TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘Brain Injury Radio Network’

On The Air: . . . . . . . . . . . . . “Another Fork in the Road:” . . . . Julie Kintz on Clubhouses for the Brain-Injured

On The Air: Brain Injury Radio “Another Fork in the Road”

with

Julie Kintz, Brain Injury Survivor &

Working Group Director of the Brain Injury Education & Research Clubhouse in Indiana

presented

by

Donna O’Donnell Figurski

images-1Many folks who have had a brain injury are left with many residual effects. Therapies such as physical, occupational, and speech are

Julie Kintz Survivor Panel 070515

Julie Kintz – Brain Injury Survivor

offered in hospitals and rehab centers. Neuropsych is also offered, but the services for each of these therapies is limited. So what do folks do who still have needs? On this show, Julie Kintz, brain-injury survivor, focused on the needs of the brain-injured.

Julie spoke about the “Clubhouse” model, which provides a safe haven for those who live with mental illness after brain injury.

Julie is now working on developing her own “clubhouse, ” which will cater to folks who live with any sort of brain injury.

Zachary Stilwell, a member of the Carriage House Clubhouse in Fort Wayne, Indiana, stopped by to share his exuberant thoughts about his experiences with the clubhouse, too.

See you “On the Air!”

On The Air: “Another Fork in the Road:” Julie Kintz on Clubhouses for the Brain-Injured

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Survivors SPEAK OUT! . . . . . . . Raquel (Rocky) Gloden

Survivors SPEAK OUT! Raquel (Rocky) Gloden

presented

by

Donna O’Donnell Figurski

 

Gloden, Raquel (Rocky Survivor1. What is your name? (last name optional)

My name is Raquel Gloden. I go by Rocky.

2. Where do you live? (city and/or state and/or country) Email (optional)

I live in Arizona, east of Phoenix; my email is brainyliferocky@gmail.com.

3. On what date did you have your brain injury? At what age?

I had my last TBI (traumatic brain injury) in October 2013; I had concussions prior to this last one – it just happened to be the worst. I was 35 years old when it happened.

4. How did your brain injury occur?

I was enjoying an outing with my family. I stopped to take a picture of my children, and when I stepped back to get a better view, I slipped on some sort of substance on the marble floor. I bounced the back of my head on the floor a couple of times – and that was it.

5. When did you (or someone) first realize you had a problem?

I went by ambulance right away and had it checked. I was told that it was a concussion and to take some ibuprofen and that I should start feeling better. I followed the doctor’s recommendation, but it got worse instead of better. I ended up back in the hospital a week later for other issues associated with it. They advised me to go get it checked out further.

6. What kind of emergency treatment, if any, did you have?

Other than a CT (or “CAT”; computerized tomography) scan, I did not have any other emergency treatment.

7. Were you in a coma? If so, how long?

No. I am very fortunate not to have been in a coma.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I did outpatient vestibular and occupational rehab.

How long were you in rehab?

I did this for a couple of months.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

Oh wow! This is a loaded question. I have balance problems. I have vision issues. (I see double now.) I was diagnosed with symptomatic ADD (attention deficit disorder). I now suffer from depression. My personality has definitely changed – some good, some not so good. I try to maintain a positive outlook towards everything, but it is often a challenge. Before my medication was regulated (and before it was determined that I needed medication), it was much more difficult to function (from what I can recall). Oh yes, I have memory problems now too.

10. How has your life changed? Is it better? Is it worse?

My life has changed. Is it better or worse? … I don’t know. I am no longer employed at the career I had for fifteen and a half years – that is scary. But, I get to be home with my children for now. I think it is all in the way I look at it. There are many things I will not be able to do anymore that I would have liked to. But, not many people are afforded the perspective and opportunity that I have either.

11. What do you miss the most from your pre-brain-injury life?

I miss the old me. I was very outgoing, loved to be around people, and was almost always happy. I could multitask better than many. I could solve problems and issues within seconds.

12. What do you enjoy most in your post-brain-injury life?

I was able to find out who my friends really are. I am able to help create the person I want to become. Most of all, I get to be with my children.

13. What do you like least about your brain injury?

I dislike the headaches, double vision, depression, ADD, and the lack of understanding. Those issues that are personal – I can find a way to deal with them. The lack of understanding is the worst. It feels as though I am not listened to sometimes and, even if I am, I feel like people just don’t understand.friendsfamily

14. Has anything helped you to accept your brain injury?

I have a great support-team that includes my family and dear friends. I go to counseling weekly, and my counselor is very counselorsupportive. I have been learning about being more mindful, which has also helped immensely. Recently, I have found that the TBI community is very supportive as well. Many times I think that I have not truly accepted my TBI, but I am getting there.

15. Has your injury affected your home life and relationships and, if so, how?

Yes, very much so. There are some relationships that do not exist anymore. This was mostly due to my ending the relationship. I had a new perspective after my TBI, and I do not feel I have time for people who will bring me down or whom I feel uncomfortable around. This was not usually the other person’s fault, but I am not the same as I was. I need my TBI to be accepted, or I do not need them in my life. My home life changed for sure. My children saw the incident, and I deal with that trauma every time we walk by a wet spot on the ground. My husband is a wonderful man and very supportive. I was the breadwinner though, and this has had to change. He is such a great man – he has not complained one bit. He supports me in all I do. I am fortunate to have my mom around me too, and she is a huge support; my dad was very supportive before he passed away in 2014. They all have encouraged me to continue creating myself.

16. Has your social life been altered or changed and, if so, how?

As I stated before, I am not as outgoing. If I can, I often avoid situations in which there will be loud noises or too many people. This means that I don’t go to as many parties or social gatherings, and when I do, I do not stay like I used to. I don’t think I have as many friends as I thought I did.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My main caregiver is my husband. He is at home with me. My mom helps a lot too, especially with the kids when my husband is at work. I believe a caregiver helps when times are tough, and he or she encourages positive thoughts and actions. To me, a caregiver assists when needed, but is not enabling. A caregiver encourages independence.Gloden, Raquel (Rocky) 2 Survivor

18. What are your plans? What do you expect/hope to be doing ten years from now?

My future plans … I would like to speak about TBI and help people to better understand. There are subjects that people do not talk about at all, and I would like to bring light to them and to help people understand that they are not alone. I would also like for others to understand the hardships that follow TBI survivors – even when other people cannot see them.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

I wish that I would have known when I was younger how concussions would have impacted me long term. I remember pushing it when I previously had concussions. They were not treated the same as now either, and I wish I knew then what I know now. Take care of your brain – it is the only one you will ever have.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

My advice is to stay strong, but still allow yourself to cry. It is hard, but as long as the hard times decrease and the positive times increase, you are on the right track. Also, you are not alone. I know people may see you and think that there is nothing wrong, and they may even think it is all made-up, but the people who know you – the people who truly matter – know. And you know. And that is all that matters.

 

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

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(Photos compliments of contributor.)

 

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SPEAK OUT! . . . . . . . . . . . . . . . Faces of Brain Injury . . . . . . . . . . James Thomas (survivor)

SPEAK OUT! Faces of Brain Injury James Thomas  (survivor)

presented by

Donna O’Donnell Figurski

 Brain Injury is NOT Discriminating!

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

Thomas, James survivor 111115James Thomas  (survivor)…I’m a traumatic-brain-injury (TBI) success story. I had three brain surgeries to remove three blood clots in my head. After the third surgery, I fell into a coma for three days. When I woke up, I lost the ability to walk and talk, and I wasn’t able to take care of myself. I had to learn every life-skill again, including how to write. I had to wear a diaper for seven months.

I was in the hospital for a month. When I was released, I went to one of best rehab centers in the state of New Jersey. There I had occupational, physical, and speech therapies twice a week. I was able to go home after three months, and my ex-girlfriend nursed me back to good health. I improved 150% in two years. I work now as a teacher assistant with Special Needs students.

 

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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Survivors SPEAK OUT! Jen Swartz

Survivors SPEAK OUT! Jen Swartz

presented

by

Donna O’Donnell Figurski

 

 

jen swartz Survivor1. What is your name? (last name optional)

Jen Swartz

2. Where do you live? (city and/or state and/or country) Email (optional)

Castleton, New York, USA     Passionate4Christ29@yahoo.com

3. On what date did you have your brain injury? At what age?

My brain injury happened on June 8, 2000. I was 18.

4. How did your brain injury occur?

I was in a car accident. I was following a close friend to her boyfriend’s house. My car was T-boned by another car going 55-60 mph. My small car, a 1987 Toyota Corolla, was thrown across the street. Jen (the person I was following) said that my body was hanging out the door. She thought I was dead because there was blood coming out of my mouth. (To top it off, I also have congenital scoliosis and had to have a major operation when I was nine years old – a bone fusion in my neck to prevent the curve from progressing further. I had to wear a halo to restrict neck movement so the bone fusion could heal.)

5. When did you (or someone) first realize you had a problem?

I think it was probably when I was in a coma that people realized that I would have some cognitive problems.

6. What kind of emergency treatment, if any, did you have?

I required a tracheotomy and a food tube. Also, my head was shaved for a reason. At the beginning, my brain was swelling, but, praise the Lord, the swelling went down. So, it was not necessary to take a piece of my skull off to allow room for the swelling.

7. Were you in a coma? If so, how long?

Yes. I was in a coma for six weeks.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

Yes. I did inpatient rehabilitation at Sunnyview Rehabilitation Hospital. This included speech, occupational, physical, and recreational therapies.

How long were you in rehab?Jen Swartz Survivor

I was in rehabilitation for seven months.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

I have memory issues for certain! I have problems with concentration, focusing, emotions, and balance.

10. How has your life changed? Is it better? Is it worse?

My life is MUCH better! I don’t remember eighteen years of my life, but from what I am told, I was very unhappy. Now I have God. He is my purpose! I am also blessed to say that I am engaged to an incredible man, who has an acquired brain injury (ABI). It is so great! We have known each other for three years, and we see eye-to-eye on practically everything.

11. What do you miss the most from your pre-brain-injury life?

Absolutely nothing!

12. What do you enjoy most in your post-brain-injury life?

I like that I don’t take anything for granted and that I am content with the way things are. God blessed me with a second chance at living, so I am trying to make the most out of everything in life.

13. What do you like least about your brain injury?

I dislike the anxiety issues, the memory problems (which seem to happen quite frequently), and the migraines.

14. Has anything helped you to accept your brain injury?

Yes! I was helped by Living Resources, where I participated in a group for people with traumatic brain injuries (TBIs). I was also helped by the Cognitive Group, which consisted of survivors working on different goals/strategies for different areas of life. The belief is that each individual can improve his or her life after a TBI. The group is run by neuropsychologists and counselors.

15. Has your injury affected your home life and relationships and, if so, how?

Yes. My mother and sister are very distant mentally from me, since they don’t seem to have the desire to want to accept the change that this injury made. I feel it may be caused by a little pride with them, considering the fact that I believe that I was quite an intelligent woman before my injury. Before my accident, I was accepted into Ithaca College, since I wanted to delve into the medical field in some way. My mother and sister do not work well with the cognitive change in me that the injury has caused, such as my not desiring to be with large groups of people or my forgetting things.

16. Has your social life been altered or changed and, if so, how?

I believe my life has changed immensely. I used to have many, many friends and loved to be in large groups of people. Now, however, I don’t enjoy being in large crowds or in large groups of people. I get overwhelmed. I enjoy spending much more alone-time now, as well. I have even been taught how to crochet. I love doing crochet, especially when the winter months roll in.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I haven’t needed a caregiver, but I understand what it takes to be a caregiver, since I have had staff work with me on and off throughout the years.

Jen Swartz 218. What are your plans? What do you expect/hope to be doing ten years from now?

My future plans consist of buying a home with my fiancé through the Section 8 program. My fiancé will be my husband on May 27, 2017. I plan to continue working with Living Resources in the years to come, and my fiancé does as well.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

My helpful hint is to be patient. Remember: Slow and steady wins the race! Slow progress is key to amazing growth. Also, be open-minded to hearing from staff-members assisting to help you. If you listen to any suggestions, which may guide you to improve, you are being very wise in opening up your mind for possible progress.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Keep at it! Don’t give up! Also, you will grow if you listen to what “staff” suggest you do in order to improve! You can and will do it!
(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

 

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On The Air: Brain Injury Radio “Another Fork in the Road” Panel: Living and Coping with PTSD

On The Air: Brain Injury Radio “Another Fork in the Road”

Panel: Lisa Dryer and Julie Kintz

Living and Coping with PTSD

presented

by

Donna O’Donnell Figurski

images-1

Post Traumatic Stress Disorder (PTSD) is a condition that many people experience who are involved in traumatic events, such as physical or sexual assaults, traffic accidents, or any life-threatening traumas. PTSD is also often experienced by those who may witness a traumatic event. For Folks living with brain injury are often affected with PTSD.  PTSD is also common among troops returning from war with what was once called battle-fatigue or shell-shock.

 

Julie Kintz Survivor Panel 070515

Julie Kintz – Survivor

Dryer, Lisa Survivor

Lisa Dryer – Survivor

My panel, Lisa Dryer and Julie Kintz, both who live and cope with PTSD, joined me to discuss this topic. We hope to shed some light on what PTSD is and how survivors can cope with it. They each offer suggestions that work for them.

 

Several Facebook friends contributed comments and their thoughts about their experiences with PTSD. I want to thank Beth, Melissa, Sherrie, Firefighter JD (John Doe anonymous), Katey, Tara, JD2 (John Doe 2 anonymous), Jen, Alan, and Judi for their courage in sharing some very personal stories.

See you “On the Air!”

On The Air: Brain Injury Radio “Another Fork in the Road” Living and Coping with PTSD

 

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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SPEAK OUT! NewsBit: . . . . . . Wanting A “Sound Mind,” 30-Year-Old Football Player Retires

Wanting A “Sound Mind,” 30-Year-Old Football Player Retires

presented

by

Donna O’Donnell Figurski

 

husain_abdullah

Husain Abdullah – NFL Player

For seven years, Husain Abdullah played football in the National Football League (NFL), the premier professional football league in the United States. For four years, Abdullah, a safety, played with the Minnesota Vikings, and, for three years, he played with the Kansas City Chiefs. He graciously thanked both teams for allowing him to play. In the 2015 season, he had the fifth concussion of his career. While he was recovering, he thought about his many life-goals. Husain realized that he would need a “sound mind” to achieve his goals.

The research showing a link between the head trauma of football and the neurodegenerative disease CTE (chronic traumatic encephalopathy) is thought-provoking, and it has several players concerned. Even the NFL has admitted that there is a link between playing football and CTE, although the league later tried to downplay its comment. (CTE, originally known as “dementia pugilistica,” had only been seen in the brains of some boxers.

Dr. Bennet Omalu -

Dr. Bennet Omalu –

Dr. Bennet Omalu was the first to find the disease elsewhere – in a football player. Dr. Omalu renamed the disease “CTE.” Dr. Omalu’s discovery is the subject of the December 2015 movie Concussion, starring Will Smith. The real-life story is told in the PBS Frontline documentary, League of Denial: The NFL’s Concussion Crisis – available free online.)

Abdullah’s retirement follows other early retirements, most notably that of San Francisco 49er star rookie linebacker, Chris Borland, who cited the high risk of brain disease as his reason for retiring after playing only one year. Another rookie, Green Bay Packer wide receiver Adrian Coxson, retired after getting a severe concussion in practice and being told that the next hit might seriously affect his brain function or kill him.

Abdullah Husain - NFL Player

Abdullah Husain – NFL Player

It remains to be seen if Husain Abdullah’s retirement will be the last early retirement in the NFL due to football’s risk to the brain. (Full story)

 

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So, Whaddya Think? . . . . . . . . . We Must All Be Advocates for Brain Injury Awareness

So, Whaddya Think?

We Must All Be Advocates for Brain Injury Awareness

by

Beth Kidd Koziol

presented

by

Donna O’Donnell Figurski

 

so-whaddya-think-brain-th-4Having been a diehard NASCAR (National Association for Stock Car Auto Racing) fan for 50+ years, I’ve seen fatal injuries, career-ending brain injuries, and loss of job, spouse, or self – just part of the damage a traumatic brain injury (TBI) can cause. Once NASCAR realized the need, it made major changes to the requirements of all safety gear used on the driver and to the inside and the outside of the car. Great strides have been made with “soft”

Hans Device

Hans Device for Racing

walls, the HANS (head and neck support) device, a five-point harness system, crush panels in the sides of the car, and so much more. Bobby Allison’s racing career was ended years ago due to a brain injury – before so many changes were made. It wasn’t until the sport lost Dale Earnhardt, Sr. in a horrific Daytona crash that NASCAR really took safety to a higher level. They are still working on safety.

Kidd Koziol, Beth Survivor 2

Beth Kidd Koziol – Brain Injury Survivor

The brain injury community also has a major need. I wish there were more people in schools talking to young children to make them more aware of TBI. (Most children now learn about TBI if they have it themselves.) We want the public to be exposed more to and to be more aware of TBI. The public needs to know how to best try to prevent TBI. The knowledge could also lessen the damage if something happens – a fall, an accident, or whatever might happen.

Racing Cars 1288639-nascar-002_06172006

Awareness is vital. I’m sure that, like me, many survivors have had much trouble getting family and friends to understand what TBI has done to the person. I’m so tired of hearing, “You look fine. You talk OK. It’s just an excuse.” (I’ve heard those very words so many times that I decided to withdraw contact with those who hurt me.) I want to socialize, to have fun, and to be who I am now (ten years later). Recently, a neurologist told me that, due to my brain injury, I’m very high risk for early dementia. This was the first time I’ve ever been told this! So, what are we doing about the problem?

We must all be advocates for brain injury awareness in whatever ways we can to try and make a difference.

Kidd Koziol, Beth Survivor 3

Beth Kidd Koziol – Brain Injury Survivor

So, Whaddya Think?

Let’s get a dialogue going. Post your comments in the Comment Section. Directions are below.

So . . . what do you think? Is there something you are passionate about in this Brain Injury (BI) world? Do you want to be heard? Your opinion matters! You can SPEAK OUT! on “So Whaddya Think?”

Simply send me your opinion, and I will format it for publication. Posts may be short, but please send no more than 500 words. Send to Neelyf@aol.com

I hope to HEAR from you soon.

As I say after each post:

Feel free to leave a comment by clicking the blue words “Leave a Comment” below this post.

Please follow my blog. Click on “Follow Me Via eMail” on the right sidebar of your screen.anim0014-1_e0-1

If you like my blog, click the “Like” button under this post.

If you REALLY like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

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(Clip Art compliments of Bing.)

(Photos compliments of contributor)

TBI Tales . . . . . . . . . . . . . . . . . Don’t Let What You Survived Bring You Down by Karen Bradley Williams

Don’t Let What You Survived Bring You Down

by

Karen Bradley Williams

presented

by

Donna O’Donnell Figurski

 

Williams, Karen Bradley SurvivorI am a three-time traumatic brain injury (TBI) survivor (2007, 2010, and 2011). After my first one, I lost everything, including my husband, but I always had my mom. Now nine years post my first TBI, I am remarried to a wonderful man. He loves me, knows and understands my limitations, and treats me like a queen. I have gone back to college, and I am a nationwide certified pharmacy tech. I have real friends and a great life.

Don’t let what you have survived bring you down. Look at what you have made it through. Do not give up now. Your miracle is just around the corner.

 

(Disclaimer: The views or opinions in this post are solely that of the author.)

If you have a story to share and would like to be a part of the SPEAK OUT! project, please submit your TBI Tale to me at neelyf@aol.com. I will publish as many stories as I can.

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.anim0014-1_e0-1

Please follow my blog. Click on “Follow” on the top right sidebar. (It’s nice to know there are readers out there.)

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Feel free to “Like” my post.

(Clip Art compliments of Bing.)

 

SPEAK OUT! Guest Blogger . . . Ric Johnson . . . . . . . . . . . . . . . . . . Why You Should Tell Your Brain-Injury Story

Why You Should Tell Your Brain-Injury Story

by

Ric Johnson

presented

by

Donna O’Donnell Figurski

 

Boy Blogger thMarch is Brain Injury Awareness Month.  It’s said that brain injuries constitute an invisible and silent epidemic. Invisible? Yes, because most times we, “the walking wounded,” seem fine and because there isn’t a high-profile celebrity who is a spokesperson for brain injuries. Silent? Yes, again, because most of us prefer to blend in and don’t have a public forum to speak from.

Is it possible to stop having brain injuries called “silent” or “invisible”? Yes, it is. It’s all about educating the general public.

Let’s start first by explaining. What is the difference between a mild, moderate, or severe traumatic brain injury (TBI)? According to my dictionary, “traumatic” means “shocking,” “devastating,” “alarming,” “distressing,” “terrifying,” “upsetting,” “wounding,” and even more adjectives. Which seems like there is no such thing as a “mild” or “moderate” traumatic brain injury. The only apparent difference is what caused the injury. A brain injury is a different kind of injury. We didn’t break our arm; we broke our brain. We didn’t remove a cast after eight weeks and get on with life; we needed to relearn, refocus, and re-navigate into our old lives if or when possible. There isn’t a 100% healing process – any person who had a brain injury still has a brain injury and is still recovering.

Concussion seems to be a brain injury that’s mentioned everywhere these days. That’s good – people are beginning to understand concussions. But, concussions are mainly (not always) from sports (football, skating, soccer, and skiing, to name a few). I probably had two concussions after getting hit by cars. I didn’t think I had a concussion at the time, but the more I think about it now, the more I believe I had a concussion from each. I didn’t have any major problems that I can think of, but the accidents happened many years ago.

Johnson, Richard la5-seQbctqTwXPuELQm7w3ZPSPra73-BTYsV2TzFrmHjlfsj8CAdfvj1wnfejETg2tSTJ4rfqDvOL9oMI_160CYm__3H82mWGki2QEVhZYz8ZLYhqad7IsWyOqj_li8nObQrOkqqzVt95fKknyW4oNd7A0fSkhYMnExzhzeBcwPbATtvzU5LI-TdmefuMcdZc7l959--u6H5aNYtBUCZmiCBS0BWSmt

Ric Johnson – Brain Injury Survivor

Traumatic brain injuries seem to be getting more attention as well. A TBI may seem as the most serious type of brain injury, but only because of the circumstance that caused the injury (a violent blow/jolt to the head or an object penetrating the skull). Most people think TBIs come from actions like bomb blasts, combat, violent shootings, or horrible car accidents. Well, falls are main causes of TBIs – falling down stairs, falling from a ladder, falling when attempting to cross the street, etc.

My injury happened when I fell from a ladder while cleaning the gutters on my house in October 2003. I spent one month in HCMC (Hennepin County Medical Center) in a medically induced coma. I needed craniotomy surgery to relieve swelling on my brain. I had many MRI (magnetic resonance imaging) and CAT (computerized tomography) scans, a feeding tube, a tracheotomy, a session in the hyperbaric chamber, etc.

After waking from my coma, I spent the next two months in two different hospitals to see what, if any, therapy would be necessary. I started with physical, occupational, and speech therapy sessions daily. In January 2004, I was released and was back at home. I wore a protective helmet until the bone flap was reinserted on my skull in February 2004. I continued with speech and occupational therapies at Courage Kenny (Center) from January to September 2004. I went back to my full-time job in October 2004.

Since then, I have become a member of the Minnesota Brain Injury Alliance Speaker Bureau, and a facilitator for the Courage Kenny Brain Injury Support Group. It looks like I recovered nicely, but looks can be deceiving. It may seem like most survivors can go back to their pre-injury occupations. In fact, most survivors cannot.Typewriter 4C

So what can survivors do? They can become advocates for all survivors. Let the public know that a brain injury is perhaps the worst injury of all. It doesn’t just happen to one person; it happens to the entire family as well. Let the public know by telling your story.

 

Thank you, Ric Johnson.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Ric Johnson)

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Another Fork in the Road Reasonable, Responsible, & Realistic Resolutions

“Another Fork in the Road”

Fork in the Road copyThis category is an extension of my radio show, “Another Fork in the Road,” which airs at 5:30 pm (Pacific Time) on the 1st and 3rd Sundays of each month on the Brain Injury Radio Network. (See the “On The Air Show Menu” category for a list – with links – of all my shows, which are archived and thus always available.)

On the 1st Sunday of each month, I host a panel of brain injury survivors, caregivers, and/or professionals in the field. On these shows, my panelists and I examine topics pertaining to brain injury.

On the 3rd Sunday of each month, I host guests – brain-injury survivors, caregivers, or professionals in the field.

Since I spend countless hours in preparation for each show, I decided to share the knowledge that I gather with my readers.

 

Reasonable, Responsible, & Realistic Resolutions

by

Donna O’Donnell Figurski

 

blank list of resolutions on blackboard

New Year’s Day has passed. A new year is always a time of renewal – a time to look back on the past year and make positive commitments for the upcoming year. As humans, we seem to strive to improve, to make life better. The new year is a good time to correct old mistakes and to look to the future and make new plans.

I think this topic is appropriate now, as we look back on the past two months to determine if we are honoring our New Year’s resolutions. Did we, in fact, make reasonable, responsible, and realistic resolutions?

 It feels like the whirlwind of the holidays happened eons ago, and yet it’s just been two months. If you are like most of the population, you probably made resolutions on New Year’s Day – promises to yourselves that you would do something in your life to better it. In the days after the New Year’s celebration, you will see more people in the gym or running through the streets – maybe decked out in new running clothes to increase their motivation. You might hear folks talking about the new diet they are going to try to lose those unwanted pounds. Some folks vow to stop smoking or drinking, or at least they intend to cut down. Folks promise to take more time for family or friends, save money, travel more. new-years-resolutionsThe list goes on and on. Usually these resolutions are good intentions for the year that last maybe a week or two – perhaps even a month – but for whatever reason or reasons – time, lack of interest or motivation – many of these good intentions fall by the wayside.

Each new year, I usually make the resolution to exercise more. I start off okay, but not long after New Year’s Day is past, the motivation walking_girlstarts to wane. Lack of time, or more like “inability to properly manage time,” is a big factor for me. I seem to be always too busy with tons of projects, most of them involving writing. I work daily on my blog. I spend hours preparing my radio show. I’m writing articles for publication, and, of course, I have to write a lot of query letters to agents and publishers as I try to sell my book, “Prisoners Without Bars: A Caregiver’s Story.” It seems that the only things that ever get any exercise are my brain … and my fingers as they fly over the keyboard. Uh, did I say “fly”? I meant more like “stumble.” Most of my projects have deadlines – if not actual ones, then at least self-imposed ones. So, due to my over-commitments, this year I chose not to make any resolutions that I know I will not keep. Not keeping my resolutions only makes me feel like a failure, and that is not productive. I bet a lot of people fall into this category.

Folks with a brain injury are continually working to improve their lives, and New Year’s resolutions may seem even more important. Brain-injured people are used to taking small steps, but the temptation for New Year’s resolutions may be to try to do too much.

I’m going to discuss how to keep interest up and to make it possible to reach the goal of a reasonable, responsible, and realistic resolution.

DO YOU ENJOY YOUR GOAL?

Don’t have a goal you will never want to do. That’s a recipe for disaster. Is your resolution such a chore that you can easily find any excuse to NOT do it? If you’d rather clean toilets than complete your resolution, then perhaps you should reassess your resolution. toilet1I can pretty much guarantee that you will not be successful and that lack of success is certainly going to instill feelings of failure. I think a big part of being successful in keeping a resolution is to give the goal some thought first.

DECIDE HOW YOU WILL IMPLEMENT YOUR GOAL

If you want to get more sleep and go to bed earlier, then set an alarm for 30 minutes before your desired bedtime so you can start your sleep in bedbedtime preparations. If you want to always remember where your keys are, put a hook on the wall and ALWAYS hang your keys there. You will never have to search your home again for keys. Following a routine makes life easier. That goes for anything. Also, use available tools (calendar, Post-It notes, smart phone, etc.) to help you keep organized.

KEEP A TRACK RECORD

By keeping a record of your accomplishments, you are setting yourself up for success. You could keep a record in a journal-like notebook. journalSimply write the date at the top of the page, and write what you accomplished that day (e.g., Sit-ups – 5 minutes; Meditated – 10 minutes). You could also simply use a calendar dedicated just to your resolution and write your activity under each day that you do it. If you are computer savvy, you could keep a spreadsheet. Place the days in the left column; list the activities across the top. Then just put a checkmark in the box corresponding to day and activity. That would be the way I would do it.

I like to see my progress. It motivates me. I enjoy seeing how well I am doing – or NOT doing, so that I can readjust and improve. It may work for you too.

BE PATIENT – YOUR GOAL WILL NOT BE ACCOMPLISHED OVERNIGHT

Your success will not happen overnight. It will take time. You may even become lax at times, but don’t worry. The record keeping that we spoke of above will help to get you back on track.

Before his brain injury in 2005, my husband, David, used to do a half hour of his version of Tai Chi every morning. He’d run twenty miles each week, and he’d regularly lift small weights to strengthen weight_lifting_13his arms. He was fit and healthy. He exercised not only for his health, but also to leave the stress of his laboratory behind. David’s disabilities are all physical, including severely compromised balance, which makes him unable to run. He regrets this, but he has turned his attention to the treadmill – with its handrails – for exercise. He has also recently acquired a recumbent trike, which allows him to pedal away on his own with no danger of falling. None of this was possible when David first arrived home from the hospital. He was confined to wheelchair and bed. He could not even stand unassisted. It was a slow process – one that he has worked on over the past eleven years, but with small steps and small increments of exercise, he is gaining his strength and his independence.

So, no matter what your goal is, BE PATIENT. Reach for the stars, but remember, it will take time.

BE FLEXIBLE

If you choose a goal that you find is not appropriate – it’s too hard, it’s too easy, or you are not enjoying it – QUIT IT!

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It’s your life, and you can make the choices. Because you are a brain-injury survivor, I am sure there are many goals you would like to accomplish. Make new resolutions. (It doesn’t have to be a new year.) And, mix it up.

If you are not seeing the progress you want – for whatever reason, choose something else to work on. You can always come back and try again later. That’s why I encourage you to make reasonable and realistic resolutions. You want success to be imminent.

Once David tried a form of therapy on the recommendation of a friend who insisted that it helped her greatly, and, in fact, it did help her. David tried it for quite a long time and dedicated himself to it, but found it tedious and boring. He soon quit and set his sights on something more enjoyable that was not going to make him miserable. That’s where the flexibility comes in. Do what works for you.

TRY SOMETHING NEW

I mentioned earlier to “mix it up.” That’s not a bad idea for anyone. If boredom sets in, your chance of success will fall greatly. You won’t reach your proposed goal, and you will become disenchanted with the activity. The feelings of failure are right behind. So, don’t put yourself in that position. Make a new resolution, and try something different. It can be something different that is still familiar, or it can be something so different that you have never done it before.David on Recumbent Trike

I want to go back to the story of David’s recumbent trike. In his adult life, he never rode a bicycle. As I mentioned, his preferred method of exercise was to run. When that was no longer a viable exercise mode, he turned to a recumbent trike. That has changed his post-brain-injury life. Before the trike, David was unable to leave the house alone. Now he can leave whenever he wants to. He is able to go to the garage, get on his trike, ride for several hours, and return. (The only thing he cannot do is get off the trike anywhere else because his balance issues do not allow him to walk freely outdoors.) So, try something you have never done before. Maybe you always wanted to draw or paint. Do it.

HAVE A BUDDY FOR SUPPORT

You may want to exercise with a buddy. Exercise can be much easier with a friend. I much prefer walking and talking or treading water in the deep end of a pool and talking or rotating through the machines in the gym and talking. Are you seeing a pattern here? I find exercising with a friend much more enjoyable than exercising alone. No matter what your goal is, if you can do it with someone else, it makes the exercise easier. It also adds an element of accountability. If you have made plans with a friend, you are more likely to meet your goal.swimming

For most survivors with brain injury, life has drastically changed. The kinds of resolutions that you may have made before your brain injury are now more than likely impossible to attain. But, that doesn’t mean that you can’t set goals that you can successfully achieve. The gym may be out of the question, but you can set aside some moments at home for leg lifts, small weights, push-ups, stepping-in-place, etc. You can do anything to keep your body fit.

Each brain injury is different. The disabilities that accompany each brain injury are wide and varied. For some folks, the injury entails only cognitive/learning disabilities or emotional issues. For others, the brain injury might include physical disabilities.

So basically, you want to assess what you can do to improve your life while not being miserable. You want to make resolutions that can fit into your lifestyle. You don’t want to set your goals so high that they cannot be achieved. But, if you set your goals too high, change them. Make your resolutions reasonable, responsible, and realistic. Most of all, make them FUN.

have_fun

 

Click here to listen to my show:

“Responsible Resolutions” on “Another Fork in the Road,” on the Brain Injury Radio Network.”

(Clip Art compliments of Bing.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Commentanim0014-1_e0-1 below this post.

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