TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘Brain Injury’

Brain Injury Resources CTE & Football (chronic traumatic encephalopathy )

Brain Injury Resources . . . CTE & Football

presented

by

Donna O’Donnell Figurski

 

Brain th-2The regular season of the NFL (National Football League) begins this week. Although American football can be exciting, we in the brain-injury community are very aware of the havoc that both concussive and sub-concussive head impacts play not only on the brain health of the pros, but also on the brain health of college and high school players (1). We are especially sensitive to the high risk of the trusting and still-developing young players in Pop Warner leagues (2, 3).th

There has been a growing public awareness of the brain disease CTE (chronic traumatic encephalopathy), which can develop from hits to the ctehead and lead to “memory loss, confusion, impaired judgement, impulse control problems, aggression, depression and progressive dementia.” Some players have retired early (4, 5). Former players have sued or are suing the NFL (6). There is still a great deal of ignorance about CTE, but much research has been done and is being continued vigorously. This article tells us some basic facts that we should know.

Here is a brief outline from the article:

“Concussions in the NFL are more widespread than we thought

“An estimated 96 percent of deceased NFL players had CTE

“Researchers are working on a test for living players

“The NFL has donated $0 to this important new brain injury study”

I urge you to read the article for the details.

 

(Clip Art compliments of Bing.)

 

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SPEAK OUT! . . . . . . . . . . . . . Faces of Brain Injury . . . . . . . . Lisa Wickenden, Survivor

SPEAK OUT! Faces of Brain Injury – Lisa Wickenden (survivor)

presented

by

Donna O’Donnell Figurski

Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

 

Lisa Wickenden (survivor)

Lisa Wickenden

Lisa Wickenden – Brain Injury Survivor

Three years ago, my life changed forever. I now have some challenges that no one can see, but I am reminded of them every day. Three years ago, I had my accident. I will forever have a TBI (traumatic brain injury). You cannot tell I have one by looking at me. Three years ago, relationships changed between friends and me. Some friends stuck around and are still a very, very big part of my life. Some friends faded away. gg66084897Three years ago, I had to start loving a new me. It’s still a struggle. But with all the support I have from family and friends, I know it’s possible.

 

Thank you Lisa Wickenden for sharing your story.

 

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(Photos compliments of contributor.)

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SPEAK OUT! NewsBit . . . . . . Repair of Neural Circuits in Stroke-damaged Mouse Brains

SPEAK OUT! NewsBit

Repair of Neural Circuits in Stroke-damaged Mouse Brains

presented by

Donna O’Donnell Figurski

 

 

newsboy-thBasic research on the repair of damaged mouse brains has again produced a potential breakthrough for human therapy. The research may accelerate our ability to repair damaged human brains. A trial study for using this therapy in humans is now being designed.

I’ve already written about the extraordinary promise of cell therapy in eliminating or greatly reducing the effects of brain damage. Much of this promise has to do with the discovery of stem cells, which have the stunning ability to develop into virtually any kind of cell. (The previous NewsBit, however, showed that scientists found a way to cause a common cell type to develop into functional neurons directly without going through a stem-cell stage.) In a study earlier this year, scientists showed that stem cells surgically implanted into damaged human brains reduced the severity of symptoms. But in that study, the scientists were surprised to find that the added stem cells themselves did not become new neurons and form new circuits, but they somehow revved up the brain’s natural ability to heal itself.animal-cell-hi

Now scientists at the University of Southern California (USC) with help from scientists at the National Institutes of Health (NIH) have found a way to activate the implanted stem cells so they develop into neurons and become part of new neural circuits. The direct involvement of the added stem cells resulted in enhanced repair and a much greater loss of symptoms. One NIH scientist said, “If the therapy works in humans, it could markedly accelerate the recovery of these patients.”

CellScientists had previously shown that an FDA (Food and Drug Administration)-approved reagent, the engineered protein 3K3A-APC, caused stem cells in culture to become neurons. The USC scientists wanted to see if 3K3A-APC would help the recovery of a brain-injured animal. The model used for brain damage was mice that were induced to have a stroke. The scientists implanted human stem cells and then treated the mice with 3K3A-APC or a placebo (mock-3K3A-APC). Mice that were treated with stem cells + 3K3A-APC did markedly better (some were almost normal) in tests of sensory perception and motor skills than did mice that were treated with stem cells + the placebo. Unlike the earlier study in which the added stem cells did not become neurons, these stem cells did become neurons if the mouse had been treated with 3K3A-APC.

ScientistThe human stem cells not only became neurons, but they also formed normal connections with mouse neurons. Because the implanted cells were human, the scientists were able to use a human-specific toxin to kill only the implanted cells (the mouse cells were resistant to the toxin). When scientists killed the new neurons, the mice lost the signs of recovery. The scientists concluded that 3K3A-APC caused the cells to develop into neurons that then formed functional neural circuits, ultimately leading to recovery.Brain Cell

USC physician-scientist Berislav Zlokovic, M.D., Ph.D., who directed the research, said, “When you give these mice 3K3A-APC, it works much better than stem cells alone. We showed that 3K3A-APC helps the cells convert into neurons and make structural and functional connections with the host’s nervous system.” (Full story)

 

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Survivors SPEAK OUT! . . . . . . Rogan Grant

Survivors SPEAK OUT! Rogan Grant

presented

by

Donna O’Donnell Figurski

 

 

Rogan Grant - Brain Injury Survivor

Rogan Grant – Brain Injury Survivor

1. What is your name? (last name optional)

Rogan Grant

2. Where do you live? (city and/or state and/or country) Email (optional)

Edinburgh, Scotland     rogan_g@hotmail.com

3. On what date did you have your brain injury? At what age?

I acquired my brain injury in 2006. I was 35.

4. How did your brain injury occur?

I was attacked outside a nightclub by some customers I had thrown out of my pub the previous week.

5. When did you (or someone) first realize you had a problem?

I knew something was wrong when I woke up the next day. I was admitted to the hospital and then released the next morning. A friend found me unconscious and in a pool of blood and vomit. I was rushed back to the hospital. A few weeks later when I was released, I thought I was OK, but I kept forgetting things. I set the kitchen on fire three times in one week because I forgot I was cooking. Once I even went to bed and left a full meal cooking. I knew then I needed to be around family “for a week or two, until I cleared my head.”

Rogan Grant – Survivor of brain injury

6. What kind of emergency treatment, if any, did you have?

In the first hospital, I theoretically had a CT (computerized tomography) scan. After I was released from that hospital and went to stay with family, I had an X-ray. That’s when I was told of the multiple fractures of my skull and around my face. So I don’t think I had a scan done.

7. Were you in a coma? If so, how long?

I was lucky – I didn’t go into a coma. I just went in and out of consciousness for a few hours.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I went to a head-injury service and to the Neurology Department at a hospital. Rehab just seemed to be a social event. But it became more useful as time went on and I struggled more and more.

How long were you in rehab?

Six years

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I had no sense of smell or taste for two-three years. For about three years, I dreamt every night that I died. My balance went all to hell. My vision had a problem with focus. My hearing became strange. (I hear everything at once and can’t isolate specifics, so I struggle to hear people with a lot of noise around.) I lost family contact and friends because I was emotional and aggressive, I couldn’t focus mentally, and my memory was erratic. I still have no concept of time in regards to the memory of anything since the injury. Facial recognition is gone, unless the person speaks or is where I would expect that person to be. I have to work every day to keep calm and controlled. My panic attacks and anxiety are now under control (my agoraphobia was the result of anxiety). My self-confidence was shot – I doubted everything I said and what I remembered, and I wondered whether or not I had done things I shouldn’t have. My personality went from being the life and soul and centre of every party (and there were a few) to sitting on a sofa with a blanket trying to avoid anybody and everybody. Self-loathing and a feeling of hopelessness and loss were incredibly strong. I felt people would be better off without me around. My mood was so low that I had very, very dark thoughts. Now I work on my mood. I use my techniques to stay “normal.”

10. How has your life changed? Is it better? Is it worse?

I was happy with work, I was back at University doing a double degree (I had completed three years in two), I was working full-time, I had great friends, and I was always busy. Now, after a lot of work, I realize I can’t work for other people because I can’t keep their schedules. So I am trying to work for myself. I also have a new partner; we have a baby and a nice home.

Rogan Grant – Survivor of brain injury

My life’s not “better” or “worse,” but it is different. I always try to remember it is important not to compare my current life to what it was before. Life changes day to day, and, yes, my brain injury caused a major change with massive problems. But I am here, and I have things I didn’t before.

11. What do you miss the most from your pre-brain-injury life?

I miss the self-confidence and the feeling of self-assurance I had. I knew what I was doing, what I had done, and where I wanted to go. People could come along for the ride or not. I was me, and I did well.

12. What do you enjoy most in your post-brain-injury life?

I learned from mistakes I didn’t know I was making. I am much more aware of others, and I can now help them because I trained as a therapist to do just that. I have a new family, and we are happy.

13. What do you like least about your brain injury?

I dislike the loss of memory and recognition. I hate having to fake that I remember someone or that I remember things he or she told me. But, if I say I had a head injury, people often treat me like I lost 80 points off my IQ. And the headache … the constant headache … never left; it just eased a bit. At least the sudden “brain-freeze” attacks are down to every couple of months and only last a day. They used to be three days long and twice a week.

14. Has anything helped you to accept your brain injury?Hypnotherapy

Yes. I was helped by hypnotherapy. After years of being pumped full of drugs, I got more results in six weeks with hypnotherapy. It made a massive difference. I can now focus, stay calm, recall information, and even read books again.

15. Has your injury affected your home life and relationships and, if so, how?

I lost a lot of my old friends. Family are only just now coming around to understanding that I have a problem. It took a decade, but at least it has started. Of course, they are there now that I no longer need their help or their understanding. It has been very hard not to throw that back at them, but it is their issue, not mine. I got through my problems; they still have theirs.

16. Has your social life been altered or changed and, if so, how?

I was always out. I was the one people called when they wanted things to get lively and fun. I ran pubs. It was my job to make people enjoy themselves, and I enjoyed doing it. I loved being in a crowd – laughing, singing, music pumping – everything busy. Now I don’t like going into a supermarket at peak times. Although I am generally better, I still have my moments. I don’t get anxious, but I am wary of how I could react.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My main caregiver is my partner, Jane. She understands a lot, but not everything. We try to have a “normal” relationship, but she knows I can react differently – and quickly. Now, instead of getting angry with myself and blowing things out of proportion, I can take a moment, calm down, apologize for acting out, and start again. She reminds me of pretty much everything. She also has to keep pushing me on those days when it all gets to be too much.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope that in ten years’ time, I will have a business running that pays the bills. Jane and I will have moved to a bigger house because there will be another baby or two. I will have found a way to fix my remaining problems and will have shared the solutions with those who are trying to regain control of their own lives.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Sudden change is very hard to deal with or understand, but, if you spend your time comparing yourself to who you were or to what you could do, you will never move forward. We ALWAYS change; it is the only constant. Look back before your injury – were you the same person every year then? No, of course not. So look forward; find what you want to do with who you are now and go ahead. All human beings compare themselves to others, and we hate ourselves for it! Why do we do it? If someone has wavy hair, he or she looks at someone with straight hair and feels jealous. If we are big, we want to be smaller; those who are small want to be bigger. It is never ending! With a head injury – no matter how you got it or how it affected you – look forward and stay away from comparing yourself to the past.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Rogan Grant - Brain Injury Survivor

Rogan Grant – Brain Injury Survivor

As I said before, look forward, stay away from comparisons, and be honest to those around you. No one will ever understand your feelings, unless that person has been there. (I know none of us would wish that knowledge on anyone.) When it gets too much, say so, and when you feel that frustration and anger build, find a way to let it out sensibly. Let it out any way you can, but let it out before you hurt those whom you care for and love.

 

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

 

As I say after each post:

Feel free to leave a comment by clicking the blue words “Leave a Comment” below this post.

Please follow my blog. Click on “Follow Me Via eMail” on the right sidebar of your screen.anim0014-1_e0-1

If you like my blog, click the “Like” button under this post.

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Caregivers SPEAK OUT! …… Raine Turner

Caregivers  SPEAK OUT!  Raine Turner,

(mother of survivor, Ryan, and author of “Only Son…Only Child”)

presented by

Donna O’Donnell Figurski

 

 

Raine Turner - Caregiver & Author: Only Son...Only Child

Raine Turner – Caregiver & Author: Only Son… Only Child

1. What is your name? (last name optional)

Raine Turner

2. Where do you live? (city and/or state and/or country) Email? (optional)

Edmonton, Alberta, Canada

3. What is the brain-injury survivor’s relationship to you? How old was the survivor when he/she had the brain injury? What caused your survivor’s brain injury?

The brain-injury survivor is my son. At 16, he was in a car accident.

4. On what date did you begin care for your brain-injury survivor? Were you the main caregiver? Are you now? How old were you when you began care?

I began care August 13, 2003.

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

No

6. Were you employed at the time of your survivor’s brain injury? If so, were you able to continue working?

I was self-employed and unable to manage my business.

7. Did you have any help? If so, what kind and for how long?

Not really

Raine Turner Caregiver & Author

Raine Turner Caregiver & Author

 

8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

In the hospital

9. Was your survivor in a coma? If so, what did you do during that time?

Yes. I sat beside my son’s bed and read to him.

10. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? How long was the rehab? Where were you when your survivor was getting therapy?

Yes. My son had rehab both as an inpatient and an outpatient.

11. What problems or disabilities of your brain-injury survivor required your care, if any?

At first, self-care. Also eating, walking, etc.

12. How has your life changed since you became a caregiver? Is it better? Is it worse?

Trick question. It made me realize what is important in life. It taught me patience, which I did not know I had.

13. What do you miss the most from pre-brain-injury life?

I dislike my son’s loss of the chance for a normal life. I miss having a relationship for myself.

14. What do you enjoy most in post-brain-injury life?

Nothing!

15. What do you like least about brain injury?

Only Son...Only Child by Raine Turner

Only Son…Only Child by Raine Turner

My son’s daily struggles

16. Has anything helped you to accept your survivor’s brain injury?

There is no choice but to accept.

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

Yes. I did not have a relationship at all for ten years. The one I had at the time ended due to stress. It’s now hard to find someone who wants to be involved with this situation.

18. Has your social life been altered or changed and, if so, how?

Yes. But it’s getting better now with my son in school and his not living with me.

19. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to be on a beach!

20. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add?

Buckle up! It is going to be a long, tough ride.

 

 To learn more about Raine Turner, check out her website, “Only Son Only Child: a journey through love.” Look for her book on Amazon.

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Caregiver Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

 

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

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SPEAK OUT! . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

presented by

Donna O’Donnell Figurski

 

Itty-Bitty GIant Steps for BlogSPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at neelyf@aol.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

 

Here is this week’s Itty-Bitty GIANT Steps

 

Janice Tindle - Survivor

Janice Tindle – Survivor

Janice Tindle (survivor)…My accomplishment is getting published after my TBI (traumatic brain injury). I have a blog (janicetindle.com), where you’ll find all my links. I’m on Facebook, Twitter, and LinkedIn. I’ve been published in Caregiver magazine, Fearless Caregiver, and TBI Hope and Inspiration magazine. I’m also a contributor to TheMighty.com. I raise awareness about TBI and dystonia (a neurological movement disorder). I recently won the 1pg. Short Screenplay Contest. My entry, entitled Galicia’s Granite, was performed at the Novel Writing Festival. It’s on YouTube. I just fought two spam sites and got them to remove my article, 7 Ways to Support a Loved One with a Traumatic Brain Injury, off their sites. kids-hand-writing-clip-art-hand_with_pencil_5CAnnie Ricketts has it posted (with my permission) on her site, biglobalpicnic.org. I’m very proud of that article. I’m working on a several books and hope to become a PAID writer very soon!

 

 

Raine Turner - Caregiver & Author

Raine Turner – Caregiver & Author

Raine Turner (caregiver)…I am going to brag – big huge momma brag! My son [my brain-injured son, who was not supposed to survive, never mind thrive; my drug-dealing son, with a federal criminal record; my son, who is now at the University of Calgary studying a dual degree in Business and Actuarial Science (I said I was going to brag) and getting 80s (yes, on a reduced course load and with tutors)] is thriving against all odds. congrats-you-did-itThis same young man was actually the KEYNOTE speaker at the Brain Injury conference in Ottawa, which is supported by the federal government! So, if you think you cannot achieve, cannot fight, or cannot rise up to be at a higher level than the one on which you are at, you should put on your “big boy” or “big girl” underpants and work hard. You WILL rise up to be at a level higher than the one you are at now. It will not be easy; it will not be fun; but you will improve your life. If you need, I can always “kick your ass” to achieve more, as I did for my son! I am so excited; I am so proud of him! He has worked so hard for so long. My son is my HERO!

Raine Turner, the author of “Only Son… Only Child,” will be a guest on my show, “Another Fork in the Road” on Sunday, August 21, 2016, at 5:30pm Pacific Time, with her son, Ryan. I hope you will join us.

 

Matthew Vickers - Survivor

Matthew Vickers – Survivor

 

Matthew Vickers (survivor)…A huge feat for a traumatic brain injury survivor tubshower11who can’t walk or stand and only has the use of his right arm and hand … For consecutive weeks, I have independently showered, and that includes completing all necessary transfers.

 

 

YOU did it!

Congratulations to contributors!

(Clip Art compliments of Bing.)

(Photos compliments of contributors.)

 

As I say after each post:anim0014-1_e0-1

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

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Caregivers SPEAK OUT! . . . . . Ian Lees

Caregivers  SPEAK OUT!  Ian Lees

presented by

Donna O’Donnell Figurski

 

 

1. What is your name? (last name optional)

Ian Lees

2. Where do you live? (city and/or state and/or country) Email? (optional)

Tipp City, Ohio, USA

e99290a9147c6b8d6ef54bc0694e98853. What is the brain-injury survivor’s relationship to you? How old was the survivor when he/she had the brain injury? What caused your survivor’s brain injury?

The survivor is my wife. Her brain injury happened on July 5, 2005, the date of the accident. We were rear-ended in a motor vehicle accident.

4. On what date did you begin care for your brain-injury survivor? Were you the main caregiver? Are you now? How old were you when you began care?

My care began on July 5, 2005. Yes, I am the main caregiver. I have been since the accident.

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

No

6. Were you employed at the time of your survivor’s brain injury? If so, were you able to continue working?

Yes, and I still work.

7. Did you have any help? If so, what kind and for how long?

I had no help really from anyone who lives close by.

husband-and-wife-hi8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

My support began the day of the accident.

9. Was your survivor in a coma? If so, what did you do during that time?

No

10. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? How long was the rehab? Where were you when your survivor was getting therapy?k20116138

Yes, my wife did rehab for a while. She did occupational, speech, and physical therapies. I took her to rehab twice a week.

11. What problems or disabilities of your brain-injury survivor required your care, if any?

I take her for everything. She hasn’t worked or driven a car since 2005, contrary to the doctor’s point of view.

12. How has your life changed since you became a caregiver? Is it better? Is it worse?

My life hasn’t gotten worse. My wife has no real social life outside of me or unless she visits her family. She has depression and other issues.

13. What do you miss the most from pre-brain-injury life?

I miss lots of things. The list is long.check-list-hi

14. What do you enjoy most in post-brain-injury life?

I am in school for neuroscience and psychology because the doctors don’t have answers or don’t have the honesty to tell the truth. I read lots. I have spent most of my time reading books and studying. I am always looking for answers. My wife and I do cook together and have outings.

15. What do you like least about brain injury?

I don’t like how the brain injury has left my wife mentally. She is not on most medications because they have side effects we don’t care for.

16. Has anything helped you to accept your survivor’s brain injury?

My reading and going to school have helped. It was either divorce or find ways to take care of my wife. So, why not make a life and career out of this – and take care of her?

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

Yes. In many ways

18. Has your social life been altered or changed and, if so, how?

(No answer)

19. What are your plans? What do you expect/hope to be doing ten years from now?

My plans are to get a degree and hopefully to help others get a better understanding of what to expect and what not to expect. There are dos and don’ts. I am a veteran and would like to help them, as well as others.

th-120. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add?

Suggestions: educate yourself as much as you can, and don’t always believe what you hear or read without checking other resources. There is a long road ahead, and it will keep you busy. For me, the more I read, the better I understand. It has cut down on arguments and fights. When you live with TBI (traumatic brain injury) and PTSD (post-traumatic stress disorder), you see life from a whole different perspective.caring-for-the-caregiver

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Caregiver Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

 

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

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SPEAK OUT! . . . . . . . . . . . . . . Faces of Brain Injury . . . . . . . . Freya Perry – Survivor & Artist

SPEAK OUT! Faces of Brain Injury

Freya Perry

presented

by

Donna O’Donnell Figurski

 Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

2 Perry, Freya

Freya Perry – Brain Injury Survivor & Artist

Freya Perry (survivor)

3 Perry, Freya

Ceramic Tiles by Freya Perry – Brain Injury Survivor & Artist

I thought my life as I knew it had ended five months after my TBI (traumatic brain injury). Ten months after my TBI, I got into painting as therapy. Now, eighteen months after my TBI, I have a small art studio and love painting. And people are loving my art!

Life is good.

I still have sensory-overload situations, but I am living with it – I am still recovering. Most importantly, I love me and my new life in a way I never thought could be possible.

 

To learn more about Freya Perry, please visit her website, Freya Perry.

Thank you Freya Perry for sharing your story.

 

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

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SPEAK OUT! . . . . . . . . . . . . . Faces of Brain Injury . . . . . . Paige Matis (caregiver for her boyfriend, Bryan Carpenter)

SPEAK OUT! Faces of Brain Injury

Paige Matis (caregiver for her boyfriend, Bryan Carpenter)

presented

by

Donna O’Donnell Figurski

 Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

 

Bryan Carpenter 1

Bryan Carpenter – Survivor & Marine

In honor of this recent Memorial Day, I want tell you about my Marine and my hero – and my better half, Bryan.

Bryan enlisted in the United States Marine Corps in 2004. He went to fight for our country in the war in Iraq in 2006. Luckily, that year he survived not one, but two IEDs (improvised explosive devices often used as roadside bombs).

In the second incident, Bryan was the driver of the Humvee he was in. He suffered the worst injuries of the four Marines involved in the explosion. Bryan was knocked unconscious from the impact of the bomb. In the field, a military doctor did an emergency tracheotomy, but he nicked Bryan’s artery. Bryan also had a shattered pelvis, which cut his abdomen and caused him to bleed internally. Bryan only had moments to live. He underwent a transfusion with six units of blood. Nobody thought Bryan would make it out of his medically induced coma.

Bryan Carpenter 5 Survivor

Bryan Carpenter – Survivor

Two and a half weeks later, Bryan woke up. He was told by doctors that his dream of serving in the military as his lifelong career was over. The chances of Bryan’s ever walking “normally” again were close to zero. He was also told that he would suffer from this explosion for the rest of his life. Bryan said his dreams literally shattered right before his eyes.

Bryan never gave up. He was determined to beat the odds the doctors gave him. So far, he has done his best to achieve that goal. I know he still struggles every day with his PTSD (post-traumatic stress disorder), his traumatic brain injury, and the pain from his physical injuries. But, he still pushes forward. Bryan learned to walk again on his own. He has dedicated his life to physical therapy, and he never misses a day at the gym. After the incident, Bryan was a 120-pound man and was barely able to stand on his own two feet. He is currently walking independently, and he weighs 230 pounds (all healthy body mass and muscle).

Bryan Carpenter 2

Bryan Carpenter – Survivor

Bryan strives every day to help others. He has been an inspirational speaker, speaking to school-shooting victims, middle-school students, open events, etc. He is a gym trainer and an MMA (Mixed Martial Arts) coach. He was a bouncer at night clubs; he went to the Fire Academy; he threw out the ceremonial Opening Pitch in 2012 for the Cleveland Indians; he was even the Grand Marshall in his hometown parade. I know Bryan tries to accomplish everything he puts his mind to, especially when he knows that it will benefit someone. He is trying his hardest to help people achieve their goals after suffering pain like the pain he has gone through. Although he may struggle with the effects of his injuries from the explosion, he never lets them limit him.

Bryan Carpenter 3

Bryan Carpenter – Survivor

Bryan has put all his focus and attention into his new dream and reality – his book. He wrote the book not only as therapy, but also to inspire others that the unbelievable is always possible. In his book, Bryan talks about his dream to be in the military – from when he enlisted and went through boot camp to being deployed and injured. He has written about his recovery and the inspirational things he has done with his life as of now.

Holidays, like Memorial Day, remind me of what Bryan has overcome. Thankfully, and miraculously, he has beaten death. He has gone on to beat the odds. He wrote a book on his recovery to continue to serve and better his country.

 

Bryan Carpenter 4

Bryan Carpenter – Survivor

Many people have paid the ultimate price in the military. Those men and women will never be forgotten. … I am very thankful to have the chance to hug my Miracle a little tighter and a little longer on Memorial Day.

 

To learn more about Bryan Carpenter, please visit his website, Battle After Iraq.

You can also see Bryan’s book about his recovery. “Never Ending Battle After Iraq: A Marine’s Road to Recovery.”

 

Thank you to Paige Matis for sharing this story about her boyfriend, Bryan.

 

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

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Another Fork in the Road Behavioral and Emotional Changes After Brain Injury

Fork in the Road copy“Another Fork in the Road”

This category is an extension of my radio show, “Another Fork in the Road,” which airs at 5:30 pm (Pacific Time) on the 1st and 3rd Sundays of each month on the Brain Injury Radio Network. (See the “On The Air Show Menu” category for a list – with links – of all my shows, which are archived and thus always available.)

On the 1st Sunday of each month, I host a panel of brain injury survivors, caregivers, and/or professionals in the field. On these shows, my panelists and I examine topics pertaining to brain injury.

On the 3rd Sunday of each month, I host guests – brain-injury survivors, caregivers, or professionals in the field.

Since I spend countless hours in preparation for each show, I decided to share the knowledge that I gather with my readers.

 

Behavioral and Emotional Changes After Brain Injury

by

Donna O’Donnell Figurski

 

BrainAs many of us know, all brain injuries are different. When an injury has happened to any part of the brain, there is going to be a change. The part of the brain that was damaged will determine the kind of symptoms that will be experienced. Because the brain is a complex organ in which different areas communicate, some damage may cause unexpected behaviors or emotional changes.

There are several sections of the brain, and each is responsible for many different aspects of daily life. Here I will discuss some of the behavioral and emotional changes that can result from damage to the cerebellum and to the cerebrum, which consists of the temporal lobe, the occipital lobe, the parietal lobe, and the frontal lobe, a major part of which is the prefrontal cortex.

The cerebellum, which is at the base of the skull, controls coordination, balance, equilibrium, and motor-skill memory. Some of the problems that result from damage to this area are compromised balance or the inability to walk, problems with fine-motor skills, and slurring of speech.

Damage to the temporal lobe can cause problems with hearing, memory, and motor-skill memory. Injury in the temporal lobe may also result in aggressive behavior.

The occipital lobe has to do with vision and vision-related activities. Reading and writing will be affected by damage to this area of the brain. Vision impairment can occur, which includes blurry, tilted, and double vision.

The parietal lobe is responsible for touch perception and the interpretation of visual information. Problems that may occur with damage to this lobe include difficulty in naming objects, difficulty with reading and/or writing, and spatial perception problems that can affect coordination.

Emotional responses and expressive language are housed in the frontal lobe. Emotions and the skills for problem-solving are dealt with there. The frontal lobe helps folks make sense of the world around them. It’s needed to understand others and be empathetic to them. Essentially, the frontal lobe is the emotional and social control area. It also determines and steers personality.

The prefrontal cortex of the frontal lobe controls analytical thinking, thought analysis, and behavior regulation. Executive functions are controlled here too. The prefrontal cortex is the gateway for making good decisions. When this area is injured, the thinking process is affected in such a way that inappropriate behavior is often the result.

 

I asked the following three questions of brain-injury survivors on the brain-injury support-group sites on Facebook to which I belong:

How have your emotions or your behaviors changed after your brain injury?

How do you cope with the change?

How do family members and/or friends cope with the change in your personality?

Several site members answered. The answers below are typical of the comments I received. (I used first names to protect the privacy of the contributors.)

 

Sherrie (survivor)

Happy SadIt’s been a long time since my brain injury. My emotions can be extreme or opposite to what they should be. Change is hard, and I don’t like change. Friends left, and family has never accepted my brain injury.

I have been known to laugh when someone gets hurt, like mashing a finger, and my emotions can be so overwhelming that I cry no matter the feeling. Happy, sad, proud, mad, love. It doesn’t matter.

 

Toby (survivor)

Toby told me that it’s hard to cope with his migraines with brain injury because a lot of meds don’t work very well.

He has been put on many meds for depression and anxiety disorder.

MemoryHe also says his memory is damaged, and he can’t remember a lot of things.

Toby’s family has a hard time with him and his brain injury because it changes many things in their lives too. A lot of people don’t know what to say, so they hold back, or they do not talk with Toby anymore.

Toby tries to cope by getting his head in a better place, but when the anxiety kicks in hard, he has no idea what to do. He tries to get some things set up in advance, so he can take the Migraineright meds before another migraine comes on. (He usually experiences over twenty migraines a month.)

When I asked Toby how his family and friends cope with him and his brain injury, he said, “They stay away from me. If I make a mistake on the computer or the Internet, they will call my wife and give her a heads-up on my condition. I don’t really have any friends after what happened to me.”

 

Jason (survivor)

k0184684In a nutshell, Jason said, “Lack of love.”

 

 

I thought an article by Janet Cromer in “Psychology Today” was very informative, especially for caregivers, who often struggle with emotional and/or behavioral changes in the survivor. The article can be found online (see below).

Janet Cromer, who is a Registered Nurse, has written the “Dark Side of Personality Change.” She tells of how her husband’s personality changed after his brain injury. Before his brain injury, Janet recalls her husband (Alan) as being kind and loving with a keen sense of curiosity and humor. Calm ManAfter his injury, Alan experienced intense anger and confusion. His bizarre behavior and sudden change from calm to fiery led Janet to believe her post-injury husband had two personalities. She likened Alan’s behavior to that of Dr. Jekyll and Mr. Hyde, which she found very frightening. (I’m sure Janet is not alone in her fears. I have heard comments such as these in my brain-injury support-groups too many times to count.)

As I mentioned above, injuries to the frontal lobe, especially to the prefrontal cortex, often result in emotional and behavioral changes in survivors. Survivors of any brain injury may find themselves in states of agitation and in unstable emotional chaos. These states can cause outbursts of unintended verbal aggression and raging attacks on family or friends, which can be very hurtful. Though family and friends may try to understand and to be empathetic and helpful, dealing with an unexpected outburst can be an overwhelming task because it is so hard to comprehend.

Violent outbursts and aggression by the survivor can result in the lack of trust and possibly fear of personal injury by the caregiver, family, or friends. But I think it’s the lack of trust – knowing that the survivor can become volatile at any time – that is the scariest and most hurtful. That loss of the sense of security is likely to be the most devastating.

 

How can caregivers, family, and friends help? I guess understanding would be at the top of the list. I know that’s not easy, especially if one feels that he or she has been unjustly attacked. Even knowing that the survivor is not responsible, would not act this way pre-brain injury, and will probably feel really bad after the incident, it will still be difficult to accept the aberrant behavior. It’s human nature.

empathyThe caregiver, family, and friends need to understand that the survivor’s outburst may occur because of his or her frustration with the reality of the new life – lacking the ability to do the things he or she once did easily and/or experiencing loss of independence and/or the realization of a futile situation. Also, an outburst might be triggered by uncontrolled pain, depression, or any number of ailments. So, showing compassion or empathy, providing comfort, support, and encouragement will go a long way to helping your survivor.

 

What can one do when faced with irrational behavior by the survivor? It often helps to leave the area when an outburst begins. Don’t try to reason with the survivor – your efforts will probably not be fruitful. Remember, the survivor’s brain is injured, and he or she can’t help the aberrant behavior. It might help to talk about the behavior in a calm manner after the incident has subsided, or … maybe let it go.

Try to determine if there is a specific trigger for the outburst. If one is identified, try to avoid those situations that provide it. At the very least, knowing the trigger can help the caregiver, family member, or friend understand a little more. As time goes by, the caregiver and the survivor may each recognize the triggers and be able to eliminate them or lessen their impact.gg60887323

 

Identify the survivor’s actions immediately prior to an outburst. Does the survivor show signs of agitation, tense his or her muscles, or become distracted? If so, take note and maybe remove the survivor from the area. Large groups of people (as in malls, family gatherings, or parties) can often cause agitation in a survivor, which in turn may cause an outburst.

Any overwhelming situation can bring about an outburst. Having to be ready to leave the house at a certain time can cause stress. So allow more time. Don’t rush.

Give plenty of notice for planned events. Make sure there are no surprises. If a survivor knows in advance that there is a family gathering to go to on Friday night, then he or she can plan for it. Surprises and unexpected events often cause anxiety and confusion, which can easily bring on an outburst. So plan ahead.

 

ClipArt-AfterTheFire7Get counseling. Counseling for both the survivor and the caregiver (or family member) can be helpful. Visiting a neuropsychologist or a behavioral therapist can help (see below). They are able to teach compensatory tactics to avoid or lessen the effects of an angry outburst. The survivor may employ deep breathing, alter thoughts to a more pleasant topic, leave the area to regroup in a quiet place, let friends know the trigger points, and ask for help. Periodic reminders can help those who struggle with memory. These are all simple and effective ways to compensate.

There are a lot of little tricks that can be incorporated into the lives of survivors and their caregivers, family, or friends that can make life easier for all.

 

Helpful Links

What Does a Neuropsychologist Do, Exactly?

Who Are the Rehab Specialists?

Cerebellum

Frontal Lobes

Parietal Lobes

Temporal Lobes

Occipital Lobes

What Are the Functions of the Prefrontal Cortex?

After Brain Injury: The Dark Side of Personality Change Part I by Janet M. Cromer RN, LMHC

 

Click here to listen to my show

“Behavioral and Emotional Changes After Brain Injury” on “Another Fork in the Road,” on the Brain Injury Radio Network.”

 

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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