TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘Bart Goldstein’

On the Air: . . . . . . . . . . . . “Another Fork in the Road” Guests: Joel (caregiver) and Bart (survivor) Goldstein . . . . . . . . . . Topic: Father and Son Tackle Brain Injury

On the Air: “Another Fork in the Road”

Guests: Joel (caregiver) and Bart (survivor) Goldstein

Topic: Father and Son Tackle Brain Injury

presented

by

Donna O’Donnell Figurski

 

images-1What better day than Father’s Day to meet, father and son, Joel and Bart Goldstein! Joel has been fighting and advocating for his son, Bart, ever since Bart was in a motor vehicle accident when he was sixteen-years-old. That accident caused Bart’s brain injury.

14 Joel Goldstein Speaker's photo

Joel Goldstein – caregiver & author of “No Stone Unturned”

 

Joel is the author of “No Stone Unturned: A Father’s Memoir of His Son’s Encounter with Traumatic Brain Injury.” Both Joel and Bart shared their ups and downs as they continue to traverse the maze of brain injury.

Bart Goldstein 2

Bart Goldstein – brain injury survivor

Both father and son offered some good information about Hyperbaric Oxygen Therapy (HBOT), Omega-3 vitamins, cranial sacral therapy, and Reiki, an Eastern practice used for healing.

03 Joel and Bart Newspaper

 

You can learn more about Joel and Bart on Facebook at NS Unturned and at brainline.org. Read his article, “When the Dust Finally Settles: Strategies for the Long-Term Caregiver.”

11 Cover Photo No Stone Unturned

“No Stone Unturned” by Joel Goldstein

 

See you “On the Air!”

On the Air: “Another Fork in the Road”

Guests: Joel (caregiver) and Bart (survivor) Goldstein

Topic: Father and Son Tackle Brain Injury

(Clip Art compliments of Bing.)

(Photos compliments of guests.)

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Caregivers SPEAK OUT! . . . . . . Joel Goldstein

Caregivers  SPEAK OUT!  Joel Goldstein,

(father of survivor, Bart Goldstein, and author of “No Stone Unturned”)

presented by

Donna O’Donnell Figurski

 

 

14 Joel Goldstein Speaker's photo

Joel Goldstein – Caregiver of son, Bart & author of “No Stone Unturned”

1. What is your name? (last name optional)

Joel Goldstein

2. Where do you live? (city and/or state and/or country) Email? (optional)

New Paltz, New York, USA

3. What is the brain-injury survivor’s relationship to you? How old was the survivor when he/she had the brain injury? What caused your survivor’s brain injury?

Our son Bart was sixteen when he suffered a severe TBI (traumatic brain injury). He was a passenger in an auto accident.

4. On what date did you begin care for your brain-injury survivor? Were you the main caregiver? Are you now? How old were you when you began care?

I became Bart’s caregiver on January 29, 2001, the day of his accident. My wife, Dayle, and I were and remain Bart’s main caregivers. We remain involved in Bart’s life, but he has now progressed to semi-independence. He resides in his own apartment an hour and half away. We visit and break bread with him every Sunday and on holidays. We participate actively with his “team,” made up of a Benefit Coordinator (a certified specialist or a social worker who is an advocate for the survivor, a CIC (Community Integration Counseling) counselor, and an ILS (Independent Life Skills) trainer.

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

My wife and I were responsible for our eleven-year-old daughter, Cassidy.

6. Were you employed at the time of your survivor’s brain injury? If so, were you able to continue working?

I was Director of Human Resources at a medium-sized company. I was lucky enough to be able to take whatever time was needed to care for Bart, especially while he was in the acute phase. My wife, Dayle, worked at home as a Reiki Master. She stopped most work to care for Bart.

Joel Goldstein & Son, Bart

Joel Goldstein – Caregiver for Survivor son, Bart

7. Did you have any help? If so, what kind and for how long?

Friends and family helped look after our daughter while Bart was an inpatient (four months). Close friends and a wider “conspiracy of decency” in our community helped for several years, post-injury. Here is a short YouTube video, “No Stone Unturned: Traumatic Brain Injury and the Conspiracy of Decency,” that addresses that issue:

8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

My and my wife’s support began immediately in the hospital.

9. Was your survivor in a coma? If so, what did you do during that time?

Yes. Bart was in a coma for 30 days. Dayle and I were at his bedside.

10. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? How long was the rehab? Where were you when your survivor was getting therapy?

Bart had all the standard therapies, plus many unconventional ones. Here is an article, “Fighting the “TBI Wars”: New Alternatives for TBI Survivors,”published by Brainline, that addresses this question succinctly:

11. What problems or disabilities of your brain-injury survivor required your care, if any?

03 Joel and Bart Newspaper

Joel Goldstein (caregiver) and son, Bart – brain injury survivor

Bart’s injury was very severe – 30-day coma, nine-month rehab, and then years at home reintegrating. He struggled with the full gamut of intellectual, physical, and emotional deficits that come with a severe TBI. Gradually, with time and alternative therapies, these struggles have eased very considerably. Today Bart lives semi-independently, in his own place, with a part-time job, and with new fiends. He is moving on with his life.

12. How has your life changed since you became a caregiver? Is it better? Is it worse?

Our focus for over a decade was almost entirely Bart-centric. Pastimes were eliminated (e.g., Taekwondo) and volunteer activities were diminished. (I was president of our local branch Y at the time of his accident, but I resigned shortly after.) People we were accustomed to seeing regularly (especially Bart’s friends and their families) dropped away. We were angry about the friends moving on with their lives, but eventually we forgave and moved on too. Life is both better and worse, in different respects.

13. What do you miss the most from pre-brain-injury life?

I miss old hobbies, sports, travel, and activities that have been shelved in order to be more focused on essentials.

14. What do you enjoy most in post-brain-injury life?

My life is more simplified and focused. I have a new sense of mission and compassion. We have founded the BART Foundation (Brain Alternative Rehabilitative Therapies) – a 501(c)(3).

15. What do you like least about brain injury?

I dislike the timeline – Bart’s recovery from his TBI will be a lifelong challenge. Some issues, like perseveration, are terribly stubborn.

16. Has anything helped you to accept your survivor’s brain injury?

18 Joel Goldstein & Bart

Bart Goldstein – Survivor with Father, Joel Goldstein (author of “No Stone Unturned”)

I have been helped by the usual suspects: faith, hope, love, humor, music, family, friends, and fun.

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

We’re all walking-wounded in some ways – reminiscent of PTSD (post-traumatic stress disorder).

18. Has your social life been altered or changed and, if so, how?

The caregiving life can often be isolating.

19. What are your plans? What do you expect/hope to be doing ten years from now?

We have formed the BART Foundation (Brain Injury Rehabilitative Therapies), a 501(c)(3) educational charity. The mission of The BART Foundation is to promote better outcomes for brain-injury survivors by answering three questions – which alternative therapies are likely to work, where can they be found, and how can they be afforded?

20. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add?

Our best advice to caregivers is succinctly summarized in this article. “When the Dust Finally Settles: Strategies for the Long-Term Caregiver,” published by Brainline.

11 Cover Photo No Stone Unturned

“No Stone Unturned: A Father’s Memoir of His Son’s Encounter with Traumatic Brain Injury,” by Joel Goldstein

 

To learn more about Joel Goldstein and his son, Bart, read, “No Stone Unturned – A Father’s Memoir of His Son’s Encounter with Traumatic Brain Injury.”

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Caregiver Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

 

Survivors SPEAK OUT! . . . . . . Bart Goldstein

Survivors SPEAK OUT! Bart Goldstein

presented

by

Donna O’Donnell Figurski

Bart Goldstein 2

Bart Goldstein – Survivor

1. What is your name? (last name optional)

Bart Goldstein

2. Where do you live? (city and/or state and/or country) Email (optional)

Delmar, New York, USA

3. On what date did you have your brain injury? At what age?

My brain injury happened on December 29, 2001. I was almost 17.

4. How did your brain injury occur?

I was riding with friends in an auto, and we had an accident. I was in the back seat. We were just teenagers clowning around. There were no drugs or alcohol.

5. When did you (or someone) first realize you had a problem?

I was in a coma after the accident.

6. What kind of emergency treatment, if any, did you have?

I was airlifted to emergency surgery. Later I was given a trache and a G-peg (feeding tube inserted directly into the stomach by percutaneous endoscopic gastrostomy).

7. Were you in a coma? If so, how long?

Yes. I was in a coma for a month.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

Bart Goldstein & Dog

Bart Goldstein – Survivor

I had speech therapy, physical therapy, and occupational therapy as an inpatient for three months at Helen Hayes Hospital. Then I had five more months of therapy as an outpatient at the hospital.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have problems with walking, my speaking sensibly, control of anger, partial blindness, and memory.

10. How has your life changed? Is it better? Is it worse?

I am much more of a planner now than I was prior to accident. An article, “The Journey Back,” from Brain Injury Awareness Month a couple of years ago answers this question and most of the others: http://spotlightnews.com/uncategorized/2014/03/20/journey-back/

11. What do you miss the most from your pre-brain-injury life?

See the Spotlight article (address given in the answer to the question 10).

12. What do you enjoy most in your post-brain-injury life?

See the Spotlight article (address given in the answer to the question 10).

13. What do you like least about your brain injury?

See the Spotlight article (address given in the answer to the question 10).

14. Has anything helped you to accept your brain injury?

I’ve been helped by my Christian faith, my parents, and my sense of humor.

15. Has your injury affected your home life and relationships and, if so, how?

See the Spotlight article (address given in the answer to the question 10).

16. Has your social life been altered or changed and, if so, how?

See the Spotlight article (address given in the answer to the question 10).

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My folks are my main caregivers. Caregiving takes a lot of love and more.

Bart & Joel Goldstein

Bart Goldstein – Survivor with Father, Joel Goldstein (author of “No Stone Unturned”)

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to continue to heal and to find a good woman and settle down.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Learn patience. It’s a long haul.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Keep your faith and your sense of humor. Try alternative therapies.

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

 

As I say after each post:

Feel free to leave a comment by clicking the blue words “Leave a Comment” below this post.

Please follow my blog. Click on “Follow Me Via eMail” on the right sidebar of your screen.anim0014-1_e0-1

If you like my blog, click the “Like” button under this post.

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No memory of the day that changed my life

My name is Michelle Munt and this is my story about surviving a brain injury and what I continue to learn about it. This is for other survivors and their loved ones, but also to raise awareness of what can happen to those in an accident. This invisible injury too often goes undiagnosed and it can be difficult to find information about it. I will talk about things that have helped me as I continue to recover and invite others to see if it works for them too.

Everything and nothing. GM1123 😊

Bienvenue. I’m thinking this is the spot where I am to write a witty, flowery personal section that pulls you in......I got nuthin’

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