TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘https://survivingtraumaticbraininjury.com/’

On the Air – Brain Injury Radio Interview – Catherine Brubaker Triking Across America

On the Air – Brain Injury Radio

Interview with Catherine (Cat) Brubaker

Triking Across America – diagonally

 

images-1In my interview of Catherine (“Cat”) Brubaker, Cat tells the story of her life before her brain injury, her two TBIs, and her recent 5200-mile trip across the US (diagonally) on a recumbent trike.

Cat came from a humble and religious family. As a child, she loved sports and the outdoors. Her parents sacrificed so that she could go to college, where she earned a B.S. degree in Psychology. That education has been immensely valuable to Cat, especially now that she has a brain injury. It was “probably the best education I have ever received from any institution.” Cat then went on to earn a Master’s Degree in 2007, with a perfect 4.0 average (all As). Her father passed away two years earlier, and Cat knew he would’ve been proud.

From Anacortes, Washington to Key West, Florida (5,200 miles)

In her mid-30s, Cat had made a great life for herself. She had a good job with lots of responsibility; she had a long-term relationship; and she was enjoying the independence of her life. Then she acquired her first TBI from an assault. She had to learn everything again. Cat had many deficits from her brain injury, including problems with balance. She suffered from Post-Concussive Syndrome and Post Traumatic Stress Disorder (PTSD). When Cat left the hospital a year later, she became involved in a head-on collision and received another TBI. For a second time, she had to relearn everything from scratch. Her long-term relationship ended, and she desperately missed her independence and freedom.  When her mother died unexpectedly, Cat hit bottom.

Meet Cat’s Grizzly Bear

Then Cat discovered the recumbent trike and regained some of her independence. She later met Dan Zimmerman, a stroke survivor, while he was riding his recumbent trike. They stopped and talked, and he told her of his plan to ride across the country. Cat decided immediately that she wanted to do it too. After much preparation, the trip is happening. Cat has been greatly moved by the outpouring of love and generosity. She wishes that everyone could experience so much love at least once. Cat discusses some details of her trip so far, including one time in Montana when she was alone and encountered a grizzly bear. Cat’s discussion will mesmerize you.

Ride, Cat, RIDE!

 

If you missed the show, don’t fret. You can always listen to the archived show. I’ve included the link below.

Please SHARE!

I hope you’ll tune in to my show, “Another Fork in the Road,” which airs the 1st and 3rd Sunday evenings of every month. The show starts at 5:00p Pacific Time and runs for 90 minutes. On the 2nd and 4th Sundays at 5:00p Pacific Time, Julie Kintz hosts “Quantum Leap.” When there is a fifth Sunday in a month, Julie and I will team up to cohost a show called “Another Quantum Leap in the Road.”

See you “On the Air!”

 

(Clip Art compliments of Bing.)

Brain Injury Resources “You Disappear”

“You Disappear” by Christian Jungersen

(Insight Into the World of Brain Damage)

reviewed by

Donna O’Donnell Figurski

"You_Disappear"_Jungersen-205x300

You Disappear by Christian Jungersen

As anyone who has had a brain injury and his or her caregiver know, life is forever altered. It will never be the same. Christian Jungersen takes his readers on the twisted journey of Frederick, a headmaster at a prestigious school; Mia, his wife and a reputable schoolteacher; and their teenage son, Niklas. Unlike many brain injuries that occur by an impact, an accident, or a hemorrhage, Frederick’s brain “injury” evolved over time, changing his personality bit by bit. Mia slowly noticed inexplicable changes in her husband. Talking too loud and eating too much were just two of the little signs that were manifested as Frederick’s brain changed. While on a vacation in Majorca, Frederick drove unusually erratically and dangerously. His driving caused their rental car to scrape a stone cliff. When Frederick, in a crazed state, jumped from the car, fell down a hillside, and woke in the local hospital, he was forced to seek help, and the mystery of his strange behavior is unveiled.

Once Frederick is diagnosed with a slow-growing brain tumor, his aberrant behavior becomes more understandable, but not excusable. As is the case for many brain-injured persons, Frederick’s behavior hampered his decision–making process. Frederick illegally took large sums of money from his school, causing the school to become bankrupt and Frederick to lose the respect and friendship of many people, including his chairman and close friend, Laust. Eventually Frederick, while seeking help, loses his job and faces a possible prison sentence.

Mia fondly remembers the years before the change in Frederick. She remembers the love they shared. She does what she can to help him, but his deviant and erratic behavior makes living with him difficult. Finally, Mia seeks help and companionship with a local brain-injury support group, where she meets Bernard, who not only becomes Frederick’s attorney, but also a “special” friend to Mia.

As Christian Jungersen so aptly states, “As any family member of someone with brain damage knows, the hard part isn’t the initial shock. The hard part comes when the adrenalin recedes and you have to set out down the endless gray corridor of disheartening days, days that look like they’ll last the rest of your life.”

As the caregiver for my husband, who has a traumatic brain injury, I understand Jungersen’s words completely. The adrenalin gets you through the early surgeries and the beginning days in the hospital. It may even carry you through the weeks in the rehabilitation facility. But the adrenalin-rush ends, and “real life” sets in when the caregiver brings the survivor home. That’s when the realization occurs that life will never be the same as it was. The survivor will never be the same as before, and neither will the caregiver. Brain damage has a way of changing the normal. That’s when the survivor and caregiver realize that the journey through the brain-damage maze has just started. They eventually realize that it has no end. Once brain damage comes to stay, it can tear families apart. But, it can also make families stronger, as they pull together to overcome the trials of brain injury.

In “You Disappear,” Jungersen portrays how one family finds their world breaking up. Will they find enough glue to repair it?

 

Jungersen 2

Christian Jungersen

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SPEAK OUT! NewsBit . . . . . . . Electrical Stimulation of the Brain Improves Memory

Electrical Stimulation of the Brain Improves Memory

Newsboy th

 

Neuroscientists at Northwestern University have found that electrical stimulation of the brain results in long-term improvement of memory. The researchers applied magnetic pulses to generate an electrical current (Transcranial Magnetic Stimulation or TMS) at specific areas of the skull to stimulate specific neurons near the surface of the brain. They were surprised to find that, while memory circuits are complex and involve some neurons deep in the brain, stimulating the accessible neurons near the surface of the brain stimulates the entire circuit. TMS does not require surgery, and, unlike a therapeutic drug, which would affect all parts of the brain, TMS can be used to target specific areas of the brain. The neuroscientists believe that electrical current induces better communication between neurons and stimulates the neuroplasticity of the brain, but the molecular mechanism is unknown. (Full story, Video)

(Clip Art compliments of Bing.)

Catherine (Cat) Brubaker . . . Triking Across America

Pedaling Into the Future – Triking Across America (diagonally)

by

Donna O’Donnell Figurski

 

Catherine (Cat) Brubaker

Catherine (Cat) Brubaker

Catherine (Cat) Brubaker, a 43-year-old perky, young woman, is on the ride of her life. She is getting a second – no – third chance at life.

Catherine’s life changed in an instant in 2010, when she was assaulted. The assault resulted in a traumatic brain injury and the implantation of a heart pacemaker. A year after her first TBI, Catherine was in a head-on collision, which caused her to have a second TBI. The result of both injuries took away Catherine’s freedom. She lost her independence in the world.Cat Brubaker wheelchair pose

In an article, Catherine said, “ … I lost everything – my ability to work, drive, talk and function independently.” But what Catherine did not lose was her drive – her ambition to take back the reins of her life. But, it wasn’t easy, and it didn’t happen all at once.

Catherine not only lost her independence, she also lost her partner of 14 years when they parted ways. This, along with the increasingly difficult life she now faced as the result of her disabilities, sent Catherine into a deep slump. When her mother passed, Cat almost went over the edge. She found it difficult to understand why she was here on this earth. She contemplated ending her life. To Cat, it seemed that everything had been stripped away.

Catherine (Cat) Brubaker - Triking Across America (diagonally)

Catherine (Cat) Brubaker – Triking Across America (diagonally)

It was around that time that Cat bought a recumbent trike and found that the trike allowed her the freedom to get out of her house. Because Cat has issues with balance as the result of her brain injury, it was difficult for her to walk unassisted. Also, she was not able to drive a car because of the many issues related to her TBI. Her recumbent trike gave her the independence that she so missed and so greatly desired. It made her world bigger. Cat rode her trike in the parks near her home. There she met Dan Zimmerman, a stroke survivor, on his recumbent trike – the very same model that Cat was riding (Catrike 700). (Cat said she was attracted to that trike not only for its performance, but also because of its name.) Dan and Cat began to ride together, and Dan shared his plan of pedaling his recumbent trike across America to raise awareness for stroke survivors. He also hoped to spread the word of the benefits of cycling. Cat thought this a great idea, and soon she was in training to accompany Dan.

Initially Cat rode her trike to escape the four walls that seemed to hold her prisoner, but she soon realized that she was riding for others too – for those who can’t ride and those who may follow her lead and discover the joys and freedom of the recumbent trike. But most of all, Cat rides to offer hope to her fellow traumatic brain injury survivors.

From Anacortes, Washington to Key West, Florida (5,200 miles)

From Anacortes, Washington to Key West, Florida (5,200 miles)

On June 29th, the pair – with their riding team of Bill and Dana Brown (owners of Sign Me Up Tours,) and David Babcock (photo-journalist, driver, and all-around “chief cook and bottle washer”) – set off from the northwestern corner of the United States at Anacortes, Washington, on their way to Key West on the tip of Florida at the southeastern part of the USA. Cat and Dan will ride a total of 5,200 miles on their ocean-to-ocean trip. They plan to finish in late November.

Check back often to see photo updates of Cat’s (and Dan’s) progress.

(Photos compliments of Cat Brubaker.)

Survivors SPEAK OUT! . . . . . . Michelle

SPEAK OUT! – Michelle

by

Donna O’Donnell Figurski

Lawson, Michelle Shell 2

Michelle

1. What is your name? (last name optional)

Michelle

2. Where do you live? (city and/or state and/or country) Email (optional)

Indiana, USA

3. When did you have your TBI? At what age?

February 16, 1999.  I was 16 (my sophomore year in high school).

4. How did your TBI occur?

I was in a vehicle going south. The driver passed a vehicle at a stop sign. He was going 90 mph in a 30 mph zone. An eastbound vehicle T-boned us on my side. I was ejected from the vehicle, thrown 60 ft., and came within inches of a loading dock. I was dead on the scene, and the paramedics had to revive me. In the process, they punctured my vocal cords. I still talk low, and it takes a lot to speak up.

5. When did you (or someone) first realize you had a problem?

I think right away. The doctors actually told my mother that I would pretty much be a vegetable.

6. What kind of emergency treatment, if any, did you have?

I didn’t have to have any surgery.

7. Were you in a coma? If so, how long?

Yes. I was in a coma for 2 1/2 weeks.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational, physical, speech, and/or other)?
How long were you in rehab?

I had to do a year of speech therapy and physical therapy as an outpatient.

9. What problems or disabilities, if any, resulted from your TBI
(e.g., balance, perception, personality, etc.)?

I have a balance problem and short/long-term memory loss. I have developed fibromyalgia, which the doctor thinks is a result of the accident. I also have arthritis.

10. How has your life changed? Is it better? Is it worse?

Since the age of 2, I wanted to be a police officer or go into the military. I can’t do either because of the memory loss and the risk of getting hit in the head. I had a lot of anger towards the driver for a few years after the accident, but I learned to forgive him. I realized that everything happens for a reason. Sometimes I don’t like having TBI, but I wouldn’t go back and change it. It’s part of who I am today, and God only knows who I would have become if the accident didn’t happen. It may have been worse. I don’t remember who I was before (personality, etc.).

11. What do you miss the most from your pre-TBI life?

Refer to the answer above.

12. What do you enjoy most in your post-TBI life?

Refer to the answer above.

13. What do you like least about your TBI?

My memory loss, the fear of having Alzheimer’s or dementia, and dying before I get old because of having a brain injury.

14. Has anything helped you to accept your TBI?

No. Just about everything that I have had to relearn, I have done on my own.

15. Has your injury affected your home life and relationships and, if so, how?

(No Answer)

16. Has your social life been altered or changed and, if so, how?

Yes. I lost all my friends, but I gained new ones. I tend not to have any close/best friends though. I do wish very badly that I did have a best friend – sometimes it’s hard to accept that I don’t anymore.  I stay to myself, due to my being extremely paranoid about saying something wrong, being put down, or not being accepted.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

Mainly myself, but my mother, as well as my husband, helps me on remembering things.

18. What are your future plans? What do you expect/hope to be doing ten years from now?

To have completed college and to be a teacher with my own classroom.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other TBI survivors with your specific kind of TBI.

(No answer)

20. What advice would you offer to other TBI survivors? Do you have any other comments that you would like to add?

Lawson, Michelle Shell

Michelle

Be patient, forgive, keep God in your life at all times, and remember to always love. Also NEVER forget how short life can be.

Thank you, Michelle, for taking part in this interview. I hope that your experience will offer some hope, comfort, and inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

(Photos compliments of Michelle.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

SPEAK OUT! NewsBit . . . . . . . . Changing a Negative Feeling About a Memory

Changing a Negative Feeling About a Memory

newsboy-thThis is exciting, but complicated, basic research. Here I simplify the main experiments. Neuroscientists at the Massachusetts Institute of Technology (MIT) have identified a neuronal circuit in mice that associates a positive or negative feeling with a memory. In a tour de force of molecular studies of the brain, the researchers conducted experiments that provide considerable hope for future therapy in humans with syndromes like PTSD (post-traumatic stress disorder), anxiety, and depression. The scientists were able to turn a memory associated with a negative feeling into a memory that has a more positive feeling and vice versa.

(How relevant are studies done in mice? The mouse is an accepted animal model for humans. You might not expect it, but mice and humans are very similar genetically. The DNA sequences of the mouse and human chromosomes are known. Many mouse genes have sequences similar to human genes. They both code for proteins that have similar structures and do the same things. Because mouse and human genes are so similar, much of the underlying biology of mice and humans is also similar. Still there are differences. So until something has been shown to be true in humans, a scientist’s conclusions must be conservative. Most of the time, however, much is learned about humans from the mouse. It has become a convenient initial model for humans.)

The researchers at MIT engineered a virus that infects the mouse brain. They specifically infected either the hippocampus, the part of the brain that contains neurons that store contextual information about a memory (for example, the place), or the amygdala, the part of the brain that contains neurons that put a positive or negative emotional tag onto the memory. The engineered virus is essentially a dead-end. It doesn’t reproduce or harm the cell, but it does have an ability to cause infected neurons to make a light-sensitive protein – but only when the neuron is actively making a new memory. In this way, the researchers were able to make neurons involved in making a new memory sensitive to light. By implanting an optical fiber in the part of the brain that contained the light-sensitive neurons (i.e., in the hippocampus or in the amygdala), the scientists could use light to turn on these memory-making neurons at will. The general technique of using a light-sensitive protein to activate a cell is called “optogenetics.” When the light-sensitive neurons are activated by the researcher, the mice recall that memory with its associated positive or negative feeling. To make a memory with a positive feeling, male mice were allowed to mix with female mice. To make a memory having an associated negative feeling, mice were put into a special cage and given a mild electrical shock. For both kinds of memories, the neurons involved could be turned on by light.

The researchers then took the mice and put them into a cage with two compartments. When a mouse with a negative memory explored a particular compartment, the researchers turned on its bad-memory neurons by shining a laser into the optical fiber to activate those neurons. The mice “remembered” the bad feeling and avoided that compartment. When the experiment was done with the mice having a good memory, the mice preferred that compartment. These results were seen only when neurons of the hippocampus were activated. No change in mouse behavior was seen when amygdala neurons were activated. Whereas the amygdala is needed to add the positive or negative feeling to a memory, the researchers concluded that a memory with its associated feeling is stored in the hippocampus.

The researchers then asked if they could change a negative memory into a positive memory and vice versa. They took the male mice with the negative memory and mixed them with females to make a positive memory. When they used light to activate the bad-memory neurons, the positive feeling from mixing them with females dominated. Unexpectedly, those mice did not suddenly avoid the females when the researchers activated the bad-memory neurons. When the mice were put back into the cage with two compartments, they went randomly into both compartments, even when the researchers activated the bad-memory neurons with light. The bad memory was no longer causing them to avoid one of the compartments. The negative tag had been supplanted by the positive feeling. What happened to the first (negative) tag? Was it removed? Was it changed? This question is being investigated. When the experiment was reversed, the scientists found that the positive feeling became more negative.

This new research gives a molecular explanation for why emotion associated with a memory can be changed – the basis of current therapy. Dr. Susumu Tonegawa, who directed the research, believes that the amygdala has two kinds of neurons: neurons that can tag a memory with a positive feeling and other neurons that can tag a memory with a negative feeling. He wants to identify those two populations of cells and understand how they work at the molecular level. Such information will be valuable for the development of new therapies and drugs. (Full story)

(Clip Art compliments of Bing.)

On the Air . . . . . . . . . . . . . . . . . . . “Another Fork in the Road” meets “Quantum Leap”

Breaking News! Breaking News! Breaking News!

images-1“Another Fork in the Road” and “Quantum Leap” have merged for every 5th Sundays of a month. (August 31, 2014, November 30, 2014, March 29 2015, May 31, 2015, August 30, 2015, and November 29, 2015) Join Julie Sharp Kintz and me (Donna O’Donnell Figurski) in “Another Quantum Leap on the Road” as we explore topics directly related to Traumatic Brain Injury.

The topic for August 31, 2014 delved into how “Life Changes After TBI” from the viewpoints of both survivor (Julie) and caregiver (me).

It was a great show and a great discussion. Some of the topics we covered were:

1. Personality change in the survivor

2. Loss of old friends

3. Making new friends

4. Role reversal. Caregiver becomes dominant partner taking on ALL of the responsibilities

5. Loss of career/job

6. Loss of substantial income

7. Frustration of family and friends not understand the extent of TBI

If you missed the show, don’t fret. You can always listen to the archived show. I’ve included the link below.

Please SHARE!

I hope you’ll tune into my regular show the 1st and 3rd Sunday evenings of every month. The show airs at 5:00p Pacific time and runs for 90 minutes.

See you “On the Air!”

(Clip Art compliments of Bing.)

“Another ‘Quantum Leap’ in the Road”: Life Changes After TBI

Breaking News!       Breaking News!       Breaking News!

What Do You Do When There is  a 5th Sunday in a month? MERGE!

(Another Fork in the Road  & “Quantum Leap” merge on 5th Sundays)

putthis_on_calendar_clip_art“Another Fork in the Road” (1st & 3rd Sunday of each month @5:00pm PT) hosted by Donna O’Donnell Figurski and “Quantum Leap” (2nd & 4th Sunday of each month @5:00pm PT) hosted by Julie Kintz have merged for every 5th Sunday in a month.”

Join Julie and Donna as they explore topics directly related to Traumatic Brain Injury. The discussion on August 31, 2104 will delve into how “Life Changes After TBI” from the viewpoints of both the survivor (Julie) and the caregiver (Donna).

If you have any questions you would like us to address, please send a private message to either Julie or me. I hope you will join us at 5:00pm PT. (8:00pm ET) See you there. (http://www.blogtalkradio.com/braininjuryradio/2014/09/01/another-quantum-leap-in-the-road)

Come one! Come ALL!

What:       “Another ‘Quantum Leap’ in the Road” on Brain Injury Radio Network:
Why:          Donna & Julie talk about “Life Changes After TBI.”
Where:     Brain Injury Radio Network
When:       Sunday, August 31, 2014
Time:         5:00p PDT (6:00p MDT, 7:00p CDT, and 8:00p EDT) 90 minute show
How:          Click: Brain Injury Radio Network.
Call In:      424-243-9540
Call In:      855-473-3711 toll free in USA
Call In:      202-559-7907 free outside US

or SKYPE
If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening (Archived show) will be available after the show

(Clip Art compliments of Bing.)

SPEAK OUT! Guest Blogger: DuWayne Hall . . . My Journey

SPEAK OUT! Guest Blogger: DuWayne Hall

My Journey

Boy Blogger thIt was a day like any other day. I got ready for work. As usual, I rode my motorcycle there. I drove around the hairpin turn that lies in front of the Emergency Room at Saint Benedict’s Hospital, where I worked. I arrived 15 minutes early, as usual, and I parked in the parking spaces up in front by the Admission doors. The day was as mundane as expected. Nothing exciting or out of the ordinary had happened. This routine had been repeated daily for eight years. Every day had been painfully identical: I arrived to work at 11:00 pm, worked until 7:00 am, and then went home. I lived only 10 minutes away. As expected, my shift went painfully slowly.

At 7:00, my shift relief failed to show up and relieve me. I was required by my employer – and by law – to stay on the job for another shift.

The Psych ward was about full. Almost half of those patients were minors. I went to my shift change, learned the medical history on my patients, and then began to gather the supplies necessary for my Group Session.

The patients filed in to attend the first Group Session of the day. I handed out supplies and manuals to document the progress of the patients’ recovery from whatever crises had caused them to be admitted into the hospital in the first place.

I thought my usual shift was long, but the next shift felt longer because it was all day. At lunchtime, I clocked out to get off the hospital grounds. I drove down the road to McDonald’s. Before I drove back, I removed my helmet to place my lunch into it to shield my dinner from the wind – thus, keeping it warm during my ride back.

As I rounded that hairpin turn in front of the Emergency Room, a car pulled out right in front of me, causing me to lay the motorcycle down. The bike pinned my right leg under it and then dragged me 100 feet down the road. As a consequence, my head bounced just like a Super Ball between my shoulder and the ground. I acquired a massive amount of “road rash” on my right side, as my chaps and uniform became shredded from the grinding of the motorcycle scraping across the road. I acquired a severe Traumatic Brain Injury and a compound fracture of my right collarbone. I also shattered my right elbow. I crushed my right cheek. I almost ripped off my right ear. I broke my right leg. My right eye was hanging out of its socket. My Big Mac sandwich did much better than I did!

To control brain swelling, the doctors introduced a shunt and placed me into a prolonged coma. While I was in my coma, I did not know that I was injured. I imagined myself on a mountaintop overlooking the city I lived in. I kept thinking to myself, When are they going to start the fireworks? I was only in the mountains to observe the fireworks from up above, instead of from down below, for a better view of the show. The fireworks finally went off. The next thing I knew, I was looking through hospital bed bars. I had no idea where I was or how I got there or when I got there. The last thing I remembered was being in the mountains with friends and watching the fireworks go off.

I was in my coma for 25 days. On the 24th day, the doctors began preparations to remove me from the life-support equipment. My parents, not wanting my daughter to see me dead, had made arrangements to first bring her into my hospital room to view my body before they disconnected me. My daughter, who had not seen me in nine years, was brought into my room. The doctors, nurses, my parents, and several friends watched passively as my daughter, who was 10 at the time, walked over to me and asked, “Daddy, do you want a cup of coffee?” To everybody’s amazement, I started to laugh. I had inexplicably come out of my coma. The doctors immediately started backpedaling. Nobody could explain how it was that they thought I was going to die until I was asked if I wanted a cup of coffee!

The documentation on head injury is incomplete at best. Rehabilitation therapists only follow a standardized guideline on how to treat a head injury. Every article I’ve ever read states that head injuries are unique. So it stands to figure that if every head injury is different, then it is ludicrous to apply standardized testing. The doctors did not like the fact that I was questioning my treatment. I was transferred to three different rehabilitation hospitals over a period of five years, while I relearned to walk, talk, interact with other people, and relearn names. I was taught how to add, subtract, eat, cook for myself, shop, take a shower, wash my clothes, phone, and use the toilet. I had to brush up on my job, my family, relationships, schooling, etc.

Ten years into my disability, because of my coordination problems, I slipped and fell in my own home. I broke my neck. It was a miracle I did not paralyze myself from the neck down. Because I was brain-damaged, nobody believed that I was badly hurt. They thought I was exaggerating my symptoms. The X-rays were not interpreted by a radiologist. Instead, the Emergency Room staff sent me home with instructions to be careful. First thing the next morning, the hospital called me and informed me that I had, in fact, broken my neck. They wanted me to return for admission and treatment, even emergency surgery. I was operated on for a permanent fusion of my T1 and T2 vertebrae.

Eighteen years into my disability, I received a second severe head injury. It occurred while I was just walking across the road. A truck driver did not see me crossing the road, and he hit me in the crosswalk. That injury gave me PTSD (post-traumatic stress disorder) along with new neural deficits. At this point, I am rated by Social Security as 105% disabled. I am more than totally disabled, just because I walked across the street!

It has now been more than 23 years post-injury. I have learned so much that I cannot even begin to describe what my journey has been like. I do know that EVERY single DAY is a challenge for me as a TBI survivor. We as survivors need to negotiate trials that the average person may find overwhelming. Little things could be insurmountable – for example, deciding what to wear and what, or even if, to eat. My own body is the enemy. Just talking to people can be a challenge. People misunderstand me all the time. I am a loner, but not by choice. It hurts me inside to be alone. Obviously, it is not healthy to be alone. Yet, many TBI survivors are alone. The stats validate that fact. Most marriages attempted by someone with a TBI end in divorce. It would seem then that survivors of a TBI make poor candidates for relationships. Everything is a challenge for the TBI survivor! You can never know what it is like until you “walk a mile in another man’s shoes.”

Favorite quotations:

DuWayne Hall

DuWayne Hall

You’re only as old as you feel!

You only live once in life!

You won’t know unless you try!

 

Thank you, DuWayne Hall.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

Brain Injury Resources . . . . . . Couples and Traumatic Brain Injury

Couples and Traumatic Brain Injury

Brain th-2Not only does the survivor deal with the effects of a TBI, but the caregiver does too. Much of the concern is directed to the survivor. But the trauma has totally changed the life of the caregiver also. The good news is that the love, partner, and “best friend” of the caregiver survived, but the survivor may look different, sound different, and/or act differently. The survivor may not be the same person that the caregiver knew and loved. In fact, the previous relationship may not seem to exist at all with the current version of the survivor. Often the caregiver works tirelessly out of love or in hopes that some part of their close relationship will return.

TBIs can be hard on relationships. Most relationships struggle, and some do not survive. A few psychologists now specialize in relationships affected by TBI. Here is a video of one couple, who, with the help of two psychologists, managed to withstand the storm of a TBI. Dr. Jeffrey Kreutzer and Dr. Emilie Godwin point out that neither the survivor (Hugh) nor the caregiver (Rosemary) is the same person that he and she were before the TBI. Drs. Kreutzer and Godwin emphasize the importance of acceptance of the “new normal,” not only by the survivor, but also by the caregiver. They both must accept that life will not return to the way it was pre-TBI. Dr. Kreutzer advised Rosemary and Hugh to “…grieve for your old life and build a new one.”

(Clip Art compliments of Bing.)

Comments are welcome.

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Picture Books Help Kids Soar

Mindy’s Writing Wonderland

For authors, parents, teachers & everyone who loves children’s books.

Kaitlyn Leann Sanchez

Literary Agent

Surviving Traumatic Brain Injury

TBI - Survivors, Caregivers, Family, and Friends

The Care Factor

Loving someone with a Traumatic Brain Injury

Brain Injury Support Group of Duluth-Extension

Brain Injury Information and SUPPORT

Brain Aneurysm Global Insight

Brain Aneurysm, cerebral hemorrhaging, hemorrhage stroke