TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘survivingtraumaticbraininjury.com’

Survivor’s SPEAK OUT! – Daniel Mollino

SPEAK OUT! – Daniel Mollino

by

Donna O’Donnell Figurski

 

 

Daniel Mollino - TBI Survivor & Cyclist

Daniel Mollino – TBI Survivor & Cyclist

1. What is your name? (last name optional)

Daniel Mollino

2. Where do you live? (city and/or state and/or country) Email (optional)

Ringwood, New Jersey, USA     Daniel@mollino.net

3. When did you have your TBI? At what age?

August 11, 2010     Age 27

4. How did your TBI occur?

At work, I fell from a ladder on a telephone pole.

5. When did you (or someone) first realize you had a problem?

Right away. The emergency response was fast.

6. What kind of emergency treatment, if any, did you have?

I was in a medically induced coma. I had a craniotomy, and a shunt was inserted.

7. Were you in a coma? If so, how long?

I was in the medically induced coma for about three weeks.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I had speech therapy as an inpatient. As an outpatient, I had physical therapy and therapy for executive skills.

How long were you in rehab?

Three months as an inpatient; a little over a year as an outpatient.

9. What problems or disabilities, if any, resulted from your TBI
(e.g., balance, perception, personality, etc.)?

I have deafness of and ringing in my right ear. I have issues with fatigue, memory, balance, personality, pain, and finding words. (See my website below for more details.)

Daniel Mollino - TBI Survivor in hospital

Daniel Mollino – TBI Survivor in hospital

10. How has your life changed? Is it better? Is it worse?

Things became harder. It is in some ways better and in others, worse.

11. What do you miss the most from your pre-TBI life?

My memory

12. What do you enjoy most in your post-TBI life?

That I got back to being able to ride

13. What do you like least about your TBI?

The problem with my memory; also the public’s understanding of how a TBI impacts a person

14. Has anything helped you to accept your TBI?

My family’s being there helped. My strong headed, never-give-in mentality stuck and resulted in the support and the joining in of larger groups in my 2015 cross country bike ride to get brain injury addressed and donations to research groups. I am also on a calling basis with the offices of federal politicians from my district trying to get them to fix a system I saw fail. Hopefully the ride will get more people calling their politicians.

15. Has your injury affected your home life and relationships and, if so, how?

My home life changed in some ways. My wife and I switched roles – but not in a bad way.

16. Has your social life been altered or changed and, if so, how?

My social life hasn’t really changed that much. But, my deafness is an issue, and I don’t like loud environments.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My wife is my main caregiver. Thankfully, I am not as bad off as some.

18. What are your future plans? What do you expect/hope to be doing ten years from now?

My future plans are in motion. I am biking coast to coast in hopes of getting attention for brain injury and donations flowing to research groups. I also hope I can get the media involved and possibly get more sponsors, so I can continue on that path for years to come. A book would be nice. However, my English is really bad, so I am looking for a ghostwriter. My hope is that I can keep going and prove that “disabled” does not mean that someone is incapable of great things. That aspect is aimed at all those who give up.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other TBI survivors with your specific kind of TBI.

I have to say no, but I may be wrong. As I have said to others, when you accept “broken” as a status, you will always be broken. You need always to push for a want. Nothing is impossible, but life is a pathway of obstacles. You will at times just have to step back and find another way. For when you give up trying, that is the point in the life that you have willfully chosen to be in the broken state.

20. What advice would you offer to other TBI survivors?

Fight for what you want. Ask others for help, and keep your eyes on the goal. Never give in to defeat. My personal view is that I will do this or die trying. Not to sound morbid, but the idea is that if you try your entire life, you are living life – not letting life live you.

Do you have any other comments that you would like to add?

I hope that some of you see my ride as I post my routes and progress in 2015 and show up if you’re near. Nothing is better than seeing others involved and having the support. I will be personally calling media stations I can find numbers to, but getting calls from others, sharing photos on Facebook, etc. would be a great help. The more exposure and media I get, the more we can educate the public and force the politicians to move on fixing the issues.

 

You can learn more about Daniel at the following sites.

TBI to Victory

TBI Rider

Double Cross-Country Bicycle Ride Will Challenge New Jersey TBI Athlete

 Stroll ‘N Roll With Kessler Foundation at Verona Park

Daniel Mollino - TBI Survivor & Sky Diver

Daniel Mollino – TBI Survivor & Sky Diver

 

 

Thank you, Daniel, for taking part in this interview. I hope that your experience will offer some hope, comfort, and inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

(Photos compliments of Daniel.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

SPEAK OUT! . . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

Itty-Bitty GIant Steps for Blog

 

 

SPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at donnaodonnellfigurski@gmail.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

 

Here are this week’s Itty-Bitty Giant Steps.

Jessica…Made it to about ten houses Trick or Treating with my kiddos before it became too much for me. BUT I am CELEBRATING because I only went to a few last year, and I don’t even really remember it! I post this for those mourning the loss of the “old you.” It gets better. No, I’m not able to do what I used to do, but I have learned/am learning to appreciate the little victories in life, and I am counting my blessings. I have a great husband, who took over for me, and I got 30 minutes of “alone time” before my kids returned. (Isn’t that what most moms want – “alone time”? LOL.)

Bernadette McSorley Futch…After having a hemorrhagic stroke at 11, I got a job when I was 16. Basically I lived my life as though nothing happened. Now that I have had three additional surgeries to control seizures, I decided I have to slow down and focus on keeping my terminally ill husband comfortable. When he does pass, I would like to call the Board and tell them why I let my Massage Therapist license lapse. I plan to try to get back to doing massage. Being able to laugh at yourself helps, and there is always Faith.

YOU did it!

Congratulations to all contributors!

(Clip Art compliments of Bing.)

On the Air – Brain Injury Radio Interview with Dr. David Figurski Prisoner without Bars: Conquering Traumatic Brain Injury

On the Air – Brain Injury Radio

Interview with Dr. David Figurski

Prisoner without Bars: Conquering Traumatic Brain Injury

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You’ve heard David’s story from my point of view. Yesterday David shared his perspective of living with traumatic brain injury. He spoke about how his life has greatly changed for better…and for worse.

david-running-in-hall-

David Figurski 3wks before Traumatic Brain Injury

We learned about David’s life as a child and his educational career, which he began as a Kindergarten dropout. He told of the years that led up to our marriage and also about his life as a Professor of Microbiology at Columbia University, both before and after his TBI. We found out how he is coping with this new life thrust upon him…and upon us. The show ends with me brushing tears from my cheeks as David talks about the heroic acts of caregivers and my role in his recovery.

12 D&D I Donna O'Donnell Figurski  & David Figurski Dancing 13 copy

David & Donna Figurski Starlight Dance Studio 8yrs after Traumatic Brain Injury

If you missed the show, don’t fret. You can always listen to the archived show. I’ve included the link below.

Please SHARE!

I hope you’ll tune in to my show, “Another Fork in the Road,” which airs the 1st and 3rd Sunday evenings of every month. The show starts at 5:00p Pacific Time and runs for 90 minutes. On the fifth Sunday in a month, Julie Kintz, Host of “Quantum Leap,” and I team up to cohost a show called “Another Quantum Leap in the Road.”

 

See you “On the Air!”

“Another Fork in the Road” . . . Brain Injury Radio Network . . . . . Dr. David Figurski – Prisoner Without Bars

YOU ARE INVITED!

putthis_on_calendar_clip_art

You’ve heard my story about David’s Traumatic Brain Injury and how we have come to be in this place that we are now. It’s David’s turn to step up to the mic to talk about his perspective of living with a TBI, as I interview him about the past 9+ years. He promises that I may even learn something. I wonder if it’s about the black mark on the wall.

 

Come One! Come ALL!

(NOTE: New Day, Sunday – Same Time)

What:        Interview with Dr. David Figurski – Prisoner Without Bars. (Segment 4 of “Prisoner Without Bars: Conquering Traumatic Brain Injury”)

Why:         Hear David’s perspective of living with Traumatic Brain Injury

Where:     Brain Injury Radio Network

When:       Sunday, November 2, 2014

Time:         5:00p PDT (6:00p MDT, 7:00p CDT, and 8:00p EDT) 90 minute show

How:         Click: Brain Injury Radio Network.

Call In:    424-243-9540

Call In:     855-473-3711 toll free in USA

Call In:    202-559-7907 free outside US

or SKYPE

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening. The archived show will be available after the show both on the Brain Injury Radio Network site and on my blog in “On the Air.”

(Clip Art compliments of Bing.)

SPEAK OUT! . . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

Itty-Bitty GIant Steps for Blog

SPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at donnaodonnellfigurski@gmail.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

 

Here are this week’s Itty-Bitty Giant Steps.

10728597_703464463078195_2052174794_n-1

The #98 Camaro was driven by Ernie Francis, Jr. He won the TA3 race and the TA3 championship.

DuWayne HallMatt Duffin of the Brain Injury Radio Network submitted my name for painting onto a Trans-Am race car with about 100 other names of TBI survivors. My name is front and center above Kevin Butterfield. It is in the third row from the left, 8th name from the bottom.

 

Joshua Edward Daniel…I got my TBI while putting chains on a customer’s car. A Jeep going 45 mph hit me, breaking my neck and giving me a TBI. The doctor said I would never walk or talk again, but I’m proving him wrong. I love my recovery.

Gena Marie…I am in a place where I can finally feel safe and cared about for the first time in my life.

YOU did it!

Congratulations to all contributors!

(Clip Art compliments of Bing.)

(Photo compliments of DuWayne Hall.)

Survivors SPEAK OUT! Bart Boughner

SPEAK OUT! – Bart Boughner

by

Donna O’Donnell Figurski

 

Bart Boughner - TBI Survivor

Bart Boughner – TBI Survivor

1. What is your name? (last name optional)

Bart Boughner

2. Where do you live? (city and/or state and/or country) Email (optional)

St. Williams, Ontario, Canada

3. When did you have your TBI? At what age?

37

4. How did your TBI occur?

I fell about 5 feet off a step ladder at work, striking my head on the concrete foundation.  It happened ~45 minutes before the end of the day…the day before my daughter’s 8th birthday.

5. When did you (or someone) first realize you had a problem?

The seriousness of my fall was realized about a half hour later. My leg couldn’t hold me, and I had blood coming from my ear and cuts on my wrist.

6. What kind of emergency treatment, if any, did you have?

I was in the local hospital for about five hours. They didn’t ship me earlier to a trauma center because they didn’t think I would make the trip. They took a wait-and-see approach, since the bleeds didn’t change too much. I was in the ICU (Intensive Care Unit) for 1 week, and then I was in the Step Down Unit for another week. I was then moved back to my local hospital for 3 more weeks.

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I had outpatient rehab for 1 year for physical, occupational, and speech therapies, then again 2 years after I was hospitalized.

How long were you in rehab?

Just over 1 year

9. What problems or disabilities, if any, resulted from your TBI
(e.g., balance, perception, personality, etc.)?

Well now, I have an issue with short-term memory;  I severed my olfactory nerve, affecting my senses of smell and taste; I experience exhaustion; I have a problem with sleep; and I have no tolerance.

10. How has your life changed? Is it better? Is it worse?

For 11 1\2 years, my life was worse to the point that I gave up. I went into a hole and rarely went out. My marriage went down hill fast, since we couldn’t communicate. My marriage ended September 16, 2013. I lost so many friends and family, some from my own choice. I found it hard to trust.

11. What do you miss the most from your pre-TBI life?

My energy and my love of life

12. What do you enjoy most in your post-TBI life?

Now I have my own independence. My kids chose to live with me. I’m letting go of the past and now living now.

13. What do you like least about your TBI?

Overwhelming situations, severe headaches, lack of patience

14. Has anything helped you to accept your TBI?

The first neuro doctor told me straight out I would be different. Also my new independence is helping me accept my TBI.

15. Has your injury affected your home life and relationships and, if so, how?

My injury destroyed everything, but eventually my kids had the chance to know me for myself without people telling them things. It’s the best thing that happened.

16. Has your social life been altered or changed and, if so, how?

Yes, I became reclusive and couldn’t tolerate too many people at once. Now I’m better.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I am my own caregiver. Yes, I do understand about caregivers.

18. What are your future plans? What do you expect/hope to be doing ten years from now?

I’m building on my bucket list. I plan to continue enjoying life and laughing with my kids. Soon I will be 50. What I’ll be doing in 10 years is hard to say. I live life day-to-day.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other TBI survivors with your specific kind of TBI.

Speak for yourself, instead of letting others do it for you. Realize that the past is the past. Nothing can bring it back. Learn to laugh again and not to be so frustrated when you can’t accomplish things. Find support groups (e.g., Facebook) early.

20. What advice would you offer to other TBI survivors? Do you have any other comments that you would like to add?

Be strong. Keep your voice, and let it be known. Never dwell on things – they can put you in a deep, dark place with only a small window of light. Believe in yourself. If friends treat you differently, tell them. If they cannot adjust, then let them go on your terms. LIVE, LOVE, AND LAUGH!!!!!!!!

Bart Boughner - TBI Survivor with his children

Bart Boughner – TBI Survivor with his children

 

Thank you, Bart, for taking part in this interview. I hope that your experience will offer some hope, comfort, and inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

(Photos compliments of Bart.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

Caregivers SPEAK OUT! . . . . . Gill Evans

SPEAK OUT! – Gill Evans

by

Donna O’Donnell Figurski

 

Evans, Gill Caregiver with Flamingoes

Gill Evans – Caregiver for her Husband

1. What is your name? (last name optional)

Gill Evans

2. Where do you live? (city and/or state and/or country)     Email? (optional)

Birmingham, England     gce46@hotmail.co.uk

3. What is the TBI survivor’s relationship to you? How old was the survivor when he/she had the TBI? What caused your survivor’s TBI?

The TBI survivor is my husband. He had his TBI in 1984 at age 23. The TBI was originally due to a motorcycle accident, but he has been reinjured three times since then, the last being 11 years ago. He has had one work-related injury and two motorcycle-related head injuries.

4. On what date did you begin care for your TBI survivor? Were you the main caregiver? Are you now? How old were you when you began care?

I was 22 and in full-time work. He was living with his mom. We decided to split up due to his being violent, but we continued seeing each other as friends. We got back together when I was 40 and he was 41. We married 2 years later. I have looked after him since because the last injury left him unable to work.

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

When we got back together, I had two teenage boys.

6. Were you employed at the time of your survivor’s TBI? If so, were you able to continue working?

I work full-time, but I have 13-hour shifts, so I’m home 4 days each week. I no longer work night shifts, as he struggles with the change that causes.

7. Did you have any help? If so, what kind and for how long?

No

8. When did your support of the survivor begin (e.g., immediately – in hospital, when the survivor returned home, etc.)?

My husband finally accepted help three weeks ago. When he had his TBI 30 years ago, there was nothing in place for him. He got speech therapy, and that was it.

9. Was your survivor in a coma? If so, what did you do at that time?

No

10. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? How long was the rehab? Where were you when this was happening?

He got speech therapy at home.

11. What problems or disabilities of your TBI survivor required your care, if any?

He required constant prompting of his memory and calming down due to temper. He had a broken leg, so he was wheelchair-bound for a couple of weeks until he was able to have crutches.

12. How has your life changed since you became a caregiver? Is it better? Is it worse?

I’m not really sure that I can answer this. My response probably wouldn’t make sense, as it would be “better than what, and worse than what?”

13. What do you miss the most from pre-TBI life?

I miss my independence – not having to worry about my husband when I’m out or not having to walk on eggshells because he’s in a bad mood. But, as much as I miss my independence, I regret that over the last couple of years he has stopped going out unless he has to. So, I go everywhere on my own. Sometimes I wish I didn’t have to.

Evans, Gill Caregiver IMG_1130

Gill Evans

14. What do you enjoy most in post-TBI life?

On reflection, not a lot

15. What do you like least about TBI?

I dislike that my husband’s last injury took him away from me and that he is like a stranger sometimes. He can forget who I am, and he will talk to me like I’m his ex-wife.

16. Has anything helped you to accept your survivor’s TBI?

I’m helped by the fact that I have loved my husband since I was 17 years old. (So, I have known him with the TBI most of my life.)

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

When we married, I had two teenage sons living at home, and this became really difficult. There were lots of arguments. After two years of our fighting, my sons decided it was better if they moved out. I have spent the last eight years trying to rebuild my relationship with them, and thankfully we are much closer. Also they, to an extent, get on with my husband.

18. Has your social life been altered or changed and, if so, how?

Not really. My husband doesn’t go out much, and I go out with my sons or with colleagues from work. The one rule I have when I am out is that, unless it’s an emergency, he is only allowed to phone me once and the rest has to be text messages. Also he is not to bombard me with texts if I don’t reply.

19. What are your plans? What do you expect/hope to be doing ten years from now?

I’m hoping to be retired (or at least to be coming up to retirement) and spending some quality time with my family.

20. What advice would you offer other TBI survivor caregivers? Do you have any other comments that you would like to add? 

Evans, Gill Caregiver IMG_1129

Gill Evans – Caregiver for her Husband

Have boundaries, boundaries, and boundaries – to protect your own sanity. Remember to keep time for yourself. Don’t tolerate violence. It’s okay for you to get mad occasionally, but walk away. You won’t win a fight (verbal) with him or her. Grow a thick skin – he or she doesn’t always mean what is said. If you take everything personally, you won’t survive. Remember most of all, regardless of the effects of the TBI, your partner is still in there, so don’t give up hope of ever seeing him or her again – even if it’s only for a fraction of a second that he or she shines through. That’s why at the end of the day you are still there.

 

Thank you, Gill, for taking part in this interview. I hope that your experience will offer some hope, comfort, and inspiration to my readers.

If you would like to be a part of this project, please go to TBI Caregiver Interview Questionnaire for a copy of the questions and the release form.

(Photo compliments of Gill.)

Disclaimer: The views or opinions in this post are solely that of the interviewee.

Survivors SPEAK OUT! Jayson Phillips

SPEAK OUT! – Jayson Phillips

by

Donna O’Donnell Figurski

 

Phillips, Jayson Survivor 082414

Jayson Phillips

1. What is your name? (last name optional)

Jayson Phillips

2. Where do you live? (city and/or state and/or country) Email (optional)

Houston, Texas, USA

3. When did you have your TBI? At what age?

2009   I was 17.

4. How did your TBI occur?

My head was run over by a car.

5. When did you (or someone) first realize you had a problem?

Immediately

6. What kind of emergency treatment, if any, did you have?

A bone flap was removed, and I had brain surgery.

7. Were you in a coma? If so, how long?

Yes. About a month

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

Yes. I had physical, occupational, and speech therapies.

How long were you in rehab?

I was in and out of therapy, but altogether I had therapy over a year.

Phillips, Jayson Survivor Hospital 082414

Jayson Phillips – Miraclekid – lucky to be alive

9. What problems or disabilities, if any, resulted from your TBI
(e.g., balance, perception, personality, etc.)?

Left-side weakness, irritation, depression, left neglect

10. How has your life changed? Is it better? Is it worse?

I have a new perspective on life, and I don’t take anything for granted anymore.

11. What do you miss the most from your pre-TBI life?

Skateboarding

12. What do you enjoy most in your post-TBI life?

My new attitude and the support of friends

13. What do you like least about your TBI?

My physical limitations

14. Has anything helped you to accept your TBI?

I’ve been helped by personal-development videos, music, poetry, and writing.

15. Has your injury affected your home life and relationships and, if so, how?

Yes. It has strengthened my relationship with my mom and dad.

16. Has your social life been altered or changed and, if so, how?

No

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My mother and grandmother are my main caregivers. Yes, I understand what they do.

18. What are your future plans? What do you expect/hope to be doing ten years from now?

I hope to have a large business. I also hope to contribute my time towards helping TBI survivors and people in general better their lives. In ten years, I expect to be retired, to be living on my own, and to be going to different places to speak about TBI awareness.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other TBI survivors with your specific kind of TBI.

No matter what challenges or adversities you may come across, keep a useful and positive attitude. Always find the positives in any situation.

Jayson Phillips

Jayson Phillips

20. What advice would you offer to other TBI survivors? Do you have any other comments that you would like to add?

Attitude is everything. It can be the difference between a healthy, speedy recovery and a stressful, slow recovery.

 

Thank you, Jayson, for taking part in this interview. I hope that your experience will offer some hope, comfort, and inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

(Photos compliments of Jayson.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

TBI Tales: One Usable Hand

Living With One Usable Hand

by

Dorothy Mah Poh Choo

(presented by Donna O’Donnell Figurski)

 

As a hemiplegic, I have one usable hand. It’s definitely very challenging. To carry on with life, I had to find new ways of doing things. I lost my job when I could not return to work full-time. Though I live with my children, I am home alone during the day when they go to work.

I learnt that the saying “Necessity is the mother of invention” is true. Creative thinking can find new solutions to old ways. Besides finding new ways, I also use many aids, the most useful of which is a portable trolley. With it, I can carry things around. I found a one-touch can opener, which does the job with just one press of a button.th-1

The fingers of my remaining hand can do much more than before. I can hang socks on a peg carousel with one hand. Using a peg system I invented, I hang towels and small items on an airer. (It was most frustrating trying to hang undies before that.) I still do most indoor house chores. Washing dishes is very noisy, but I do my best.

My best achievement is putting the bread clip back onto the bread bag, after an occupational therapist I asked in rehab told me it couldn’t be done with one hand. It is important to acknowledge all achievements, no matter how small.

Cutting Board with NailsI cut meat and vegetables using a special cutting board with nails in one corner to hold the item. I butter bread using a special board with raised sides that hold the bread in place. I open jars by pressing down on an anti-slip mat, which stops the jar from moving. There are mats everywhere. There is one where I eat so the plate doesn’t move around. I cook using a heavier pan so it doesn’t turn round and round from stir-frying. I use the gas burner closest to the wall so that the pan doesn’t fall off the stove onto me.

Doing things with one hand is a matter of breaking the activity down into individual steps. For example, to put a cup into the cupboard, I open the cupboard door, get the cup, then put it into the cupboard. Before I had only one good hand, I would just take the cup, open the door with one hand, and put the cup in with the other hand.207041972

Of course, some results won’t be as good as they would be using two hands. I have accepted that and learnt to laugh at myself. Folding clothes takes double the time now and results in a messy pile. Wrapping presents is a sloppy task. After I lost my left arm, I wrapped presents for the last time at the end of that year. I handed the “wrapped” presents to my friends saying, “Sorry – not my best effort. It’s a one-handed job”. LOL! Life is better when you are laughing.

Doing things with only one hand takes a lot of patience and determination. I keep trying until I do it. I’m also very safety conscious. If I can work out in my mind to do something safely, I will do it. Waiting for someone else to do something can be quite frustrating. (I don’t like sitting on leather chairs – it’s cold. I had an old doona on the electric recliner I sleep in. It kept slipping off, and it annoyed me terribly. I had the brilliant idea to sew one end so it would slip over the chair like a cover. I asked my daughter to do it, but she was very busy, and the days stretched on. I got up one morning, helpplanned everything in my head, took some measurements, threaded the needle using a needle-threader, and off I went. The work took four hours, but I did it. My daughter didn’t notice it for weeks, until I pointed out that she didn’t need to do it for me anymore. She was impressed.)

Most things are possible if you put your mind to it. If something is truly hard, ask for help. It is not worth it to get hurt.

I have learnt that success is just one more try after failure. Life is worth living. Don’t give up.

 

Thank you, Dorothy, for sharing your story in TBI Tales. I hope that your experience will offer inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the author.)

 

If you have a story to share and would like to be a part of the SPEAK OUT! project, please submit your TBI Tale to me at donnaodonnellfigurski@gmail.com. I will publish as many stories as I can.

(Clip Art compliments of Bing.)

 

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On the Air – Brain Injury Radio Julie Kintz Substitutes for Donna O’Donnell Figurski

On the Air – Brain Injury Radio

Julie Kintz sits in for Donna O’Donnell Figurski

Mark Ittleman, MS CCC-SLP, speech & language pathologist

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Due to a prior engagement, I was unable to host my show, Another Fork in the Road on the Brain Injury Radio Network on October 19, 2014. Fortunately for me and all my listeners, Julie Kintz of Quantum Leap stepped into her host shoes and interviewed a very interesting guest. Mark Ittleman, a speech and language pathologist, spoke of the many difficulties brain-injured survivors encounter after their injury. I will be back on November 2nd with Dr. David Figurski, (my spouse) who will give his perspective of his life as he conquers traumatic brain injury.

Mark explained his philosophy of therapy (it should be doable, interesting, and enjoyable), his methods (analysis, repetition, and modeling), and his strong desire to involve the caregiver (by his or her presence in the sessions, by learning from him, and by his writing simple-to-understand books – he’s working on one now). Mark cautioned survivors to get more than one prognosis because a prognosis is only a doctor’s opinion and because survivors are often more capable than people realize. Mark understands the power of the ability to communicate and suggested that survivors – even years after their trauma – can benefit from having a speech therapist.

If you missed the show, don’t fret. You can always listen to the archived show. I’ve included the link below.

Please SHARE!

I hope you’ll tune in to my show, Another Fork in the Road, which airs the 1st and 3rd Sunday evenings of every month. The show starts at 5:00p Pacific Time and runs for 90 minutes. On the 2nd and 4th Sundays at 5:00p Pacific Time, Julie Kintz hosts Quantum Leap. When there is a fifth Sunday in a month, Julie and I will team up to cohost a show called Another Quantum Leap in the Road.

See you “On the Air!”

(Click the link below to listen to the show.)

Julie Kintz interviews Mark Ittleman M.S. CCC/SLP. Mark will address speech difficulties after brain injury in both children and adults.  

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