TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘Brain Injury Radio Network’

Brain Injury Resources: . . . Movies & Documentaries About Sports and Brain Injury

Brain Injury Resources: Movies & Documentaries

About Sports and Brain Injury

presented

by

Donna O’Donnell Figurski

 

The following are in alphabetical order.

Brain th-2

 

Concussion

Concussion

ConcussionThis drama is based on the discovery of CTE (chronic traumatic encephalopathy) in the brains of deceased former NFL (National Football League) players by forensic neuropathologist Dr. Bennet Omalu. CTE is a serious disease of the brain, found mostly in football players. It is caused by concussions and repeated sub-concussive hits. CTE has been found to cause several neurological problems, including early memory loss, impulsive behavior, and dementia. The movie details Dr. Omalu’s life, especially after his discovery, and the walls that he had to tear down to make this discovery known.

The movie, currently in theaters, stars Will Smith as Dr. Bennet Omalu.

Movie details and trailer are at http://www.sonypictures.com/movies/concussion/.

 

Gridiron Gladiators

Gridiron Gladiators

Gridiron Gladiators This movie documents the history of football since the late 1800s. It depicts how football has evolved through the years and shows the extreme violence of the game. This documentary shows that, though football is one of America’s favorite sports, it is in dire need of reformation to reduce greatly or cease the possibility of getting a brain injury.

A stream of this documentary can be rented for $7 at http://gridirongladiatorsmovie.com/. Click “Stream Movie” to see the trailer.

 

Head Games

Head Games

Head Games This documentary is not just about American football, but about any sport that can readily cause brain injury, including soccer and hockey. George Visger, a former NFL (National Football League) player for the San Francisco 49ers, states in the documentary, “It’s been known for a long time that banging your head over and over and over again can be a bad thing.” This documentary also addresses the risks of children playing sports that can cause brain injury.

See it free online at http://www.hulu.com/watch/446640.

 

League of Denial

League of Denial

League of Denial: The NFL’s Concussion CrisisThis Frontline documentary shows the role of the NFL (National Football League) in the serious problem of getting concussions on the playing field. It unveils the stories of several NFL players who were diagnosed posthumously with CTE (chronic traumatic encephalopathy), a disease of the brain discovered by forensic neuropathologist Dr. Bennet Omalu. The story of Dr. Omalu and his discovery of CTE in American football players is the basis for the movie “Concussion.”

See it free online at http://www.pbs.org/wgbh/frontline/film/league-of-denial/.

Read about it on my blog at

https://survivingtraumaticbraininjury.com/2016/01/06/so-whaddya-think-football-puts-childrens-brains-at-risk/.

 

The Crash Reel

The Crash Reel

The Crash Reel” This documentary is a gripping 4+ star movie about Kevin Pearce, a champion snowboarder who was expected to win a gold medal in the 2010 Winter Olympics. While training on the half-pipe, Kevin missed his mark and severely slammed his head. His dream of an Olympic gold medal disappeared as he was faced with a traumatic brain injury (TBI). You will see breathtaking footage of Kevin snowboarding before his TBI.

See it free online at https://vid.me/x2HU/the-crash-reel. See the trailer at https://www.youtube.com/watch?v=2KkFZ-QC53Q.

 

The United States of Football

The United States of Football

The United States of Football This documentary is yet another look at the dangers of concussions in American football. It features 40-year-old Kyle Turley, former player for the New Orleans Saints, the St. Louis Rams, and the Kansas City Chiefs, as he talks about his fears and concerns about his own possible impending memory loss and dementia. It features other former NFL (National Football League) players who are in the throes of brain damage and shows how their lives have collapsed after repeated concussions. It delves into the harm that football can cause youngsters, whose brains are still developing.

A stream of this documentary can be rented for $3.99 at http://theusof.com/store.

The trailer can be seen at https://www.youtube.com/watch?v=Z8JMSMvWsBE.

Read about it on my blog at https://survivingtraumaticbraininjury.com/2015/10/19/4643/.

 

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So, Whaddya Think? . . . My Opinion: Sports Benefits Outweigh the Risks

So, Whaddya Think?

My Opinion: Sports Benefits Outweigh the Risks

by

 Charles Ross

presented

by

Donna O’Donnell Figurski

So Whaddya Think Brain th-4I was eighteen when I had my traumatic brain injury (TBI) in a car accident in 1985. I was brought back to life once. I was in a coma for fifty days. I was in a wheelchair for one and a half years. I have memory problems. My body drew up into a fetal position. It took seven years of painful surgery and therapy and close to thirty procedures to straighten my legs, feet, arms, and hands. Thirty years later, my claw-shaped right hand looks like it has rheumatoid arthritis, but I use it. I write with that hand and walk with a cane in it. Three years after my accident, I went back to college. It took three years of difficult work to get my first Associate Degree and two years for a second in Mechanical Drafting, AutoCAD. I worked fifteen difficult years doing AutoCAD. Not one day since my accident has been easy for me. I am proud of what I accomplished, and I hope my story will be an inspiration to others.

Ross Jr., Charles Survivor 112415 copy

Charles Ross Jr. TBI Survivor

I know personally how tragic it is if a person gets hurt or killed accidentally, but that’s life. I don’t want to seem like life does not matter to me – because it does. (My life now is precious to me. I cherish each moment I have with family or friends. Hundreds, maybe thousands, of people, whom I never would have met otherwise, have blessed my life.) I am not heartless; I am very compassionate. I cry when I hear a tragic story of any kind. I know what life is. I know what death is. And I know what pain and suffering are.

I played three years of high-school football. Many guys were much bigger than I was, and I was fortunate not to get hurt. It was my third year of driving when I had my accident. Throughout my recovery, I looked back at the grueling football practices, and they football-player-tackling-cartoon-football-playersinspired me to go forward. What a sport does is teach sportsmanship, pride, respect, and loyalty, and it inspires one to do better.

Should I never ride in a car or even drive again because somebody has gotten hurt in a car accident? A baseball player may get hit in the head by a pitch, but now players have helmets to protect them. (There isn’t protective headwear in basketball, volleyball, tennis, or soccer, but maybe there should be.) Thousands of people end up in Emergency football_-_helmet_5Rooms or even in morgues because they fall while walking and hit their head. Should every man, woman, and child wear a helmet simply to walk? It seems just as foolish to end all athletics.

 

So, Whaddya Think?

Let’s get a dialogue going. Post your comments in the Comment Section. Directions are below.

So . . . what do you think? Is there something you are passionate about in this Brain Injury (BI) world? Do you want to be heard? Your opinion matters! You can SPEAK OUT! on “So Whaddya Think?”

Simply send me your opinion, and I will format it for publication. Posts may be short, but please send no more than 500 words. Send to Neelyf@aol.com

I hope to HEAR from you soon.

As I say after each post:

Feel free to leave a comment by clicking the blue words “Leave a Comment” below this post.

Please follow my blog. Click on “Follow Me Via eMail” on the right sidebar of your screen.anim0014-1_e0-1

If you like my blog, click the “Like” button under this post.

If you REALLY like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. That works for me too!

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(Photos compliments of contributor)

SPEAK OUT! NewsBit . . . . . Mental Decline Causes a Hero of Super Bowl XL to Regret Playing Professional Football

Mental Decline Causes a Hero of Super Bowl XL to

Regret Playing Professional Football

presented

by

Donna O’Donnell Figurski

 

Newsboy thAmerican football wide receiver Antwaan Randle El, who played for the Pittsburgh Steelers, is fondly remembered for doing a reverse and then throwing a touchdown pass to ice the National Football League’s Super Bowl XL, played February 2006 against the Seattle Seahawks. The final score was 21-10.

th-1

Antwaan Randle El #82 former Pittsburgh Steeler

Randle El retired early in 2010. Now 36, he has trouble with his memory and has difficulty on stairs. He fears what the violence of football has done to his brain and regrets playing professionally. An all-around athlete, Randle El had been drafted by the Chicago Cubs, a U.S. professional team in Major League Baseball, but his life-path brought him to football. He said in an interview by the Pittsburgh Post-Gazette, “If I could go back, I wouldn’t (play football.) I would play baseball.”

 

antwaan-randle-el-0071-002

Antwaan Randle El – former Pittsburgh Steeler

Randle El wants to see his kids grow up and to know his grandkids. He is aware of recent brain research and the problems associated with playing football, so he is worried about his own neurological health. He said, “It’s a tough pill to swallow because I love the game of football. … It just comes down to it’s a physically violent game. … I wouldn’t be surprised if football isn’t around in 20, 25 years.” (Full story)

 

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

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Survivors SPEAK OUT! Ann Boriskie

Survivors SPEAK OUT! Ann Boriskie

presented

by

Donna O’Donnell Figurski

 

Boriskie, Ann Survivor 011116

Ann Boriskie – Survivor: Brain Injury Peer Visitor Association Director

 

1. What is your name? (last name optional)

Ann Boriskie

2. Where do you live? (city and/or state and/or country) Email (optional)

Alpharetta, Georgia, USA (a suburb of Atlanta, Georgia) aboriskie@braininjurypeervisitor.org

3. On what date did you have your brain injury? At what age?

November 12, 1998, at age 48

4. How did your brain injury occur?

My brain injury occurred in a car wreck less than five miles from home. I was headed to a regular dental checkup.

A woman was talking on her phone while driving, and she obviously missed her turn. She stopped suddenly, but I was able to stop my car and not hit her at all. She just sat there at the bottom of a hill on the two-lane road. She did not move. A young student (16 years old) came down the hill. He said he was messing with his radio and just did not see us. He hit my car going 50 mph and pushed my car into the woman’s car.

5. When did you (or someone) first realize you had a problem?

About 48 hours after my wreck, I started having concussion symptoms. I experienced dizziness and mental “fogginess.” I could not walk. There was bruising under my eyes. The toes on my right foot went numb. My left eye was out of focus.

6. What kind of emergency treatment, if any, did you have?

None. I walked away from the wreck thinking I was just fine. After 48 hours, I went to a 24-hour clinic, but they just sent me home. They told me I had no real problems and I would be fine. I also went to an eye doctor right away, but again, I was told there that nothing was wrong physically with my eye. Several months after my wreck, one neurologist told me that I had “post-concussion syndrome” and to go home – that I would be just fine. No one else mentioned my having a brain injury for one year. Then a dental TMJ specialist told me that I had a brain injury. That was what was causing my mental symptoms. (TMJ = temporomandibular joint)Peer Visitation Banner

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

My brain injury went undiagnosed for over a year. The physical therapy that I received was in relation to each of my physical injuries (see #9), especially to help after the surgeries that I had to have to repair the parts of my body that were injured.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

a. My brain injury caused depression, anxiety, and anger (more so in the first several years). I had lots of memory issues. (I could not remember friends or faces. I got lost. I could not write. Then once I could write, I couldn’t write in cursive – I still can’t.) Some memory issues remain today. I permanently lost many of my past memories. (I can’t remember family events or experiences or places where we had lived. I lost memory of cities and our time there.) I lost a lot of my math skills (I was an A+ math student, and I was in advanced math classes), but I have regained many of these math skills.

b. My neck was injured. (The C4, C5, C6, and C7 vertebrae were knocked out of line.) I had to have neck surgery (for fusion and a metal plate holding these four levels together). My neck is in CONSTANT PAIN.

c. I had an injury to the L5 and S1 levels of my spine. (The last two vertebrae are not attached now to my spinal cord). Surgery was recommended, but my neck did not fuse properly, so I decided not to have back surgery. I am in CONSTANT PAIN in my lower back. The pain often radiates to my hips and legs.

d. I popped a tendon from its bone in my right elbow. (I braced my body on the steering wheel in the wreck.) It required surgery. The doctor said it was one of the worst tears he had ever seen.

e. Permanent nerve damage was created in various body areas.

f. The left part of my jaw was knocked out of line. It literally took years of appliance therapy to get the bone back into its correct place.

g. A valve was torn on the left side of my heart. This caused irregular heartbeats for a while. It repaired itself.

h. My left side remains weaker than my right side.

i. Numbness remains in my hands (which makes it harder to use my hands). I also have numbness in my feet, down my arms, and down my legs.

j. Sometimes my left eye will not focus or work well with my right eye.

k. I have a shorter attention span.

l. All of these physical injuries caused me to have fibromyalgia and constant body pains.

Boriskie, Ann Podium

Ann Boriskie – Survivor

10. How has your life changed? Is it better? Is it worse?

In the long run, I have to say my life is truly better. All three of our children are in the medical field. (My husband and I have raised one daughter, now a neonatologist who takes care of premature babies and helps the moms; raised a son, now a doctor of internal medicine who works as a hospitalist; and raised another daughter, now a Registered Nurse in a mental-illness hospital unit.)

My priorities changed in my life. I went from being a “work-oholic” and a person who was very competitive to a person who lives to help other people, including my family and friends.

I slowed down my life’s pace. I had to learn that I could no longer work at a full-time outside-the-home job. (For years, I could not work at all.) I also had to learn to take care of myself – due to all of the physical and mental problems that the wreck created.

I was at home, and thus I was “there” more for my children and husband. I was able to give them more help and more attention.

11. What do you miss the most from your pre-brain-injury life?

I miss my higher energy level. I miss many of my memories. I miss all of the physical sports and activities that I can no longer do (water skiing, snow skiing, kayaking, swimming, playing golf, etc.).

12. What do you enjoy most in your post-brain-injury life?Peer Visitor Banner

I enjoy running the Brain Injury Peer Visitor Association and being able to help thousands of brain-injury and stroke survivors throughout the United States and the world. I’ve done this each year since 2006.

13. What do you like least about your brain injury?

I dislike being in constant pain (which also affects my brain). I also dislike having to push myself more and having to work much harder to accomplish my goals and to do my work than I did prior to my wreck.

14. Has anything helped you to accept your brain injury?

  1. Helping other people helps me also.
  2. Sharing my experiences with others and listening to each brain-injury survivor’s problems (This helps me to better understand my own brain injury.)
  3. Attending support-groups (and being very open to sharing my own problems, experiences, successes, and methodologies)
  4. In the past, gaining the help of neuropsychologists
  5. Going to medical doctors who treat brain injury (e.g., a psychiatrist)

15. Has your injury affected your home life and relationships and, if so, how?

Yes. I am much more dedicated to my husband and three children. I treasure our relationships. I also treasure my friendships more. You really better understand that life is way too short and can change in a second.

16. Has your social life been altered or changed and, if so, how?

Yes. I no longer like to be in big crowds or in a noisy environment. Going to a party is now a struggle and sometimes a chore. I just avoid noisy places and huge crowds. This requirement definitely limits the activities in which I can participate.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My wonderful husband is my main caregiver. I am blessed that he “stuck it out” with me and helped me go through all of my physical and mental recoveries. He is also one of my biggest supporters – even financially supporting my association and approving of all of the volunteer hours that I dedicate to the Brain Injury Peer Visitor Association.

Boriskie, Ann Training in Florida Survivor 011116

Annn Boriskie – Survivor

18. What are your plans? What do you expect/hope to be doing ten years from now?

I plan to continue running the Brain Injury Peer Visitor Association as long as I possibly can. My dream is to continue to grow the association throughout the United States and even internationally.

I also plan to continue to enjoy and spend time with my immediate family and their families.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Accept your limitations, but continue to “push yourself” to improve. Realize that, even though you are different from the pre-TBI you, you are still a valuable person in the world. Let your “old self” go. Realize that person won’t be back. Embrace the “new you,” and learn to love yourself for who you now are. Remember that YOU CAN. Don’t defeat yourself by focusing on all of the things you can no longer do.

2011 Community Service Awards from WXIA 11

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Help others. Get involved. Volunteer. By helping others with a brain injury, you truly help yourself in so many ways. You will help yourself get better, and you will gain confidence.

 

You can hear Ann Boriskie on my radio show, “Another Fork in the Road” at 5:30pm PT (6:30MT, 7:30CT, 8:30ET) on Sunday, January 17th on the Brain Injury Radio Network (BIRN)

Click here on Sunday 5:30pm Pacific Time. Another Fork in the Road: Ann Boriskie – Director of Brain Injury Peer Visitor 

You can call in to listen to the show or talk to the host by dialing this number. 424-243-9540

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

 

So, Whaddya Think? . . . . . Football Puts Children’s Brains at Risk

So, Whaddya Think?

Football Puts Children’s Brains at Risk

by

David Figurski and Donna O’Donnell Figurski

(Note: This is our third opinion essay on brain trauma and American football. The first and second were published on this blog on December 17th and December 26th, respectively.)

 

So Whaddya Think Brain th-4Lack of awareness of new knowledge has allowed society to continue what some of us now know to be dangerous practices with respect to children. To understand what we mean, watch these short videos of children practicing or playing American football (1, 2, 3, 4, 5).

The danger to the brains of children in the videos is readily apparent to us (video, story). Parents often believe a brain injury is rare. But the evidence indicates otherwise. The hundreds of sub-concussive hits that a player of American football receives each season can result in the degenerative brain disease, chronic traumatic encephalopathy (CTE). CTE can lead to loss of memory, loss of cognitive ability, dementia, post-traumatic stress disorder (PTSD), aggressive behavior, depression, and suicidal thoughts. It has been seen in the brains of high school football players. In fact, individuals who started playing organized American football at a young age seem to have a higher rate of CTE.

Bennet Omalu

Dr. Bennet Omalu – neuropathologist – discovered CTE

Recently, Dr. Bennet Omalu, who discovered CTE in an American football player by studying the brain of Hall-of-Fame center Mike Webster, was the author of a recent New York Times Op-Ed entitled Don’t Let Kids Play Football. In an interview for zap2it.com, Dr. Omalu said, “As a modern society it’s our duty to protect our most vulnerable, most precious gifts of life: our children. This is where I stand.”

(We highly recommend your seeing the newly released movie Concussion, which will bring about more awareness of the danger to the brain from playing American football. The movie tells the true story of how the National Football League – NFL – tried to dismiss Dr. Bennet Omalu’s discovery of the connection of brain disease and the playing of American football. Former players are suing the NFL, claiming that the NFL knew of the dangers, but did not inform the players.)kid-football-players-clip-art

In the documentary Head Games (online and free), we are reminded that children are not miniature adults. A child’s head is larger than an adult’s in proportion to his or her body. The neck muscles are not proportionately stronger, so a child’s head is more vulnerable than is an adult’s head. Brain development continues until at least age 14. (Some neurologists think brain development may continue longer.) In addition, the neurons in a developing brain are not yet fully myelinated. Recent research has shown that a concussion in a child impairs brain function for two years. The risk to the brain is the major reason why US Soccer banned heading for children 10 and under.

George Visger

Former San Francisco 49er – George Visger – TBI Survivor

On August 16th, Donna conducted a radio interview with George Visger, a former defensive lineman for the NFL’s San Francisco 49ers on her radio show, “Another Fork in the Road,” on the Brain Injury Radio Network. Visger stated that youth football might ultimately end because of the eventual high cost of liability insurance (minutes 30:25-33:45; we think you will also find the intervals 5:40-15:55 and 39:40-42:25 interesting because of their contents – children and football). Dr. Omalu, the discoverer of CTE in an American football player, says in Frontline’s documentary The League of Denial: The NFL’s Concussion Crisis that he was told if 10% of mothers think playing football is too dangerous, it will mean the end of football.

The consequences of a brain injury can be especially devastating, even fatal, to a young player (video 1, video 2, story of the suicide of a teenage football player). The risk of brain injury from high-impact sports, especially American football, is significant even for adults, but an adult can make his or her own decision to play. In contrast, children rely on parents and Brain in Helmetcoaches. No parent would deliberately put a child’s life-trajectory at risk, but what if the parent lacks awareness? The good news is that apparently society’s awareness is growing quickly. Peter Landesman, the director of Concussion, said that Pop Warner football enrollment is down by more than 30%. (Pop Warner football is for children aged 5 to 16.) The movie Concussion will further increase society’s awareness of the danger of concussions and sub-concussive hits, show what CTE is, tell Dr. Bennet Omalu’s story of his discovery of the relationship of CTE and American football, and show Dr. Omalu’s struggle with the NFL.

Healthy and Damaged Brain

Left – Healthy Brain — Right – Brain with CTE

It is also the brain-injury community’s responsibility to speak out to show society how life-altering a brain injury is.

 

 

 

So, Whaddya Think?

Let’s get a dialogue going. Post your comments in the Comment Section. Directions are below.

So . . . what do you think? Is there something you are passionate about in this Brain Injury (BI) world? Do you want to be heard? Your opinion matters! You can SPEAK OUT! on “So Whaddya Think?”

Simply send me your opinion, and I will format it for publication. Posts may be short, but please send no more than 500 words. Send to Neelyf@aol.com

I hope to HEAR from you soon.

As I say after each post:

Feel free to leave a comment by clicking the blue words “Leave a Comment” below this post.

Please follow my blog. Click on “Follow Me Via eMail” on the right sidebar of your screen.anim0014-1_e0-1

If you like my blog, click the “Like” button under this post.

If you REALLY like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. That works for me too!

(Clip Art compliments of Bing.)

Survivors SPEAK OUT! Jenn Von Hatten

Survivors SPEAK OUT! Jenn Von Hatten

presented

by

Donna O’Donnell Figurski

 

Von Hatten, Jenn Survivor & Hanna 121315

Jenn Von Hatten – survivor and daughter, Hanna

1. What is your name? (last name optional)

Jenn Von Hatten

2. Where do you live? (city and/or state and/or country) Email (optional)

Trenton, Nova Scotia, Canada     jlvonhatten@gmail.com

3. On what date did you have your brain injury? At what age?

My brain injury happened on Valentine’s Day 2011. I was 35 years old.

4. How did your brain injury occur?

My brain injury resulted from a motor vehicle accident caused by freezing rain.

5. When did you (or someone) first realize you had a problem?

The paramedics found me clinically dead at the scene. The doctors wanted to airlift me to the Queen Elizabeth II (QEII) Health Sciences Centre in Halifax, which is the biggest hospital in Nova Scotia. But the freezing rain affected the rotors on the helicopter, so I had to be taken by road ambulance.

6. What kind of emergency treatment, if any, did you have?

The pressure in my brain needed to be monitored to see if I needed surgery. I also lacerated my liver. Fortunately, I did not need surgery for either. I also fractured a rib and three vertebrae.

7. Were you in a coma? If so, how long?

I was in a coma for seven weeks. First, I was in a coma from the accident. Then I was in a medically induced coma because of my fractured rib and vertebrae. I managed to develop pneumonia, and I had a tracheotomy.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I was transferred to the Rehab Centre in Halifax around Easter 2011, and I was discharged in July 2011. Besides being a patient at the Rehab Centre, I’ve had to go to physiotherapy and occupational therapy. My spastic muscles affected my speech, so I also went to speech therapy.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

Von Hatten, Jenn survivor Son Liam 121315

Jenn Von Hatten – survivor and son, Liam

My balance has been severely affected. I used to be in a wheelchair, due to fractured vertebrae. I’ve since “graduated” to a walker, a quad cane, and a mini-quad cane. I’m a Fall Risk, and I get the Disability Pension.

10. How has your life changed? Is it better? Is it worse?

I have joint custody of my seven-year-old daughter, Hanna. I am no longer able to work as a nurse. My life has definitely changed, but I can’t say if it is better or worse. All I can say with certainty is that my life is DIFFERENT.

11. What do you miss the most from your pre-brain-injury life?

I miss being able to work as a nurse the most. As much as I would like to a work as a nurse, I know I would NOT be safe – mentally, in terms of remembering if I gave a client medication or treatments, or physically.

12. What do you enjoy most in your post-brain-injury life?

I enjoy my time with Hanna. It is her time, as I don’t work anymore. I now have a cat, Spunkster, which I got from the local SPCA. When Hanna’s not with me, I hang out with Spunkster.

13. What do you like least about your brain injury?

I had graduated as a nurse only seven months before my traumatic brain injury (TBI). I had wanted to be a nurse for over fifteen years. At least I can say I turned that dream into reality! I sometimes miss being able to drive. My rehabilitation doctor says I still cannot drive, as my reflexes are not up to snuff. However, I can say that my driver’s license has NOT been revoked!

14. Has anything helped you to accept your brain injury?

Becoming a nurse was my dream. I finally realized that, just because I am no longer able to work as a nurse, I STILL AM A NURSE! Being a nurse is STILL a part of me.

15. Has your injury affected your home life and relationships and, if so, how?

My youngest daughter’s father threw me out, as he said he was not happy. I remind myself that not many relationships survive a TBI.

16. Has your social life been altered or changed and, if so, how?

I don’t really have a social life, except maybe for going grocery shopping. I go by cab, so I interact with the cab divers, who are husband and wife. They own the cab company, and they are now good friends of mine. I prefer to interact with people in small groups.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

Von Hatten, Jenn survivor daughters Emma and Hanna 121315

Jenn Von Hatten – survivor and daughters Emma and Hanna

I am my own caregiver now. Yes, I do understand what it takes to be a caregiver, as I used to be one. When I was in school to become a nurse, I worked as a CCA (Certified Care Assistant). A CCA can also be called PCA (Personal Care Assistant) or PCW (Personal Care Worker).

18. What are your plans? What do you expect/hope to be doing ten years from now?

My plan is to be helping others who are TBI survivors or caregivers. I can provide info and support.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Understand that a person does not need to be working (and therefore getting paid) to be fulfilling whatever he or she was meant to be. Find other ways – perhaps volunteering.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Figure out what you like doing and makes you happy. If you can’t remember, that’s OK – find out. (It’s what I wish I knew back in the beginning when I was first dealing with this.) Find out what you like and makes you happy RIGHT NOW! Everybody, brain injury or not, is constantly evolving.

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

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(Photos compliments of contributor.)

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SPEAK OUT! NewsBit . . . . . . Frank Gifford’s Brain Showed CTE

Frank Gifford’s Brain Showed CTE

presented

by

Donna O’Donnell Figurski

 

newsboy-thFrank Gifford died at 84 of natural causes. Because he had always been concerned with player safety and helped to found the National Football League Players Association, his family donated his brain to science for study.

Frank Gifford, a beloved running back in the 1950s and 1960s, played for the New York Giants of the National Football League.  He was inducted into the Hall of Fame, and after he retired, he became a popular and an award-winning sportscaster for Monday Night Football.  Even though Gifford showed no outward signs of neurodegenerative disease, his family said in a released Frank Gifford footballstatement that he experienced symptoms. As a running back, Gifford endured many sub-concussive hits, which many neurologists now believe contribute to neurodegenerative disease. In 1960, Gifford was knocked unconscious by a brutally hard tackle.  That concussion caused the end of his season, and he did not play the next year.

The study of Frank Gifford’s brain revealed that he had chronic traumatic encephalopathy (CTE), a brain disease found in the autopsied brains of people who played contact sports. So far, 88 of 92 brains of professional players of American football have shown CTE (1, 2). Gifford’s brain makes that statistic 89 of 93.

What makes Frank Gifford’s brain special is that Gifford died of natural causes. The other players whose brains tested positive Frank Giffordfor CTE showed symptoms of brain disease. (In fact, some of the deaths were from suicide.) The claim has been made that the group that was almost entirely positive for CTE was biased. But Dr. Ann McKee, a neuropathologist at Boston University’s CTE Center and the person who studied most of the brains, pointed out that, even in a biased sample, the number of brains testing positive for CTE is ridiculously high. Frank Gifford’s brain would not be considered part of the biased sample. (Gifford showed no outward signs of brain disease.) Yet Frank Gifford’s brain tested positive for CTE. This latest result is consistent with Dr. McKee’s worry that CTE is common among players of American football. (Full story)

 

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Survivors SPEAK OUT! Alisa Noah

 

Survivors SPEAK OUT! Alisa Ann Noah

presented

by

Donna O’Donnell Figurski

 

Noah, Alisa Ann L7l38moCWms-awgtIo9_70iApASPda_FVoPydfH1Eav5cCUnvpSudWfhdApNDrmPOqCkIcYbJLDfkrIxawI0Iu_D3IeGgzKZ1Whh7Lc2pmxdyJbB19_Vw114VdME3ant9vsNlq-qX9SNXn7SApjHhzoVZqU1ToqtwiFTpWcqKJ9lbUSBAV0pVh-fvnXN3tkGrsqt1hPzAODSjNBFrDOOjJ-u_iGQ547W

1. What is your name? (last name optional)

Alisa aka “El Dorado”

2. Where do you live? (city and/or state and/or country) Email (optional)

North Carolina, USA

3. On what date did you have your brain injury? At what age?

February 2012

4. How did your brain injury occur?

My brain injury came from a motor vehicle accident. I wasn’t at fault. My truck was rear-ended at 50+ mph. Because my truck had no headrests, my head hit the back glass.

5. When did you (or someone) first realize you had a problem?

Immediately

6. What kind of emergency treatment, if any, did you have?

I was first treated in the Emergency Room. Scans and X-rays were taken. Later I had a neck brace, cervical epidurals, other cervical injections, and physical therapy.

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I did physical therapy.

How long were you in rehab?

Three months of 3 days a week

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have vision loss; migraines; balance issues; sleep problems; mood problems; memory loss; anxiety; and pain, pain, pain. Unexpected loud noises send me into a panic.

10. How has your life changed? Is it better? Is it worse?

My life got worse for about three years. I have recently started to make progress with happiness and finding new ways to keep busy.

11. What do you miss the most from your pre-brain-injury life?

I miss my career as a horse trainer, and I miss college.

12. What do you enjoy most in your post-brain-injury life?

Retirement (LOL)

13. What do you like least about your brain injury?

I dislike the pain and my physical limitations.

14. Has anything helped you to accept your brain injury?

Friends and new hobbies have helped me accept my brain injury.

15. Has your injury affected your home life and relationships and, if so, how?

Yes. People don’t understand my thought process or mood swings.

16. Has your social life been altered or changed and, if so, how?

Yes. I fear driving. I don’t engage in social activities much anymore.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My mother and my roommate are my main caregivers.

18. What are your plans? What do you expect/hope to be doing ten years from now?

Hmmm, I’m not sure. I take things one day at a time. 🙂

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Don’t let doctors just throw pills at you. After I had been told for almost three years that my condition is permanent, I recently learned that I can heal from it. Do your research. Some doctors are really no help.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

NEVER let your “disabilities” define who you are as a person! You are and always will be just as valuable and important as anyone else. Never let anyone tell you otherwise. Stay strong!

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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SPEAK OUT! NewsBit . . . . . . U.S. Soccer Bans Heading for Players Age 10 and Under

U.S. Soccer Bans Heading for Players Age 10 and Under

presented

by

Donna O’Donnell Figurski

newsboy-thConcussions from playing soccer rank second to football in boys’ sports, but they are first in girls’ sports and second among all sports. Of the more than 3 million youths playing soccer in the U.S., 50,000 concussions were reported among high-school soccer players in 2010, more than the number from wrestling, basketball, baseball, and softball combined.  Parents and players brought a lawsuit accusing U.S. Soccer and other U.S. youth soccer organizations of negligence. As a result, U.S. Soccer established new rules that prevent heading by players age 10 and under and prohibits heading by 11- to 13-year-olds in practice. There are also new guidelines for soccer-trophy-clipart-soccer-team-clipartsoccer-team-with-trophy-clip-art-soccer-team-with-trophy-image-efwxwwe3substitution. For example, a player who replaces another player who has to leave the game because of a suspected concussion does not count as a substation.

U.S. Soccer governs only a fraction of youth soccer teams in the U.S., so they are recommending strongly that other leagues follow suit.  Dr. Cantu, a neurologist and a concussion specialist at Boston University, said that children’s brains are crucially developing and that the ages of 10 to 14 are especially critical in brain development. He also maintains that children’s neck muscles are not strong enough to support the head, making the risk of injury even greater. Safer Soccer, an organization that seeks a ban on 131181714310586452912266140-vector-illustration-for-a-anatomy-brain-in-separate-color-mdheading for players 14 and under, applauds the new rules. (The advisory board of Safer Soccer includes Brandi Chastain, Cindy Parlow Cone, and Joy Fawcett – former players of the women’s U.S. national soccer team, which has won four Olympic gold medals since 1996.) (Full story with video)

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On The Air: . . . . . . . . . . . . . . Brain Injury Radio . . . . . . . . “Another Fork in the Road” with Survivor & Caregiver, Sandra WIlliams

On The Air: Brain Injury Radio “Another Fork in the Road” 

with

Guest: Survivor and Caregiver, Sandra Williams

presented

by

Donna O’Donnell Figurski

images-1Sandra William’s was thrust into the role of brain injury survivor and caregiver when her whole family was involved in a motor accident with a drunk driver with multiple DUIs. Sandra spoke about the trials her family endured and still endures because of the negligence of a stranger.

As two teachers, Sandra and I delved into how schools 12200687_895719387130278_18176772_ncan better help students who are identified with brain injury or special needs. Federally mandated, 504 Plans and Individual Education Plans (IEP) were discussed.

If you missed this show with Sandra Williams on “Another Fork in the Road” on November 15th, 2015 don’t fret. You can listen to the archived show here. Click the link below.

See you “On the Air!”

On The Air: Brain Injury Radio “Another Fork in the Road” with Survivor and Caregiver, Sandra Williams

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