TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘Traumatic Brain Injury Survivor’

Survivors SPEAK OUT! Jessica Taylor

Survivors SPEAK OUT! Jessica Taylor

presented

by

Donna O’Donnell Figurski

 

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Jessica Taylor – Brain Injury Survivor and Author

1. What is your name? (last name optional)

Jessica Elizabeth Taylor

2. Where do you live? (city and/or state and/or country) Email (optional)

Vancouver Island, British Columbia, Canada

3. On what date did you have your brain injury? At what age?

Age 31

4. How did your brain injury occur?

A fall down a steep staircase head first into a steel-plated door

5. When did you (or someone) first realize you had a problem?

My husband knew I was sick, but he did not know I had a brain injury. (I was not told that I had brain injury until six years after the injury!) I didn’t know who I was, who my husband was, and who my children were. I became a child again. I had to relearn everything. My personality was greatly changed. My balance was off for some time. My left hand curled inwards, but I trained it to straighten. I also had contusion of the back, a hemorrhage behind my right eye, and scalp laceration.

6. What kind of emergency treatment, if any, did you have?

Intensive care

7. Were you in a coma? If so, how long?

I was in a semi-coma for several weeks.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I had rehab only in a psychiatric ward as a day patient for some months at a time in two different countries. I trained myself by learning again and also by becoming positive and never giving in to depression or my disabilities.

How long were you in rehab?

I had no proper rehab. I was just given many IQ tests and psychiatric care. This did not help matters!

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

Recent recall was and still is a problem. I cannot take on too may projects at a time. I have to avoid stress at all times.

10. How has your life changed? Is it better? Is it worse?

My life has been enhanced through training my dormant brain neurons myself and by having spiritual knowledge. As a result, I am a happier person.

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Jessica Taylor – Brain Injury Survivor and Author

11. What do you miss the most from your pre-brain-injury life?

I do not look back.

12. What do you enjoy most in your post-brain-injury life?

I enjoy being who I am.

13. What do you like least about your brain injury?

I don’t think about the past. I just put up with my disability as a part of my life.

14. Has anything helped you to accept your brain injury?

No

15. Has your injury affected your home life and relationships and, if so, how?

I had distant relationships with my husband and my children, as well as with all who knew me.

16. Has your social life been altered or changed and, if so, how?

My new and holistic view of life has changed all that I do and think.

17. Who is your main caregiver?

ME

Do you understand what it takes to be a caregiver?

I know what caregivers should be aware of with regards to brain injury.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to keep sharing my knowledge through the publication of my books and by giving talks.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier?

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From Tragedy to Triumph: Journey Back From the Edge by Jessica Taylor

I only wish that I had been taught by specialists how to retrain my brain in the early years, as opposed to doing so later.

If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Know that we can train and activate dormant neurons through studying a subject that is of interest. This has to be done frequently.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

My advice is to study spirituality and to read as much as possible about the subject. I do not mean in the religious sense – study people like Deepak Chopra and watch Super Soul Sunday on TV. Stay positive and learn not to give in to negative thoughts. Try hard to rise above fear, jealousy, hatred, greed, envy, etc., and your vibration will increase in frequency. All this happened to me through my self-rehab.

To learn more about Jessica Taylor, click on the following links.

Jessica Elizabeth Taylor website
Jessica E. Taylor Facebook
Jessica E. Taylor Twitter
Jessica Elizabeth Taylor Linked in

Jessica’s book

“From Tragedy to Triumph: Journey Back From the Edge”

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

 

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SPEAK OUT! Guest Blogger Heather Sivori Floyd . . . . . Thoughts from a Caregiver Mom

Thoughts from a Caregiver Mom

by

Heather Sivori Floyd

presented

by

Donna O’Donnell Figurski

 

Girl Blogger cartoon_picture_of_girl_writingThere is nothing sweeter or more rewarding in life than spending time and helping those with special challenges.

I do not like the word “disability,” so I use “special challenges.” Why define people by what they are or are not capable of? While some days my heart hurts from my knowing the challenges that TJ (now 13) will face in life, my heart is actually very full from my spending the time with him that I do.

Heather Sivori Floyd 1

Heather Sivori Floyd – Caregiver

As I tucked TJ in the other night, I just sat there in a moment of silence and reflected back on everything we have been through. He has an innocence about him now. But I was overcome with a moment of sadness thinking about all that was ripped from TJ at such a young age (7 years old) and the special challenges that he will be faced with in adulthood.

I try not to think like that, but sometimes a parent does. I would say that it is quite normal. The burden a parent carries when advocating for his or her child with special challenges will at times take your breath away. You constantly question if you are doing the right thing or if you could be doing more. You realize that, even into adulthood, your child’s ability to have a voice is gone. You will forever be your child’s voice. You accept that, and you do what you have to do to make that voice heard – even if it means roaring.

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TJ – Brain Injury Survivor

Over the years, people have told me not to worry about the future. But it is never a possibility. I know my mom-friends in a similar position will understand this. When in a position like this, you have to think about it. It’s really not an option. You are the sole caregiver, and if you do not make a plan for the future, no one else will. Also many programs to help children like TJ as an adult have a mile-long waiting list (meaning years).

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TJ – Brain Injury Survivor

Being TJ’s sole caregiver has been challenging and exhausting but, at the same time, very rewarding. I have learned so much about myself and my desire to help others. I have learned from TJ about the human spirit and not giving in. He amazes me daily. Yes, things are very elementary for TJ now. His day consists of food, cartoons, therapy, etc. – very basic needs. In-depth conversation has never been a possibility with my son since his brain injury so mercilessly ripped away his dignity and his ability for independence. The list goes on. But that doesn’t mean we give up. TJ certainly has not.

With love and persistence, TJ has defied the odds. After all, 60-80% of patients typically do not survive an acute subdural hematoma, even with surgery. TJ did. He continues to defy the odds and what we were told would be our “new normal.”

Heather Sivori Floys TJ 4

Heather Sivori Floyd, caregiver for her son, TJ

I am often asked how I do it. (It is a general question, and it is the most-asked question from many family members and friends over the years.) I just do it. You do not have a choice. Many times your heart hurts like no other, but you keep going because you are it for them. There is no one else. You learn to draw on inner strength. You learn to keep it together because you can’t afford to break down.

In my case, I learned from my son how to love life and still laugh. TJ does daily. If he can, then so can I. It doesn’t make the special challenges any easier or the decisions to be made any

Heather Sivori Floyd & TJ

Heather Sivori Floyd and her son, TJ

less hurtful. What it does is fill your heart with an overwhelming love. I am honored to know a person like TJ in my life. He is the definition of courage, strength, hope, and love. I’ve said it before, and I will say it again: He is my hero. To overcome daily adversity with a smile on his face makes him downright amazing. No matter where he ends up intellectually, TJ will always be pretty amazing to me.

 

Thank you, Heather Sivori Floyd.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Heather Sivori Floyd)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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So, Whaddya Think? . . . My Opinion: Sports Benefits Outweigh the Risks

So, Whaddya Think?

My Opinion: Sports Benefits Outweigh the Risks

by

 Charles Ross

presented

by

Donna O’Donnell Figurski

So Whaddya Think Brain th-4I was eighteen when I had my traumatic brain injury (TBI) in a car accident in 1985. I was brought back to life once. I was in a coma for fifty days. I was in a wheelchair for one and a half years. I have memory problems. My body drew up into a fetal position. It took seven years of painful surgery and therapy and close to thirty procedures to straighten my legs, feet, arms, and hands. Thirty years later, my claw-shaped right hand looks like it has rheumatoid arthritis, but I use it. I write with that hand and walk with a cane in it. Three years after my accident, I went back to college. It took three years of difficult work to get my first Associate Degree and two years for a second in Mechanical Drafting, AutoCAD. I worked fifteen difficult years doing AutoCAD. Not one day since my accident has been easy for me. I am proud of what I accomplished, and I hope my story will be an inspiration to others.

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Charles Ross Jr. TBI Survivor

I know personally how tragic it is if a person gets hurt or killed accidentally, but that’s life. I don’t want to seem like life does not matter to me – because it does. (My life now is precious to me. I cherish each moment I have with family or friends. Hundreds, maybe thousands, of people, whom I never would have met otherwise, have blessed my life.) I am not heartless; I am very compassionate. I cry when I hear a tragic story of any kind. I know what life is. I know what death is. And I know what pain and suffering are.

I played three years of high-school football. Many guys were much bigger than I was, and I was fortunate not to get hurt. It was my third year of driving when I had my accident. Throughout my recovery, I looked back at the grueling football practices, and they football-player-tackling-cartoon-football-playersinspired me to go forward. What a sport does is teach sportsmanship, pride, respect, and loyalty, and it inspires one to do better.

Should I never ride in a car or even drive again because somebody has gotten hurt in a car accident? A baseball player may get hit in the head by a pitch, but now players have helmets to protect them. (There isn’t protective headwear in basketball, volleyball, tennis, or soccer, but maybe there should be.) Thousands of people end up in Emergency football_-_helmet_5Rooms or even in morgues because they fall while walking and hit their head. Should every man, woman, and child wear a helmet simply to walk? It seems just as foolish to end all athletics.

 

So, Whaddya Think?

Let’s get a dialogue going. Post your comments in the Comment Section. Directions are below.

So . . . what do you think? Is there something you are passionate about in this Brain Injury (BI) world? Do you want to be heard? Your opinion matters! You can SPEAK OUT! on “So Whaddya Think?”

Simply send me your opinion, and I will format it for publication. Posts may be short, but please send no more than 500 words. Send to Neelyf@aol.com

I hope to HEAR from you soon.

As I say after each post:

Feel free to leave a comment by clicking the blue words “Leave a Comment” below this post.

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(Clip Art compliments of Bing.)

(Photos compliments of contributor)

So, Whaddya Think? . . . . . . . . . My Opinion: Football Is Safer With Kevlar Helmet Inserts

So, Whaddya Think?

My Opinion: Football Is Safer With Kevlar Helmet Inserts

by

Mike Doherty

presented

by

Donna O’Donnell FigurskiSo Whaddya Think Brain th-4

As a youth football coach, I am infuriated that more isn’t being done to spread the word about a great product out there that would greatly reduce the number of concussions. I came across it two years ago. It’s cheap, and you’d think the powers-that-be would jump all over it. Nope!

Southern Methodist University (SMU) did a study when their football players used this inexpensive piece of equipment in their helmets. The concussion rate dropped impressively.

American football is really a safe sport, considering the amount of contact involved. It’s just garnering the most attention because of the National Football League (NFL), where you have much bigger, stronger, and MUCH faster athletic men trying to hit each other. It’s controlled violence.

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Mike Doherty – TBI Survivor

Coaches now go through a lot of training on how to teach kids the proper way of tackling and how to recognize the possibility of a concussion. Trust me, it is probably the most important issue that’s been addressed on the field in the last few years. I’m glad concussions are finally being addressed. All in all, at the youth level, football is still pretty safe as compared with other sports. High school, college, and the pros are where you see concussions pick up. (The non-helmeted sports, like soccer and girls’ lacrosse, don’t get nearly the attention they should. For the life of me, I can’t understand why helmets are not worn in girls’ lacrosse.)

What’s the flip side of removing some of these sports for youths? The kids may then get into trouble doing crazy stuff. As kids, we did crazy stuff just being boys, and I played football.

Unequal Gyro

Inside of helmet with Unequal Gyro

That equipment I mentioned above is a helmet insert from Unequal Technologies. It’s a pad lined with Kevlar, the same material used in military helmets. It inserts into each helmet and disperses the energy from an

Kevlar for Football

The Unequal Gyro

impact throughout the pad, reducing greatly the severity of the impact itself. Unequal Technologies also promotes a headband for helmetless sports.

(Disclaimer: The views or opinions in this post are solely that of the contributor.)

So, Whaddya Think?

Let’s get a dialogue going. Post your comments in the Comment Section. Directions are below.

So . . . what do you think? Is there something you are passionate about in this Brain Injury (BI) world? Do you want to be heard? Your opinion matters! You can SPEAK OUT! on “So Whaddya Think?”

Simply send me your opinion, and I will format it for publication. Posts may be short, but please send no more than 500 words. Send to Neelyf@aol.com

I hope to HEAR from you soon.

As I say after each post:

Feel free to leave a comment by clicking the blue words “Leave a Comment” below this post.

Please follow my blog. Click on “Follow Me Via eMail” on the right sidebar of your screen.anim0014-1_e0-1

If you like my blog, click the “Like” button under this post.

If you REALLY like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. That works for me too!

(Clip Art compliments of Bing.)

(Photos compliments of contributor)

 

 

On The Air: . . . . . . . . . . . . . . Brain Injury Radio . . . . . . . . “Another Fork in the Road” with Ann Boriskie, Director of Brain Injury Peer Visitor Assn.

On The Air: Brain Injury Radio “Another Fork in the Road” 

with

Guest: Ann Boriskie, Director of Brain Injury Peer Visitor Assn.

presented

by

Donna O’Donnell Figurski

Boriskie, Ann Training in Florida Survivor 011116Ann Boriskie, a TBI survivor of more than 17-years says, “Get involved. Volunteer.” “By helping others with a brain injury, you truly help yourself in so many ways.” Ann is the Brain Injury Peer Visitor Association Director and her motto is “YOU CAN!”Peer Visitation BannerBoriskie, Ann Survivor 011116

 If you missed this show with Ann Boriskie on “Another Fork in the Road” on January 17th, 2016 don’t fret. You can listen to the archived show here. Click the link below.

See you “On the Air!”

On The Air: Brain Injury Radio “Another Fork in the Road” with Ann Boriskie, Director of Brain Injury Peer Visitor Assn.

(Clip Art compliments of Bing.)
As I say after each post: Please leave a comment by clicking the blue words “Leave a Comment” below this post.
Feel free to follow my blog. Click on “Follow” on the upper right sidebar.
 If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.
 If you don’t like my blog, “Share” it intact with your enemies. I don’t care!
 Feel free to “Like” my post.

 

Survivors SPEAK OUT! Ann Boriskie

Survivors SPEAK OUT! Ann Boriskie

presented

by

Donna O’Donnell Figurski

 

Boriskie, Ann Survivor 011116

Ann Boriskie – Survivor: Brain Injury Peer Visitor Association Director

 

1. What is your name? (last name optional)

Ann Boriskie

2. Where do you live? (city and/or state and/or country) Email (optional)

Alpharetta, Georgia, USA (a suburb of Atlanta, Georgia) aboriskie@braininjurypeervisitor.org

3. On what date did you have your brain injury? At what age?

November 12, 1998, at age 48

4. How did your brain injury occur?

My brain injury occurred in a car wreck less than five miles from home. I was headed to a regular dental checkup.

A woman was talking on her phone while driving, and she obviously missed her turn. She stopped suddenly, but I was able to stop my car and not hit her at all. She just sat there at the bottom of a hill on the two-lane road. She did not move. A young student (16 years old) came down the hill. He said he was messing with his radio and just did not see us. He hit my car going 50 mph and pushed my car into the woman’s car.

5. When did you (or someone) first realize you had a problem?

About 48 hours after my wreck, I started having concussion symptoms. I experienced dizziness and mental “fogginess.” I could not walk. There was bruising under my eyes. The toes on my right foot went numb. My left eye was out of focus.

6. What kind of emergency treatment, if any, did you have?

None. I walked away from the wreck thinking I was just fine. After 48 hours, I went to a 24-hour clinic, but they just sent me home. They told me I had no real problems and I would be fine. I also went to an eye doctor right away, but again, I was told there that nothing was wrong physically with my eye. Several months after my wreck, one neurologist told me that I had “post-concussion syndrome” and to go home – that I would be just fine. No one else mentioned my having a brain injury for one year. Then a dental TMJ specialist told me that I had a brain injury. That was what was causing my mental symptoms. (TMJ = temporomandibular joint)Peer Visitation Banner

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

My brain injury went undiagnosed for over a year. The physical therapy that I received was in relation to each of my physical injuries (see #9), especially to help after the surgeries that I had to have to repair the parts of my body that were injured.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

a. My brain injury caused depression, anxiety, and anger (more so in the first several years). I had lots of memory issues. (I could not remember friends or faces. I got lost. I could not write. Then once I could write, I couldn’t write in cursive – I still can’t.) Some memory issues remain today. I permanently lost many of my past memories. (I can’t remember family events or experiences or places where we had lived. I lost memory of cities and our time there.) I lost a lot of my math skills (I was an A+ math student, and I was in advanced math classes), but I have regained many of these math skills.

b. My neck was injured. (The C4, C5, C6, and C7 vertebrae were knocked out of line.) I had to have neck surgery (for fusion and a metal plate holding these four levels together). My neck is in CONSTANT PAIN.

c. I had an injury to the L5 and S1 levels of my spine. (The last two vertebrae are not attached now to my spinal cord). Surgery was recommended, but my neck did not fuse properly, so I decided not to have back surgery. I am in CONSTANT PAIN in my lower back. The pain often radiates to my hips and legs.

d. I popped a tendon from its bone in my right elbow. (I braced my body on the steering wheel in the wreck.) It required surgery. The doctor said it was one of the worst tears he had ever seen.

e. Permanent nerve damage was created in various body areas.

f. The left part of my jaw was knocked out of line. It literally took years of appliance therapy to get the bone back into its correct place.

g. A valve was torn on the left side of my heart. This caused irregular heartbeats for a while. It repaired itself.

h. My left side remains weaker than my right side.

i. Numbness remains in my hands (which makes it harder to use my hands). I also have numbness in my feet, down my arms, and down my legs.

j. Sometimes my left eye will not focus or work well with my right eye.

k. I have a shorter attention span.

l. All of these physical injuries caused me to have fibromyalgia and constant body pains.

Boriskie, Ann Podium

Ann Boriskie – Survivor

10. How has your life changed? Is it better? Is it worse?

In the long run, I have to say my life is truly better. All three of our children are in the medical field. (My husband and I have raised one daughter, now a neonatologist who takes care of premature babies and helps the moms; raised a son, now a doctor of internal medicine who works as a hospitalist; and raised another daughter, now a Registered Nurse in a mental-illness hospital unit.)

My priorities changed in my life. I went from being a “work-oholic” and a person who was very competitive to a person who lives to help other people, including my family and friends.

I slowed down my life’s pace. I had to learn that I could no longer work at a full-time outside-the-home job. (For years, I could not work at all.) I also had to learn to take care of myself – due to all of the physical and mental problems that the wreck created.

I was at home, and thus I was “there” more for my children and husband. I was able to give them more help and more attention.

11. What do you miss the most from your pre-brain-injury life?

I miss my higher energy level. I miss many of my memories. I miss all of the physical sports and activities that I can no longer do (water skiing, snow skiing, kayaking, swimming, playing golf, etc.).

12. What do you enjoy most in your post-brain-injury life?Peer Visitor Banner

I enjoy running the Brain Injury Peer Visitor Association and being able to help thousands of brain-injury and stroke survivors throughout the United States and the world. I’ve done this each year since 2006.

13. What do you like least about your brain injury?

I dislike being in constant pain (which also affects my brain). I also dislike having to push myself more and having to work much harder to accomplish my goals and to do my work than I did prior to my wreck.

14. Has anything helped you to accept your brain injury?

  1. Helping other people helps me also.
  2. Sharing my experiences with others and listening to each brain-injury survivor’s problems (This helps me to better understand my own brain injury.)
  3. Attending support-groups (and being very open to sharing my own problems, experiences, successes, and methodologies)
  4. In the past, gaining the help of neuropsychologists
  5. Going to medical doctors who treat brain injury (e.g., a psychiatrist)

15. Has your injury affected your home life and relationships and, if so, how?

Yes. I am much more dedicated to my husband and three children. I treasure our relationships. I also treasure my friendships more. You really better understand that life is way too short and can change in a second.

16. Has your social life been altered or changed and, if so, how?

Yes. I no longer like to be in big crowds or in a noisy environment. Going to a party is now a struggle and sometimes a chore. I just avoid noisy places and huge crowds. This requirement definitely limits the activities in which I can participate.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My wonderful husband is my main caregiver. I am blessed that he “stuck it out” with me and helped me go through all of my physical and mental recoveries. He is also one of my biggest supporters – even financially supporting my association and approving of all of the volunteer hours that I dedicate to the Brain Injury Peer Visitor Association.

Boriskie, Ann Training in Florida Survivor 011116

Annn Boriskie – Survivor

18. What are your plans? What do you expect/hope to be doing ten years from now?

I plan to continue running the Brain Injury Peer Visitor Association as long as I possibly can. My dream is to continue to grow the association throughout the United States and even internationally.

I also plan to continue to enjoy and spend time with my immediate family and their families.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Accept your limitations, but continue to “push yourself” to improve. Realize that, even though you are different from the pre-TBI you, you are still a valuable person in the world. Let your “old self” go. Realize that person won’t be back. Embrace the “new you,” and learn to love yourself for who you now are. Remember that YOU CAN. Don’t defeat yourself by focusing on all of the things you can no longer do.

2011 Community Service Awards from WXIA 11

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Help others. Get involved. Volunteer. By helping others with a brain injury, you truly help yourself in so many ways. You will help yourself get better, and you will gain confidence.

 

You can hear Ann Boriskie on my radio show, “Another Fork in the Road” at 5:30pm PT (6:30MT, 7:30CT, 8:30ET) on Sunday, January 17th on the Brain Injury Radio Network (BIRN)

Click here on Sunday 5:30pm Pacific Time. Another Fork in the Road: Ann Boriskie – Director of Brain Injury Peer Visitor 

You can call in to listen to the show or talk to the host by dialing this number. 424-243-9540

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

 

SPEAK OUT! . . . . . . . . . . . . . Faces of Brain Injury – Amy Zellmer

SPEAK OUT! Faces of Brain Injury – Amy Zellmer

presented by

Donna O’Donnell Figurski

 Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

Amy Zellmer (survivor)

Amy Zellmer 3 Survivor 101015They say a picture says a thousand words. It’s been nineteen months since I fell on a patch of ice and landed full-force on the back of my skull. I suffered a traumatic brain injury (TBI) plus whiplash, torn muscles in my neck, shoulder, and chest, and I also dislocated my sternum. What the photo doesn’t show is how I wasn’t able to do any exercise – even mild – for the first year. Just walking around the grocery store was enough to leave me spent for the rest of the day – let alone carrying in the bags of groceries. I am not exaggerating when I tell you that I lived pretty much in my bed or on the couch for over a year. I would do photography sessions a few times a week (because that’s my only form of income, and I had bills to pay) and pay the price for two days – icing my body and popping ibuprofen like it was candy. Even just six months ago, I couldn’t properly stand up straight – let alone do strength training. And let’s not forget about the horrible vertigo and balance issues that came with the TBI. But I finally decided that ENOUGH IS ENOUGH! It was time to DO SOMETHING – anything! So I started doing yoga for 10-15 minutes a day. At first it was hard – really hard. I could do only very basic, simple stretching poses. I would hold onto a chair for any pose that required standing so that I didn’t lose my balance. But you know what? IT HELPED! It started me on a path to gaining back my strength and endurance.Amy Zellmer Survivor 1 101015

AND NOW LOOK AT ME! I am working with a fab trainer. We are using weights and resistance to get my body back to pre-injury status. It feels so good to be able to walk standing fully upright, and have the strength to carry my groceries into the house. I feel absolutely amazing, and my symptoms are subsiding (the physical ones; Amy Zellmer 2 Survivor 101015the neurological ones are still present). I know it seems impossible when you’re in the darkest days after a TBI. I’ve completely been there. But, man, you take back control of your life when you finally start to step out of it and say, “F… Y.., TBI!” If I can do this, I know you can too!

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

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On The Air: . . . . . . . . . . . . . . Brain Injury Radio . . . . . . . . “Another Fork in the Road” Panel: Party Night

On The Air: Brain Injury Radio “Another Fork in the Road” 

with

Panelists: Caregiver, Lisabeth Mackall and Survivor, Daniel Mollino

Topic: Party Night

presented

by

Donna O’Donnell Figurski

Brandy Hunter and her mom were originally scheduled for this show time, but the season, and several personal issues prevented Brandy and her mom from joining me on this show. She will be rescheduled for a later date.

So now it was scramble time and the holiday season is no easy time to recruit panelists. Folks can barely get accomplished what they normally have to do without throwing in an

Lisabeth Mackall Book 061215

Caregiver, Lisabeth Mackall – author, 27 Miles: The Tank’s Journey Home

extra activity. I was fortunate to have five of my regular panelists agree to do the show with me and we decided to make it a holiday segment. It sounded like a lot of fun. Then shortly before the show three of the panelists had to decline because of health issues. I

18 Daniel Mollino 060615 copy

Survivor, Daniel Mollino – cross-country cyclist

quickly checked with my remaining two panelists and they were still committed. Phew!

We did the show and sipped our virtual eggnog. We talked about traditions past – and new traditions we have each incorporated into our lives after brain injury took over. We looked at holiday issues through the eyes of survivor, Daniel, Mollino and caregiver, Lisabeth Mackall … and we had a lot of fun. I hope you will take some time during this holiday season to relax, sit back, and listen to the show.

Happy Holidays, Everyone!

See you “On the Air!”

http://www.blogtalkradio.com/braininjuryradio/2015/12/21/another-fork-in-the-road-party-nite-with-daniel-lisabeth-and-me

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

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Survivors SPEAK OUT! Jenn Von Hatten

Survivors SPEAK OUT! Jenn Von Hatten

presented

by

Donna O’Donnell Figurski

 

Von Hatten, Jenn Survivor & Hanna 121315

Jenn Von Hatten – survivor and daughter, Hanna

1. What is your name? (last name optional)

Jenn Von Hatten

2. Where do you live? (city and/or state and/or country) Email (optional)

Trenton, Nova Scotia, Canada     jlvonhatten@gmail.com

3. On what date did you have your brain injury? At what age?

My brain injury happened on Valentine’s Day 2011. I was 35 years old.

4. How did your brain injury occur?

My brain injury resulted from a motor vehicle accident caused by freezing rain.

5. When did you (or someone) first realize you had a problem?

The paramedics found me clinically dead at the scene. The doctors wanted to airlift me to the Queen Elizabeth II (QEII) Health Sciences Centre in Halifax, which is the biggest hospital in Nova Scotia. But the freezing rain affected the rotors on the helicopter, so I had to be taken by road ambulance.

6. What kind of emergency treatment, if any, did you have?

The pressure in my brain needed to be monitored to see if I needed surgery. I also lacerated my liver. Fortunately, I did not need surgery for either. I also fractured a rib and three vertebrae.

7. Were you in a coma? If so, how long?

I was in a coma for seven weeks. First, I was in a coma from the accident. Then I was in a medically induced coma because of my fractured rib and vertebrae. I managed to develop pneumonia, and I had a tracheotomy.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I was transferred to the Rehab Centre in Halifax around Easter 2011, and I was discharged in July 2011. Besides being a patient at the Rehab Centre, I’ve had to go to physiotherapy and occupational therapy. My spastic muscles affected my speech, so I also went to speech therapy.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

Von Hatten, Jenn survivor Son Liam 121315

Jenn Von Hatten – survivor and son, Liam

My balance has been severely affected. I used to be in a wheelchair, due to fractured vertebrae. I’ve since “graduated” to a walker, a quad cane, and a mini-quad cane. I’m a Fall Risk, and I get the Disability Pension.

10. How has your life changed? Is it better? Is it worse?

I have joint custody of my seven-year-old daughter, Hanna. I am no longer able to work as a nurse. My life has definitely changed, but I can’t say if it is better or worse. All I can say with certainty is that my life is DIFFERENT.

11. What do you miss the most from your pre-brain-injury life?

I miss being able to work as a nurse the most. As much as I would like to a work as a nurse, I know I would NOT be safe – mentally, in terms of remembering if I gave a client medication or treatments, or physically.

12. What do you enjoy most in your post-brain-injury life?

I enjoy my time with Hanna. It is her time, as I don’t work anymore. I now have a cat, Spunkster, which I got from the local SPCA. When Hanna’s not with me, I hang out with Spunkster.

13. What do you like least about your brain injury?

I had graduated as a nurse only seven months before my traumatic brain injury (TBI). I had wanted to be a nurse for over fifteen years. At least I can say I turned that dream into reality! I sometimes miss being able to drive. My rehabilitation doctor says I still cannot drive, as my reflexes are not up to snuff. However, I can say that my driver’s license has NOT been revoked!

14. Has anything helped you to accept your brain injury?

Becoming a nurse was my dream. I finally realized that, just because I am no longer able to work as a nurse, I STILL AM A NURSE! Being a nurse is STILL a part of me.

15. Has your injury affected your home life and relationships and, if so, how?

My youngest daughter’s father threw me out, as he said he was not happy. I remind myself that not many relationships survive a TBI.

16. Has your social life been altered or changed and, if so, how?

I don’t really have a social life, except maybe for going grocery shopping. I go by cab, so I interact with the cab divers, who are husband and wife. They own the cab company, and they are now good friends of mine. I prefer to interact with people in small groups.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

Von Hatten, Jenn survivor daughters Emma and Hanna 121315

Jenn Von Hatten – survivor and daughters Emma and Hanna

I am my own caregiver now. Yes, I do understand what it takes to be a caregiver, as I used to be one. When I was in school to become a nurse, I worked as a CCA (Certified Care Assistant). A CCA can also be called PCA (Personal Care Assistant) or PCW (Personal Care Worker).

18. What are your plans? What do you expect/hope to be doing ten years from now?

My plan is to be helping others who are TBI survivors or caregivers. I can provide info and support.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Understand that a person does not need to be working (and therefore getting paid) to be fulfilling whatever he or she was meant to be. Find other ways – perhaps volunteering.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Figure out what you like doing and makes you happy. If you can’t remember, that’s OK – find out. (It’s what I wish I knew back in the beginning when I was first dealing with this.) Find out what you like and makes you happy RIGHT NOW! Everybody, brain injury or not, is constantly evolving.

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

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SPEAK OUT! . . . . . . . . . . . . Itty-Bitty Giant Steps

SPEAK OUT! Itty-Bitty GIANT Steps

presented by

Donna O’Donnell Figurski

Itty-Bitty GIant Steps for BlogSPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at neelyf@aol.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

Here is this week’s Itty-Bitty GIANT Step

Otto Rodriguez (survivor) (submitted with permission by Otto’s sister, Sylvia Rodriguez Witt)…

Rodriguez, Otto Survivor 121115

Otto Rodriguez, Survivor

Otto sustained a diffuse axonal traumatic brain injury on February 28, 2015, due to an assault. Otto had to relearn to walk and talk, and he continues to learn independence. Before his injury, my brother was a marathon runner. Recently he and I completed a 5K together. Otto completed the 5K in an hour.

Rodriguez, Otto Survivor & sister Sylvia Witt

Otto Rodriguez, Survivor & sister, Sylvia Rodriguez Witt

I write this to offer hope to those in the early stages of this journey. Each day, my brother continues to heal. It is slow and requires patience. But with love, support, and patience, it is possible to loosen the grip of this awful beast, otherwise known as “TBI.” This holiday season, I am thankful for resilience, patience, and perseverance. Stay strong survivors!

YOU did it!

Congratulations to contributors!

(Clip Art compliments of Bing.)

As I say after each post:anim0014-1_e0-1

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

 

 

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