TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘anoxic brain Injury’

Caregivers SPEAK OUT! . . . . Malissa Mallett (caregiver for her son)

Caregivers SPEAK OUT!

Malissa Mallett (caregiver for her son)

presented by

Donna O’Donnell Figurski

“Malissa Mallett will be my guest tomorrow (Sunday, February 17) on my radio show (Another Fork in the Road) on the Brain Injury Radio Network. She has been caregiver for her son, who had an anoxic brain injury, since 1997, when he was an infant. Malissa is Program Director for the Brain Injury Alliance of Arizona (BIAAZ). We will discuss caring for her son and the effect of her expertise (opioid use on the brain.) My show broadcasts live at 5:30 PT (blogtalkradio.com/braininjuryradio), or it can be heard as a podcast anytime (https://survivingtraumaticbraininjury.com/category/on-the-air-show-menu/).”

Malissa Mallett

1. What is your name? (last name optional)

Malissa Mallett

2. Where do you live? (city and/or state and/or country) Email? (optional)

Laveen, Arizona, USA     Program@biaaz.org

3. What is the brain-injury survivor’s relationship to you? How old was the survivor when he/she had the brain injury? What caused your survivor’s brain injury?

The survivor is my son. He was 2 months old. His brain injury was caused by aspiration, causing him to stop breathing (anoxic brain injury).

4. On what date did you begin care for your brain-injury survivor? Were you the main caregiver? Are you now? How old were you when you began care?

My care began in April 1997. I was 22 years old. I was my son’s main caregiver then, but I’m not now.

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Babies get brain injury too

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

No

6. Were you employed at the time of your survivor’s brain injury? If so, were you able to continue working?

I had just returned to work after giving birth. I was not able to continue working, since my son required 24-hour supervision for his heart and lung monitor.

7. Did you have any help? If so, what kind and for how long?

Occasionally. My family, who were trained in CPR, would care for my son to give me a break or a night out.

cartoon-hospital8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

In the hospital

9. Was your survivor in a coma? If so, what did you do during that time?

No

10. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? How long was the rehab? Where were you when your survivor was getting therapy?

No

11. What problems or disabilities of your brain-injury survivor required your care, if any?

This is difficult to answer given my son’s age at the time of his brain injury.

12. How has your life changed since you became a caregiver? Is it better? Is it worse?

My life was challenging all throughout my son’s life.

13. What do you miss the most from pre-brain-injury life?

I will never know what could have been.

14. What do you enjoy most in post-brain-injury life?

Does not apply

15. What do you like least about brain injury?

shakilaramanwordpresscom

Learn about brain injury

The lack of understanding in the community

16. Has anything helped you to accept your survivor’s brain injury?

Yes. Education.

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

Yes, it has. We can discuss this on your radio show. It’s too much to explain here.

18. Has your social life been altered or changed and, if so, how?

Not anymore

19. What are your plans? What do you expect/hope to be doing ten years from now?

I would love for my son to be successful and independent.

20. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add?

supportTake care of yourself.

Be surrounded by supportive people.

Educate yourself.

 

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SURVIVORS SPEAK OUT! Michelle Bartlett

Survivors SPEAK OUT!  Michelle Bartlett

presented

by

Donna O’Donnell Figurski

 

Michelle Bartlett 2

Michelle Bartlett – Survivor of Brain Injury

1. What is your name? (last name optional)

Michelle Bartlett

2. Where do you live? (city and/or state and/or country) Email (optional)

St. Stephen, New Brunswick, Canada

3. On what date did you have your brain injury? At what age?

I had my brain injury in March of 2004 at age 36.

4. How did your brain injury occur?

Two days after open heart surgery, I had a severe anoxic brain injury.

5. When did you (or someone) first realize you had a problem?

It was known immediately, as I was still in hospital.

6. What kind of emergency treatment, if any, did you have?

I have been told the doctors did CPR and other life-support methods for hours.

7. Were you in a coma? If so, how long?

Yes. I was in a coma for ten to twelve days.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I did inpatient rehab for three weeks and outpatient rehab for over a year. I had speech, occupational, and physical therapies.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have problems with balance, executive functions, and memory. I deal with fatigue and personality change.

10. How has your life changed? Is it better? Is it worse?

My life now isn’t what I planned it would be. It is what it should be.

11. What do you miss the most from your pre-brain-injury life?

Working

12. What do you enjoy most in your post-brain-injury life?

I enjoy helping others.

13. What do you like least about your brain injury?sleeping_on_job_5

The fatigue

14. Has anything helped you to accept your brain injury?

It helped to remember how accepting my grandfather was during times of stress.

15. Has your injury affected your home life and relationships and, if so, how?

Yes. It is difficult for me to express myself, and it is difficult for people to understand.

16. Has your social life been altered or changed and, if so, how?

Yes. Before my brain injury, I would never have had the confidence to do any public speaking. Now I have spoken at two national brain injury conferences. I also have numerous newspaper articles and radio interviews in Canada.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I’m pretty much independent now.

18. What are your plans?

I will continue to cherish my second chance.

What do you expect/hope to be doing ten years from now?

I intend to continue my advocating/support and education work in Canada, focusing on the east coast.canadian-maple-leaf-clip-art-42678

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Patience can be your best and worst enemy.

Michelle Bartlett Survivor 040318

Michelle Bartlett – Brain Injury Survivor

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Life is hard, no doubt about it, BUT always remember you are NOT alone. There is always someone else hiding in the shadows or around a corner who has a brain injury you may not know about.

 

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

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Survivors SPEAK OUT! Shelley Taylor

Survivors SPEAK OUT!  Shelley Taylor

presented by

Donna O’Donnell Figurski

 

 

Taylor, Shelley Survivor 3 050417

Shelley Taylor – Brain Injury Survivor

 

 

1. What is your name? (last name optional)

Shelley Taylor

2. Where do you live? (city and/or state and/or country) Email (optional)

Grand Prairie, Texas, USA     shelley@shelleytaylor.net

3. On what date did you have your brain injury? At what age?

I had my brain injury on Valentine’s Day seven years ago. I was 45 years old.

4. How did your brain injury occur?

Both I and my daughter, Taylor, were poisoned one night by carbon monoxide gas coming from an outside generator. We were fortunate to awaken and survive. Both of us have a brain injury as a result. (Donna’s note: Their horrific story will be published later on this blog under “Faces of Brain Injury.”)

5. When did you (or someone) first realize you had a problem?

The likelihood of carbon monoxide poisoning was first evident to the Fire Chief when the detector showed very high levels of carbon monoxide near the house. I was treated for carbon monoxide poisoning at Methodist Dallas Medical Center. Eventually it was discovered that I have a traumatic brain injury (TBI).

6. What kind of emergency treatment, if any, did you have?

I was taken to the Emergency Room at Methodist Hospital in Mansfield. I had stitches for a head wound (see story), and I was given a CT (computerized tomography) scan. A hyperbaric chamber at Methodist Dallas Medical Center was used to treat me for carbon monoxide poisoning.

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

Yes. I had occupational therapy.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have a problem breathing. I also have problems with balance, depth perception, and memory. I am plagued with migraines, vertigo, and light-sensitivity.

10. How has your life changed? Is it better? Is it worse?

My daily life has changed, with issues in breathing, balance, light-sensitivity, depth perception, noise-sensitivity, and memory. Now I also have daily headaches. (I got a migraine on February 4th, and I have not gone a day pain-free.) Life is just different. I am who I am for a reason. I’m living God’s plan for me.

11. What do you miss the most from your pre-brain-injury life?

I miss being able to remember, wearing high heels, and pain-free days.

12. What do you enjoy most in your post-brain-injury life?

Taylor, Shelley survivor

Shelley Taylor – Brain Injury Survivor

I try to live every day with a positive attitude. My daughter and I live with gratitude. We are very thankful that God saved us.

13. What do you like least about your brain injury?

I dislike coughing, falling, the light-sensitivity, the noise-sensitivity, and the memory issues. Many doctors don’t have experience with our type of injury. It’s frustrating.

14. Has anything helped you to accept your brain injury?

Yes. My relationship with Christ.

15. Has your injury affected your home life and relationships and, if so, how?

I think my family offers me an abundant amount of grace on days when my head is killing me and I’m extremely nauseous. They know I need to rest my brain a lot in the calm and quiet.

16. Has your social life been altered or changed and, if so, how?

Yes. I was an extrovert pre brain injury. Post brain injury, I’ve become an introvert. I love calm and quiet now.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

N\A

18. What are your plans? What do you expect/hope to be doing ten years from now?

I just finished writing a book, “With My Last Breath, I’d Say I Love You” – when your faith and hope slip, grace wins every time. I hope to find a publisher soon. Also, I’d love to speak and encourage others. book

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Early on, realize that you are here for a reason and make the most of each day. Our struggles are what make us stronger. Reach out to others and ask for help when necessary. Love yourself for who you are, not for what you aren’t.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

See my comments in the preceding question.

NOTE 1:

Surviving Brain Injury - Stories of Strength & Inspiration

“Surviving Brain Injury: Stories of Strength & Inspiration”

Shelley Taylor and her daughter, Taylor Trammell, are contributing authors in “Surviving Brain Injury: Stories of Strength & Inspiration,” edited by Amy Zellmer. Shelley and Taylor’s story is titled, “Our Story of Poisoning — and of Grace.” It can be found in Chapter 75 on page 299.

NOTE 2:

My story, “Nightmare in the Disability Lane,” can be found in Chapter 29 on page 114 of the same book, “Surviving Brain Injury: Stories of Strength & Inspiration,” edited by Amy Zellmer.

 

 

If you would like to be a part of the SPEAK OUT! project, please go to TBI SPEAK OUT! Survivors Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

“Another Fork in the Road” . . . Brain Injury Radio Network … Interview with Joshua Puckett

YOU ARE INVITED!

putthis_on_calendar_clip_art

 

Joshua Puckett was minding his own business in his own front yard when an unknown assailant attacked him. This attack resulted in a life-change for Joshua. Joshua, with his wife, Tatiana, will join me on my show, “Another Fork in the Road,” to share his story about how he … about how they … are adapting to life after TBI.

Come One! Come ALL!

What:        Interview with Joshua Puckett, brain injury survivor. Joshua’s wife, Tatiana, will join Joshua.

Why:        Joshua will talk about his brain injury and how his life is affected by it.

Where:     Brain Injury Radio Network

When:       Sunday, March  15th, 2015

Time:         5:00p PT (6:00p MT, 7:00p CT, and 8:00p ET) 90 minute show

How:         Click: Brain Injury Radio Network

Joshua Puckett - Survivor 2013

Joshua Puckett – Survivor 2013

Call In:    424-243-9540

Call In:     855-473-3711 toll free in USA

Call In:    202-559-7907 free outside USA

or SKYPE

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening. The archived show will be available after the show both on the Brain Injury Radio Network site and on my blog in “On the Air.”

(Clip Art compliments of Bing.)

(Photo compliments of Joshua Puckett.)

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