TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘Brain Injury Radio Network’

SPEAK OUT! . . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

Itty-Bitty GIant Steps for Blog

SPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at donnaodonnellfigurski@gmail.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

 

Here are this week’s Itty-Bitty Giant Steps.

10728597_703464463078195_2052174794_n-1

The #98 Camaro was driven by Ernie Francis, Jr. He won the TA3 race and the TA3 championship.

DuWayne HallMatt Duffin of the Brain Injury Radio Network submitted my name for painting onto a Trans-Am race car with about 100 other names of TBI survivors. My name is front and center above Kevin Butterfield. It is in the third row from the left, 8th name from the bottom.

 

Joshua Edward Daniel…I got my TBI while putting chains on a customer’s car. A Jeep going 45 mph hit me, breaking my neck and giving me a TBI. The doctor said I would never walk or talk again, but I’m proving him wrong. I love my recovery.

Gena Marie…I am in a place where I can finally feel safe and cared about for the first time in my life.

YOU did it!

Congratulations to all contributors!

(Clip Art compliments of Bing.)

(Photo compliments of DuWayne Hall.)

Survivors SPEAK OUT! Bart Boughner

SPEAK OUT! – Bart Boughner

by

Donna O’Donnell Figurski

 

Bart Boughner - TBI Survivor

Bart Boughner – TBI Survivor

1. What is your name? (last name optional)

Bart Boughner

2. Where do you live? (city and/or state and/or country) Email (optional)

St. Williams, Ontario, Canada

3. When did you have your TBI? At what age?

37

4. How did your TBI occur?

I fell about 5 feet off a step ladder at work, striking my head on the concrete foundation.  It happened ~45 minutes before the end of the day…the day before my daughter’s 8th birthday.

5. When did you (or someone) first realize you had a problem?

The seriousness of my fall was realized about a half hour later. My leg couldn’t hold me, and I had blood coming from my ear and cuts on my wrist.

6. What kind of emergency treatment, if any, did you have?

I was in the local hospital for about five hours. They didn’t ship me earlier to a trauma center because they didn’t think I would make the trip. They took a wait-and-see approach, since the bleeds didn’t change too much. I was in the ICU (Intensive Care Unit) for 1 week, and then I was in the Step Down Unit for another week. I was then moved back to my local hospital for 3 more weeks.

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)?

I had outpatient rehab for 1 year for physical, occupational, and speech therapies, then again 2 years after I was hospitalized.

How long were you in rehab?

Just over 1 year

9. What problems or disabilities, if any, resulted from your TBI
(e.g., balance, perception, personality, etc.)?

Well now, I have an issue with short-term memory;  I severed my olfactory nerve, affecting my senses of smell and taste; I experience exhaustion; I have a problem with sleep; and I have no tolerance.

10. How has your life changed? Is it better? Is it worse?

For 11 1\2 years, my life was worse to the point that I gave up. I went into a hole and rarely went out. My marriage went down hill fast, since we couldn’t communicate. My marriage ended September 16, 2013. I lost so many friends and family, some from my own choice. I found it hard to trust.

11. What do you miss the most from your pre-TBI life?

My energy and my love of life

12. What do you enjoy most in your post-TBI life?

Now I have my own independence. My kids chose to live with me. I’m letting go of the past and now living now.

13. What do you like least about your TBI?

Overwhelming situations, severe headaches, lack of patience

14. Has anything helped you to accept your TBI?

The first neuro doctor told me straight out I would be different. Also my new independence is helping me accept my TBI.

15. Has your injury affected your home life and relationships and, if so, how?

My injury destroyed everything, but eventually my kids had the chance to know me for myself without people telling them things. It’s the best thing that happened.

16. Has your social life been altered or changed and, if so, how?

Yes, I became reclusive and couldn’t tolerate too many people at once. Now I’m better.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I am my own caregiver. Yes, I do understand about caregivers.

18. What are your future plans? What do you expect/hope to be doing ten years from now?

I’m building on my bucket list. I plan to continue enjoying life and laughing with my kids. Soon I will be 50. What I’ll be doing in 10 years is hard to say. I live life day-to-day.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other TBI survivors with your specific kind of TBI.

Speak for yourself, instead of letting others do it for you. Realize that the past is the past. Nothing can bring it back. Learn to laugh again and not to be so frustrated when you can’t accomplish things. Find support groups (e.g., Facebook) early.

20. What advice would you offer to other TBI survivors? Do you have any other comments that you would like to add?

Be strong. Keep your voice, and let it be known. Never dwell on things – they can put you in a deep, dark place with only a small window of light. Believe in yourself. If friends treat you differently, tell them. If they cannot adjust, then let them go on your terms. LIVE, LOVE, AND LAUGH!!!!!!!!

Bart Boughner - TBI Survivor with his children

Bart Boughner – TBI Survivor with his children

 

Thank you, Bart, for taking part in this interview. I hope that your experience will offer some hope, comfort, and inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

(Photos compliments of Bart.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

“Another Fork in the Road” . . . Brain Injury Radio Network with Julie Kintz and Mark A. Ittleman, M.S., CCC/SLP

YOU ARE INVITED!

 

putthis_on_calendar_clip_artJulie Kintz of “Quantum Leap” will be substituting for Donna O’Donnell Figurski of “Another Fork in the Road” on the Brain Injury Radio Network.

Julie’s guest will be Senior Speech Language Pathologist-Author Mark A. Ittleman, M.S., CCC/SLP. Mark Ittleman will discuss speaking difficulties and tell how loved ones can help improve the speech of their survivor at home in a fun and easy way.

Come One! Come ALL!

(NOTE: New Day, Sunday – Same Time)

What:        Host, Julie Kintz of “Quantum Leap” substitutes for “Another Fork in the Road” host, Donna O’Donnell Figurski.

Why:         Hear Mark A. Ittleman, M.S., CCC/SLP discuss speaking difficulties.

Where:     Brain Injury Radio Network

When:       Sunday, October 19th, 2014

Time:         5:00p PDT (6:00p MDT, 7:00p CDT, and 8:00p EDT) 90 minute show

How:         Click: Brain Injury Radio Network.

Call In:    424-243-9540

Call In:     855-473-3711 toll free in USA

Call In:    202-559-7907 free outside US

or SKYPE

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening. The archived show will be available after the show both on the Brain Injury Radio Network site and on my blog in “On the Air.”

(Clip Art compliments of Bing.)

“Another Fork in the Road” . . . Brain Injury Radio Network: “Triking Across America – diagonally,” with Catherine (Cat) Brubaker

YOU ARE INVITED!

 

putthis_on_calendar_clip_art“Another Fork in the Road” on Brain Injury Radio Network invites you to meet Catherine (Cat) Brubaker who is “Triking Across America – diagonally.” Cat looks like your normal, everyday, young woman. But what you don’t know about Cat, by just looking at her, is that she is living with not one, but two, traumatic brain injuries. But, Cat does not let her brain injury tie her down. No, she is on a 5,200 mile trike trip across America – diagonally – to raise awareness for TBI. Come hear Cat.

Come One! Come ALL!

(NOTE: New Day, Sunday – Same Time)

What:        “Another Fork in the Road” . . . Brain Injury Radio Network presents “Triking Across America – diagonally” with Catherine (Cat) Brubaker

Why:         Hear Cat’s amazing story of how she is pedaling into her future on he recumbent trike despite two traumatic brain injuries..

Where:     Brain Injury Radio Network

When:       Sunday, October 5th, 2014

Time:         5:00p PDT (6:00p MDT, 7:00p CDT, and 8:00p EDT) 90 minute show

How:         Click: Brain Injury Radio Network.

Call In:    424-243-9540

Call In:     855-473-3711 toll free in USA

Call In:    202-559-7907 free outside US

or SKYPE

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening. The archived show will be available after the show both on the Brain Injury Radio Network site and on my blog in “On the Air.”

(Clip Art compliments of Bing.)

On the Air – Brain Injury Radio “Prisoner Without Bars” (segment 2)

On the Air – Brain Injury Radio

“Prisoner Without Bars” (segment 2)

images-1This show takes David bouncing across the George Washington Bridge in an ambulance blaring rap music to his rehabilitation hospital where he would spend the next two months of recovery.

Listen to stories about life in the lockdown unit, of strange roommates, staff being fired, and Hasidic chanting in this second segment of “Prisoner Without Bars: Conquering Traumatic Brain Injury.” There’s never a dull moment when living with TBI.

“Your show will start in 5, 4, 3, 2, 1 second. ‘You’re On the Air.’” There was a second of dead air time before the Brain Injury Radio logo music began. Then there was no turning back…

“We lived a normal life…until we didn’t….”

I hope you’ll tune into my show the 1st and 3rd Sunday evenings of every month. The show airs at 5:00p Pacific time and runs for 90 minutes.

“See you “On the Air!”

“Another Fork in the Road” . . . Brain Injury Radio Network: “Prisoner Without Bars” (part 2)

                  Come one! Come ALL!putthis_on_calendar_clip_art

(NOTE: New Day, Sunday – Same Time)

What:        “Another Fork in the Road” on Brain Injury Radio Network:                               “Prisoner Without Bars” (part 2)

(This show was originally scheduled for August 18th, but was aborted due to technical difficulties in the studio.)

Why:         Donna continues her story of David’s Traumatic Brain Injury and their life together after TBI.

Where:     Brain Injury Radio Network

When:       Sunday, September 7th, 2014

Time:         5:00p PDT (6:00p MDT, 7:00p CDT, and 8:00p EDT) 90 minute show

How:         Click: Brain Injury Radio Network.

Call In:    424-243-9540

Call In:     855-473-3711 toll free in USA

Call In:    202-559-7907 free outside US

or SKYPE

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening (Archived show) will be available after the show both on the Brain Injury radio Network site and on my blog in “On the Air.”

(Clip Art compliments of Bing.)

On the Air . . . . . . . . . . . . . . . . . . . “Another Fork in the Road” meets “Quantum Leap”

Breaking News! Breaking News! Breaking News!

images-1“Another Fork in the Road” and “Quantum Leap” have merged for every 5th Sundays of a month. (August 31, 2014, November 30, 2014, March 29 2015, May 31, 2015, August 30, 2015, and November 29, 2015) Join Julie Sharp Kintz and me (Donna O’Donnell Figurski) in “Another Quantum Leap on the Road” as we explore topics directly related to Traumatic Brain Injury.

The topic for August 31, 2014 delved into how “Life Changes After TBI” from the viewpoints of both survivor (Julie) and caregiver (me).

It was a great show and a great discussion. Some of the topics we covered were:

1. Personality change in the survivor

2. Loss of old friends

3. Making new friends

4. Role reversal. Caregiver becomes dominant partner taking on ALL of the responsibilities

5. Loss of career/job

6. Loss of substantial income

7. Frustration of family and friends not understand the extent of TBI

If you missed the show, don’t fret. You can always listen to the archived show. I’ve included the link below.

Please SHARE!

I hope you’ll tune into my regular show the 1st and 3rd Sunday evenings of every month. The show airs at 5:00p Pacific time and runs for 90 minutes.

See you “On the Air!”

(Clip Art compliments of Bing.)

On the Air – Brain Injury Radio Oops, Glitch Apology

On the Air – Brain Injury Radio

“Prisoner Without Bars” (segment 2) (Oops – aborted show)

by

Donna O’Donnell Figurski

images-1I’m sorry! Извините! Lo siento! Desculpe! סליחה! Mille Excuses! λυπάμαι! Scusami! Entschuldigung! ごめんなさい! jag är ledsen!

Like I said, “I’m sorry!

Yesterday I was excited to air my second show on “Another Fork in the Road.” I did all my “HOMEFUN” (as I always called it with my 1st and 3rd grade students). My notes were ready at my side. I logged into the studio, opened the chat room, checked my mic, and waited for the countdown. “Your show will start in 5, 4, 3, 2, 1 second. You are on the Air.” I waited still for the prerecorded introduction music and ad to run down. I waited for the dead space, which indicates that I am indeed live. That is my time to start talking – and I did for a brief second or two – until I realized that a male voice was still talking. I soon realized that a prerecorded show was playing. How that happened – I do not know. (But as my son said to me after the show, “Well, looks like you ran into another fork in the road!”) There seem to be a lot of them, but they just add interest to your life, and you move on.

Anyway, I left the studio to troubleshoot the problem behind the scenes in the tech part of the show, but there was nothing to be done. The prerecorded show was irreversible. And so I apologize to all those who came to find a “dark” studio.

As my son also said, “I bet your next show will be extra good.” And it will. But PLEASE NOTE THE CHANGE OF DAY AND THE NEW DATES. Because of scheduling conflicts, my show is moving to the 1st and 3rd Sundays of every month. It will still air at 5:00 pm Pacific time. The show I had planned to do yesterday (segment 2 of David’s and my story) will now be at 5:00 PDT on Sunday, September 7. The final part (segment 3) will be on Sunday, September 21. On my next show (Sunday, October 5), David will be my guest to give his perspective.

Whenever there is a fifth Sunday in a month, I will co-host the show with Julie Sharp Kintz, who is another host on Brain Injury Radio. Julie’s show, “Quantum Leap,” airs opposite mine on the 2nd and 4th Sundays of each month. So every Sunday, there will always be live entertainment from 5:00 pm to 6:30 pm by Julie or me or both. (Julie and I plan to co-host the show on Sunday, August 31.)

I hope you will be listening every Sunday at 5:00 Pacific time.

See you “On the Air!

(Clip Art compliments of Bing.)

 

“Another Fork in the Road” . . . Brain Injury Radio Network: “Prisoner Without Bars” (part 2)

Come one! Come ALL!putthis_on_calendar_clip_art

What:        “Another Fork in the Road” on Brain Injury Radio Network:                               “Prisoner Without Bars” (part 2)

Why:         Donna continues her story of David’s Traumatic Brain Injury and their life together after TBI.

Where:     Brain Injury Radio Network

When:       Monday, August 18, 2014

Time:         5:00p PDT (6:00p MDT, 7:00p CDT, and 8:00p EDT) 90 minute show

How:         Click: Brain Injury Radio Network.

Call In:    424-243-9540

Call In:     855-473-3711 toll free in USA

Call In:    202-559-7907 free outside US

or SKYPE

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening (Archived show) will be available after the show

(Clip Art compliments of Bing.)

On The Air – Brain Injury Radio Discrimination of TBI Survivors

On the Air

with

Donna O’Donnell Figurski and Julie Kintz

images-1With my first radio stint under my belt (my interview with Kim Justus on her show, “Recovery Now,”) I felt relieved. I’d made it through my first time on “live” radio. Now my new friend, Julie Kintz, another Brain Injury Radio Network host asked me to help her co-host a show. Her computer sound was not working properly and she didn’t want to not do a show.

Though I was nervous, I felt that it would allow me to familiarize myself with the studio and the studio hosting tools, and give me more practice on the air before I took the microphone myself. And . . .  I wanted to help a fellow host. So, I reluctantly agreed.

There were some glitches before the show. We expected to be interviewing a guest, but because communications got twisted, the guest never arrived. Julie and I had only minutes to decide what to do as the minutes ticked down to “On the Air” time. Since we’d planned to discuss discrimination of TBI survivors with the guest, we decided to pursue that topic as our discussion for the evening. I think it turned out well. What do you think.

You can listen here.

(Clip Art compliments of Bing.)

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