TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘Brain Awareness’

SPEAK OUT! . . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty Giant Steps

presented by

Donna O’Donnell Figurski

 

Itty-Bitty GIant Steps for BlogSPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at neelyf@aol.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

Lauren Ziaks

Lauren Ziaks – Brain Injury Survivor

Lauren Ziaks (survivor) … I faced a huge fear today. I wanted to hike a slot canyon, but I was scared of claustrophobia, dizziness/balance issues from recent re-injury, falling etc. But, with (a lot of) help, some positive talk, and a couple of tears of fear at a really steep part, I was able to do Zebra Slot Canyon!8f71e4d8a4fe5b982b90c51e430a75c5

Keep pushing yourself to face your fears and limitations, whatever they are for you. And, lean on those around you for help when you can.

 

 

YOU did it!

Congratulations to Lauren!

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:anim0014-1_e0-1

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TBI Tales . . . . . . . . . . . . . . . . . . This Song Could Be a Caregiver’s Anthem

This Song Could Be a Caregiver’s Anthem

by

Donna O’Donnell Figurski

David & Donna Aunt Irene's Funeral 060718

 

I happened to hear this old hit song (“Lean on Me”) a couple of days ago. After listening to the lyrics, I realized it reflects what we caregivers do. We just want to help.

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We don’t look this bad.

As the song implies, we give much-needed help. “Lean on Me” could be our anthem. Give it a listen.

PS. I just had to dance with this man to that song and we each did a bit of “leaning on.”

 

(Disclaimer: The views or opinions in this post are solely that of the author.)

If you have a story to share and would like to be a part of the SPEAK OUT! project, please submit your TBI Tale to me at neelyf@aol.com. I will publish as many stories as I can.

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.anim0014-1_e0-1

Please follow my blog. Click on “Follow” on the top right sidebar. (It’s nice to know there are readers out there.)

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If you don’t like my blog, “Share” it with your enemies. I don’t care!

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(Clip Art compliments of Bing.)

 

Sneak Peeks for Prisoners

My book, Prisoners without Bars: A Caregiver’s Tale, will be released to the public on November 1, 2018 by WriteLife Publishing of Boutique of Quality Books Publishing Company. Here are pre-order links for Barnes & Noble and Amazon.

 

Excerpt 1

Chapter 1

Everything’s Blurry

presented by

Donna O’Donnell Figurski

… On January 13, 2005, David’s morning started much the same as it did each day. The only difference was that he delayed his rising by one hour. He planned to work at home that morning, preparing a talk about his

figurski-1

David Figurski, PhD – a few months before brain injury

research that he expected to deliver at Wesleyan University in Connecticut on Saturday. A long-time professor-friend was retiring from the faculty, and David was a featured speaker at his retirement symposium. It was an invitation and an honor that may have saved David’s life. …

 

Please leave a comment/question. I will respond.

 

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it (intact) with your enemies. I don’t care!

Feel free to “Like” my post.

New NEWS: My Radio Interview about My Upcoming Book

New NEWS: My Radio Interview about My Upcoming Book

presented by

Donna O’Donnell Figurski

Jamie Crane-Mauzy 053118

Jamie Crane-Mauzy

 

On May 27, 2018, Jamie Crane-Mauzy, a host on the Brain Injury Radio Network, interviewed me about my upcoming book (Prisoners without Bars: A Caregiver’s Tale), which will be available to the public on November 1, 2018, but that can be pre-ordered now. The 80-minute show has been archived and can be listened to at any time.

Donna O’Donnell Figurski

Prisoners

Prisoners without Bars: A Caregiver’s Tale

 

 

 

 

 

 

 

 

 

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it (intact) with your enemies. I don’t care!

Feel free to “Like” my post.

Survivors SPEAK OUT! . . . . . . . Carole Starr

Survivors SPEAK OUT! Carole Starr

presented

by

Donna O’Donnell Figurski

 

Carole Starr Survivor Speaker

Carole Starr – Brain Injury Survivor – Author of “To Root and to Rise”

1. What is your name? (last name optional)

Carole Starr

2. Where do you live? (city and/or state and/or country) Email (optional)

Maine, USA

3. On what date did you have your brain injury? At what age?

I had my brain injury on July 6, 1999. I was 32 years old.

4. How did your brain injury occur?

I was in a car accident. My vehicle was broadsided on the driver’s side by someone going about 50 mph.

5. When did you (or someone) first realize you had a problem?

My brain injury was diagnosed about six weeks after my accident. It was the physical therapist I saw for the whiplash who realized that I also had a brain injury. It became apparent to me when I tried to return to my regular life and struggled with tasks that used to be easy.

6. What kind of emergency treatment, if any, did you have?

After my accident, I was transported by ambulance to the emergency room. They diagnosed me with severe whiplash and other soft tissue injury. The signs of the brain injury were there, but they were missed.

7. Were you in a coma? If so, how long?

I was not in a coma.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I didn’t receive any brain injury rehab until nearly a year after my injury. That was the worst year of my life, as I tried and failed numerous times to return to my old life. A physiatrist referred me to outpatient brain injury rehab. I’ve had physical, occupational, speech, and recreation therapies and counseling. I’ve also found help from alternative therapies, including cranial osteopathy, neuro-optometry, and homeopathy. I received rehab therapies on and off for several years. I still see several medical professionals, and I continue to make slow progress, even after more than eighteen years.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

tired-womanI am plagued by extreme mental fatigue, sound and light sensitivities, balance issues, memory loss, visual midline shift, and difficulties with decision-making and problem-solving.

10, How has your life changed? Is it better? Is it worse?

My life changed dramatically after my brain injury. I had to give up my teaching career and my classical music hobby. I struggled to manage everyday-life tasks. I felt dependent on family and friends. For many years, I grieved the loss of my old life. I hated the new me. It was a long process to work through that grief and start to build a new life. I try really hard not to judge whether my life is better or worse. It’s just different. That helps me with the acceptance process.

11. What do you miss the most from your pre-brain-injury life?

I miss performing as a musician. I miss being able to go a whole day without needing to rest. I miss being able to trust my brain to do what I want it to.

12. What do you enjoy most in your post-brain-injury life?

Brain injury gave me the passion for a cause that was missing in my old life. This has become my life’s work. I like being able to use my experience to help other brain injury survivors. I do that through my book (To Root & To Rise: Accepting Brain Injury), my keynotes at brain injury conferences, and the volunteer group I lead (Brain Injury Voices).

Carole Starr & Book To Root and to Rise

Carole Starr – Brain Injury Survivor

13. What do you like least about your brain injury?

I dislike having to rest every day and missing out on activities I’d like to do. I never know when too much sound, light, motion, talking, or thinking is going to overwhelm my brain and require hours or days of rest to recover from.

14. Has anything helped you to accept your brain injury?

For a long time, I didn’t think I could ever accept my brain injury. It was a long process. Some things that helped me were support-groups, reading books by other survivors, counseling, journaling, crafts, learning to laugh at myself, finding silver linings, and focusing on what I’m thankful for.

15. Has your injury affected your home life and relationships and, if so, how?

For a long time, I felt like I was a burden – the one who always needed help. I had to learn to accept help from my family and friends and not resist their advice. I can now manage taking care of my home, but everything requires strategies. 67-Help_me

16. Has your social life been altered or changed and, if so, how?

My life is much smaller. My daily activities are short and quiet. If I want to do something bigger, I know that the price will be days on the couch recovering my mental energy.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I’ve been able to live on my own. Family, friends, and medical professionals have helped me learn strategies to take care of myself.

18. What are your plans? What do you expect/hope to be doing ten years from now?

kids-hand-writing-clip-art-hand_with_pencil_5CI plan to continue writing and speaking about brain injury. I want to use my experience to make a difference. I’ve spoken at brain injury conferences and events in six states so far. I’d like to speak in all fifty! I’d also like to help other survivors create education/advocacy groups like Brain Injury Voices in other states.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Find an activity that the new you can enjoy and do successfully. Start small, find success and build on it. Over time, small successes can grow into large achievements and lead you in directions you never imagined.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Find ways to connect with other survivors – either through an in-person support-group or online. Interacting with others who “get it” is invaluable.

 

Know that progress doesn’t stop after the first year or two after brain injury. Our brains are always healing. We may never be able to return to our old lives, but we can continue to grow into this new one.

Please feel free to contact me, either through StarrSpeakerAuthor.com or BrainInjuryVoices.org.

Brain Injury Voices Logo

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

New NEWS: Countdown to Prisoners without Bars: A Caregiver’s Tale

Can’t wait for the release of my book, Prisoners without Bars: A Caregiver’s Tale

 

04.29.18

184 days to the release of Prisoners without Bars: A Caregiver’s Tale

4,440 hours to the release of Prisoners without Bars: A Caregiver’s Tale

266,400 minutes to the release of Prisoners without Bars: A Caregiver’s Tale

15,984,000 seconds to the release of Prisoners without Bars: A Caregiver’s Tale

But–WHO’S Counting?

Me! Me! Me! I am!

Check out my new website:  donnafigurski.com

 

SURVIVORS SPEAK OUT! Michelle Bartlett

Survivors SPEAK OUT!  Michelle Bartlett

presented

by

Donna O’Donnell Figurski

 

Michelle Bartlett 2

Michelle Bartlett – Survivor of Brain Injury

1. What is your name? (last name optional)

Michelle Bartlett

2. Where do you live? (city and/or state and/or country) Email (optional)

St. Stephen, New Brunswick, Canada

3. On what date did you have your brain injury? At what age?

I had my brain injury in March of 2004 at age 36.

4. How did your brain injury occur?

Two days after open heart surgery, I had a severe anoxic brain injury.

5. When did you (or someone) first realize you had a problem?

It was known immediately, as I was still in hospital.

6. What kind of emergency treatment, if any, did you have?

I have been told the doctors did CPR and other life-support methods for hours.

7. Were you in a coma? If so, how long?

Yes. I was in a coma for ten to twelve days.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I did inpatient rehab for three weeks and outpatient rehab for over a year. I had speech, occupational, and physical therapies.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have problems with balance, executive functions, and memory. I deal with fatigue and personality change.

10. How has your life changed? Is it better? Is it worse?

My life now isn’t what I planned it would be. It is what it should be.

11. What do you miss the most from your pre-brain-injury life?

Working

12. What do you enjoy most in your post-brain-injury life?

I enjoy helping others.

13. What do you like least about your brain injury?sleeping_on_job_5

The fatigue

14. Has anything helped you to accept your brain injury?

It helped to remember how accepting my grandfather was during times of stress.

15. Has your injury affected your home life and relationships and, if so, how?

Yes. It is difficult for me to express myself, and it is difficult for people to understand.

16. Has your social life been altered or changed and, if so, how?

Yes. Before my brain injury, I would never have had the confidence to do any public speaking. Now I have spoken at two national brain injury conferences. I also have numerous newspaper articles and radio interviews in Canada.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I’m pretty much independent now.

18. What are your plans?

I will continue to cherish my second chance.

What do you expect/hope to be doing ten years from now?

I intend to continue my advocating/support and education work in Canada, focusing on the east coast.canadian-maple-leaf-clip-art-42678

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Patience can be your best and worst enemy.

Michelle Bartlett Survivor 040318

Michelle Bartlett – Brain Injury Survivor

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Life is hard, no doubt about it, BUT always remember you are NOT alone. There is always someone else hiding in the shadows or around a corner who has a brain injury you may not know about.

 

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

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