TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘TBI’

Survivors SPEAK OUT! . . . Abi

Survivors SPEAK OUT! Abi

presented

by

Donna O’Donnell Figurski

 

Abigail

Abi – brain injury survivor

1. What is your name? (last name optional)

Abi

2. Where do you live? (city and/or state and/or country) Email (optional)

Columbia City, Indiana, USA

3. On what date did you have your brain injury? At what age?

I had my TBI (traumatic brain injury) at age 20.

4. How did your brain injury occur?

I was hit by a freight train in a suicide attempt.

5. When did you (or someone) first realize you had a problem?

I knew I had a problem when I started speaking, as my voice pitch changed quite a bit. Also, when I was asked to remember things from the day before, I had trouble doing so.

6. What kind of emergency treatment, if any, did you have?

I was taken to a hospital right away. In addition to the problems noted above, I also had a messed up back and an amputated right arm, so those were tended to right away. I was also immediately given stitches to close up a wound on my head.

7. Were you in a coma? If so, how long?

I don’t think I was in a coma, but I don’t recall very well the two days after my incident.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I had occupational therapy, physical therapy, and speech therapy both as an inpatient and as an outpatient. I was in the rehab inpatient therapy for at least six weeks. I was in outpatient therapy even longer, but the outpatient therapy focused more on my missing arm. I also had in-home therapy.

9.What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have poor balance and slurred speech. I experience personality changes.

10. How has your life changed? Is it better? Is it worse?

I believe my life has changed for the better, as I’ve met so many who are worse off than me.

11. What do you miss the most from your pre-brain-injury life?

I miss nothing from my pre-brain-injury life, as my personality changed for the good. But I do miss people understanding me.

12. What do you enjoy most in your post-brain-injury life?

Abigail 2

Abi – brain injury survivor

I like to meet others with a TBI and other disabilities.

13. What do you like least about your brain injury?

I dislike my slurred speech and sounding different than I used to.

14. Has anything helped you to accept your brain injury?

Yeah – meeting those worse off

15. Has your injury affected your home life and relationships and, if so, how?

I’m much better, as I’m more social.

16. Has your social life been altered or changed and, if so, how?

Yeah. I went from being deathly shy to a social butterfly.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My mother is my main caregiver. Yeah, I do understand what it takes. It’s hard work.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I plan to have a family and to be a counselor helping suicidal people.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Don’t give up.Don't Give Up

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

My advice is Don’t give up, and be you.
(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

 

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Survivors SPEAK OUT! . . . . . . Bart Goldstein

Survivors SPEAK OUT! Bart Goldstein

presented

by

Donna O’Donnell Figurski

Bart Goldstein 2

Bart Goldstein – Survivor

1. What is your name? (last name optional)

Bart Goldstein

2. Where do you live? (city and/or state and/or country) Email (optional)

Delmar, New York, USA

3. On what date did you have your brain injury? At what age?

My brain injury happened on December 29, 2001. I was almost 17.

4. How did your brain injury occur?

I was riding with friends in an auto, and we had an accident. I was in the back seat. We were just teenagers clowning around. There were no drugs or alcohol.

5. When did you (or someone) first realize you had a problem?

I was in a coma after the accident.

6. What kind of emergency treatment, if any, did you have?

I was airlifted to emergency surgery. Later I was given a trache and a G-peg (feeding tube inserted directly into the stomach by percutaneous endoscopic gastrostomy).

7. Were you in a coma? If so, how long?

Yes. I was in a coma for a month.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

Bart Goldstein & Dog

Bart Goldstein – Survivor

I had speech therapy, physical therapy, and occupational therapy as an inpatient for three months at Helen Hayes Hospital. Then I had five more months of therapy as an outpatient at the hospital.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have problems with walking, my speaking sensibly, control of anger, partial blindness, and memory.

10. How has your life changed? Is it better? Is it worse?

I am much more of a planner now than I was prior to accident. An article, “The Journey Back,” from Brain Injury Awareness Month a couple of years ago answers this question and most of the others: http://spotlightnews.com/uncategorized/2014/03/20/journey-back/

11. What do you miss the most from your pre-brain-injury life?

See the Spotlight article (address given in the answer to the question 10).

12. What do you enjoy most in your post-brain-injury life?

See the Spotlight article (address given in the answer to the question 10).

13. What do you like least about your brain injury?

See the Spotlight article (address given in the answer to the question 10).

14. Has anything helped you to accept your brain injury?

I’ve been helped by my Christian faith, my parents, and my sense of humor.

15. Has your injury affected your home life and relationships and, if so, how?

See the Spotlight article (address given in the answer to the question 10).

16. Has your social life been altered or changed and, if so, how?

See the Spotlight article (address given in the answer to the question 10).

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My folks are my main caregivers. Caregiving takes a lot of love and more.

Bart & Joel Goldstein

Bart Goldstein – Survivor with Father, Joel Goldstein (author of “No Stone Unturned”)

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to continue to heal and to find a good woman and settle down.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Learn patience. It’s a long haul.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Keep your faith and your sense of humor. Try alternative therapies.

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

 

As I say after each post:

Feel free to leave a comment by clicking the blue words “Leave a Comment” below this post.

Please follow my blog. Click on “Follow Me Via eMail” on the right sidebar of your screen.anim0014-1_e0-1

If you like my blog, click the “Like” button under this post.

If you REALLY like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. That works for me too!

Survivors SPEAK OUT! . . . . . . Ina M. Dutkiewicz

Survivors SPEAK OUT! Ina M. Dutkiewicz

presented

by

Donna O’Donnell Figurski

 

Dutkiewicz, Ina M. Survivor 041316

Ina M. Dutkiewicz – Survivor

 

1. What is your name? (last name optional)

Ina M. Dutkiewicz, pronounced “Ena”

2. Where do you live? (city and/or state and/or country) Email (optional)

Milford, Michigan, USA     inadutkiewicz@gmail.com

3. On what date did you have your brain injury? At what age?

I had my brain injury on February 3, 2010. I was 43 years old.

4. How did your brain injury occur?

While driving to work, I slid through a stop sign because of black ice. I was hit by a pickup truck.

5. When did you (or someone) first realize you had a problem?

I was immediately put into a coma.

6. What kind of emergency treatment, if any, did you have?

I was in the Neuro-Intensive Care Unit for three weeks. A feeding tube was in my belly, and an incision was made in my forehead (to relieve the pressure on my brain from bleeding, I think).

7. Were you in a coma? If so, how long?

Yes. I was in a coma for a total of four and a half weeks. My coma was not medically induced.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I started inpatient rehab for six weeks at a head injury place where I had to live (Origami in Mason, Michigan). Then I was able to transition to outpatient rehab. I still have to return daily for therapies and doctor appointments. I have done physical therapy, occupational, speech, and language therapies, driving therapy, and vocational therapy

How long were you in rehab?

I did rehab for a total of five years. I still do counseling every other week.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have gait issues, memory problems, and word-finding difficulty. My personality changed. (I’m more docile – easy going – now.) My pelvis was broken on both sides from my seat belt, which means I have daily pelvis/hip pain. I have also had a headache every day since my car accident. Some days, they’re only pressure; others, pounding.

10. How has your life changed? Is it better? Is it worse?

My life has changed 100%. My husband divorced me a year after my car accident, so now I live with my mom. I do not work. I am on disability, which is barely enough to live on.

11. What do you miss the most from your pre-brain-injury life?Dutkiewicz, Ina M.car

I miss my friends.

12. What do you enjoy most in your post-brain-injury life?

I like that I am more laid back and not as serious.

13. What do you like least about your brain injury?

I dislike that I feel lost some days. I’m not working, and I don’t have anything worthy to put my hand to. My kids are now grown and living on their own. They have their own families. Also, my ex-husband has moved on to a girlfriend. It’s like I was left behind. 😦

14. Has anything helped you to accept your brain injury?

My Christian faith has been a HUGE help to me.

15. Has your injury affected your home life and relationships and, if so, how?

I have no friends from my past (pre-TBI) life. It is sad.

16. Has your social life been altered or changed and, if so, how?

My life has totally changed. I now spend my days with my mom – going to things she enjoys at the Senior Center. I am not really with people my age. While I enjoy the time with her, I long for age-appropriate friends.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My mom is my main caregiver. Yes, I realize how my TBI has changed her life. I know that she has had to give up things to support me.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I really would like to get a part-time job in the future. My experience is with office work. I was an Executive Assistant before my car accident, helping with payroll and AP/AR (accounts payable/accounts receivable) on top of taking care of all correspondence that left the car dealership I worked at.

Dutkiewicz, Ina M. Survivor 2 041316

Ina M. Dutkiewicz – Survivor

I19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

My helpful hint is that it is okay to be different. In a lot of cases, brain injury truly is an invisible disability. In outward appearance, we look “normal” (whatever that is). That means that we can easily blend in, but oftentimes it is hard to keep up. We need to find our own group of people to hang out with who understand where we are coming from and what we deal with on a daily basis. A support-group is a good place to start.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Don’t give up on yourself. Others can turn away and leave you, but your strength comes from you – no one can ever take that away from you. AND, you can rely on yourself to struggle through your low days and celebrate your victories!

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

 

As I say after each post:

Feel free to leave a comment by clicking the blue words “Leave a Comment” below this post.

Please follow my blog. Click on “Follow Me Via eMail” on the right sidebar of your screen.anim0014-1_e0-1

If you like my blog, click the “Like” button under this post.

If you REALLY like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. That works for me too!

SPEAK OUT! Guest Blogger . . . GeorgeAnna Bell . . . . . . . . . . . . . How My Brain Injury Affected My Life

How My Brain Injury Affected My Life

by

GeorgeAnna L. Bell

presented

 by

Donna O’Donnell Figurski

 

Girl Blogger cartoon_picture_of_girl_writingI was diagnosed as being moody at nine years old. I still have that diagnosis to this very day: “mood disorder due to brain injury.” I also have anxiety and panic attacks. I still have today most of the same problems I had back then, just in an expanded manner.

GeorgeAnna Bell - Survivor

GeorgeAnna Bell – Survivor

I remember one thing that always frustrated me – Before my head injury, I was able to read, comprehend, and retain what I was reading. I remember having A to A+ grades and never getting into trouble. But, as soon as I had my head injury, I remember being hit a lot with a ruler by the nuns, being called “demon child,” not being able to read out loud, and having issue after issue trying to remember what we just learned or read five minutes ago and being told that I was lazy. (Oh, that one always got my goat.) I could not keep quiet or shut my mouth for more than five seconds, and I would speak out of turn. I could not sit still in my seat, and I was constantly moving around and around. These are some of the things I personally remember.

Kids_smiling_girl_cartwheelI know my parents wondered why I acted out, and they took me to multiple specialists during my youth. I was diagnosed with optic nerve damage, but no other problems resulting from my head injury were identified. Each doctor gave my parents the same answer: “There is no logical explanation as to why she is doing this now when she did not do it before the head injury.

I was extremely impulsive and still am to this day. In addition to the moodiness, this has been one of the hardest things for me to overcome. I experience emotions very quickly and intensely. As a child and into my teen years, I was very moody and got aggravated very quickly over the littlest things. I always felt anxious without exactly knowing why most of the time. It still happens to me to this very day. I will have an anxiety/panic attack, and I cannot explain why it happened. Recently, I went to a friend’s house, and I had to leave soon after I got there because I started to have an anxiety attack. I get anxious easily still today because I am so afraid people are going to make fun of me and tease me because I am different. I do not tend to keep friends very long because they tend to find something that is strange or I say something weird and they run from me.

I have absolutely no tolerance for change. I have no patience when it comes to waiting – I have to have everything NOW, NOW, NOW. I am always told I have indiscreet ways for making my feelings known to others. So many people take my statements out of context. I feel that I am acting appropriately, but others do not see me that way. When I change my way of saying something or going about something, I am told I am coming off as hostile or aggressive. I do not see it that way, nor do I mean it in that way either. I try to explain my head injury to others, but they tell me to shut up and act normal and stop giving excuses. Yet, it is not an excuse; it is the truth.gg66852714

As a child, as a teenager, and even in my adult years, I lacked awareness of my own personal deficits. It was only about five years ago that I started to realize the things I do that cause these issues, and I personally have tried to change them.

I would verbally lash out, cry, become depressed, and literally throw temper tantrums. This went on into my early 30s. I realized that, if I do not change, I will never have anyone in my life because all I do is find a way to push everyone out of my life. It wasn’t until maybe a year ago that I started to try to change things on my own.

I have also tried to seek professional help, even going as far as intentionally getting myself diagnosed as being “severely mentally ill” just to get the help. But, nothing worked. Actually, getting that diagnosis set me back years.

I had NO assistance from the mental health system. They were actually making my problems worse. Now I try to address the fact that there is an issue, and I doggedly try to understand what the physical, emotional, and psychological effects are upon my daily day. I try to rectify those effects that I deem as a hindrance to my social well-being by forcing myself to change the way I interact with others. I started by intentionally going to bars, not to drink, but to interact with others so I could watch how people reacted to certain behaviors. Honestly, this was hard and long. I lost people from my life, but those people were not the people I truly wanted in my life anyway.family-clip-art

I have a problem keeping people in my life as a result of my inability to function properly in certain social situations. The majority of family and/or friends that choose to maintain their relationship with me either ignore or downplay any behaviors that I portray. Only a select few recognize and respond well when my behaviors are considered outside social normality. When people start to see the social abnormalities in my personality, most either ask what is wrong with me, why I am acting like a crazy person, or just never speak to me again by cutting me out of their lives. (Almost always, they cut me out little by little.)

sad-teenage-girl-clipart-teen_girlDuring my teenage years and into my 20s and even 30s, I had depression on and off. It got better after I had a hysterectomy. When my behaviors started to level out a lot, I was able to control myself better and move past other issues by actually learning not to do this or that.

Amber GeorgeAnna Bell's Service Dog

GeorgeAnna Bell’s Service Dog, Amber

Within the last year, I have found one of the best outlets to cope with the changes in my behavior. I now fall back on crocheting. I make things for others who are in need of certain things more than I. For years, I would fall back a lot on my dogs and my boyfriend. Honestly, one of the dogs – my service dog, Amber – helped me break free from my isolation. The attention that people placed on her made me break free of the isolation I had restricted myself to. I interacted with people just by talking. I learned how to cope with my anxiety and my expression around other people.

 

Thank you, GeorgeAnna Bell.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of GeorgeAnna Bell.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

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SPEAK OUT! . . . . . . . . . . . . . Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

presented by

Donna O’Donnell Figurski

Itty-Bitty GIant Steps for BlogSPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at neelyf@aol.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

 

Here is this week’s Itty-Bitty GIANT Steps

#2 Shaw, Jenny Niday Survivor 050116

Jenny Niday Shaw – Survivor

Jenny Niday Shaw (survivor)…I am happy after three years this April. SmilesI finally smiled again – I mean a real smile. It is the simple things, folks … the simple things.

 

Viera, Meg Survivor 051716

Meg Viera – Survivor

 

 

Meg Viera (survivor)…I just got my grades back from my last college semester. I’m usually on the Dean’s List, but I took a harder class this time. Dean's List

 

My mom said I probably wouldn’t get on the Dean’s List this semester. But, I got an A in the harder class (!) and a B+ in my other one. Here I come, Dean’s List – TBI and all!

YOU did it!

Congratulations to contributors!

As I say after each post:anim0014-1_e0-1

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

 

(Clip Art compliments of Bing.)

(Photo compliments of contributor.)

SPEAK OUT! . . . . . . . . . . . . . . . Faces of Brain Injury Beth Kidd Koziol (survivor)

SPEAK OUT! Faces of Brain Injury Beth Kidd Koziol

presented

by

Donna O’Donnell Figurski

 

 

Beth Kidd Koziol

Beth Kidd Koziol – Survivor

My brain injury happened in 2005 from being a passenger on the back of a motorcycle. I had a traumatic brain injury (TBI)/closed-head brain bleed, a fractured clavicle, five fractured ribs, a lung contusion, many fractures in my left hand, including a fractured scaphoid bone. (I was told that, if the blood supply could not get to it, I would lose the use of my hand. Thank God, it healed!) I also had a badly fractured pelvis and several torn ligaments in my left shoulder. I was airlifted to a trauma unit, where I stayed for three days. I was then transferred to a rehab hospital for about two months. There I got extensive occupational, physical, and speech therapies. I had a neuropsychologist, a neurologist, an orthopedic specialist, and a pain-control specialist. After I left the rehab hospital (in a wheelchair), I visited three times a week for an additional three to six months. I had to learn how to eat, swallow, talk, and walk. I had taste and smell issues with food, plus I couldn’t swallow normal foods. I got dizzy when I moved my head. It was determined that I had shattered microscopic bones in my left ear (the side of all my injuries). After about three weeks of physical therapy, I had a treatment that corrected that problem and reset those little microscopic bones.

I left the rehab hospital in a wheelchair. It took me another three to four months before I could walk with a walker and then with a cane. Now I use nothing. After six to nine months of continued outpatient sessions of physical therapy and occupational therapy, I was called “Wonder Woman” and “Miracle Child” because no one knew how determined I was in my recovery. I was my own caregiver because I was 3,000 miles away from family. Rather than alarm them, I did not tell them of my accident until I was well enough to travel back to the East Coast and tell them in person, so they could see that I was OK on the outside. My family still doesn’t understand the damage and changes on the inside that I endure daily. I have short-term memory problems, I can no longer multitask, and I have to talk in detail as if I were writing a book or describing a picture. I’m told I talk too much; that hurts. If I am doing anything, including talking, and I am interrupted, I cannot remember what it was that I was going to say or do. This is commonly the new normal for many brain injury survivors.

Beth Kidd Koziol 2 survivor 051616

Beth Kidd Koziol – Survivor

The best thing I can suggest is to find materials – books to read to get informed or educated and websites that help you understand what a TBI-person goes through. It helps the survivor when you understand and are patient with him or her. After ten years for me, I still find areas in which I am still healing.
My motto is “Never Give Up!” [smile emoticon]

 

As I say after each post:

Feel free to leave a comment by clicking the blue words “Leave a Comment” below this post.

Please follow my blog. Click on “Follow Me Via eMail” on the right sidebar of your screen.anim0014-1_e0-1

If you like my blog, click the “Like” button under this post.

If you REALLY like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. That works for me too!

 

SPEAK OUT! . . . Guest Blogger Tanya Dallas

One Day at a Time

by

Tanya Dallas

presented

by

Donna O’Donnell Figurski

Girl Blogger cartoon_picture_of_girl_writingI am new to this diagnosis of brain injury. For the last few years, I have had several unexplained symptoms – my life was spinning out of control. No one was listening to me. No one was asking the right questions. A few weeks ago, my father took me to the Emergency Room. He was desperately seeking help because I had no control of my emotions. I was placed in a locked-down psychiatric unit.

Dallas, Tanya Survivor 2 050716

Tanya Dallas – Brain Injury Survivor

A very nice doctor asked me if I’ve ever had a head injury. I began to tell my story. At 11 years old, I had a bike accident. I had no helmet, and I was unconscious for two minutes. At 12 years old, I took a softball to the face. I was unconscious for a few seconds. At 18 years old, I was in a car accident. I was unconscious for an unknown amount of time. Once I was struck in the head with a rock. I was also hit in the head with a ten-pound dumbbell (working with juveniles means risks). I experienced five years of domestic violence. I have no idea which of these things caused my brain to work differently.

Dallas, Tanya Survivor 1 050716

Tanya Dallas – Brain Injury Survivor

It’s hard for me to process. I was always so independent, and now I am unable to even hold a job. I learned what “flooding” was yesterday. I cried as I watched the video. For the first time in years, I felt understood. I felt like I wasn’t completely losing my mind.

It’s hard because my family still doesn’t understand. And they can’t see the injury, so they don’t think it’s there. I’m just taking one day at a time at this moment.

 

Thank you, Tanya Dallas.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Tanya Dallas)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it (intact) with your enemies. I don’t care!

Feel free to “Like” my post.

SPEAK OUT! . . . . . . . . . . . . . . . . Faces of Brain Injury Charles Ross

SPEAK OUT! Faces of Brain Injury Charles Ross  (survivor)

presented by

Donna O’Donnell Figurski

 Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

 

Charles Ross (survivor)

Ross Jr., Charles Survivor 112415 copy

Charles Ross Jr. – Brain Injury Survivor

It has been just over thirty years since I had my traumatic brain injury (TBI) in November 1985. I remember nothing of the accident at all. What I say of the accident is what I learned after the fact. I had the paddles put on me before I got on the helicopter to fly to the larger hospital in St. Louis. The doctors even told my parents they were removing me from Intensive Care to make room for someone who might live. I was in a coma for fifty days. I spent over ten months in the hospital. I was in a wheelchair for one and a half years. And, I had seven summers of surgery to make it to where I can now walk with a cane.

I have severe memory problems. My short-term memory was, and still is, bad. I had been having what I called “spells,” during which I would get a feeling like a chill in my spine. My parents noticed the staring while I was in the hospital. The doctors took me off seizure medicine because they did not believe I was having seizures. I know those spells increased in frequency after that. I could go days with no spells, but other days, I could have hundreds. They usually seemed to last a few seconds, but Mom thought they sometimes lasted longer.

As the spells increased, the feelings I had changed too. I began to notice a feeling like I needed to have a bowel movement, but I never did that, I remember. I would get extremely hot, and sometimes the sweat would just pour out of me for a few seconds. Mainly at night, I would wake with a spell and have a horrible taste in my mouth. After I got my license back, I sometimes had these spells while I was driving. I could have them in class or while I was watching TV or walking or sleeping – it did not matter. I never noticed anything that triggered them. Four years after the accident, in my sleep on New Year’s Eve night 1989, I had a tonic-clonic (grand mal) seizure. It was determined that the “spells” were petit mal seizures. Treatments finally began for traumatically incurred epilepsy, which the doctor finally said I had.

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After I started on medication, the spells decreased dramatically. I would still have one, and my neurologist would increase my dose. That helped for some time, but the spells never stopped completely. Even though I had severe memory and physical problems along with the seizures, I managed to get two Associate Degrees over nine years. However, because of my memory problems, I failed to get my Bachelor’s Degree. I started working with my last degree, but the stress was too powerful to maintain the job. I had many jobs though, mainly contract jobs without benefits.

I began to have blank spells. Maybe I had them before, but I never remembered them or realized it. Why I knew I had them was because I was driving again and I would have an accident in which I hit someone in the back end. I would come out of any blank spell immediately, but I never remembered what had happened, other than that I hit someone. I figured that they hit the brakes quickly in rush-hour traffic and I could not stop.

Over the years, I would have an accident every year or two. Finally, I realized that, before each accident, I had that strange feeling also. So, then I knew what the real cause of the accidents was. After fifteen years of work, I lost my job. I moved in with my parents again. The new neurologist started me on a second medication, and that helped. It did not stop the spells though.

Ross, Charles Survivor

Charles Ross Jr. – Brain Injury Survivor

I moved again and got another neurologist. She put me on two more medicines. One was the same brand, just a different strength. That medicine with such a heavy dosage made me have mood swings sometimes. Altogether, it was over twenty-two years after treatment began and twenty-seven years after the accident before the right mixture was found and I felt in control again. I moved back in with my parents again in late 2014. I helped my parents the best I could with my three hospital stays and two operations. I drove my dad for cancer treatments before his death in September 2015. I am with my mom now. We help each other during the grieving process.

I hope my story serves as a source of strength, encouragement, and determination for others with TBIs to never give up. I was never supposed to live! If I did, they said I would be no more than a being in a chair, unable to do anything for myself.

Never Give UpI am writing my story, I drive, I went to college, I got two Associate degrees, and I worked for fifteen years. There is so much more, but anyone who reads this story should know that anything is possible. You may not accomplish as much as I did, or you may accomplish more. Just know that you should never give up on yourself. Feel proud of your body. If they had been in your shoes, they could never have done what you did, and that is to survive! Be proud!

 

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

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SPEAK OUT! Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

presented by

Donna O’Donnell Figurski

Itty-Bitty GIant Steps for BlogSPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at neelyf@aol.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

 

Here is this week’s Itty-Bitty GIANT Steps

Julie Attwell (survivor)…I’m in Oz (Australia). AustraliaI recently got out of hospital. I was in because of epilepsy from my acquired brain injury (ABI). My discharge was HUGE for me! I was finally put on the list for rehab for fine motor skills, speech,Hospital Bed walking, reading, and writing. I am able to start being me again. I’m super excited! My injury happened in February of 2015, and I have had no help. Now I am finally getting some. YAY!

 

David June 14 copy

David Figurski Brain Injury Survivor

 

David Figurski (survivor)…I’m ecstatic that I finally walked 1.5 miles on the treadmill! I did it at 2.5 mph.

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YOU did it!

Congratulations to contributors!

 

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Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

 

(Clip Art compliments of Bing.)

(Photo compliments of contributor.)

Brain Injury Resources . . . . . Tracy Chapman’s Song “New Beginning” Could Be an Anthem for Survivors

Tracy Chapman’s Song “New Beginning” Could Be an Anthem for Survivors

presented

by

Donna O’Donnell Figurski

 

Brain th-2The major challenge of brain-injury survivors is to eventually accept the “new” persons they have become. From the SPEAK OUT

Tracy Chapman

Tracy Chapman – Singer/Songwriter

Survivor Interviews on this blog, it is common to find that survivors achieve their highest quality-of-life when they finally accept their brain injury and all the limitations that have resulted. They essentially make new lives for themselves. The song “New Beginning” by Tracy Chapman was obviously written about the world, but the words could apply to survivors. (Audio, Lyrics)

 

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