TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘Traumatic Brain Injury Survivor’

SPEAK OUT! Faces of Brain Injury Dale Christianson

SPEAK OUT! Faces of Brain Injury Dale Christianson

presented by

Donna O’Donnell Figurski

Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere. The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury. On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury. The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver. If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury – one view at a time.

Dale Christianson (survivor) Christianson, Dale 1 050815Thirty years ago, my family was hit by a carload of drunken teens. My life slowly fell apart after that. I nearly gave up. For a long time, I thought that the guy who hit my car was the lucky one. He died in the accident, along with my stepdaughter. The only compensation that I got was $7,000. I have had a hard time holding a job or maintaining a relationship since then. My most successful relationship just ended. My fiancée of five years just gave up on me. She said it was too hard to live with me. My sisters and other family members won’t talk to me. They treat me like I don’t exist, or they wish that I didn’t. I am at another breach in my relationships, and I don’t have a job. I have anxiety and panic attacks. I take Paxil, and it helps tremendously. I understand that I’m difficult, but I haven’t given up on myself.

Disclaimer: Any views and opinions of the Contributor are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

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SPEAK OUT! Faces of Brain Injury Aaron Avila

Brain Injury is NOT Discriminating!

 

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury – one view at a time.

Aaron Avila (survivor)

Avila, Aaron SurvivorFive years ago, at age 47, I had a major stroke. I had been the type of guy who could do about anything he set his mind to. Cutting down an 80-foot tree…no problem! Designing a rain harvesting system…no problem! Building a 100,000-gallon water storage tank…no problem! Running and owning my own companies (National Storage Tank and Rain Harvesting Solutions, Inc.) for over twelve years…done! Then the course of my life changed forever. I was doing the day-to-day grind. I truly believe that there was only one thing that could stop me dead in my tracks – my stroke and near-death experience. This event in my life forced me to fully re-evaluate all the things that I, like most everyone, took for granted – life itself, walking, talking, feeling one with my body, family, friends, etc.

I truly believe that the stroke has given me a SECOND CHANCE. I would come to believe Avila, Aaron 2wholeheartedly that this was a type of gift. Yes, this stroke is the hardest thing I would ever face. But, I was alive! I was given a gift that the majority of people on this planet don’t have – the chance to live two lives in this one. I was given a second chance to learn not to take it all for granted. In the beginning, part of me was angry and suicidal. I felt ripped off, but what I have learned since my stroke makes it all worth it. I should have a big sign on my forehead – “Under Major Reconstruction.” I would have to say, and I know with all my heart, that if it were not for my incredible family and friends anthis_body_is_under_going_major_re_construction_tshirt-p235029087676528180yenb_400d their support, I’d be in a much different place. Tears of thankfulness run down my face. Go stroke survivors!

WE’RE NOT VICTIMS; WE’RE SURVIVORS!

Disclaimer:
Any views and opinions of the Contributor are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

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If you don’t like my blog, “Share” it with your enemies. I don’t care!

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“Another Fork in the Road” . . . Brain Injury Radio Network . . . Interview: Lisabeth Mackall

You Are Invited

Lisabeth Mackall: Caregiver, Therapist, Author

putthis_on_calendar_clip_art

When Lisabeth Mackall opened her front door at 2:30am on January 2, 2012, it changed her life forever. She learned that her husband, Police Officer Frank Mackall, had been in a serious motor vehicle accident while on duty, and had been airlifted to a hospital. When Lisabeth opened her front door, she unknowingly entered the world of brain injury. She had to follow “Another Fork in the Road.” Lisabeth will share how she and her family picked up the remnants, pieced them together with patience, persistence, and love, and forged a new life.

Come One! Come ALL! 

What:        Interview with Lisabeth Mackall, caregiver to spouse, Frank Mackall

Why:        Lisabeth will take us on a harrowing journey of how her husband got a brain injury and how her family is coping with this new “normal.”Mackall, Lisabeth with Book

Where:     Brain Injury Radio Network

When:       Sunday, May  3rd, 2015

Time:         5:00p PT (6:00p MT, 7:00p CT, and 8:00p ET) 90 minute show

How:         Click: Brain Injury Radio Network

Call In:    424-243-9540

Call In:     855-473-3711 toll free in USA

Call In:    202-559-7907 free outside USA

or SKYPE

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening. The archived show will be available after the show both on the Brain Injury Radio Network site and on my blog in “On the Air.”

(Clip Art compliments of Bing.)

(Photo compliments of Lisabeth Mackall.)

SPEAK OUT! Faces of Brain Injury Richard Johnson

Brain Injury is NOT Discriminating

 

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury – one view at a time.

Richard Johnson (survivor) 

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Hello, I’m a TBI (traumatic brain injury) survivor. In October 2003, I was cleaning the gutters on my house. The ladder slipped, and down I went, hitting my head on a concrete slab. I was admitted to HCMC (Hennepin County Medical Center), and I spent the first month there. I was placed into a medically induced coma and had a craniotomy, one session in the hyperbaric chamber, multiple MRI (magnetic resonance imaging) scans and/or CAT (CT, computerized tomography) scans, and a tracheotomy. A feeding tube was inserted. And, I was given a protective helmet.

During the second month, I was sent to Bethesda Hospital to help me “wake up” from my coma. There I had cognitive and physical therapies.  For my third month, I was transferred to Regions Hospital. I continued with speech, physical, and occupational therapies on a daily basis (two sessions a day, 45 minutes each).  In January 2004, I was released from the hospital and was able to return home. In February 2004, I went back to HCMC, where they placed my bone back onto my skull (and I was able to throw away my helmet). During January through September, I had daily outpatient sessions for speech and occupational therapies. In October 2004, I was able to start working again full-time at my “pre-injury” job.

My main “post injury” side effects are aphasia and a short-term memory issue. To “heal” my ongoing aphasia, to help other survivors (and their families), and also to inform the general public about brain injuries, I am a co-facilitator for a brain injury support-group in the Courage Kenny Rehabilitation Center and a member of the Minnesota Brain Injury Alliance Speaker Bureau. To help me recover from my short-term memory issue, I bought myself a mandolin.  I didn’t just buy it to play some tunes, but to remember the notes, chords, and lyrics for those songs hour-to-hour, day-to-day, and month-to-month. To me, playing my mandolin is self-help therapy and perhaps the best idea I’ve had after my injury.

Disclaimer:
Any views and opinions of the Contributor are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

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SPEAK OUT! . . . . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

 

SPEAK OUT! Itty-Bitty GIANT Steps

Itty-Bitty GIant Steps for BlogSPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at neelyf@aol.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

Here are this week’s Itty-Bitty GIANT Steps

Anonymous (caregiver)…I almost don’t want to post this because so many spouses of TBI survivors are hurting and are facing separation or divorce, but maybe someone needs to hear it. My guy is making travel and anniversary plans. He is remembering to say, “I love you” I_love_you_by_Pambaand “Thank you.” That is such a huge step! Emotions have been very hard for him. It is difficult for him to think of how others feel. I am so blessed that this progress means so much. It may seem small to those who think of TBI as ventilators and the ICU (Intensive Care Unit), but for those of us living the long-term path to building a new normal, this is huge. I am also learning to find my new normal. I am learning to become a better person. I am learning to take a deep breath before I react, to give him room to explain, and to invite him to communicate. I am learning to give him all the cues he needs not to go into an angry self-defense mode when I need to talk about something he doesn’t want to hear. I am learning to give him safe options out instead of making him feel backed into a corner. He is meeting me half way. He is trying to hold on to those cues and to “push pause” on his response. It has been a long road, but this week I see progress. I will give part of the credit to my own personal rehab program. As a military family, we owned a home at our last duty station. When he had to leave the Army due to his TBI, we were mid-remodel. He is alone at our old house, working on finishing the work THANK YOU on speech bubble price labelson the house. Well not completely alone – he is with the family mutt. I worked with the dog, and he is a real anchor for my hubby. The dog gets noodgey when hubby’s sugar is down, restless and pacing when it is up. (The dog woke up my hubby when his sugar dropped at night.) The dog responds to my guy’s moods and anger. My husband is able to talk about the dog being skittish.progress We can talk about emotional balance in that context. He can’t yet talk about himself, but the dog is becoming his personal barometer. I know that there will be rages and shoving again. I know that he may leave us in his pain. I know that there will be days when I wonder if I should have left. I know there will be days when I want to go. I know that he may make bad choices about money. I will maintain my own bank account and resources in case I need it. I will make sure my kids and I feel as safe as we can. I will make sure that I can care for my beloved and our kids. Today – I SEE PROGRESS! Talking about all of this helps me daily as I learn to make the best of this TBI life.

 

Jeremy Dorr (survivor)…Sometimes I go for a walk in my neighborhood. It doesn’t do anything, but I can clip-art-walking-199243walk and think about things and have “me” time. gg65255707My brain is always on and seems to be working at 500% (LOL). The walk helps my brain shut off so I can sleep. I hope this can help someone out. Even if the world walks away from you, you can build back better. Staying positive has helped me, even though at times it’s hard.Dave Villarreal Award 11156302_452286041605770_1808858156142049527_n

 

Dave Villarreal  (survivor)…I received an award for 100 hours of volunteer service to the Veteran’s Administration.

 

YOU Did It!

Congratulations to all contributors!

(Clip Art compliments of Bing.)

Trike Treks

April 9, 2015 to June 6, 2015

040915 David 1st Ride Catrike 700

David

Cumulative mileage for David                          616.2 mi

Donna

Donna

Cumulative mileage for Donna                         79.9 mi

Combined miles for Donna and David           696.1 mi

Miles to reach 5390* miles                             4693.9 mi

*done by both Catherine Brubaker and Dan Zimmerman in their cross-country rides

Cat TrikeZimmerman, Dan

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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SPEAK OUT! Faces of Brain Injury Davien Lopez

Brain Injury is Not Discriminating

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury – one view at a time.

Davien Lopez (survivor) contributed by Diana Lopez (mom and caregiver)

10501889_768245286553199_2546552260294944140_nI am the mother of a now six-year-old boy who has a TBI (traumatic brain injury). My son, Davien, was four and a half years old when people in a car were shooting at people in Davien Lopez with brotheranother car in front of our house. While Davien was napping in my arms, a stray bullet came through our bedroom window and the headboard and struck my son in his left frontal lobe. The bullet traveled diagonally across Davien’s face and lodged in the right side of his cheek. Davien suffers from bilateral frontal lobe brain damage. He had a fractured jaw, which is healed now. He is completely blind in his right eye. He has PTSD (post-traumatic stress disorder), ADHD (attention deficit hyperactivity disorder), a mood disorder, Davien Lopez 033015and an impulse disorder. A year and a half later, Davien runs around like nothing happened. He still has a ton of psychiatric issues, but that is nothing compared to what could have occurred. A smile emoticon here is a picture of Davien and Bruno (Davien’s service dog in training).

Disclaimer:
Any views and opinions of the Contributor are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post

SPEAK OUT! Faces of Brain Injury Adam Pepiton

Brain Injury is Not Discriminatingbigstock-cartoon-face-vector-people-25671746-e1348136261718

It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury – one view at a time.

Adam Pepiton (survivor) contributed by Tara Pepiton (mom and caregiver)

Pepiton, Adam 2Adam Pepiton, a graduate of Cesar Chavez High School, was living a full life as a college student studying Criminal Justice, working for Kmart, and spending time with family and friends. On September 5th, 2010, Adam’s life changed forever.  As he left a friend’s house after a barbecue, he became the victim of a drive-by shooting. He was shot in the head. The bullet entered on the right side and lodged in the skull on the left side. This type of injury has less than a 1% survival rate, so Adam’s surviving was a true miracle. After five weeks in ICU (Intensive Care Unit) and Acute Care, Adam spent eight weeks at an acute rehabilitation facility. On December 2nd, he was discharged. While Adam’s return home was a significant milestone in his recovery, we recognized that there was still a long road ahead. Adam was diagnosed as a quadriparetic due to the brain injury.  Pepiton, Adam 1This means Adam has feeling throughout his body, but he can’t control his legs, trunk, and most of his left arm.  Adam has a power-wheelchair that allows for mobility, but he still has the goal of walking again.  He is going back to college part-time, and he has participated in sports, such as archery and power-soccer. He volunteers two days a week for the Red Cross, Greater Phoenix Chapter, and does many activities with old and new friends.  Adam works daily on improvements to meet his ultimate goals of living an independent life and of speaking to youth on violence and the decisions they make. Through all of this, Adam has kept his unwavering faith in God and his quirky sense of humor. We thank amazing family, friends, doctors, and outstanding therapists for everything they have done to get him to where he is today and to where he still plans on going.

Disclaimer:
Any views and opinions of the Contributor are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

TBI Tales . . . . . . . . . . . . . . . . . . Freedom and a Blue, Metallic Trike

FREEDOM and a Blue-Metallic Trike

(presented by Donna O’Donnell Figurski)

 

040915 David 1st Ride Catrike 700April 9, 2015 marks a pretty exciting day for us. It’s the first official day of David’s independence since his brain injury in 2005. David recently bought a Catrike 700 recumbent trike. This sleek, low-to-the-ground, metallic-blue machine will be his wheels and his freedom.

Because of severe balance issues due to his brain injury and the damage to his cerebellum, David has been unable to leave our home unattended for the past ten years. With his Catrike 700, he can hop on and and pedal away for hours and hours. (Well, not really hop on, but that sounded better than crawl or climb on.) Of course, his limitation of getting off the trike because he is unableFigurski, David Trike to walk anywhere on his own remains a problem. But, that won’t deter David.

David’s first excursion was a 5-mile trip around the winding, scenic roads in our neighborhood. Pedaling down streets lined with palm trees and a variety of cacti, many of which are in bloom right now, was liberating and fun, if the grin plastered on his face when he returned was any indication.

DonnaLater the same afternoon, David guided me on my first recumbent-trike trip. I have a yellow/mango Pocket Catrike, and I love it.

Today, David is riding with friends in a neighboring community. What fun! This is only the beginning.

Donna's Pocket 040915

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.anim0014-1_e0-1

Please follow my blog. Click on “Follow” on the top right sidebar. (It’s nice to know there are readers out there.)

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

 

(Clip Art compliments of Bing.)

(Photos compliments of Me.)

SPEAK OUT! . . . . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

Michelle Lee Bonnenfant (survivor)…With hubby’s help, I made it through a busy grocery store. pix0138Ken, my hubby, got me in and out in one piece! He even stood three feet behind me in the check out so that I would not get crowded by people. It was the first time in months that I went through a check out. I was plagued by a lot of sweat and chest pain, but I still did it. I hate my TBI and PTSD (post-traumatic stress disorder), but Ken gave me a big hug and told me that he was proud of me. I’m exhausted, but pleased with myself!

Cara Lauderdale Eberle (caregiver)…The one-year anniversary of my husband’s accident was April 1st. While I was at work sitting at a table of four-year-olds trying to get them to do a project with me, Eberle,  Cara Lauderdale  FlowersI saw them all stop and look up. Standing next to me was my husband holding a beautiful bouquet of flowers. I was in complete shock! He hasn’t shown any concern for the feelings of others since the accident. He told me he thought that he should do something to thank me for helping him get through the last year. This was definitely a breakthrough moment for us. 🙂

David Figurski (survivor)…I am excited! I took delivery of a Catrike 700 recumbent trike. It’s the same model that was used by Catherine Brubaker (a two-time TBI survivor) and Dan Zimmerman (a stroke Figurski, David Trikesurvivor) on their five-month, cross-country ride from Washington State to Florida. Cat and Dan espouse their new-found freedom, and their new physical capabilities are truly amazing. They both believe that riding a recumbent trike is great therapy. Also, my wife, Donna, just took delivery of the Catrike Pocket, a slightly smaller trike. Donna, Cat, Dan, and I plan to ride together.

Corina Mendoza (survivor)…I passed my teaching exam for Special Education! I passed both teaching exams I needed on the first try.

Mendoza, Corina Test Scores 033015

 

 

YOU did it!

Congratulations to all contributors!

(Clip Art compliments of Bing.)

diemodi jewelry

uniquely hand-crafted jewelry by donna

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