TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘“Prisoners Without Bars: A Caregiver’s Tale”’

TBI Tales: . . . . . . . . . . . . . . . . . . . . I Tripped & Stumbled, but Did Not Fall by Donna O’Donnell Figurski

I Tripped & Stumbled, but Did Not Fall

by

Donna O’Donnell Figurski

Donna O’Donnell Figurski

Recently, as I got out of my car, I stumbled on the curb. Somehow in the darkness, I did not see it. Though the event took less than a second, one thought ran through my head. It was not, “Oh, no! I am going to break a bone or scrape my knee.” It was not, “What a klutz! I’ll ruin my clothes.” And it was not about how embarrassed I would be. All of those possibilities probably would have been my first thoughts – before brain injury entered my life when my husband had a traumatic brain injury in 2005.

Now my mind is only a thought away from brain injury. So, as I tripped and stumbled, but did not fall, my mind raced to, “Please don’t let me hit my head.” I didn’t care how silly I looked or about my clothes being ripped or about getting any broken bones (they would heal). I worried about getting a brain injury. I worried about how a brain injury could change my life forever. I worried that if I were hurt, I could not sufficiently care for my husband, who needs my daily attention. Yes, those thoughts did race through my head in that fleeting second.

It only takes a second for a brain injury to occur. Most brain injuries occur because of an accident. Though we may be aware of the possibility of accidents, they cannot all be avoided. Fortunately, my accident was avoided – just barely. I can only hope that my potential accidents will be few and far apart in the future. I hope yours will be too.

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share intact it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post

Survivors SPEAK OUT! Rodney Smith

Survivors SPEAK OUT!  Rodney Smith

presented by

Donna O’Donnell Figurski

1 Rodney Smith

Rodney Smith – Brain Injury Survivor

1. What is your name? (last name optional)

Rodney Smith

2. Where do you live? (city and/or state and/or country) Email (optional)

Ravenswood, West Virginia, USA

3. On what date did you have your brain injury? At what age?

It happened on May 14, 2008. I was 52.

4. How did your brain injury occur?

It was just another day – Wednesday, May 14th, 2008. Really, it was just another day – in the middle of the week, in the middle of the month, and almost in the middle of the year. It was beautiful weather, a little cool maybe, but a great morning for a quiet ride to work. Little did anyone know it could have been my last

I showered, shaved, and got ready for a day at the office like I had for the last eight years. I got on my motorcycle like I did most days for the last four years. I chose the Yamaha TW200 this day for reasons I will probably never remember. (I actually hope I never do.) I rode to the end of our dirt road and then headed west on Georgia 16. My wife left about the same time or shortly after, but she headed east on Georgia 16.th

About 10 miles down the road, my wife saw a Georgia State Police car speeding west with its blue lights flashing. Immediately, she felt sick in the pit of her stomach. She resisted a strong urge to turn around and follow the trooper. She said to herself that she had no way of knowing where the police car was going, but she felt deep in her heart that she was sure what had happened. The only question was “How bad was it?” My wife kept driving, and less than a mile down the road, a Spalding County sheriff’s car in front of her flipped on its blue lights, pulled a U-turn, and flew past her, going west on 16. The sickness in my wife’s stomach got worse, but once again, she fought the urge to turn around. She didn’t know anything for sure, and cops do that all the time, so she kept driving.

Shortly after, my wife’s cell phone rang. She looked at the number, and it all but confirmed her worst fears. It was from my cell phone, and I never used my phone while I was riding. Since I had left the house less than 20 minutes earlier and since it is at least a 30-minute ride to my office, this couldn’t be good. Still she had hope that maybe I forgot something or just broke down and was calling to let her know. But, as soon as she heard the voice on the other end, she knew. A man’s voice confirmed what she suspected when he asked, “Do you know an older gentleman who rides a motorcycle?” All she could say was “How bad is it? Is he alive?”

He told her I was alive. My wife said she was on her way there, but he told her not to come out 16 because the whole road was blocked. He told her to head for downtown Atlanta because they were life-flighting me there. He didn’t know which hospital yet, but he would call and let her know as soon as he found out.

This all seemed to be happening in slow motion, but the next few hours were a blur. My wife doesn’t remember stopping to turn around, but she found herself headed back to the house to get things she knew she would need – like the phone numbers of family and my office. She was not a person who prayed much, but she took time to ask God to help and keep me alive if He could. My wife did not give much more thought to that prayer, but God apparently did.

The only thing resembling a clear memory between the Sunday before the accident and the first week of August is of a canyon I was looking into. I was about to step in or float in or something when I felt a beautiful and powerful presence surround me and pull me back from the edge. I don’t know how I knew, but I knew it was my wife, Bonnie, pulling me back from wherever I was headed.

I believe with all my heart that that happened when I was in the life-flight helicopter. The medical reports say they had to revive me twice while flying me to Atlanta. I feel that, during that time, God heard my wife’s simple and sincere prayer and sent her spirit to the edge of the Valley of the Shadow of Death to bring me back because He was not finished with me yet. He wasn’t finished with either one of us.

5. When did you (or someone) first realize you had a problem?

I didn’t fully realize anything for about two and a half months. On the second or third day I was in the hospital, my wife, Bonnie, knew something was not right. She told the kids, “He’s not in there.”

2 Rodney Smith ICU

Rodney Smith – Brain Injury Survivor

6. What kind of emergency treatment, if any, did you have?

I was treated at Grady Memorial Hospital in Atlanta, Georgia. Grady is a very good trauma center. It’s staffed with Emory University doctors. They did a great job with my broken jaw and broken wrist, fixing those with titanium plates and screws. They did a CT (computerized tomography) scan and found some bleeding on the brain. Since I could talk and tell them a birth date (actually, a wrong one), they didn’t refer me for any kind of rehab. Bonnie kept telling them that something was wrong. On the day of my discharge, they had an evaluation done and decided to refer us to a neurologist.

7. Were you in a coma? If so, how long?

Maybe 36 hours

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

After working our way around the medical system for two and a half months, we finally got to a neurologist who at least knew she couldn’t effectively evaluate me. We were referred to Shepherd Center in Atlanta. This was the turning point in my recovery. Shepherd Center is one of the top ten rehabilitation hospitals in the country. They specialize in spinal cord and brain injury rehab.

3 Rodney in HospitalHow long were you in rehab?

I spent about three months in the Shepherd Pathways Day Program, which is their outpatient brain injury rehab. I had sessions three times a week in speech therapy, occupational therapy, and physical therapy.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have short-term and working memory problems. I lost most of my ability to multitask. I have problems with balance. Problem-solving takes much longer than it did pre accident. I have issues with dyslexia. I tend to cry more easily.

10. How has your life changed?

Is it better?

My life is better in that I appreciate things more and care more about things that really matter. I care less about things that don’t matter. My attention to detail is better when it comes to the one detail I can focus on (see how my life is worse).

Is it worse?

My life could be considered worse because I can only focus on one thing at a time. Because of this, people around me can’t depend on me the way they used to. But, there’s a flip side to that. When I work on a project, my single-mindedness allows me to focus on what I am doing and be more precise than before the injury. Those days, my mind was often on many things at the same time.

11. What do you miss the most from your pre-brain-injury life?

I miss being able to solve problems quickly.Decisions

12. What do you enjoy most in your post-brain-injury life?

I enjoy spending quality time with my wife, Bonnie, and my kids and grandkids. I also enjoy building things and working at my own pace.

13. What do you like least about your brain injury?

I don’t like that it is still very difficult to make decisions. It takes me what seems like forever to weigh options and decide on anything. Bonnie makes a game of it, sometimes continuing to give me options. That’s frustrating, but amusing.

14. Has anything helped you to accept your brain injury?

I accept it because I see that God has a plan, and I’m still part of it.

15. Has your injury affected your home life and relationships and, if so, how?

Yes. Bonnie and I are closer now. But, her life is more difficult because she doesn’t know what I will remember and what I won’t, so she has to remember everything just in case.

16. Has your social life been altered or changed and, if so, how?

Not really. My social life is not much different, since I was kind of a loner and spent most of my time with family anyway.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

Bonnie is my main caregiver and my angel. I know it is a very difficult task. I am very thankful every day for what she does.4 Rodney Smith Sideboard

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to be building furniture and fixing things for many years to come.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

One thing Bonnie and I have discovered is that, since my memory can’t be relied upon, I now use my camera phone and take pictures of everything I might need to refer to later.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

There is hope and purpose after brain injury.

 

Thank you, Rodney for taking part in the SPEAK OUT! project

To learn more about Rodney Smith, visit his website, Hope After Traumatic Brain Injury

Take a few moments and pop over to Lash & Associates Publishing to read Rodney Smith’s article, “Brain Injury Adjustments: Self-Reinvention.”

**********

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

SPEAK OUT! . . . . . . . . . . . . . Itty-Bitty GIANT Steps!

SPEAK OUT! Itty-Bitty Giant Steps

presented by

Donna O’Donnell Figurski

Itty-Bitty GIant Steps for BlogSPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at neelyf@aol.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

Donna-David-1 copy

David Figurski – Brain Injury Survivor & Donna O’Donnell Figurski

Trash

Donna O’Donnell Figurski (caregiver)I came home from Drama Club ready to take the garbage out.  I was shocked to find that it had already been taken out.  David had done it!  First time since his TBI (traumatic brain injury) twelve years ago! YAY! Can you see my happy dance?Happy Dance

David Grant

David A. Grant – Brain Injury Survivor

David Grant (survivor) It was around two years ago this month that my ability to read returned. Last night, I again fell asleep with a book in my hands. Sure,Mann Reading in Bed my pace is a bit slower, but I’m doing it. Just passed the 300-page mark in an awesome book. (Thanks again, Nick!) I marvel at the fact that I can actually remember a long and complicated plot line, something I was incapable of for years after my accident. How can I not be profoundly grateful?

Note: David is the editor for the e-zine, “TBI Hope & Inspiration.” He is also the author of several books about brain injury. “Metamorphosis, Surviving Brain Injury” and “Slices of Life after Brain Injury

Metamorphosis

Metamorphosis, Surviving Brain Injury

Slices of Life

Slices of Life after Brain Injury

YOU did it!

Congratulations to contributors!

(Clip Art compliments of Bing.)

(Photos compliments of contributors.)

As I say after each post:anim0014-1_e0-1

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

Brain Injury Resources . . . . . Movie Link – “Inside Out”

NOTE:     Although this link was active at the time of this posting, it no longer exists. Apparently, Disney has pulled the content due to copyright. I apologize for any inconvenience or disappointment. The updated link will take you to trailers.

Brain Injury Resources – Movie Link – “Inside Out”

presented by

Donna O’Donnell Figurski

Inside-Out-2015-Animated-Cartoon-Movie-HD-Wallpaper

Recently I published a short review of the Disney movie, “Inside Out.” The movie examines the inner-workings of the brain, and in particular the core memories of a youngster named, Riley.

Core memories are the essence of what makes up an individual.

thThe movie also explains, in its animated form, how both long-term and short-term memories are stored, retrieved, and sometimes lost forever.

635890961371189508-XXX-XXX-INSIDE-OUT-RGB-D230-8FPUB.PUB16.127-78518218

Although I watched the movie (twice) on Netflix, I’ve located it on the web for your easy access. I hope you will take the time to watch it. It’s fun … and informative!

Enjoy “Inside Out.”

(Clip Art compliments of Bing.)

As I say after each post:

Feel free to leave a comment by clicking the blue words “Leave a Comment” below this post.

Please follow my blog. Click on “Follow Me Via eMail” on the right sidebar of your screen.anim0014-1_e0-1

If you like my blog, click the “Like” button under this post.

If you REALLY like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. That works for me too!

Brain Injury Resources . . . . . Movie Recommendation – “Inside Out”

Brain Injury Resources – Movie Recommendation – Inside Out

presented by

Donna O’Donnell Figurski

“Do you ever look at someone and wonder What is going on inside their head?”

“Inside Out” movie about the workings of the brain by Disney

That’s how the movie Inside Out begins. I really like it. I’ve now seen it twice. The beginning made immediate sense the second time that I watched the movie.

This Academy Award-winning, animated film by Walt Disney’s Pixar Animation Studios is definitely for adults. Young children will likely be entertained by the hysterically funny characters, but adults will find it both enormously entertaining and immensely informative.

The movie follows the emotional development of Riley from infancy to young, prepubescent girl. Each emotion is hilariously depicted as a character (Joy, Sadness, Disgust, Fear, and Anger), whose appearance and demeanor depicts the emotion represented.

The emotions control Riley’s behavior from a control panel in the brain. Riley is a happy young child, and Joy is pleased. But, things get more complicated as Riley gets older. Riley’s parents move, and Riley has a crisis that challenges her emotions. The resolution requires the emotions to cooperate.

In no way is the movie anatomically correct, but in contrast the psychological concepts are accurate. The introduction of a concept makes understanding it intuitive and effortless. Among other topics, you will painlessly learn about the making, storage, and dumping of memories, about the importance of emotion and memory in one’s behavior, that core memories are crucial to personality, and that joy and sadness are both important emotions. The movie deals with sleeping, dreaming, the difficulty in differentiating between fact and opinion, the subconscious, abstract thought, imaginary friends, imagination, train-of-thought (depicted as a real train), etc. In fact, my brother-in-law, who teaches introductory psychology to college students, is considering making watching this movie a requirement for the course.

I highly recommend it. (Trailer)

SPEAK OUT! . . . . . . . . . . . . . . . Faces of Brain Injury . . . . . . . . Shauna Farmer

SPEAK OUT! Faces of Brain Injury Shauna Farmer (survivor)

presented

by

Donna O’Donnell Figurski

 

Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

Shauna Farmer (survivor)

Shauna Farmer 2 Survivor 032417I rolled a 4-wheeler. My head hit a tree (we think), and I was not wearing a helmet. I kept rolling, ensuing broken bones – ribs, clavicle, and three vertebrae in my back. The TBI (traumatic brain injury) I sustained is that of “shaken-baby syndrome,” aka “diffuse axonal injury” (damage to neuron connections over a widespread area). The prognosis was that I wouldn’t walk, talk, or even wake up. But, I walked out of the rehab hospital five weeks later. Unassisted, thank you very much! I am hoping to be able to drive soon. th

This journey of TBI is a long and arduous one. It’s a little bit easier if you have people who know firsthand what you are dealing with. So, keep on swimming, Gladiators! You got this.

 

Thank you Shauna Farmer for sharing your story.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

TBI Tales: Inspiration . . . . . . . . by Bonni Villarreal (caregiver)

Inspiration

by

Bonni Villarreal (caregiver)

presented by

Donna O’Donnell Figurski

Bonni Villarreal – Caregiver

March 21, 2012, is a day that changed my life forever. It started off like any average day. I got up and went to work. Mike was asleep when I left. I called him around 8:30 that morning to let him know I wouldn’t be at my desk, in case he tried to call me. He sounded fine. Then, just by chance, I happened to be at my desk at 10 am when my phone rang. It was Mike … telling me he was having a stroke.

By the time I got to the house, the ambulance was there. Mike was awake and reaching for me. I didn’t think it was too serious because Mike was alert and talking. But, by the time we got to the hospital, that had changed. The doctor informed me that Mike had a huge blood clot near his cerebellum, and he had to be life-flighted to another hospital because he was too critical to stay at the one he was at.


I had to sign papers for life-saving brain surgery. Mike was in a coma for ten days. We didn’t know if he would wake up, and, if he did, what condition he would be in. When he “woke up,” Mike wasn’t anything like the man I married. He stayed in the hospital for another month, and then he was transferred to a nursing home.

Those days were some of the darkest in my life. They treated Mike as if he were a hopeless case. I wonder what would’ve happened to him if I hadn’t been around.

Mike Villarreal – TBI Survivor

He was tube-fed, couldn’t speak (he wrote instead), and couldn’t walk. He was totally helpless. Plus, he was battling infection after infection. I didn’t think things would ever return to normal.

Fast forward to January 2017 – almost five years post stroke. Mike passed his barium swallow test, and he is having his G-tube removed! He is walking almost unassisted! He is talking! I told Mike, “You are an inspiration. You give hope to people who have lost it, you have renewed hope for people who are about to give up, and you keep hope alive for people who are just starting this long journey.”

Mike wants everyone to know – DON’T EVER, EVER, EVER GIVE UP. No matter if it’s been five, ten, or fifteen years. Keep hope alive! Mike did, and look how far he has come!

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share intact it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post

SPEAK OUT! . . . . . . . . . . . . . . . Faces of Brain Injury . . . . . . . . Ina M. Dutkiewicz (survivor)

SPEAK OUT! Faces of Brain Injury – Ina M. Dutkiewicz (survivor)

presented

by

Donna O’Donnell Figurski

Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

Ina M. Dutkiewicz (survivor)

Dutkiewicz, Ina M. Survivor 2 041316

Ina M. Dutkiewicz- Brain Injury Survivor

I had a near-fatal car accident on my way to work on February 3, 2010. I was immediately put into a coma from the violent crash, and I stayed in that coma for over four weeks. My pelvis was broken on both sides from my seat belt. When I woke up, I was classified as “not weight bearing” (wheelchair-bound). I slowly moved to a walker, and then to a cane. Now I can navigate without the cane if the weather is nice and not snowy or icy. I had to learn to walk again (I still have gait problems), as well as relearn to swallow and eat. (They started me out with ice cream! 🙂 ) I also had to do disability driving lessons before I could drive again.

It has been a long, scary road these past seven years. I was not willing to give up on myself, and I gave my all and then some to my recovery. I am hoping to someday return to work part-time.

Thank you Ina M. Dutkiewicz for sharing your story.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

Survivors SPEAK OUT! Amy Zellmer

Survivors SPEAK OUT!  Amy Zellmer

presented by

Donna O’Donnell Figurski

12092720_887813074587576_567905417_n

Amy Zellmer – Brain Injury Survivor

1. What is your name? (last name optional)

Amy Zellmer

2. Where do you live? (city and/or state and/or country) Email (optional)

Saint Paul, Minnesota, USA

3. On what date did you have your brain injury? At what age?

February 3, 2014 – just shy of my 40th birthday

4. How did your brain injury occur?

I slipped on a patch of ice while walking down an inclined driveway.

5. When did you (or someone) first realize you had a problem?

I knew right away I wasn’t OK. I had an excruciating pain in my head where I landed, and my vision was distorted.

6. What kind of emergency treatment, if any, did you have?

My physical injuries were addressed, but the doctor felt that I had a concussion and that I would be better in 4-6 weeks.

7. Were you in a coma? If so, how long?

3-zellmer-amy-1

Amy Zellmer – Brain Injury Survivor

I wasn’t in a coma, but I may have blacked out for a minute or two.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I didn’t find a functional neurologist until two years after my fall. He was able to help me with my dizziness and balance issues, which I had complained about to every single one of my doctors. Even the general neurologist didn’t do anything for me. I had only had craniosacral therapy up to this point.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

My injury caused issues with dizziness, balance, gait, fatigue, overstimulation, brain fog, memory, and aphasia. My fall also caused a dislocated sternum, severe whiplash, and torn muscles.

10. How has your life changed? Is it better? Is it worse?

My life is definitely different, and I have not yet returned to 100%. However, I now have more energy than I did right after my brain injury, and my memory is increasing.

11. What do you miss the most from your pre-brain-injury life?

I miss having the energy to do all the things I want to do and to be able to work 40 hours a week. I also used to have an “internal GPS.” Now I get lost easily.

5-zellmer-amy-yoga-on-beach

Amy Zellmer – Brain Injury Survivor

12. What do you enjoy most in your post-brain-injury life?

I enjoy the friendships I have made and the opportunities I have had to be an advocate and raise awareness about this often-invisible injury.

13. What do you like least about your brain injury?

I dislike not having enough energy to get through an entire day, and I lament the loss of my organizational skills and memory.

4-zellmer-amy-computer-copy

Amy Zellmer – Brain Injury Survivor

14. Has anything helped you to accept your brain injury?

Writing has been a huge part of my self-therapy.

15. Has your injury affected your home life and relationships and, if so, how?

No answer

16. Has your social life been altered or changed and, if so, how?

I no longer enjoy crowds and noisy restaurants. It’s hard for me to listen to a conversation with more than just one or two people.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I am my own caregiver.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I will continue advocating for TBI (traumatic brain injury) awareness. This often-invisible injury is misunderstood by SO many – including healthcare professionals.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

7-zellmer-amy-with-brain

Amy Zellmer – Brain Injury Survivor

I wish I had found a functional neurologist earlier on in my recovery. It took me over two years to get the treatment I needed for my visual problems, dizziness, and balance issues. Also, I wish I had taken someone with me to my early neurology appointments to help advocate for me (plus to be able to remember what the docs said).

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Our attitude determines our recovery. A positive attitude is a MUST. Even when we have dark days and it seems like we will never get better, we MUST remember that there is always hope. It’s a long road, but the new friendships made with other TBI survivors is worth it!

NOTE 1:

Amy Zellmer is the author of “Life With a Traumatic Brain Injury: Finding the Road Back to Normal.” She also compiled more than 100 stories for “Surviving Brain Injury; Stories of Strength and Inspiration.”

2-life-with-a-traumatic-brain-injury

“Life With a Traumatic Brain Injury: Finding the Road Back to Normal” by Amy Zellmer

1-surviving-brain-injury-stories-of-strength-and-inspiration

“Surviving Brain Injury: Stories of Strength and Inspiration” compiled by Amy Zellmer

NOTE 2:

My story, “Nightmare in the Disability Lane,” can be found in Chapter 29 on page 114.

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

 

TBI Tales . . . . . . . . . . . . . . . . . Caregivers, We Appreciate You

Caregiver’s We Appreciate You

by

Penny Byler

byler-penny-survivor

Penny Byler – Brain Injury Survivor

For the caregivers and families of us survivors, I know there is so much you can never understand about what we live with every day. But, please know that all you do is noticed and appreciated. Sometimes, we just don’t have the words to let you know that we understand that, on the day our life as we knew it completely ended, you also lost someone.

caregiver-supports-clipart-1Most of you never had the chance to mourn the loss of the loved one you knew because you were too busy helping this “new” person fit in where your dreams for your loved one left off. Although we don’t always show it, your kindness, love, support, and acceptance are noticed and appreciated. Thank you for never giving up on us. You help us know we can continue. We may not have the words to use when we need them, but you will see it in our eyes, by a touch of the hand, or when we smile.

You are a very important part of our recovery. You are noticed. You are appreciated.

 

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share intact it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post

diemodi jewelry

uniquely hand-crafted jewelry by donna

Welcome to Harmony Kent Online

The home of all things books

Pete Springer

Passionate Teacher and Future Children's Author

HOPE TBI

Helping Other People Excel - To Be Independent

For the Love of Books, Old and New

Katie Fischer, Writer and Reader of Stories

Charlie Bown

Children's Author

Jessica Hinrichs

“We write to taste life twice, in the moment and in retrospect.” ― Anais Nin

VIVIAN KIRKFIELD - Writer for Children

Picture Books Help Kids Soar

Mindy’s Writing Wonderland

For authors, parents, teachers & everyone who loves children’s books.

Kaitlyn Leann Sanchez

Literary Agent

Surviving Traumatic Brain Injury

TBI - Survivors, Caregivers, Family, and Friends

The Care Factor

Loving someone with a Traumatic Brain Injury

Brain Injury Support Group of Duluth-Extension

Brain Injury Information and SUPPORT

Brain Aneurysm Global Insight

Brain Aneurysm, cerebral hemorrhaging, hemorrhage stroke