TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘TBI Survivor’

SPEAK OUT! . . . . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

11136933_10155590257065643_153293147_nLisa Marie Cohen (survivor)…I hiked a mountain! It was Mount Beacon on the Hudson River.

Bonita Gibb (caregiver)…I was reflecting on how I came to be the person I am today. One of the moments in my life canstock5980362that showed me my true colors was sitting in the ICU (intensive care unit) and praying for a miracle. It was during that dark time that I realized just how strong I am. While I would do anything to give my husband, Brian, back his independence, I also am thankful for that moment and all it had to teach me.

Sarah Klingler (survivor)Graduate broomfield-orthodontics-graduation-cartoonI learned that I can do anything as long as I put my mind to it. I got my TBI when I was eight. I started having seizures the next week, and they haven’t stopped. As a result, I’ve never driven. But, I graduated from high school with honors, and I am two semesters from getting my Bachelor’s Degree in elementary education.

Pamela Miceli (caregiver)Welcome HomeMy son came home for good last week after fifteen months of rehab! Can we say that this is a Great Big Giant Step?

Tina Thorne (caregiver)…My son, Jordan, is a two-time brain-cancer survivor and has had an ABI (acquired brain injury) since the age of twelve. He is eighteen now. He received a very nice message from a lady representing the Brain Tumour Foundation of London, Ontario, Canada. The foundation wanted Jordan to attend a special dinner for an event on the foundation’s behalf. docs-on-ice-generic“Docs on Ice” is an annual event that travels from community to community. Nine hundred doctors from across Ontario come to a city and raise money for an individual charity every year. This year the city is London and the charity is the Brain Tumour Foundation. Darryl Sittler, a retired National Hockey League player who was elected to the Hall of Fame and who played for the Toronto Maple Leafs, was the guest speaker. Jordan was an ideal choice. He is a brain-injury survivor and a hockey buff. He thanked Darryl Sittler for helping to raise funds for the Brain Tumour Foundation and for raising awareness of brain injury. Jordan also met Master of Ceremonies Joe Bowen, “The Voice of the Leafs.” The mayor of London was also in attendance. I am super proud of Jordan!

Kimberly June West (survivor)…I am a consultant for a therapeutic oils company! YAY! These oils are awesome. I was getting sad from all my pain. EssentialOilsThey have given me a love for life and a passion for living. These are products that people love – bath infusions for pain, migraines, eczema, difficulty sleeping, etc. The awesome thing is that I made the leadership team and VIP consultant two months in a row!

YOU did it!

Congratulations to all contributors!

(Clip Art compliments of Bing.)

SPEAK OUT! . . . . . . . . . . . . . . . . . . . Guest Blogger: Kristin Olliney . . . My Fight: The Reason to Advocate

My Fight: The Reason to Advocate

by

Kristin Olliney

(presented by Donna O’Donnell Figurski)

Girl Blogger cartoon_picture_of_girl_writingIsabella’s Acquired Brain Injury (ABI) is the result of sudden acute encephalitis. However, there was also medical error involved in her care. Given the many factors involved, it is difficult to prove which symptom caused what damage. Due to this, no one will ever be held accountable for what happened. As a result, there are four important reminders that everyone needs to know.

  1. It doesn’t matter where you live. Even in the best city, at the best hospital, with the best doctor, mistakes can happen. I am often told how lucky I am to live in the Boston area because we have access to so many medical facilities. While this is true, not all doctors and care are the same.
  1. Doctors are human. They are people who have studied medicine and, based on their knowledge, give you their opinion. It is not fact. It is opinion. Their opinion is their best guess. This is so important to remember, especially when given a prognosis. Isabella, like many other survivors, was not supposed to make it through the night, and yet she did.

    Kristin Olliney with Isabella 2014

    Kristin Olliney with Isabella 2014

  1. Always follow your gut instinct, especially if something doesn’t seem right. Ask questions. When Isabella first got sick, the Emergency Department wanted to discharge her with a stomach bug. I knew that there was something seriously wrong. I can’t explain how I felt – only that I just knew. I fought and advocated to get Isabella admitted into the hospital. One of Isabella’s specialists was on call, and he trusted my gut instinct. Later in the PICU (pediatric intensive care unit), as I watched my child fighting for her life, I was told by him and other doctors that my fighting and advocating saved Isabella. If Isabella had been discharged, she would have died. Always fight and advocate for what you feel is right. You know your child/loved one better than anyone.
  1. Get another opinion. When you are in crisis, there isn’t always time. When things stabilize, seek out another opinion should you and the doctor have a difference of opinion. On this journey, things can change. Opinions differ, treatment options vary, and, if there are fundamental differences, another opinion can help.

    Kristin Olliney & daughter, Isabella  2015

    Kristin Olliney & daughter, Isabella
    2015

For me, it is hard knowing that the doctors who cared for my daughter made mistakes. Coming to terms with the fact that no one will ever be held accountable for what happened to Isabella is difficult. I know Isabella is here because I fought and advocated. It is still devastating to know that mistakes could have been prevented. I am sharing this part of our journey in hopes that it will encourage others to continue to fight and advocate for their child/loved one. Against all odds, my amazing miracle is here today, and, for that, I am forever grateful.

To learn more about Kristin and Isabella, please visit Kristin’s website/blog at In An Instant Your Life Can Change Forever – Brain Injury Association of Massachusetts Blog

Thank you, Kristin Olliney.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Kristin Olliney.)

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TBI Tales . . . Tracking Miles in Electric Blue and Shiny Mango

Tracking Miles in Electric Blue and Shiny Mango

by

Donna O’Donnell Figurski

Cat TrikeCatherine (Cat) Brubaker (TBI survivor) got a black Catrike 700. Dan Zimmerman (StrokeZimmerman, Dan survivor) got a black Catrike 700. They pedaled across America diagonally, 5,300 miles, and it changed each of their lives.

David Figurski (TBI survivor) got a trike, an electric blue Catrike 700, the same model as Cat and Dan’s, but a different color.040915 David 1st Ride Catrike 700

Donna O’Donnell Figurski (copycat) got a trike, too. Though to show her independence, she didn’t get a Catrike 700. She went for the Donna's Pocket 040915Shiny Mango Pocket Trike. It’s cute!

DonnaNow David and Donna want to match Cat and Dan’s GOAL! We want to trike 5,300 miles in the desert. I wonder how long it will take us.

LET’S GO!

NAME          DATE                     Total MILES since 4/9/15

David           1/24/16                    1,570

NAME          DATE                    Total MILES since 4/9/15

Donna          1/24/16                 79

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.anim0014-1_e0-1

Please follow my blog. Click on “Follow” on the top right sidebar. (It’s nice to know there are readers out there.)

If you like my blog, share it (intact) with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it (intact) with your enemies. I don’t care!

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(Clip Art compliments of Bing.)

(Photos compliments of Me.)

TBI Tales . . . . . . . . . . . . . . . . . . Freedom and a Blue, Metallic Trike

FREEDOM and a Blue-Metallic Trike

(presented by Donna O’Donnell Figurski)

 

040915 David 1st Ride Catrike 700April 9, 2015 marks a pretty exciting day for us. It’s the first official day of David’s independence since his brain injury in 2005. David recently bought a Catrike 700 recumbent trike. This sleek, low-to-the-ground, metallic-blue machine will be his wheels and his freedom.

Because of severe balance issues due to his brain injury and the damage to his cerebellum, David has been unable to leave our home unattended for the past ten years. With his Catrike 700, he can hop on and and pedal away for hours and hours. (Well, not really hop on, but that sounded better than crawl or climb on.) Of course, his limitation of getting off the trike because he is unableFigurski, David Trike to walk anywhere on his own remains a problem. But, that won’t deter David.

David’s first excursion was a 5-mile trip around the winding, scenic roads in our neighborhood. Pedaling down streets lined with palm trees and a variety of cacti, many of which are in bloom right now, was liberating and fun, if the grin plastered on his face when he returned was any indication.

DonnaLater the same afternoon, David guided me on my first recumbent-trike trip. I have a yellow/mango Pocket Catrike, and I love it.

Today, David is riding with friends in a neighboring community. What fun! This is only the beginning.

Donna's Pocket 040915

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.anim0014-1_e0-1

Please follow my blog. Click on “Follow” on the top right sidebar. (It’s nice to know there are readers out there.)

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

 

(Clip Art compliments of Bing.)

(Photos compliments of Me.)

SPEAK OUT! . . . . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

Michelle Lee Bonnenfant (survivor)…With hubby’s help, I made it through a busy grocery store. pix0138Ken, my hubby, got me in and out in one piece! He even stood three feet behind me in the check out so that I would not get crowded by people. It was the first time in months that I went through a check out. I was plagued by a lot of sweat and chest pain, but I still did it. I hate my TBI and PTSD (post-traumatic stress disorder), but Ken gave me a big hug and told me that he was proud of me. I’m exhausted, but pleased with myself!

Cara Lauderdale Eberle (caregiver)…The one-year anniversary of my husband’s accident was April 1st. While I was at work sitting at a table of four-year-olds trying to get them to do a project with me, Eberle,  Cara Lauderdale  FlowersI saw them all stop and look up. Standing next to me was my husband holding a beautiful bouquet of flowers. I was in complete shock! He hasn’t shown any concern for the feelings of others since the accident. He told me he thought that he should do something to thank me for helping him get through the last year. This was definitely a breakthrough moment for us. 🙂

David Figurski (survivor)…I am excited! I took delivery of a Catrike 700 recumbent trike. It’s the same model that was used by Catherine Brubaker (a two-time TBI survivor) and Dan Zimmerman (a stroke Figurski, David Trikesurvivor) on their five-month, cross-country ride from Washington State to Florida. Cat and Dan espouse their new-found freedom, and their new physical capabilities are truly amazing. They both believe that riding a recumbent trike is great therapy. Also, my wife, Donna, just took delivery of the Catrike Pocket, a slightly smaller trike. Donna, Cat, Dan, and I plan to ride together.

Corina Mendoza (survivor)…I passed my teaching exam for Special Education! I passed both teaching exams I needed on the first try.

Mendoza, Corina Test Scores 033015

 

 

YOU did it!

Congratulations to all contributors!

(Clip Art compliments of Bing.)

Speaking Engagement . . . . . . . “Prisoner Without Bars . . . . . . . . . . . A Caregiver’s Story”

YOU ARE INVITED!

 

putthis_on_calendar_clip_artWhen Donna’s spouse, David, did one chin-up too many, he had a brain injury (BI), and Donna became a caregiver. David had three brain surgeries within two weeks. Donna signed on the dotted line for each of them – probably the hardest thing she has ever done in her life. Donna will share her story, “Prisoner Without Bars: A Caregiver’s Story” about David’s unexpected recovery and how she and David are making this “new normal” work for them. She will also share tips and offer David Figurski 2004 Pre-Brain Injurysuggestions from what she learned along the way.

It’s been a long, bumpy road for both David and Donna, but they travel that road together.

Come One! Come ALL!

Donna and David Post-Brain Injury  2010

Post-Brain Injury 2010

 

What:        Donna will share her experiences with caregiving and will offer tips based on what worked for her. Donna  will also share snippets of her book, “Prisoners Without Bars: A Caregiver’s Memoir,” which is searching for a publisher.

Why:        Hopefully, Donna’s experiences with caregiving will help others who might find themselves in this position

When:       Monday, April 6, 2015

Time:         1:00 to 2:30pm

Where:      Desert Palms Presbyterian Church
13459 W. Stardust Boulevard
Sun City West, Arizona 85375-2548

(Clip Art compliments of Bing.)

(Photos compliments of Donna)

SPEAK OUT! . . . . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

 

Itty-Bitty GIant Steps for BlogSPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at neelyf@aol.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

 

Here are this week’s Itty-Bitty Giant Steps

Cat Brubaker with Congresswoman Krysten Sinema

Cat Brubaker with Congresswoman Krysten Sinema

 

Catherine (Cat) Brubaker (survivor)…I’m very excited to have gone all the way to Washington, DC, all by myself.

I planned it, and I got to my appointments on time. I still used a wheelchair at the airport because of overstimulation, shaky balance, and the possibility of getting lost. I met with my congresswoman about brain injury and about helping me with my new foundation, Hope for Trauma. I can’t believe how far I’ve come in a year. I feel very excited.

Jonathan Curtis (survivor)…Today I had an amazing day at Website-Volunteersmy volunteer job at a nursing home. I went with a difficult resident to an eye clinic appointment, and I organized a movie in the nursing home coffee shop. I felt so able and competent!

Keri Giacomini (caregiver)…My husband, John, had a very severe TBI almost twelve years ago. While he was at college, he fell out of a third floor window. The only residual problems are from aphasia. But, he does really well. Also, he is so sweet and thoughtful. A few days ago, we were thtalking about my care bear, which I’ve had since I was four (that is, for 27 years). He is a secret bear. He is now brown, has no eyes, and doesn’t talk. John knows how much my care bear means to me. He’s been with me through the toughest of times – surgery, hospitalizations, etc. I have Crohn’s Disease, and my care bear has always been my comfort. Well after we were talking, John went on eBay and ordered me an original secret care bear that still talks. He knows how much it means to me. It was probably the sweetest thing he’s done. I just thought I’d share what he did because, while John is always caring and sweet, sometimes it’s hard for him to initiate things.

Timothy Guetling (survivor)…Swaim Guetling is soon to graduate from the University of California at Santa Barbara (UCSB). He is a Communications major with a 3.5 GPA. Swaim is my Swaim Guetling21-year-old son. I’m thankful that he is where he can do best for himself and that he took the love, respect, and guidance from his parents to assist him in his future, wherever it takes him. Swaim speaks four languages. He has been around the US, India, and China with his fellow students. I am stoked to the max. He’s a chip off the old block, except he has hair!

 

YOU did it!

Congratulations to all contributors!

(Clip Art compliments of Bing.)

 

SPEAK OUT! . . . . . . . . . . . . . . . . . Faces of Brain Injury

Brain Injury is Not Discriminating

bigstock-cartoon-face-vector-people-25671746-e1348136261718It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury – one view at a time.

 

Cam Compton (survivor)

11056773_804796876222530_117254145_nOn March 21st, I celebrated my “strokaversary.” Three years ago, I suffered a stroke. It has changed my life dramatically. I am still “me” – still Cam – but at the same time, I am not. I have learned to live and to love this new me. I have had fun. Whatever I was before (like fun or nerdy), I am still that, but three times more so now. I have met many new friends. I have done things that I would never have done if I had not had my stroke: my billboards, the talks, facilitating a stroke support-group, the stroke walk (mark April 18th on your calendar), and my newest – Brain Injury Radio host. I will be hosting my own show on the second Friday of every month. I’m happy to be here alive and on this side of the dirt.

 

Lindsey Dunn (survivor)

Dumm, Lindsey Survivor 032015 10686800_10101531483831264_2468134818312325958_nYesterday was two years ago that I fell about sixty feet on a spiral staircase in Valencia, Spain. I hit my Dumm, Lindsey Survivor 032015 10407045_10101650526873054_7173077641176124389_nhead on the way down (on one of the metal spindles), causing me to get a traumatic brain injury. I am actually very happy that this happened to me. I’m lucky that people have Dumm, Lindsey Survivor 032015  11043033_10101641035463914_6164584326813463685_nstuck by my side through this trial. Maybe my story will give hope to people and God can use it to help others.

 

Marcel’s moms (caregivers)

10711_356648177855326_33065405394910668_nWhen our son, Marcel, was eleven months old, he suffered a severe TBI. The doctors told us that he would never eat, walk, see, or talk – basically that he would be a vegetable. It’s been eight months, and his vision is starting to come back, he’s smiling and laughing, and he’s getting neck strength back. His limbs are getting stronger and starting to move a lot. MarcelHe’s learning how to eat again. And he babbles like a baby. Marcel has come so far, but he still has a long way to go. Obviously, God has plans for Marcel because he is a fighter. He was so close to dying, but he fought to stay here. A lot of people, doctors, and nurses told us all the things that our son would never do. Our boy will continue to fight and prove to everyone that he can. He’s doing many of them already.

 

Daniel Wondercheck (survivor)

Wondercheck, Daniel Survivor 0311815On July 23, 1991, I was involved in a construction accident that was serious enough to smash my hardhat, crack my skull, and knock me out for six days. I spent 85 days in the hospital, 95 days as an inpatient in a rehabilitation hospital, and another 186 days in rehabilitation as an outpatient. Now – twenty-three years and nearly eight months later, I still use a wheelchair, I talk funny, I have involuntary movements in my extremities, my left eye moistens itself approximately half as much as it should, and my right eye does not moisten itself at all. For 26.5 hours per week, I have a personal assistant who helps me with daily-living activities. (My personal assistant is also my best friend and “guardian angel.”) But, I do have enough mental ability to be a top-rated Power Seller on eBay and to be an administrator for an online support-group for traumatic brain injury survivors (Traumatic Brain Injury – TBI – Terrific Beyond Injury).

 

(Clip art compliments of Bing.)

(Photos compliments of contributors.)

SPEAK OUT! Faces of Brain Injury Catherine (Cat) Brubaker

bigstock-cartoon-face-vector-people-25671746-e1348136261718

It can happen to anyone, anytime, . . . and anywhere.

The Brain Trauma Foundation states that there are 5.3 million people in the United States living with some form of brain injury.

On “Faces of Brain Injury,” you will meet survivors living with brain injury. I hope that their stories will help you to understand the serious implications and complications of brain injury.

The stories on SPEAK OUT! Faces of Brain Injury are published with the permission of the survivor or designated caregiver.

If you would like your story to be published, please send a short account and two photos to me at neelyf@aol.com. I’d love to publish your story and raise awareness for Brain Injury.

Catherine (Cat) Brubaker (survivor)

Catherine Cat Brubaker 031915Catherine Brubaker is a two-time traumatic brain injury (TBI) survivor. Using her walker, Catherine, who was determined to take back her life, walked into Sun Cyclery in Phoenix, Arizona, in September 2013 and purchased a recumbent trike.

On June 29, 2014, she joined a stroke survivor and began what was to become the journey of her lifetime. Catherine and her new riding partner rode 5390 miles across America on their recumbent trikes. The trip took 5 1/2 months. It started in Anacortes, Washington, and concluded in Key West, Florida. Catherine pedaled over several high-altitude mountain passes and persevered through snow, rain, mud, and every imaginable obstacle. Through this experience, Catherine has been able to regain her freedom and confidence, find purpose, and rebuild her body as part of her recovery from undignified tragic circumstances.Catherine-journey-SFS MAP

Catherine actively reaches out to inspire brain injury survivors to help them reclaim their lives through recumbent trikes and art. She is scheduled for several speaking engagements across the nation in 2015.

Catherine has partnered with “Spokes Fighting Strokes” (SFS) in her grassroots effort to encourage a national conversation about brain injury, regardless of its cause. Together, SFS and Catherine will teach as many brain injury survivors as possible to ride recumbent trikes to aid in their recovery. Success stories can be found on Catherine’s website (www.irideforhope.org).

As part of her recovery, Catherine was enrolled in a special program called “Artists for Trauma,” which has brought her great joy. Catherine has recently been named the Brain Injury Ambassador for this foundation. She is honored to be a part of this effort, and she looks forward to contributing her art and collaborating with artists and trauma survivors. Her works of art and photography can be found at http://www.irideforhope.org. All proceeds go toward her foundation.

Brubaker, Catherine CAT Hope for TraumaCatherine is also in the process of launching a foundation called, “Hope for Trauma.” Its mission is to encourage a national conversation about brain injury, regardless of its cause. Her foundation will also be concerned with brain injury’s impact on survivors and their families and with the invisible challenges they face.

Catherine’s road to her newfound freedom has been long and filled with obstacles. After being assaulted in 2010, which caused Catherine’s initial TBI, she had to relearn how to walk, talk, and eat on her own. This involved many months and multiple physicians (often several in a day). In 2012, Catherine’s heart began to fail, and she was on the brink of death. She received a pacemaker and a new chance at life. Luck was not on her side, though, and she was in a collision with another vehicle shortly thereafter. Catherine had to once again relearn how to walk, talk, and do basic daily tasks.

Catherine can no longer drive or live by herself. She lost her career and her ability to be independent.Catrike 700 Blue Cognitively Catherine was set back to early grade school. Her primary relationship became strained, as her partner became her caregiver. Eventually the strain became too much for her partner. Faced with these losses, Catherine hit rock bottom. She tried to take her own life in March 2014. Shortly afterward, Catherine met her current riding partner. It was in that meeting that she learned of the ride across the US. That spark ignited her competitive spirit and gave her a new outlook on life.

Prior to her TBIs, Catherine was an accomplished professional. She went to Pacific Union College in Napa, California, and graduated with a B.S. degree in Psychology. She worked with military veterans and offered them financial, investment, and insurance services. She led a team of 12-15 associCuracaoMarriott_oates. During her career, Catherine decided to pursue a Master’s degree in Leadership, which she obtained in 2007. She accomplished this with a 4.0 GPA and while working full time! She was also an avid skier on black diamond runs, and she enjoyed running two miles daily, rain or shine.

To learn more about Catherine, check out these sites.

Survivors SPEAK OUT! Catherine (Cat) Brubaker

Catherine (Cat) Brubaker: Triking Across America

“Another Fork in the Road” Brain Injury Radio Network – “Triking Across America Diagonally” with Catherine (Cat) Brubaker

On the Air – Brain Injury Radio: Interview – Catherine Brubaker – Triking Across America

Catherine Brubaker’s Photo Journal (Part 1) Washington to Florida

“Another Fork in the Road” Brain Injury Radio Network – Catherine (Cat) Brubaker’s and Dan Zimmerman’s Reflections – Triking Across America

(Clip art compliments of Bing.)

(Photos compliments of contributor.)

On the Air: Brain Injury Radio Another Fork in the Road . . . . . Joshua Puckett and wife, Tatiana

On the Air: Brain Injury Radio

Another Fork in the Road

with Brain Injury Survivor, Joshua Puckett and his wife, Tatiana

images-1

Joshua Puckett was just minding his business in his own front yard when he was attacked by a “random
drunk person” causing his brain injury. Now he says he has a “memory of a fish.”Joshua Puckett - TBI Survivor 2013
Memory problems combined with balance issues, anger, and confusion have become the “new norm” in his new life.

But, Joshua is overcoming his deficits by directing his attentions to his art and his music. Both are opening new doors in this talented young man’s life.

If you missed his interview on “Another Fork in the Road” on March 15th, you are in luck. You can listen to the archived show here.Joshua Puckett & Tatiana Puckett

Click the link below to listen to Joshua Puckett, his wife, Tatiana, and me.

See you “On the Air!”

On the Air: Brain Injury Radio – Another Fork in the Road

with Brain Injury Survivor, Joshua Puckett and his wife, Tatiana

Click here for a list of all “Another Fork in the Road” shows on the Brain Injury Radio Network.

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