TBI – Survivors, Caregivers, Family, and Friends

Archive for the ‘Guest Bloggers’ Category

SPEAK OUT! Guest Blogger Karen Dickerson . . . . . . . . . . . . . . I Love the Person I’ve Become

I Love the Person I’ve Become

by

Karen Dickerson

presented

by

Donna O’Donnell Figurski

Girl Blogger cartoon_picture_of_girl_writingI had a somber moment yesterday as I, for the first time, heard my 9-1-1 call and saw photos of the scene of my accident. I didn’t know that on March 2nd, 2014, my life would be changed forever.

As all my friends are aware, I have a traumatic brain injury (TBI), a brain injury that will affect my life forever. I’ll never be the same person I once was. I still struggle daily with cognitive deficits and problems with memory, lights, sounds, fatigue, and headaches. I wrestle with irritability. Also, the left side of my body is weak. I spent the last year angry for what has happened to me. The struggles were so huge that I didn’t know how I’d ever survive daily life as a woman and single mother.

Next week, I have the opportunity to face the driver who caused this injury to my body and my life. I get the chance to tell that person everything I’ve gone through to get to where I am today. In writing my statement, I found it hard to look back and relive the hell I’ve been through and am still going through today.

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Karen Dickerson – TBI Survivor

However, in many ways, the accident also brought some positivity – the growth that I’ve had as a person, the strength it has given me, my faith to be stronger, and the opportunities to share my story with so many. Through the use of social media alone, I have shared my triumphs and failures all over the country.

I am trying to bring a voice to the small community in which I live, where there isn’t much help or support for this invisible injury. My brain injury has helped me to choose wisely whom I bring into my life and to let go of negative people, including those in my immediate family who did not understand or did not desire to educate themselves to help me.

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Karen Dickerson – TBI Survivor

I’ve asked why this had to happen to me. I thought that life was already difficult enough. It was hard to get on my feet after a tough childhood and an abusive marriage. Today, I know why. I am thankful for what I have – as little as it may be. I am especially grateful for all who I’ve worked for and fought for – my children and the loved ones close to my heart.

My accident could have been worse. My children might not have had a mother to take care of them; I would never have made new friendships and grown stronger relationships with the ones I had; and I would never have met my Okie.

I’m blessed to be here today. TBI or not, I love the person I’ve become because I’ve fought to become her.

 

Thank you, Karen Dickerson.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Karen Dickerson)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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SPEAK OUT! Guest Blogger David A. Grant . . . . . . . . . . . . . “Warning: Graphic Content

Warning: Graphic Content

 by

David A. Grant

presented by

Donna O’Donnell Figurski

Boy Blogger thI found myself doing something that I don’t usually do. This morning, I just stared at my keyboard and waited. Most of the time, putting virtual pen to paper is easy. On a good day, I can pour out a thousand words in under an hour.

Not today.

One of the most unexpected by-products of this new life is my PTSD (post traumatic-stress disorder). Since time out of mind, I’ve heard the term PTSD. But like so many, perhaps even you, I mistakenly associated it exclusively with veterans, with those that had seen the unimaginable.

Never did I expect to be walking daily with this newfound friend. Some things you just can’t see coming – like a speeding car driven by a sixteen-year-old driver. Its onset was abrupt. It was unrelenting. It was unexpected.

And it’s more than a bit insidious.

Early on, as my physical injuries began to heal, like a dark flower blooming under a full moon, my PTSD began to blossom. Professional help did little to stem the terror tide.

The nightmares remain the worst part. For a couple of years after my accident, “bad PTSD nights” came anywhere from ten to twenty nights a

month. When I say “bad,” I mean bad. These aren’t your “Boogeyman-under-the-bed” kind of dreams.

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David & Sarah Grant

Not even close.

Over the years, I have had most every sort of Stephen King horror inflicted upon me after dark. From being burned alive to drowning after drowning, from severed limbs to vivid dream pain that feels more real than reality, it’s been a real shit storm. My apologies if profanity offends, but better a four-letter word than a vivid description of life after dark.

The sound of an ambulance passing by our home drove me to tears for the better part of a couple of years – stopping me dead in my tracks if happenstance found me working in our yard.

Crowds? No more. Action-packed movies? Maybe for you, but not for us. Sudden or abrupt noises? You’ll find my shoes on the floor and me long gone.

Time does have a way of offering clarity. Today I know that I live with a textbook case of PTSD. Like other challenges I face, it’s invisible. Meeting me today for the first time, you’d never know. “Hey, I see that you live with PTSD,” said no one – ever.

As time passed, Sarah and I developed compensatory strategies to help. It is good for us both.

Known by few is a condition called “Secondary PTSD.” Those close to a trauma survivor, though not physically hurt, carry their own deep and painful scars. Sarah has a pretty classic case of secondary PTSD.

Circumstance, rather than virtue of any kind, has reshaped our lives. Our

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the Grant’s Sanctuary

lives together today are smaller, but none less rewarding. We shun most crowds, but do not live reclusively. We spend a lot of time outdoors – crowded music festivals replaced by nature walks. Our yard has been transformed into a sanctuary with waterfalls, birdfeeders and flowers abounding. It’s now a sacred place for us – a place where we both continue to heal.

Life today is more enriching than before. I still startle easily. I cry less often at the sounds of a siren wailing. And we are both cautious about what we allow ourselves to be exposed to.

Eiffel Tower

Eiffel Tower Paris, France

The events that have unfolded in Paris over the last few days are heartbreaking. It’s at times like these that the rubber meets the PTSD road. I need to be careful of getting sucked in to wanting to know too much detail, balancing it with the very human need to know what is happening in the world at large. I watch “just enough” TV to know what’s happening. I read “just enough” of the news online – very often going no further than the headlines.

Just this morning, as I read the USA Today news on my tablet, a content block caught my eye: WARNING: GRAPHIC CONTENT. Suffice to say, I passed that one right by, knowing that honoring my condition is good for me and good for those around me. I am praying for those who are part of the horror. Blasts mean that there are now new members of the TBI club. Hundreds, if not thousands – perhaps an entire nation – will now live with PTSD. My heart weeps for them.

But even with the most dutiful of diligence, I am reminded that I am forever bound to PTSD.

Last Thursday night was our weekly Date Night. Our cinematic choice this past week was the Peanuts Movie. We’ve seen just about every animated flick released in the last few years. It was a smile-filled night out. Just dinner and a movie. Just us two. Hand-holding and quiet whispers – just the way we like it.

At 10:00 PM, I leaned over, gave Sarah her good night kiss and fell quickly asleep. Though I no longer dread bedtime, I live in the reality that any night can be a bad night.

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David & Sarah Grant

At 11:30 PM, Sarah woke me up as I lay next to her crying out in pain, my feet sinking into molten dream lava, being burned off my torso as I looked down in abject horror. I could smell my own flesh burning. Unable to move, I screamed in mortal terror.

“C’mon David, wake up. Wake up, David,” she called out – again coaxing me back to the relative safety of awakeness. We’ve danced this midnight two-step hundreds of times.

And so the rhythm of our new life goes – enjoying those sacred moments between the tougher times, and hunkering down to ride out the occasional PTSD storms.

In the bigger scheme of things, fate could have been much more harsh. I could have died that day – leaving Sarah to walk through the recent five-year anniversary of the day alone, her memory of me beginning to fade.

But we have each other. And in having each other, we have all we need.

 

About David A. Grant

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David A. Grant

David A. Grant is a freelance writer, keynote speaker and traumatic brain injury survivor based out of southern New Hampshire. He is the author of “Metamorphosis, Surviving Brain Injury,” a book that chronicles in exquisite detail the first year-and-a-half of his new life as a brain injury survivor. His newest title, “Slices of Life after Traumatic Brain Injury,” was released in 2015.

David is also a contributing author to “Chicken Soup for the Soul, Recovering from Traumatic Brain Injuries.” As a survivor of a cycling accident in 2010, he shares his experience and hope though advocacy work including a public speaking as well as his weekly brain injury blog.

David is a regular contributing writer to Brainline.org, a PBS sponsored website. He is also a BIANH board member as well as a columnist in HEADWAY, the Brain Injury Association of New Hampshire’s periodic newsletter.

David is the founder of TBI Hope and Inspiration, a Facebook community with over 15,000 members including survivors, family members, caregivers as well as members of the medical and professional community as well as the publisher of “TBI Hope and Inspiration Magazine.”

Thank you, David A. Grant.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of David A. Grant)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

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SPEAK OUT! Guest Blogger … Randy Terry “How To Make Your Life Better”

How To Make Your Life Better

by

Randy Terry

presented by

Donna O’Donnell Figurski

Boy Blogger thSo many times I hear, “I want my life back!” I’ve said it myself and made myself miserable. Now six years post stroke, I see that I will never get my old life back. It’s impossible. But the trials of my stroke and my recovery have changed my life forever – and for the good.

I am a survivor, and the things I have learned about life will Randy Terry 2 102615not allow me to return to the old life. Sure, some of the things I loved to do are no longer possible, but I have adapted to change. It wasn’t easy, but I really had no choice.

For the first few years, I played the “pity game.” I was mad at the world. I lamented, “Why me?” One day, I found that I was tired of this game. I thought that there has to be a better life after stroke. I put the wheelchair in a corner and picked up my walker. I started the hard work. Soon I was on the cane doing the same thing. It is by no means easy. Not only was I walking, but I also felt proud. That’s why you hear me say, “Stand tall and proud!”

Do not waste your time in that “pity place.” It’s very lonely there, Randy Terryand there is nothing to gain but misery. The ability to change your life is not a secret hidden from you. Instead, it’s about working to get what you want out of life.

I’m not smarter than you. You just have to get that brain thinking right, and get up and get it done. It takes time to heal, but time is on your side. You have plenty of it. Don’t think it’s all got to come at once. Work slowly and steadily. It will come.

Thank you, Randy Terry.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Randy Terry.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

SPEAK OUT! Guest Blogger … David Lloyd “What I Gained From My Brain Injury”

What I Gained From My Brain Injury

by

David Lloyd

presented by

Donna O’Donnell Figurski

Boy Blogger thI used to be an intolerant perfectionist before my accident. I did not even realize the extent to which I looked down on others, how prideful I was, and how I put others down without any thought, until an event out of my control took away my ability to meet my own standards.

I had fooled myself into believing I was better than I was. Now I see others with a much humbler and more forgiving attitude. I am much more compassionate and a lot less full of myself.

My change in attitude probably saved my relationships with my David Lloydchildren, whom I had been pushing away by demanding unrealistic standards from them with what were my goals and not theirs. Now I am much more impressed with their strengths and more understanding, and even accepting, of those areas that seemed important to me, but never motivated them. There is a sense that my disability has removed blinders that kept me from seeing the value of letting my children have interests that are different than my own.

Those are good qualities that I intend to hold onto, regardless of how much I recover eventually.

Thank you, David Lloyd.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of David Lloyd)

A11998344_873343152701235_1064470731_ns I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

SPEAK OUT! . . . . . . . . . . . . . . . . . Guest Blogger: Miki Mashburn-Bailey “Awareness: TBI Survivor Advocate”

Awareness: TBI Survivor Advocate

by

Miki Mashburn-Bailey

presented by

Donna O’Donnell Figurski

Girl Blogger cartoon_picture_of_girl_writingIt has been twenty years since my husband’s traumatic brain injury (TBI). Unawareness has been our enemy and hurt us tremendously. Awareness has found its place in our home just this past year, and it has brought along with it forgiveness, acceptance, and understanding.

Awareness has turned our life around. And, everyone who suffers from a TBI deserves to understand this life he or she lives. So obviously, awareness is important to me. It has become my passion. I ask you to help me prevent further damage by making the world aware. Your response could save a life – a marriage – a family.Miki Mashburn-Bailey 1

My husband was hit in the head by a brake drum that had flown off an eighteen-wheeler. The brake drum was traveling at highway speed. It wasn’t actually a “car accident,” but it was an unnecessary and unfortunate accident. (It’s for a reason such as this that you can receive a ticket for “failure to maintain your vehicle.”) My husband’s car veered to the left. The barrier between the highway lanes slowed him to a stop, as he was combative and lost all control of his being. An ambulance just happened to be driving by soon after, and the EMS (Emergency Medical Services) team just happened to look down into my husband’s vehicle. They saw him and took immediate action.

I am thankful for this EMS team because they helped save my husband’s life. They responded quickly and effectively, and my husband was rushed to the nearest trauma center. The team there responded quickly, and the surgeon was able to do what was necessary to prevent further damage. This man and the trauma center team saved my husband’s life. I am forever grateful to them. They did their jobs, and they did them well. Had the EMS team not responded in the manner they did, it would’ve made the trauma center’s job more difficult.

Miki Mashburn-Bailey and Jay Bailey 3My husband survived an incident he should not have. He improved much sooner than expected. He recovered miraculously and was discharged earlier than expected. I am thankful to everyone. They did their jobs well.
 HOWEVER, there was still a job that was necessary. There was still work to do. There was still much-needed therapy. There was still much-needed counseling.
 A life was saved, but it was forever changed, and no one was there to help make sense of it. No one was there to guide my husband and me to the next step. No one was there to warn of the subtle changes that have huge impacts. No one was there to enlighten and give insight as to what to expect next. 
EMS did a great job and sent us on to the next step – the trauma center. The trauma center did a great job and sent my husband on into surgery. The surgeon did a great job.

But, the only place left to pass my husband on to was home. “No more treatment necessary” written on discharge papers means “There is no more left for us to do on our end,” but, to the sufferer of a TBI, it reads as, “You’re fine. You will heal right up!”
 My husband and I go home. We expect things to be different. We adjust. We assume time is all that’s needed. Time marches on, and things don’t improve, or we begin to notice this and that here and there. By the time we recognize things aren’t healing cognitively as well as they are physically, we go to a doctor confused and try to communicate our concerns. My husband is brushed off because he “looks fine.”

Trauma centers need to have a “TBI Survivor Advocate” to hold the survivor’s hand into the next step of the TBI journey – not to hand out written material that will be lost in all of the other paperwork given at discharge. TBI Survivor Advocates would sit down with survivors and their families and/or friends and help them understand that, while EMS and the hospital saved the survivors’ lives, there are others who will help survivors LIVE their lives. TBI Survivor Advocates could direct and guide survivors to find therapists and counseling that will help transition and adjustment to their “new normal.” 
A disservice was done to my husband – to his future, to the company he worked for, to our relationship, and to our family.
 We were denied effective help and expected to carry on, due to my husband’s “miraculous” physical healing. Because of that, the cognitive damage that affected his being never got the attention or therapy it desperately needed.

Awareness of the reality of TBI as often being an invisible disability is vital in the health of the world we all live in. TBI is a thief in the night and has no prejudice. It can happen to anyone of any status. Please help me make others aware. Miki Mashburn-Bailey 4We can be that hand that guides others to their next steps in their journeys. The world we live in is full of those who have influence. A difference CAN be made in the way a brain-injured individual adjusts to his or her new life. All it takes is ONE person to make a difference. The more we help one another, the better our world becomes.

Thank you, Miki Mashburn-Bailey.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Miki Mashburn Bailey)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

SPEAK OUT! . . . . . . . . . . . . . . . . . Guest Blogger: Sue Hannah “Different Path”

A Different Path

by

Sue Hannah

presented by

Donna O’Donnell Figurski

Girl Blogger cartoon_picture_of_girl_writingMy traumatic-brain-injury story is different from some. I didn’t have a wonderful life that suddenly was transformed by tragedy. I had violence in my early life that forever changed me. Because no one spoke of my damage or the violence that caused it, decades passed until I was finally able to understand what had happened. In the meantime, I spent years painfully searching for an answer. I wanted to know why my handwriting was not only not neat, but how it seemed regressed to an age much earlier than my actual age. I sought to understand why spatial concepts were so difficult for me to comprehend. I yearned to know why colors and patterns made me sick to my stomach and why motion sickness affected me in vehicles, rides, and even something as gentle as a swing. After years of doctor visits, neuropsychological testing, therapists, alternative practitioners, and even nutritionists, I finally found an answer.

My first experience with vision therapy was helpful and did improve my handwriting, but it did not eliminate my issues. Syntonics (phototherapy) and prism glasses made huge differences in my life! My spatial orientation changed dramatically, my coordination improved, and even my tolerance for colors and patterns improved. I had no idea how powerful the visual system was or how Sue Hannahmuch of the brain was involved in causing my visual system to fully function. My traumatic brain injury (TBI) had done damage to areas of my visual system, which cascaded into my motor functioning as well as into my proprioception and tactile senses. Syntonics, or light therapy, gently and consistently shifted, and continues to shift, major obstacles for me. There are many optometrists in the US who do vision therapy, but I’d like to think mine is someone quite special. Her down-to-earth manner and genuine kindness radiate to her patients, as well as to her team of professionals in her office. Dr. Amy Thomas, located in Tucson, Arizona, has shown me amazing paths to my healing. She would never choose to take credit for healing anyone. She would, I believe, be willing to accept responsibility for helping patients heal themselves.

For the neuro-typical people of the world, let me say that few things are more annoying to lots of us with TBI than the following: “You don’t look like you’re brain damaged. You seem so normal. I know exactly how you feel.” Um, no you don’t! Everyone’s walk with TBI is a unique one, in my opinion. I had doctor after doctor tell me that my sensitivity was something I just needed to get over and deal with if I were to get along in life. My teeth still grate over that one! The reluctance of so much of our society to acknowledge sensitivity, neurological challenges, intensity, and deep emotions pains me. There are times for me when even sunlight can cause a round of irritability or other intense emotions. Medical professionals who discount the feelings and experiences of their patients are missing a huge amount of information that, if they allowed, could change their practices.

Hannah, Sue 2My life-path has not been easy, but it has caused me to not take little things for granted. I lost the ability to drive for a brief time, and, because of my new therapies, I am slowly getting my independence back. It’s interesting to note that as we get more reflective, we often begin to see what is most important to us. One of my strongest passions is to never give up. I was determined to find an answer to what happened to me and, even more so, to improve the quality of my day-to-day life. The second is one I continue to pursue. On days that seem filled with grief and loneliness, I remember that there are still wonderful people in the world. For me, these people have helped me to get up when I fall and to remember that tomorrow is another day.

To learn more about Sue, please visit her website/blog at Platypus Expressions.

Thank you, Sue Hannah.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Sue Hannah)

SPEAK OUT! . . . . . . . . . . . . . . . . . Guest Blogger: Jennifer Stokley Transitioning and Brain Injury

Transitioning Can Work in Odd and Wonderful Ways

 by

Jennifer Stokley

presented

by
Donna O’Donnell Figurski

Girl Blogger cartoon_picture_of_girl_writingWhen I moved into my new home back in September, I was a stranger – scared and so alone. I had neighbors on either side, but they were strangers. Strangers terrify me.

Behind me was a family with three young children and a big floppy dog. I am not sure how it happened. (I forget these things – “TBI Memory” – LOL.) Maybe it was the doggie that made me go out and meet them, but who cares? I went. And, it totally changed my world forever!

Next thing I knew, I was playing with their dog almost every day and sitting on their bench out front to see the kids go off to school every morning so I could say hello and “Have a great day!” I went out again every day to greet them when they came home from school. I became good friends with the mother, who turned out to have been a nurse prior to being a stay-at-home momma.

The mother was very familiar with folks like me – with a TBI. What are the odds of that? She wrote me a beautiful poem about new starts in my life. While reading it to me, she started to cry. She had to regain her composure and begin again. At the end, we were both crying. We ended up hugging. Wow! I was so grateful for her huge heart and her understanding.

Her husband would mow my yard when he did his own and never asked for anything in return. I was amazed and so grateful that they understood I was completely unable. They did it because they cared.Jennifer Stokely 3 Survivor 052615

One day, I joined the kids in a leaf fight in their yard (in my PJs! – LOL), along with the parents’ autistic son – my best buddy, with whom I had a special connection for some reason. He came over, sat down with me, threw leaves into the air with me, and giggled. He even lay down and wanted me to cover him with leaves to his chest (none on is face or neck – sensation issues – I understood) so he could pop out of the leaves like the rest of the kids were doing. His parents’ chins were on the ground, I swear. I don’t think they had ever seen him connect and want to play like this before. Once he popped out and had a leaf in his hair that upset him. I asked him if I could remove it for him. He said yes, so I did, and the playing resumed.

The best part came at the end, though. I thought his parents’ heads were going to explode! I put my hand out and told him, “Give me a high five!” He slapped my hand as hard as he could. I don’t think his parents had ever seen him give physical contact by choice to anyone not family.

His parents got him a new puppy, all his own. One of the kids had let the puppy out by accident. No one knew it was gone. I was outside doing something, and the puppy ran around the other side of my house and straight to me! Yay! I was able to save the puppy, give it some loving, and carry it home – safe and sound.

This family brought me so many blessings by being my neighbors in a new, strange, and scary environment. They just sold their home and have begun moving into their new home. But, the blessings keep coming. My two nephews bought their place, so I will have family living behind me, after having pseudo family living there.

Jennifer Stokely Survivor 052615Miracles work in mysterious ways for sure! I will sure miss that family. But, I am grateful for the wonderful memories they gave me and for being there to help make my transition feel so safe and protected. I wish them well on their new journey.

***********

Thank you, Jennifer Stokely.

You can learn more about Jennifer on the following sites.

SSS (Semi-Support Sisterhood) for TBI Survivors

A New Me – BREAK THE SILENCE

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Jennifer Stokley.)

anim0014-1_e0-1

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the lower right corner of your screen.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

SPEAK OUT! . . . . . . . . . . . . . . . . . Guest Blogger: Brandy Hunter . . . . I Am Blessed

I Am Blessed

by

Brandy Hunter

presented by

Donna O’Donnell Figurski

Girl Blogger cartoon_picture_of_girl_writingI am blessed to be truly loved by a man who may not always understand my emotional outbursts. He is a true blessing in my life for even trying to deal with the behavior that is now instilled in me forever. This same man understands how stressful everyday things are to someone like me (a traumatic brain injury – TBI – survivor). He insists that I stay home and work as a housewife because I cannot deal with simple jobs outside of the home. But, if I choose to pursue other opportunities, he fully supports that decision.

I am blessed to have obtained my BA in Communication Studies after my injury and also to have graduated from a university and with a 3.79 GPA. It helped that the TBI made my stubbornness more intense!

I am blessed to have my mom and dad bring me back to life by refusing to accept the surgeon’s saying that I will have to live in a group-home for the remainder of my life. (I was 24 years old at the time the injury occurred. I am 35 now.) My parents put their own lives on hold so I could have one myself.Brandy Hunter Survivor 050515

I am blessed to have two loving canines to help me through the difficult days by simply “listening” or offering a much-needed cuddle.

I am blessed to have the ability to express myself verbally, even if the injury left my once radio-worthy voice with a slurred way of speaking, which makes me have to repeat myself numerous times a day.

I am blessed to still be able to write well. Now, due to the injury, I am focusing on my writing abilities, not my speaking ones.

I am blessed to have an excuse for wanting to nap almost daily.

I am blessed to be able to live on my own – one and a half and two hours away from my parents.

I am blessed to have no visible scars from the car accident in which I sustained my brain injury.

I am blessed not to have lost memories. (I only needed to be reminded of the three years before the accident.)

Eleven years after my TBI, I’m very blessed that things are not as “foggy” as they once were.

I am blessed to still be able to physically write (pen to paper), cumbersome as it may be for me at times. I am grateful for the availability of Post-It Notes.

I am blessed to have both of my grandparents (with whom I grew up) still alive and willing to help me in any way that they’re able to (even though it is my turn to do for them).

I am blessed to have loved ones try to understand the difficulties I encounter daily and for their assistance (and for not doing whatever I’m trying to do). I appreciate that they accept how things may take a bit longer for me to accomplish.

I am blessed to have traveled to New York, lived on Long Island, traveled to California and Nevada (Vegas, baby!), lived in England for three months, and to currently reside in my home state of Alabama (finally back in the “one red light, one locally owned supermarket” town in which I graduated junior high and high schools).

Life is good…no…Life is BETTER for me now than it was prior to the TBI that changed my life.

Brandy Hunter 2 Survivor 050515Thank you, Brandy Hunter.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Brandy Hunter.)

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SPEAK OUT! . . . . . . . . . . . . . . . . . . Guest Blogger: Ermira Mitre . . . Dream of an Earthquake

The Dream of an Earthquake

by

Ermira Mitre

presented by

Donna O’Donnell Figurski

Girl Blogger cartoon_picture_of_girl_writingOne night, after I came home from a long day of work, I noticed that my friend Eileen had called me twice during the day. I love talking to Eileen. Although it was 9:30, I decided to call her back and chit-chat a little bit to update each other on our everyday lives.

During our conversation, Eileen said, “Mira, you know what? I dreamed about an earthquake last night. The shaking was so hard that I got up and went to the computer to see if any earthquake had happened nearby. I didn’t find anything. So, I realized that the earthquake was a dream. And what a dream!”

Her dream instantly brought up the experience of my having had a similar dream while I was living in Albania with my family. I said, “You know, Eileen, years ago, I had a dream of an earthquake too.” I continued, “I dreamed an earthquake was happening, and it threw me from the balcony of my third-floor apartment. I fell onto the ground – but standing up.”

Eileen’s dream was frightening, but I told her about my positive symbol of “standing up” after “falling down.” So, I said, “The dream is telling you that, whatever happens, you will be fine.” My own experiences have shown that this indeed can be true.

My earthquake dream first occurred in March 1991 – a time of turmoil in Albania. Many young people had Ermira Mitre 2left the country. Two days after I had the dream, I got a phone call from my uncle. He said that my brother (who lived with my parents and my stepbrother) got onto a ship and escaped to Italy. He left behind my paralyzed mom, my dad, who was still recovering from a stroke, and my stepbrother, who had been diagnosed with a severe disease.

The news was a total shock. I felt divided. One part of me cared about my immediate family, and another part worried about my parents and my brothers. Psychologically, I was struggling to find a solution to the situation, while in my heart, I remained calm and at peace. My heart didn’t allow me to hurt myself with feelings of anger, anguish, or bitterness toward the decision of my twenty-two-year-old brother.

Although I was still picking up the pieces of the shattered glass I had become after the accidental death of my almost three-year-old son and having two little kids, a paralyzed mom, a half-paralyzed dad, and a brother with an incurable disease and also working as a teacher, I didn’t think of myself. The positive symbol of my earthquake-dream supported my actions. I was “standing up” when I needed it most.

Situations like these made me grow as a person and reach the deeper core of myself as a human being. By acknowledging peace within terrible storms, I have been able to extend my heart and actions to those who needed me.

Ermira Mitre copyMy peace allowed me to place my thoughts into a higher level of understanding. I can accept life as it comes by using exuberant, and often hidden, strength, courage, love, care, generosity, kindness, gentleness, and loyalty.

After I got off the phone with Eileen, I went to sleep. The next morning I had this poem within myself. It is about our existence and our strength. I hope you enjoy it.

THE EXISTENCE

Opening the eyelids and waking up by touching the dawn,
While the eyeballs kissing the vastness of the light,
Waking and feeling the joy of being alive,
Living through the day and experience,
The joy of living, the thunders, the storms,
And earthquakes that bring shakiness,
And awakens as much as the labor of a new baby born,
Still standing up and building up being grabbed,
And infused by the strength that lies beneath and beyond,
Sleeping is falling in quietness and stillness,
And darkness of the other side of our existence,
Being born thus waking up,
Living through the experience,
And dying thus sleeping in stillness,
Are the matching pieces of a puzzle,
Named as “our known but unknown existence.

Thank you, Ermira Mitre.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Ermira Mitre.)

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As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the lower right corner of your screen.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

SPEAK OUT! . . . . . . . . . . . . . . . . . . . Guest Blogger: Kristin Olliney . . . My Fight: The Reason to Advocate

My Fight: The Reason to Advocate

by

Kristin Olliney

(presented by Donna O’Donnell Figurski)

Girl Blogger cartoon_picture_of_girl_writingIsabella’s Acquired Brain Injury (ABI) is the result of sudden acute encephalitis. However, there was also medical error involved in her care. Given the many factors involved, it is difficult to prove which symptom caused what damage. Due to this, no one will ever be held accountable for what happened. As a result, there are four important reminders that everyone needs to know.

  1. It doesn’t matter where you live. Even in the best city, at the best hospital, with the best doctor, mistakes can happen. I am often told how lucky I am to live in the Boston area because we have access to so many medical facilities. While this is true, not all doctors and care are the same.
  1. Doctors are human. They are people who have studied medicine and, based on their knowledge, give you their opinion. It is not fact. It is opinion. Their opinion is their best guess. This is so important to remember, especially when given a prognosis. Isabella, like many other survivors, was not supposed to make it through the night, and yet she did.

    Kristin Olliney with Isabella 2014

    Kristin Olliney with Isabella 2014

  1. Always follow your gut instinct, especially if something doesn’t seem right. Ask questions. When Isabella first got sick, the Emergency Department wanted to discharge her with a stomach bug. I knew that there was something seriously wrong. I can’t explain how I felt – only that I just knew. I fought and advocated to get Isabella admitted into the hospital. One of Isabella’s specialists was on call, and he trusted my gut instinct. Later in the PICU (pediatric intensive care unit), as I watched my child fighting for her life, I was told by him and other doctors that my fighting and advocating saved Isabella. If Isabella had been discharged, she would have died. Always fight and advocate for what you feel is right. You know your child/loved one better than anyone.
  1. Get another opinion. When you are in crisis, there isn’t always time. When things stabilize, seek out another opinion should you and the doctor have a difference of opinion. On this journey, things can change. Opinions differ, treatment options vary, and, if there are fundamental differences, another opinion can help.

    Kristin Olliney & daughter, Isabella  2015

    Kristin Olliney & daughter, Isabella
    2015

For me, it is hard knowing that the doctors who cared for my daughter made mistakes. Coming to terms with the fact that no one will ever be held accountable for what happened to Isabella is difficult. I know Isabella is here because I fought and advocated. It is still devastating to know that mistakes could have been prevented. I am sharing this part of our journey in hopes that it will encourage others to continue to fight and advocate for their child/loved one. Against all odds, my amazing miracle is here today, and, for that, I am forever grateful.

To learn more about Kristin and Isabella, please visit Kristin’s website/blog at In An Instant Your Life Can Change Forever – Brain Injury Association of Massachusetts Blog

Thank you, Kristin Olliney.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Kristin Olliney.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the lower right corner of your screen.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

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