everything just in case.

16. Has your social life been altered or changed and, if so, how?

Not really. My social life is not much different, since I was kind of a loner and spent most of my time with family anyway.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

Bonnie is my main caregiver and my angel. I know it is a very difficult task. I am very thankful every day for what she does.4 Rodney Smith Sideboard

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to be building furniture and fixing things for many years to come.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

One thing Bonnie and I have discovered is that, since my memory can’t be relied upon, I now use my camera phone and take pictures of everything I might need to refer to later.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

There is hope and purpose after brain injury.

 

Thank you, Rodney for taking part in the SPEAK OUT! project

To learn more about Rodney Smith, visit his website, Hope After Traumatic Brain Injury

Take a few moments and pop over to Lash & Associates Publishing to read Rodney Smith’s article, “Brain Injury Adjustments: Self-Reinvention.”

**********

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

Tag Cloud

Ten Thousand Days

The long and winding journey after loss

Wordcrafter9's Blog

Just another WordPress.com weblog

Tripambitions

It contains the world best places and things.

No memory of the day that changed my life

My name is Michelle Munt and this is my story about surviving a brain injury and what I continue to learn about it. This is for other survivors and their loved ones, but also to raise awareness of what can happen to those in an accident. This invisible injury too often goes undiagnosed and it can be difficult to find information about it. I will talk about things that have helped me as I continue to recover and invite others to see if it works for them too.

Everything and nothing. GM1123 😊

Bienvenue. I’m thinking this is the spot where I am to write a witty, flowery personal section that pulls you in......I got nuthin’

Teresa472002's Blog

Just another WordPress.com site

The Concussion Blog

An Education and Communication Outpost from an Athletic Trainer's Perspective

Howdy Hydrocephalus

Understanding my unique gyroscope

Recoveryofthemind.com

Head Injuries Change Everything

Sheri Lawrence de Grom

From the literary and legislative trenches.

With Grace ALWAYS

...doing my best to live a life of grace...

Mild to Moderate

TBI - Survivors, Caregivers, Family, and Friends

Hope for Trauma

TBI - Survivors, Caregivers, Family, and Friends

Lisabeth Mackall

Finding our way back

My Broken Brain

Putting the pieces back together again after encephalitis

The Visger Group

TBI - Survivors, Caregivers, Family, and Friends

melissacronin.com

TBI - Survivors, Caregivers, Family, and Friends

Inside Danielle's mind

Striving for serenity

%d bloggers like this: