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TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘survivingtraumaticbraininjury.com’

SPEAK OUT! . . . . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

presented by

Donna O’Donnell Figurski

SPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at neelyf@aol.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

Here are this week’s Itty-Bitty GIANT Steps

Gill Evans (caregiver)…Hubby informed me this afternoon that his world is a better place for my being in it. And then, he offered to make me a cup of peppermint tea. Bonus! Unfortunately, he got distracted, and I got black coffee with a peppermint tea bag in it. Ah, well! It’s good that we can laugh, isn’t it?

Lee Staniland (survivor)…Man, oh man! I have been going around and around with Time Warner. The bill was way high, so I called and got it down a lot. Then, when I went to pay the bill, it wasn’t in the system yet. I was told to wait a few days. I did, and the bill still wasn’t in there. So, I bitched and bitched and went through at least three people. I finally got it down some, and I thought it was over. Well, they just called me. The bill was even lower, and I have all kinds of the stations, like HBO and all the good ones. IT PAYS NOT TO GIVE UP!

Linda Wells (survivor)…Exciting news! I will receive this year’s Survivor Honoree Award from the Brain Injury Center (BIC) of Ventura County. This means a lot to me. My dear late husband, Rex, and I are two of the founders of the BIC. It started in a living room with six other people. Rex looked and looked for a place for all of us to fit in. That is how it happened to go from a living room to now – “An Evening of Magical Memories.” I am honored that I have been chosen this year. I intend to continue to educate all. Thank you, BIC!

YOU did it!

Congratulations to all contributors!

(Clip Art compliments of Bing.

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Itty-Bitty GIANT Step

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On The Air: Brain Injury Radio “Another Fork in the Road” Interview with TBI Survivor & Cross-Country Cyclist, Daniel Mollino

On The Air: Brain Injury Radio “Another Fork in the Road”

Interview with TBI Survivor & Cross-Country Cyclist, Daniel Mollino

presented

Donna O’Donnell Figurski

Daniel talks about how he was working at the top of a telephone pole for a cable company in northern New Jersey when he fell more that 25 feet causing his brain injury. He shared some of his adventures of his journey from New Jersey to California and his goals for raising awareness for TBI Survivors everywhere.

If you missed his interview on “Another Fork in the Road” on June 21st, you are in luck. You can listen to the archived show here. Click the link below to listen to Daniel Mollino and me.

See you “On the Air!”

On the Air: Brain Injury Radio – “Another Fork in the Road”

Daniel Mollino, Survivor Cycles Coast to Coast

Click here for a list of all “Another Fork in the Road” shows on the Brain Injury Radio Network.

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On the Air!

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Survivors SPEAK OUT! Michael Lee Savage

Survivors SPEAK OUT! Michael Lee Savage

presented by

Donna O’Donnell Figurski

1. What is your name? (last name optional)

Michael Lee Savage

2. Where do you live? (city and/or state and/or country) Email (optional)

Spokane, Washington, USA

3. On what date did you have your brain injury? At what age?

I was 43.

4. How did your brain injury occur?

It started with double vision on February 26, 2003. I went to Urgent Care, and they immediately took me for an MRI (magnetic resonance imaging) scan, which showed a bleed in my brainstem called a cavernous hemangioma (a type of blood vessel malformation, where a collection of dilated blood vessels form a tumor). They sent me home to watch it. It bled three short weeks later. They wanted to operate, as the bleed had presented itself outwardly. My neurologist said I could wait. It didn’t bleed again until January 25, 2009, almost six years later. I was sent to Seattle, Washington, to have the surgery.

5. When did you (or someone) first realize you had a problem?

The morning I went to Urgent Care.

6. What kind of emergency treatment, if any, did you have?

I had a CT (computed tomography) scan and an MRI scan.

7. Were you in a coma? If so, how long?

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I was in the ICU (intensive care unit) for twenty-one days and in an acute care center for another four weeks. I then had inpatient rehab for three weeks.

How long were you in rehab?

Three weeks

9. What problems or disabilities, if any, resulted from your brain injury (e.g., balance, perception, personality, etc.)?

I couldn’t walk, talk, see, or swallow for over four months. Nystagmus (rapid involuntary movements of the eyes) and secondary dystonia (a disorder characterized by involuntary muscle contractions) came on while I was in rehab.

10. How has your life changed? Is it better? Is it worse?

My brain injury took away all of my independence, like driving and walking unassisted. I have a feeding tube. My speech is slurred. The right side of my face droops, and my entire left side below the neck is numb.

11. What do you miss the most from your pre-brain-injury life?

Both independence and friendship have run away.

12. What do you enjoy most in your post-brain-injury life?

I have regained my joy of cycling.

13. What do you like least about your brain injury?

I dislike not being able to see or to walk without loosing my balance. Lockjaw prohibits me from eating my favorite foods. Also, my voice is gone.

14. Has anything helped you to accept your brain injury?

Physical therapists and riding my bike with my “guide-bride,” Patty, have helped me. They constantly stay on me to improve my quality of life, and they challenge me when I want to quit.

15. Has your injury affected your home life and relationships and, if so, how?

Yes. I am not able to contribute to daily rituals. Most of my relationships have suffered, including my romantic relationship with my wife.

16. Has your social life been altered or changed and, if so, how?

Yes. It is hard to eat with others. Most of my friends can’t deal with my appearance and my stressed voice.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My wife is my main caregiver. Yes, I do understand how difficult it is, and it is very hard, considering our age and how much I still can’t do without her.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to enjoy life more than I am now. I hope to be living life as normally as I can.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Keep fighting to move – do the exercises, no matter how silly they may seem. They all have a purpose, and there are some that I wish I would have done and stuck with.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Never quit moving. Never give up hope. I immediately got a trike so I could feel human again. And now, six years later, I’m walking around town with a cane. I’m walking on flat surfaces without any cane. Fight for your independence. It’ll be the biggest battle you’ve ever faced, but eventually you’ll inspire others. They will say, “If you can do it, I can too.”

Thank you, Lee, for taking part in this interview. I hope that your experience will offer some hope, comfort, and inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Photos compliments of Michael Lee Savage.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

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Survivors SPEAK OUT!

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“Another Fork in the Road” . . . Brain Injury Radio Network . . . Interview: Daniel Mollino

YOU ARE INVITED!

Daniel Mollino – TBI Survivor & Cross-Country Cyclist

Meet Daniel Mollino

When Daniel fell from the top of a telephone pole while running cable for a New Jersey cable company, his life changed forever. His fall resulted in a TBI (Traumatic Brain Injury). Daniel now deals with fatigue, memory loss, balance issues, and daily pain, but he won’t let these health problems get in his way of his living life to its fullest.

Daniel plans to make a difference in this TBI world for all survivors. At the end of March 2015, Daniel set out to cycle solo across the USA from New Jersey to California to raise awareness of Brain Injury.

Come One! Come ALL!

What: Interview with Daniel Mollino – TBI Survivor & Cross-Country Cyclist

Daniel Mollino – TBI Survivor & Cyclist

Why: Daniel will share his story of Brain Injury and how he plans to make a difference in the Brain Injury world.

Where: Brain Injury Radio Network

When: Sunday, June 21st, 2015

Time: 5:30p PT (6:30p MT, 7:30p CT, and 8:30p ET) 90 minute show

How: Click: Brain Injury Radio Network

Call In: 424-243-9540

Call In: 855-473-3711 toll free in USA

Call In: 202-559-7907 free outside USA

or SKYPE

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening. The archived show will be available after the show both on the Brain Injury Radio Network site and on my blog in “On the Air.”

(Clip Art compliments of Bing.)

(Photo compliments of Daniel Mollino.)

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Events Calendar

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SPEAK OUT! . . . . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

presented by

Donna O’Donnell Figurski

SPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at neelyf@aol.com.

I hope we have millions of Itty-Bitty Giant Steps.

Here are this week’s Itty-Bitty GIANT Steps

Clydeine Adamchick (caregiver for her son)…My son was six when it happened. His brain injury took away most of his ability to learn. But, it left him more creative. He has overcome so much. He graduated high school, and he is writing a book.

Barbara Wilson Asby (survivor)…I had an awesome visit with Dr. O. today! I’m 100% clear for all my driving needs. I will go through testing to start going back for occupational therapy in September. Sooooo, I think I am going to take the plunge. A newer car is coming soon. I shall start looking next week, I think. It might be hard departing ways from my “silver bullet.” (LOL)

Natalie Elliott (survivor)…I went to my counseling appointment.

YOU did it!

Congratulations to all contributors!

(Clip Art compliments of Bing.

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

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Itty-Bitty GIANT Step

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SPEAK OUT! Faces of Brain Injury William Jarvis

SPEAK OUT! Faces of Brain Injury – William Jarvis

presented by

Donna O’Donnell Figurski

Brain Injury is NOT Discriminating!

I acquired a severe TBI (traumatic brain injury) from a car collision in 2000. It put me into a coma. I was in hospitals one and a half years. As with most survivors, there were challenges when I went home. I continued to have problems walking and with cognitive functions. It has been a long road, but life is good. I speak about how to improve after a TBI, I write inspirational books, and I engage with life as much as possible. I must pace myself because, after fifteen years, fatigue is still an issue. The good news is that, if a survivor never gives up setting goals for improvement, there is hope. I recently moved to Myrtle Beach, South Carolina, USA, and enjoy helping other survivors through a TBI support-group, doing community activities, and giving presentations on “Improvement Through Motivation.” My web site is http://billjarvis.org/.

Disclaimer: Any views and opinions of the Contributor are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

Category:

Faces of Brain Injury

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SPEAK OUT! . . . . . . . . . . . . . . . . . Guest Blogger: Jennifer Stokley Transitioning and Brain Injury

Transitioning Can Work in Odd and Wonderful Ways

Jennifer Stokley

presented

by
Donna O’Donnell Figurski

When I moved into my new home back in September, I was a stranger – scared and so alone. I had neighbors on either side, but they were strangers. Strangers terrify me.

Behind me was a family with three young children and a big floppy dog. I am not sure how it happened. (I forget these things – “TBI Memory” – LOL.) Maybe it was the doggie that made me go out and meet them, but who cares? I went. And, it totally changed my world forever!

Next thing I knew, I was playing with their dog almost every day and sitting on their bench out front to see the kids go off to school every morning so I could say hello and “Have a great day!” I went out again every day to greet them when they came home from school. I became good friends with the mother, who turned out to have been a nurse prior to being a stay-at-home momma.

The mother was very familiar with folks like me – with a TBI. What are the odds of that? She wrote me a beautiful poem about new starts in my life. While reading it to me, she started to cry. She had to regain her composure and begin again. At the end, we were both crying. We ended up hugging. Wow! I was so grateful for her huge heart and her understanding.

Her husband would mow my yard when he did his own and never asked for anything in return. I was amazed and so grateful that they understood I was completely unable. They did it because they cared.

One day, I joined the kids in a leaf fight in their yard (in my PJs! – LOL), along with the parents’ autistic son – my best buddy, with whom I had a special connection for some reason. He came over, sat down with me, threw leaves into the air with me, and giggled. He even lay down and wanted me to cover him with leaves to his chest (none on is face or neck – sensation issues – I understood) so he could pop out of the leaves like the rest of the kids were doing. His parents’ chins were on the ground, I swear. I don’t think they had ever seen him connect and want to play like this before. Once he popped out and had a leaf in his hair that upset him. I asked him if I could remove it for him. He said yes, so I did, and the playing resumed.

The best part came at the end, though. I thought his parents’ heads were going to explode! I put my hand out and told him, “Give me a high five!” He slapped my hand as hard as he could. I don’t think his parents had ever seen him give physical contact by choice to anyone not family.

His parents got him a new puppy, all his own. One of the kids had let the puppy out by accident. No one knew it was gone. I was outside doing something, and the puppy ran around the other side of my house and straight to me! Yay! I was able to save the puppy, give it some loving, and carry it home – safe and sound.

This family brought me so many blessings by being my neighbors in a new, strange, and scary environment. They just sold their home and have begun moving into their new home. But, the blessings keep coming. My two nephews bought their place, so I will have family living behind me, after having pseudo family living there.

Miracles work in mysterious ways for sure! I will sure miss that family. But, I am grateful for the wonderful memories they gave me and for being there to help make my transition feel so safe and protected. I wish them well on their new journey.

***********

Thank you, Jennifer Stokely.

You can learn more about Jennifer on the following sites.

SSS (Semi-Support Sisterhood) for TBI Survivors

A New Me – BREAK THE SILENCE

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of Jennifer Stokley.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the lower right corner of your screen.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

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Guest Bloggers

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SPEAK OUT! Faces of Brain Injury Nicole Wall

SPEAK OUT! Faces of Brain Injury – Nicole Wall

(family member of brain-injury survivors)

presented by

Donna O’Donnell Figurski

Brain Injury is NOT Discriminating!

My name is Nicole Wall. I am a 25-year-old resident of Regina, Saskatchewan, Canada. Brain injury has significantly affected my life four times. My journey with brain injury began in 1999. My grandma had a stroke and spent the next six years in a rehabilitation facility. She then passed away from a brain-bleed in the summer of 2006. My grandma was the first family member I had lost, and it impacted me quite a bit. In December 2002, I was singing Christmas carols in my school’s gym and got pulled into the office by the principal, who said my dad was on the phone. I thought that was odd. My dad had never called me at school before. He told me that my mom had been taken to the hospital and that my cousin was coming to pick us up. He said he loved us, and then he hung up. My brother and I found out late that night that my mom had had a brain aneurysm rupture and required emergency brain surgery. My mom spent the next year in the ICU (intensive care unit), the hospital, and then Wascana Rehab Centre before she came home. It is eleven years later, and my mom still attends weekly support-group meetings and has never driven again or gone back to work.

My entire family changed that day. We still continue to deal with my mom’s injury every day. Brain injuries are life-long. In 2007, I had just graduated grade 12 and had a scholarship, and the most-unfair thing that has ever happened to me – happened. My high-school sweetheart was severely injured in highway auto collision. He ended up unconscious in the ICU with a brain injury. He died eight days later as a result of the injuries he incurred in the accident. My family and I were finally starting to settle and move forward, and then in 2010, like déjà vu, we got a call about my dad. He had been found dazed and barely conscious outside Regina and was being driven to the hospital. My family rushed to be with him. My dad needed a special type of brain surgery – coiling. He had to be transported by air-ambulance to Saskatoon, Saskatchewan, for surgery. My dad spent several weeks in Saskatoon and more weeks in a Regina Hospital recovering before he went home. Long-term my dad has been able to return to work almost full-time, and he has gone on to compete in mountain-bike races and championships.

Nicole Wall Family Member of Survivor 061315

Nicole’s Family 2011

Throughout the last sixteen years, brain injury has taken many things from me – my mom’s ability to be the same mom she was before (she stopped driving and she was not as involved with my activities as she had been), my high-school sweetheart, and my naiveté. I realize my dad’s daily struggles are much more than mine. I have become somewhat of a realist. However, brain injury has also given me many things, especially a unique perspective on life. I realize nothing is permanent – no matter how many plans we may make. Through my encounters with brain injury, I have learnt to be independent, considerate, and selfless. I’ve always put my family and others first. I now work at a child-development center and sit on the Board of Directors for the Saskatchewan Brain Injury Association. I encourage everyone to get involved in supporting brain-injury awareness and prevention (www.sbia.ca – check out events like the “Brain Boogie” in Saskatchewan).

“Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has”

Margaret Mead

Disclaimer: Any views and opinions of the Contributor are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post

Category:

Faces of Brain Injury

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SPEAK OUT! Faces of Brain Injury Lesley Ann Graham

SPEAK OUT! Faces of Brain Injury – Lesley Ann Graham (survivor)

presented by

Donna O’Donnell Figurski

Brain Injury is NOT Discriminating!

April 14th was the ten-year anniversary of the accident that should have killed me. It’s a miracle that I’m still alive and doing as well as I am. I had a base-of-skull fracture and bilateral frontal lobe damage. I was in a coma for three days. I had four brain operations. The doctors didn’t think that I would have anything like a “normal” life. I showed them. (Ha ha!) I went back to university, got my degree, and worked part-time. (I will never be able to work full-time.) I then moved into my own flat. I got married, and we have an eight-month-old son. I hope my story can help others and make people realize that there is life after a brain injury. I believe it’s by the grace of God that we are all alive and in this group.

Disclaimer: Any views and opinions of the Contributor are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

Category:

Faces of Brain Injury

Tagged with:

SPEAK OUT! Faces of Brain Injury Alicia Theroux Williams

SPEAK OUT! Faces of Brain Injury – Alicia Theroux Williams (caregiver)

presented by

Donna O’Donnell Figurski

Brain Injury is NOT Discriminating!

I want to introduce myself with a short story about my experience with traumatic brain injury (TBI). Last Christmas was the first Christmas in six years that my husband and I spent together. (He is a firefighter/paramedic. Therefore, he is on duty most holidays.) It was the best Christmas yet. I felt complete and whole. I never imagined that in just a couple of weeks my husband would be in a coma and sadly would not remember this glorious holiday. On the morning of January 6^th, my husband was out running, and he was struck from behind by a cyclist. My husband’s first responders were his friends, since we live in the city that he works in. They (I believe) were the reason that my husband survived. My husband spent fourteen days in a coma, seven days on the medical-surgical floor, and twenty-six days in an acute rehab facility. In a little more than three months, he had three surgeries on his brain, plus many more procedures for other issues. Even though we have just started on this journey, I am thankful to have a support-group to vent to and to get tips from. I feel like I am not in this alone.

Disclaimer: Any views and opinions of the Contributor are purely his/her own.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

Category:

Faces of Brain Injury

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Surviving Traumatic Brain Injury

TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘survivingtraumaticbraininjury.com’

SPEAK OUT! . . . . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

On The Air: Brain Injury Radio “Another Fork in the Road” Interview with TBI Survivor & Cross-Country Cyclist, Daniel Mollino

Survivors SPEAK OUT! Michael Lee Savage

“Another Fork in the Road” . . . Brain Injury Radio Network . . . Interview: Daniel Mollino

SPEAK OUT! . . . . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

SPEAK OUT! Faces of Brain Injury William Jarvis

SPEAK OUT! . . . . . . . . . . . . . . . . . Guest Blogger: Jennifer Stokley Transitioning and Brain Injury

SPEAK OUT! Faces of Brain Injury Nicole Wall

SPEAK OUT! Faces of Brain Injury Lesley Ann Graham

SPEAK OUT! Faces of Brain Injury Alicia Theroux Williams

Top 30 Brain Injury Blog Award

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Top 30 Brain Injury Blog Award

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