TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘Brain Injury Radio Network’

“Another Fork in the Road” . . . Brain Injury Radio Network . . . Rosemary Rawlins: Caregiver & Author

YOU ARE INVITED!

putthis_on_calendar_clip_artIt only takes a split second for lives to change forever. Rosemary and Hugh Rawlins lives were turned upside down when Hugh was struck by a car during an afternoon bike ride. Rosemary was immediately thrust into caregiver mode as Hugh was reduced to helplessness. Rosemary’s book, “Learning by Accident: A Caregiver’s True Story of Fear, Family, and Hope,” details, in an easy-to-read story, how she and Hugh, with their two daughters, picked up the broken pieces of their lives and glued them back together.

          Come One! Come ALL!

What:        Interview with Rosemary Rawlins, caregiver of her husband, Hugh Rawlins, and Author of “Learning by Accident: A Caregiver’s True Story of Fear, Family, and Hope”

Rosemary & Hugh Rawlins after TBI

Rosemary & Hugh Rawlins after TBI

Why:        Rosemary will talk about how her life and those of her family changed forever and how they are picking up the pieces and rebuilding new lives after TBI.

Where:     Brain Injury Radio Network

When:       Sunday, January 18th, 2015

Time:         5:00p PT (6:00p MT, 7:00p CT, and 8:00p ET) 90 minute show

How:         Click: Brain Injury Radio Network

Call In:    424-243-9540

Call In:     855-473-3711 toll free in USA

Call In:    202-559-7907 free outside US

or SKYPE

Learning by Accident: A Caregiver’s True Story of Fear, Family, and Hope

Learning by Accident: A Caregiver’s True Story of Fear, Family, and Hope

 

 

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening. The archived show will be available after the show both on the Brain Injury Radio Network site and on my blog in “On the Air.”

(Clip Art compliments of Bing.)

(Photos compliments of Rosemary Rawlins.)

SPEAK OUT! . . . . . . . . . . . . . . . . . Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

Itty-Bitty GIant Steps for Blog

SPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at donnaodonnellfigurski@gmail.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

 

Here are this week’s Itty-Bitty Giant Steps.

Anonymous (survivor)…I have an Itty-Bitty Giant Step for you. My husband and I were traveling on the freeway, so the bathroom stops were infrequent. I had to make a restroom stop really bad, and I was able to hold it for about twenty minutes until we could stop at a Rest Area. It is HUGE for me – a “Huge-er,” HUGE step!

Jimi Cunning (survivor)…I joined some MeetUp groups and a church I really like. It was very hard for me to climb out of my cocoon and get back into socializing in a healthy manner.

Grays Harbor Brain Injury Support Group…Our town is in a real crisis. Flooding and mudslides have taken homes and messed up lives. While hundreds hrow of 10 cartoon kids holding handsave been displaced, NO lives have been lost. Our brain-injury support-group has pulled together – doing laundry, taking household items, cooking meals, and shopping for our neighbors. Just because we have an injury does not mean that we are not able to help. In this endeavor, our friendships have grown.

Barry Hughes (survivor)…Yay! Hi, Donna!! Yesterday my best friend in life became my girlfriend! This joyous event brought me to the momentous conclusion that my injury is the best thing that ever happened to me in my life!! Finding my dream woman and my life-partner after forty-four years was only made possible because we are both survivors!

Barry Hughes (survivor)…I was thinking that I wish every survivor could know such great joy as mine. It suddenly struck me that I needed to make it my goal and focus in life to create a Facebook friendship and dating group for survivors. It is desperately needed, since so many survivors are in utter despair, as I was until yesterday. I could find no such group, so I created https://www.facebook.com/groups/BrainInjuryConfidential/, so survivors all across the Facebook world can meet in one group and find friendships, relationships, and possibly dates. It will meet our basic human need and end the loneliness almost every survivor experiences when he or she is alone.

Jodi Jizmejian (survivor)…Hi, Donna! Here’s an Itty-Bitty Giant Step: Today I drove. It was just a wee little bit, but I did it! When my husband and I returned from visiting my folks, I asked him to let me drive into the parking lot of where we live. He let me, and then he – yes, he, not me – told me to drive out onto the road, through the parking lot of a nearby mall, and back to “our” parking lot. Boy, do I feel “mature”!

YOU did it!

Congratulations to all contributors!

(Clip Art compliments of Bing.)

 

Survivors SPEAK OUT! . . . . . Rainbow Artist, Orlando L. . . . (Kevin Orlando Lau)

SPEAK OUT! – Rainbow Artist, Orlando L.

(Kevin Orlando Lau)

by

Donna O’Donnell Figurski

 

Rainbow Artist Orlando L. (Kevin Orlando Lau)  Brain Injury Survivor

Rainbow Artist Orlando L. (Kevin Orlando Lau)
Brain Injury Survivor

1. What is your name? (last name optional)

My name is Kevin Orlando Lau.

(I’m also known as the Rainbow Artist, Orlando L., in the art community.)

2. Where do you live? (city and/or state and/or country) Email (optional)

Currently I live in Vancouver, British Columbia, Canada, as a Canadian.

I was born and raised in Hong Kong, China, as a Chinese.

My art website is http://rainbowartistorlando-l.pixels.com

My art page on Facebook is https://www.facebook.com/RainbowArtistOrlando.

3. When did you have your brain injury? At what age?

I had my brain injury back in 1996 when I was age 24. I don’t think my injury is a TBI. I am guessing it is an ABI (acquired brain injury). The doctor at the ICU (intensive care unit) mentioned a medical term to me, but I couldn’t understand it back then, nor do I remember it now. She translated it to me as “partial brain damage.”

4. How did your brain injury occur?

My injury was caused by severe poisoning. I was committing suicide by swallowing a whole jar of an extra-strength painkiller. I wanted to end my hellish life on earth once and for all. I was a heavily abused child – physical, verbal, sexual/molestation, emotional, and psychological. I observed lots of chaos with my relatives, like gang relations, violence, prostitution, excessive gambling, sex addition, and hardcore drug addiction. I had watched my mother’s brother sexually molest my sister and all my female cousins, individually and multiple times. They were only 2-6 years old. I was around 10. I was raped in 1993 by a trusted man twice my age. I attracted a possessive and abusive boyfriend in 1996. He constantly threatened to kill me and my cats if I left him. I worked in the family business of my parents seven days per week, 10+ hours each day, for many months in a row without a break. (All day-off requests were denied.) I was completely stressed out and exhausted!! Death was the only way out….

5. When did you (or someone) first realize you had a problem?

I first realized I had a problem when I started vomiting neon-green liquid non-stop after I had those pills. I vomited at least eighteen times within a 24-hour period. Then when I woke up in the ICU, the doctor told me that I suffered a brain injury. She said she didn’t expect that I would have any memory. She hadn’t expected me to wake up and to be talking to her. She hadn’t expected that I would survive at all, due to the overwhelming amount of poison I had consumed. She explained that 99% of the people who had the same experience as me did not survive and that 99% of the 1% who survived stayed in a coma for the rest of their lives. So, she found it a miracle that I was alive and talking. She said I must have an important mission in life that I have not yet fulfilled – that I was not ready to go.

6. What kind of emergency treatment, if any, did you have?

Kevin Orlando Lau  Brain Injury Survivor Rainbow Artist Orlando L.

Kevin Orlando Lau
Brain Injury Survivor
Rainbow Artist Orlando L.

I honestly have no idea. I think I never asked, and they never told me.

7. Were you in a coma? If so, how long?

I am assuming I wasn’t in a coma. Even if I had been, it must have been a very short one. I never asked, and I don’t recall anyone ever saying that I had been in one. I only remember being brought to the hospital unwillingly. The next thing I remember was waking up in ICU, thinking to myself Is this what heaven looks like? – because I was so sure I would be dead.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

Although the brain doctor at the ICU suggested to me that I see her at least three times per week, I never had the luxury of seeing her again. I also didn’t have any kind of treatment or rehab after I got out of the hospital. I WISH I had had some rehab because it would have made my life so much easier. But, rehab of any kind was forbidden. My family said my injury was a disgrace to them and would create negative publicity for their social status/circle. (My mom was the district president of a major charity organization that same year.) I was strictly instructed to just act “normal” in public. I was not allowed to see any doctors, nor have any treatment or rehab. I was also not allowed to ever talk to anyone about my brain injury because I only had “food poisoning” and nothing more. They put me back to work ten days after I got out of the hospital! All these years, I have dealt with my brain injury by myself – in the dark and with endless confusion. I never talked about it until after my mom retired in 2012. I am planning to seek help now. I just need to figure out how.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

Oh, there are so many problems…. Here are a few. My personality and self-image changed. (I don’t recognize myself. When I look in the mirror, I might ask, “Is that me?” – as if I am just meeting that person in the reflection for the first time.) I can’t tell the difference between reality or imagination or dreams. Time, space, people, and dates – nothing makes sense. My short-term and long-term memories are affected. I have a huge problem with faces, names, locations, passwords, spellings, and numbers. I have difficulties translating thoughts into verbal words, which are often spoken with a delay. I lost body awareness. I have a low energy level. I am very underweight (5 ft. 10 in. and 110 lbs.). Time always seems to be “missing,” and I have no idea what I do during the “missing” hours. Being late and missing appointments is the norm. Plus, I have other stuff, like depression, a mood disorder, a food disorder, insomnia, allergies of all kinds (from food to smell to chemicals), and many new fears and strange phobias of all types (e.g., fears of small flying objects; of oceans, lakes, and rivers; of doorbells; of telephone rings; etc.)…SIGH!

10. How has your life changed? Is it better? Is it worse?

I guess the answer depends on one’s perspective and point of view. My life is both worse and better!

My life is worse because I feel like I am a stupid, walking zombie – incapable of paying for and supporting my own life. I am forever stuck in my own invisible jail, being misunderstood by society.

My life is better because I got the chance to know my true self so much deeper and to live a brand new life with more kindness and compassion to myself and to others. I can appreciate everything in this universe in a whole new light. I have learned to see good in the bad and to see beauty in everything. I have learned how not to take life and ordinary things for granted. I feel more connected with nature and all lives in creation. Having the time and opportunity to learn who I really am as a soul is truly the greatest gift of my injury. It makes all my life changes worthwhile.

11. What do you miss the most from your pre-brain-injury life?

Actually I miss several things. I miss being self-sufficient and independent. I miss life without debts. I miss the ability to learn new things without forgetting them. (I mean I still can learn, but the knowledge simply won’t stay for long. I can watch the same movie or read the same book or email repeatedly, and the content will still feel new.) I miss the freedom of travelling around without panic and stress. I used to love taking flights and driving cars, but now I don’t enjoy them anymore. I miss tasting the rich flavours of good food too. Nowadays everything tastes like cardboard – kind of boring.

12. What do you enjoy most in your post-brain-injury life?

Artwork by Rainbow Artist Orlando L.

Artwork by Rainbow Artist Orlando L.

Creating art!! I never knew I could paint at all. I suddenly started watercolour-painting in 2012 during a 16-week neurofeedback brain treatment. As a gift, I got a used brush and some watercolours from my therapists. The next thing I know, I just picked up that brush and started painting! It was the first time in my life. Watercolour-painting quickly became a new hobby, and now it’s part of who I am. I have no training in painting at all. I still don’t have any today. I don’t know how I paint my own art because I cannot remember how the paintings were created. I just keep creating them to make myself feel happy. Art became my new life! I enjoyed very much the discovery of this new side of me and of this new artistic experience. It’s a most pleasant surprise!

13. What do you like least about your brain injury?

I dislike seeing me as being slow, indecisive, forgetful, withdrawn, over-sensitive, and super-dependent. I really dislike being so dependent on my loved ones. It’s my heart’s desire to give financial support to them (particularly to my parents and relatives as they get older) and to make sure they all have a good life. But now, I rely and depend on them. I can’t function without them. It makes me feel horrible and useless – as if I am human garbage and a burden forced upon them. It breaks my heart because I am the one who committed the “crime” of turning me into a brain-injured person. Only I should be in “prison,” not them!! It’s not fair.

14. Has anything helped you to accept your brain injury?

Spirituality, meditation, and my cats have helped me to accept my brain injury big time! My cats are my best friends and my life-support. They stayed with me regardless of what condition I had. Their unconditional love, company, and loyalty to me gave me lots of strength, support, comfort, and growth. They taught me to be myself and to accept myself exactly the way I am. Spirituality changed my outlook towards life positively, helped me to realize life has bigger and deeper meanings, and showed me that my injury is only a spiritual learning experience to expand my consciousness. Meditation gave me inner peace, higher knowledge, and the wisdom to accept what happened, instead of victimizing me with guilt, shame, and resentment.

15. Has your injury affected your home life and relationships and, if so, how?

My brain injury changed everything immediately. My life was like living in a painful hell. Everyone took advantage of me. I became easily used, controlled, and manipulated because I lost the ability and the willingness to confront or to fight back. I was like a living puppet, like a slave. People were free to toy with my emotions and to undress me anytime without concern for my feelings. I was lied to all the time because people knew I would accept all information without the ability to judge them. All relationships at all levels fell apart. No one cared about my injury, except me! It took me another twelve years after my injury before I could move out of my parents’ house and to be strong enough to end the abusive relationship with my boyfriend. He had stalked and harassed me for years after our breakup in 2008. I ended up moving to another city in 2012.

16. Has your social life been altered or changed and, if so, how?

Gradually all my friends stayed away from me (literally no more contact) when they realized I was “different,” and I do mean ALL, including my best friends! I suddenly had many social anxieties that I never had before. I became very afraid of human beings – I developed a phobia of mankind. The anxieties made me feel very uncomfortable in public, crowded, or noisy places. Interacting with people face-to-face (including one-on-one, even in private) or on phones gave me intense panic. In fact, seeing people is enough to trigger me. I feel as if I am an alien creature living among the human race and everyone out there is trying to hurt me in some way. I avoid social interactions as much as I can. I stopped trying to fit into the world.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My answer depends on the definition of “caregiver.” If it means financially, like giving me shelter, food, rides, etc., then my “caregiver” is my family and relatives. If it means giving me brain health and assisting me in my life physically, mentally, emotionally, and spiritually, then my “caregiver” is me and my spirit-guides. Ever since my injury, I can clearly get telepathic directions from invisible entities to help me cope with my daily life and activities – much like a 24-hour nurse – which I appreciate very much. No, I don’t fully understand what it takes to be a caregiver because I have no experience in that. I can only imagine that it might be similar to my caring for my cats with lots of unconditional love. I really only know what it means to be a brain-injury survivor.

18. What are your future plans? What do you expect/hope to be doing ten years from now?

I have no future plans really…because I can only handle one day at a time. So, I just do my best to stay in the present moment. I do fantasize that I will have my own art exhibition around the world one day – to share my stories and my art. I would like to teach people what brain-injury survivors can achieve and to let other survivors be proud, be inspired, and get motivated to excel and reach their potential. I guess I wish I could do something to give other survivors hope and fuel their inner fire for continuing on bravely to conquer their battle. I believe ALL survivors are warriors. They are still capable of doing great things for themselves and the world. Survivors are not lesser or weaker – we are simply more unique and special! Survivors are strong souls and great teachers. We understand our strengths and that peace comes from within.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

My advice is to be kind to yourself and to stop comparing the post-injury you to the pre-injury you because you will never be that person again. Release the idea, and let it go. Instead, start loving, accepting, and embracing the “new” you like you have a brand new life in the same body. Relearn your boundaries, abilities, and potential. You are absolutely perfect the way you are now. Be open and receptive to all kinds of alternative non-medical healing-methods because they are excellent tools to help you and your new life. Neurofeedback is the best thing that happened to me. It completely flipped my life upside-down for the better. I am eternally grateful for that. You might want to do your own research on that. Always have faith in yourself and in your capability. Your body’s ability to heal itself is far greater than anyone has permitted you to believe. Your soul always knows what to do to heal itself. The challenge is to silence the mind. Meditation can help with quieting it.

20. What advice would you offer to other brain-injured survivors? Do you have any other comments that you would like to add?

Art has been very healing for me. If you have never tried art or using creativity as a form of home-based therapy, I highly encourage you to try it now! You don’t need to know how or to be good at it. You just need to do it. Let it be a fun game for your inner child to play! The point is to allow yourself to express and release “something” that needs to be out of your system – that needs to set you free! I gained a lot of self-worth, self-esteem, and confidence since I started painting. Nothing is impossible! Miracles happen to those who believe. Faith is the key to a universe full of blessings. You are way STRONGER than you can imagine. That’s why you have this life. Truly FORGIVE yourself for your injury. Blame will not bring you any healing – only unconditional love and inner peace will. Be the biggest supporter of yourself. You deserve it. Love, Light, and Strength to you all.

You can learn more about Kevin at Rainbow Artist Orlando L. You can also see more of Rainbow Artist Orlando l.’s work and an article by him in “Disabled Magazine,” titled, “Peace, Love, and Neurofeedback.”

Kevin Orland Lau Rainbow Artist

Kevin Orland Lau Rainbow Artist 2013 after Brain Injury

Thank you, Kevin, for taking part in this interview. I know that it was a painful journey for you as you examined and faced the wounds of your brain injury. I am grateful to you for your courage and hopeful that by sharing your story you will be offering hope, comfort, and inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Photos compliments of Kevin.)

SPEAK OUT! Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

Itty-Bitty GIant Steps for Blog

 

SPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at donnaodonnellfigurski@gmail.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

 

Here are this week’s Itty-Bitty Giant Steps.

Sara Catherine Birch (caregiver)…An Itty-Bitty Giant Step this week – hubby is going back to his old job on Thursday. He will try a short shift to see if he could build up his hours slowly and get back his deputy title. Fingers crossed. His boss is keeping his hours low for the first couple of weeks so that his schedule won’t affect our benefits and he won’t have to worry about money.

Sara Catherine Birch (caregiver)…I’m very proud of hubby. I came home from work yesterday to find out how hubby’s looking after both kids (for the first time) went. As I walked in the door, I could hear the washing machine going. He had gotten both kids to bed, emptied and refilled the dishwasher, emptied the tumble-dryer, and put a wash on. Yeah, he definitely deserved the Domino’s pizza I was carrying.

Michelle Lee Bonnenfant (survivor)…Today I went to Walmart with my daughter and husband, despite the setbacks caused by my PTSD (post-traumatic stress disorder). I only panicked once! I got separated and forgot where I was in the store. Thank god, I had my cell phone! Small step, but I’m trying. Any store is bad for me. I can’t believe that I did a big, busy store! Needless to say, I’m exhausted and have a pounding headache. No pain, no gain!

Sidney Chronister (survivor)…I’m feeling super PROUD of myself. Today has been the first time ever (since my TBI four years ago) that I managed to cook all by myself. I even read a recipe all by myself (LOL)! I’m progressing very slowly. Let’s just hope I can do the same thing tomorrow – or in a week. Let’s pray for that. Thank you all once again for all the ENCOURAGING words you give me DAILY (especially in the days of bad weather). May God give us all more strength (He knows we have it), more patience (we NEED IT), and less crazy anger-outbursts. God bless you all, and have a blessed New Year’s. Happy 2015!!!

Ellie K. Payton (caregiver)…Today Claus Nowell, my 20-year-old, 10-months-post son, took his first steps in a walking frame. There were nurses and therapists “acheerin’.”

This is a huge Itty-Bitty Giant Step – one I’ve been waiting for with so much hope.

YOU did it!

Congratulations to all contributors!

(Clip Art compliments of Bing.)

TBI Tales . . . . It’s OK to Say “OK”

It’s OK to Say “OK”

by

Barbara Wilson Asby

(presented by Donna O’Donnell Figurski)

Barbara Wilson Asby - TBI Survivor

Barbara Wilson Asby – TBI Survivor

For the first time in over five years, I finally broke down and reached out to my husband for help today when I was having a seizure.

Why in the world do we have to be so darn strong all of the time?? For those who don’t really know me, I am going through a change right now – my seizures have gotten worse for the past few weeks or so. Today was no different. I don’t know if it was caused by the traveling, the holidays, or the stress of the Redskins versus the Cowboys game (LMAO), but I started having the seizure just after noon.

I began watching the game and started feeling worse – no, not Redskinsdue to the game (LOL). “We” (the ‘skins, that is – LOL) were looking pretty good at this point. I started going downhill quickly, and hubby watched this. He kept asking what to do. There really isn’t anything a spouse can do. I am the type that likes to be alone when these things are happening.

Then I started to feel like I was going to faint. I personally think there is no worse feeling than when your body puts you through this, especially when the feeling stays right there – not making up its mind what to do. I call it a “brown out.” For 30 minutes or so, I fought the brown out.

David Asby - husband of Barbara Wilson Asby

David Asby – husband of Barbara Wilson Asby

Then I looked at my husband and said, “Now don’t freak out, but I am going to faint. Don’t freak out, OK?”

He came over to me and said, “OK. Baby, is there anything I can do?” OMG, how nice it felt for him to be there with me.

I said, “No. Just don’t freak out! OK? Just don’t freak out!”

Meanwhile, I was the one freaking out because he was there. I normally handle things so much better when no one is around (LOL). Then I just gave in and had my hubby hold me. I was so wiped out – too tired even to cry. He put his arms around me and said, “Breathe, Baby. I am here. Just breathe – calm down.”

So for once, I did breathe. Dang it! Why do people with a TBI have to be so STRONG!!!!!

(Disclaimer: The views or opinions in this post are solely that of the author.)

If you have a story to share and would like to be a part of the SPEAK OUT! project, please submit your TBI Tale to me at donnaodonnellfigurski@gmail.com. I will publish as many stories as I can.

(Clip Art compliments of Bing.)

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On the Air: Brain Injury Radio Another Fork in the Road . . . . . . Allan Bateman – Preventive & Rehabilitative Therapist

On the Air: Brain Injury Radio Interview –

Another Fork in the Road

with

Allan Bateman – Preventive and Rehabilitative Therapist

images-1Therapy should be gentle. That is what Preventive and Rehabilitative Therapist, Allan Bateman, touts. He does not buy into the “No pain! No gain!” train of thought. He also believes that therapy is not one-size-fits-all. When he meets with a client, he searches for methods that will best help his client, and those methods

Allan Bateman - Preventive & Rehabilitative Therapist

Allan Bateman – Preventive & Rehabilitative Therapist

are ever-changing as the needs of the client change. Allan incorporates a lot of Eastern philosophy into his therapy like Qigong and martial arts. He uses their gentle movements to retrain the muscles to accomplish his goals.

Allan Bateman, PRT, was my husband, David’s, therapist for nearly seven years.

Allan Bateman & TBI Survivor, David Figurski - sometimes Allan even came to our home

Allan Bateman & TBI Survivor, David Figurski

Thank you, Allan, for sharing your knowledge and expertise with me and my listeners on “Another Fork in the Road” on the Brain Injury Radio Network.

Click the link below to listen to New York City-based Allan Bateman discuss how he approaches therapy with his clients.

See you “On the Air!”

Allan Bateman – Preventive Rehabilitative Therapist

Click here for a list of all “Another Fork in the Road” shows on the Brain Injury Radio Network.

“Another Fork in the Road” . . . Brain Injury Radio Network . . . Allan Bateman: Preventive and Rehabilitative Therapist

YOU ARE INVITED!

putthis_on_calendar_clip_art

If you have a TBI (Traumatic Brain Injury) it’s most likely you will enter the world of therapy. Sometimes it is only for a few months. Sometimes it lasts for years. Therapies can include Physical Therapy, Occupational Therapy, Activities of Daily Living, Speech Therapy, and Cognitive

Allan Bateman - Preventive & Rehabilitative Therapist

Allan Bateman – Preventive & Rehabilitative Therapist

Therapy to name a few. Because of the duration and intimacy of therapies, often survivors develop strong relationships with their therapists. That’s what happened when Preventive and Rehabilitative Therapist, Allan Bateman entered my husband’s (and my life). Allan sees his client as a whole person and individualizes each client’s therapy to fit his or her needs. Allan will share his ideas with my listeners.

 

               Come One! Come ALL!

What:        Interview with New York City, Preventive and Rehabilitative Therapist, Allan Bateman

Why:        Allan will discuss his progressive ways of therapy.

Where:     Brain Injury Radio Network

When:       Sunday, January 4th, 2015

Time:         5:00p PT (6:00p MT, 7:00p CT, and 8:00p ET) 90 minute show

How:         Click: Brain Injury Radio Network

Call In:    424-243-9540

Call In:     855-473-3711 toll free in USA

Call In:    202-559-7907 free outside US

or SKYPE

Allan Bateman & TBI Survivor, David Figurski - sometimes Allan even came to our home

Allan Bateman & TBI Survivor, David Figurski – sometimes Allan even came to our home

 

 

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening. The archived show will be available after the show both on the Brain Injury Radio Network site and on my blog in “On the Air.”

(Clip Art compliments of Bing.)

(Photos compliments of Allan Bateman.)

Survivors SPEAK OUT! . . . . . Tracy Johnson

SPEAK OUT! – Tracy Johnson

by

Donna O’Donnell Figurski

Tracy Johnson Pre-TBI

Tracy Johnson
Pre-TBI

1. What is your name? (last name optional)

Tracy Johnson

2. Where do you live? (city and/or state and/or country) Email (optional)

Hogansville, Georgia, USA    lacigurl1@gmail.com

3. When did you have your TBI? At what age?

November 18, 1990    Age 20

4. How did your TBI occur?

Motor vehicle accident

5. When did you (or someone) first realize you had a problem?

It was noticed that I had a problem as I was slowly coming out of my coma. From then on, it was noticed daily.

6. What kind of emergency treatment, if any, did you have?

I was life-flighted to the trauma center at Georgia Baptist Medical Hospital, which is now Atlanta Medical Center. The life-flight EMTs (emergency medical technicians) performed a tracheostomy. As they arrived, I was hanging outside the driver’s door having seizures, with lots of blood coming out of my mouth due to a busted spleen and a lacerated liver. At the trauma center, I received 37 pints of blood. Mom stopped asking about me after this because the situation looked grim. I even had docs (twelve of them) telling my mom there was nothing else they could do. They even made her sign some documents to this effect. On top of all the blood loss and trauma, I developed a bleeding stomach ulcer and required a PPI drip (proton-pump inhibitor). I had severely bruised my heart. My brain swelled to where my ears were set two inches deep within the swelling. The steering wheel had broken and jammed my front teeth up into my gums. My top teeth bit through my lower gums, so stitches were required. I had emergency surgery to my legs. I had broken my left hip. Three screws were required. (It healed, but at 23, I had to have a left hip replacement due to the dying of the blood vessel to the femur head.) My left femur was repaired (a rod was put in). It had also ripped through the skin. I had a left pelvic fracture. My left knee was broken in three places and required three screws. My left tibia and fibula were broken, but they’re okay now. My right knee was broken in four places. It was thought it may have been crushed, but an Emory specialist was able to save it. However, right knee arthroscopy a year ago yielded no good results, so I’m waiting for right knee replacement.

7. Were you in a coma? If so, how long?

Yes. I was in a coma for five and a half weeks. I was on a breathing machine for four weeks. My heart stopped at the scene of the accident due to all the trauma my body was already in, but drugs were used to restart it.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I had rehab as an outpatient because my mother refused to let me go and stay at the Shepherd Center in Atlanta. I can’t remember how long I was at Georgia Baptist’s physical therapy. I know my mother was busy working at the time. This rehabilitation was for my multiple lower broken extremities, pelvis, and left hip. Nobody cared about the injury to my brain, except for me. And, I have just found my fellow sister and brother survivors via the Brain Injury Network. Praise God! 😉

Tracy Johnson - TBI Survivor

Tracy Johnson – TBI Survivor

9. What problems or disabilities, if any, resulted from your TBI
(e.g., balance, perception, personality, etc.)?

I had a problem with all my memory at first, but the doctors said I would remember as my life took place. I had just given birth to my one and only child not even a month before my accident, and I know he belonged to me because this is what my family told me. Today he is 24, and I am 43. Our relationship has always been as “best friends” since my accident. My family often spoke of my deficits and of my inability to raise a child. My memory has greatly improved over the years. I repeated myself continuously, and I still do to this day. My emotions are all out of whack – I feel too happy, too sad, or too mad. I’ve been told by physicians that I am called a cycling bipolar manic depressive. But, I never knew a day of depression until I started being prescribed drugs. My anger goes to extremes. I guess it has something to do with growing up with a violent, alcoholic father and two brothers older than I. Hence, it was suggested that I was suffering from being left behind and of being deprived of parental love. My dad chased us around with shotguns. He beat my mom and brothers. He would point and shoot guns all the time. Oh yeah, I would be noticed and would be told to run and hide. My dad was always damaging things, causing me to have PTSD (post-traumatic stress disorder) along with the PTSD I already had from the auto accident. I also have PTSD from a carjacking and kidnapping/rape back in 2005, due to my being too trusting. Now it leads me not to trust anyone and to be very suspicious. I walk with a limp, due to one hip replacement and worn out right knee. I’m beginning to be aphasic in speech and can’t deliver my thoughts into the proper wording.

10. How has your life changed? Is it better? Is it worse?

I feel my life is better because I was very judgmental. Having this injury occur and being out of this world for that length of time made me realize that the world keeps spinning around and people go on with their lives whether you’re here or not. Jeez, I was naïve. I now know that one’s life and recovery is what that person makes of it – NO ONE else. After the accident, I was, by the grace of God, very compassionate, nonjudgmental, and indeed touched by an Angel.

11. What do you miss the most from your pre-TBI life?

I miss the ability to think cognitively. I miss my memory. I only remember bits and pieces from my early childhood and preteen years. I don’t have much memory of my high school years – I guess because those memories were made so close to my coma days. (I was in high school from ages 16 to 19.) I guess as I’m thinking this through now, my traumatic dysfunctional childhood explains my issues with anger.

12. What do you enjoy most in your post-TBI life?

I like having the ability of not staying angry at someone for long, having the ability to forgive easily, and being able to experience things (always) as though they are the first experiences. Some of the learned knowledge of first experiences can lead to better outcomes, like relationships.

13. What do you like least about your TBI?

I can no longer think cognitively or remember as I did before. Oh, and almost all people have trouble relating. For example, people sometimes say I am making up my injury and symptoms, or I use it as an excuse.

14. Has anything helped you to accept your TBI?

I have been helped by my belief that Jesus Christ died on the cross for me. That is the gift of Grace from my heavenly Father above.

15. Has your injury affected your home life and relationships and, if so, how?

Yes, oh yes! It has caused distrust, dishonesty, and fighting. It has broken some of my most meaningful, close family relations to where I know they still love me, but they feel they have to love me from a distance.

16. Has your social life been altered or changed and, if so, how?

I had friends, but they could not cope with such a tragic event happening so close to them, so they are not around anymore. I try to isolate myself now because I am rather paranoid of people and their motives.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My caregiver is my fiancé. I have been engaged for 7 years. Please don’t laugh – I just find it hard to trust anyone after being hurt by people time and time again, including my own mother. I know what is entailed in being the caregiver of someone with Alzheimer’s, as I, just this week, have made arrangements for my dad to go to a nursing home. I cared and assisted him for three years.

18. What are your future plans? What do you expect/hope to be doing ten years from now?

I stopped chemical prescription drug therapy, except for 1200 mg of a medicine for mental seizures until I can become part of protein therapy at Emory University Hospital in Atlanta, 53 miles from where I live. I would like to help others. I want to devote my time to helping motivate others by decreasing the negativity in their lives, even if it is just one person. I want to find a way to counsel young folks. I want to transform their lives if their parents feel they are too busy with work or if their parents just didn’t have anyone in their lives to show or explain to them.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other TBI survivors with your specific kind of TBI.

To control my emotions, I had to learn, study, and meditate on the Word of God. In doing so, I realized there are no set rules for being a child of God or to be loved by God. We all walk different paths with different hurdles, and all sins are different because of such. Therefore, our Father in Heaven does not judge each of us to the same measure or degree. We are CHILDREN of God, and we are learning each and every day. So, unlike the legal system, we shall not be punished for NOT knowing something.

20. What advice would you offer to other TBI survivors? Do you have any other comments that you would like to add?

Be your own unique, strong self – the one who made you a survivor. Do not be too hard on yourself. Take each step in stride knowing Jesus walks right there beside you. Know that family and friends do not intentionally mean to shift blame by calling you names or cutting you down – it’s just their way, however, of dealing with an injury of such scope and magnitude to their loved one. Learn to laugh it off, and if you can’t laugh it off, well then, smile it off. Humor and inner peace are always the best medicine. Sorry, docs. 🙂

Tracy Johnson, Tbi-Survivor

Tracy Johnson, Tbi-Survivor

 

Thank you, Tracy, for taking part in this interview. I hope that your experience will offer some hope, comfort, and inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Tracy.)

SPEAK OUT! . . . . . . . . . . . . . . . . . Guest Blogger: Ken Collins . . . . . . 38 Tips for Living With a Brain Injury

SPEAK OUT! Guest Blogger: Ken Collins

(Host on the Brain Injury Radio Network)

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38 Tips for Living With a Brain Injury

 

Boy Blogger thOn December 31st, I will have lived with a traumatic brain injury for 38 years. I have used several strategies for co-existing with and minimizing the effects of my TBI. I know now that the brain-injury recovery process is ongoing and that there are four major areas to work on during recovery: (1) Getting Organized, (2) Being Responsible, (3) Following Through, and (4) Moving On. I learned a lot over the years, and I want to share my experiences. I have listed 38 tips (one for each year) that could be helpful to you.

 

1. Regain trust in yourself and in others.

2. Try not to be critical of mistakes you make. In the early years of your recovery, there will be too many of them to count. Learn from these mistakes and move on.

3. Find purpose and meaning in your life again. This will make it easier to get out of bed in the morning. Having a sense of purpose and meaning will give you something to live for and will help you feel worthwhile, help motivate you, and improve your recovery process. You will start feeling better about yourself.

4. Keep stress and anxiety to a minimum every day. Reducing stress and anxiety will increase your self-esteem and make life easier. Stress and anxiety trigger the fight-or-flight response in the mid-brain. You don’t have any control over this response because it is part of the Emotional Nervous System. When the fight-or-flight response is activated, it increases confusion and makes it harder to process information.

5. Regain your self-confidence and self-respect.

6.Be proactive.

7. Stay focused, calm, and relaxed as much as possible. This will make it easier to think, and you become less dependent on others to remind you. Becoming more responsible for yourself will build good habits on your part and will improve your self-esteem and self-confidence in the long run.

8. Get a large calendar. Put it up on your wall and use it. Make sure it’s in a location where you will always see it. An iPad (or clone), a smart phone, or a note pad with a calendar and alarm does the same thing. A calendar will also relieve stress and anxiety by helping you stay on task and not forget.

9. Get a key-holder and put it by your door to put your keys on when you come home. Do this every night so you won’t have to look for your keys in the morning. Starting your day off on the right foot will make your day easier and help to relieve stress and anxiety.

10. Make a “To Do” list to help you stay organized. iPads, iPhones or other smart phones, and note pads work wonders with this. The list will help you and make you feel good about yourself.

11. Making a list before you go shopping will save you money by cutting down on impulse-buying. It will also help you become more responsible and less dependent on others. Being less dependent on others improves your self-esteem.

12. Get lots of rest, and slow down. Many times we try to do too many things at once, and nothing gets done. Sleeping on an issue or concern can be the best way to help you figure it out. Getting enough rest will give you valuable energy to think better and solve difficult situations. Sufficient rest will also relieve stress and anxiety.

13. Set up a routine and stick to it. A routine will make it easier for you to follow through with what you have planned for the day. By doing the same thing every day, you will start building trust in your capabilities again.

14. Eat healthy foods, and get lots of exercise. Doing these things will help you get the blood with its oxygen circulating to your brain.

15. Get a dog and take it for walks. In my case, I have nine dogs, and they take me for a walk every morning and night! They also give me the unconditional love and companionship I need to feel good about myself and be happy.

16. Find ways to relax that aren’t counterproductive to your well-being. Abusing alcohol and drugs to “relax” is counterproductive. Long walks, yoga, and Tai Chi are much better for you and will make processing and problem-solving much easier. Stress and anxiety will be reduced.

17. Be patient.

18. Pay attention and become an active listener. Actively “hearing” what people have to say is more important than passively “listening” to what they say. Watch their body language. When I get distracted, sometimes it is harder to understand what a person is saying. Stay relaxed and focus. Take deep breaths – nothing works better than getting oxygen-filled blood to your brain.

19. Be around positive people and people who care about you. Nothing is more depressing than listening to someone who’s always complaining about his or her life or about what is going wrong in the world. Become active. Don’t just sit around hoping things will get better. Quit talking about a problem, and do something about it instead.

20. Don’t take criticism personally. When people don’t understand things, they criticize them. Constructive criticism can make you a better person in the long run.

21. Keep an open mind. Remember that your family and friends want to help, but sometimes they don’t know how. Many people don’t understand what you are going through, so don’t hold them responsible for this.

22. Stay calm; stay relaxed; take deep breaths; and move on!

23. Be careful of those you hang out with because they will set the stage for how you act. Friends who judge others and criticize you aren’t “friends.”

24. Grudges will only hold you back. They will be like anchors and keep you from being able to move on.

25. Lighten up on yourself, your family, and friends who want to help you.

26. Worry less and smile more.

27. Be content with what you have. Others have it much worse than you.

28. Find ways to stay active and be less isolated. Get out of your head and into the outside world.

29. Don’t give up – embrace adversity. Have adversity give you the resolve it will take to get better and improve your life. This will be up to you and no one else. People will be there to help you, but all of the work will be up to you. Use it or lose it!

30. Take ownership of your recovery. Remove the word “can’t” from your vocabulary.

31. Life is hard for most people. Life after a brain injury will definitely be hard, but not impossible. It will get easier over time – be patient! Make the best of every day and move on.

32. Thinking too much about a problem or issue can cause depression. This will trigger the fight-or-flight response, and you will be like a dog chasing its tail.

33. Be good to yourself.

34. Don’t take life too seriously.

Ken Collins for Blog

Ken Collins – TBI Survivor Host of Brain Injury Radio Network

35. Don’t let the little things get you down. When you think about them too long, they seem bigger than they really are.

36. Don’t beat yourself up over things you can’t control. This will only increase your stress and anxiety and trigger the fight-or-flight response.

37. Be happy with yourself and don’t try to live up to others’ expectations.

38. Most importantly – don’t set unrealistic expectations for yourself. Be strong. Find hope – because with hope, anything is possible!

Stop by the Brain Injury Radio Network to hear Ken. His show airs every 1st Thursday of each month from 5:00p to 6:30p Pacific Time.

Thank you, Ken Collins.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

 

Survivors SPEAK OUT! . . . . . William

SPEAK OUT! – William

by

Donna O’Donnell Figurski

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1. What is your name? (last name optional)

William

2. Where do you live? (city and/or state and/or country) Email (optional)

Eastern Tennessee, USA

3. When did you have your ABI? At what age?

Age 43

4. How did your ABI occur?

I was subjected to 334 ppm (parts per million) of carbon monoxide for six days.

5. When did you (or someone) first realize you had a problem?

At 6:00 am on the seventh day, I was found unconscious outside my apartment door.

6. What kind of emergency treatment, if any, did you have?

A hyperbaric chamber was used on three occasions while I was in a coma.

7. Were you in a coma? If so, how long?

I was in a coma 32 days.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I had physical and speech therapies for two years – first, inpatient; then outpatient.

9. What problems or disabilities, if any, resulted from your ABI
(e.g., balance, perception, personality, etc.)?marineCrop

Pre-injury, I was a retired Marine Colonel on discharge leave. After my injury, I developed a pronounced hyperkinetic motion disorder, with severe spasticity, a short-term memory disorder, and slow-awakening problems. I cannot walk, type, write, or do anything requiring either fine-motor control or large muscle use.

10. How has your life changed? Is it better? Is it worse?

I went from an active Marine to an inactive thinker. From one perspective, my life got significantly worse – about the worst it could. In another perspective, it became rather better. I have a better logical process; I am more understanding of others; and I have the dubious privilege to be unable to use any pharmaceutical drug. To combat this odd aspect of my disability, I studied to be an herbalist, and I live quite well. I cannot have many food chemicals, so I eat better too.

11. What do you miss the most from your pre-ABI life?

I miss being a Marine Corps Colonel.

What do you enjoy most in your post-ABI life?

12. I enjoy knowing how to help people who cannot yet cope with their disability. I help anyone who asks.

13. What do you like least about your ABI?

My brain injury turned me into a burden on everyone in my circle. I can do very little. Whenever I try to use my muscles, hyperkinesia starts up, followed by severe spasticity. It makes doing most things impossible.

14. Has anything helped you to accept your ABI?

I eventually realized that this was what I had left in my life. I could either mope about lost opportunity, or I could grasp any opportunity that came my way. I chose the latter – I cannot change anything, so I willingly accept it.

15. Has your injury affected your home life and relationships and, if so, how?

My life has been affected in every conceivable way. Everything is different. Relationships are far harder – people do not wish to know the twitching cripple in the fancy wheelchair. Physical relationships are completely different – I cannot be an active partner, so I must be passive. It takes a special person to be able to cope with that.

16. Has your social life been altered or changed and, if so, how?

Able-bodied people do not like to see severely disabled people. It embarrasses them. This makes socializing rather difficult. People will say “Call me” and give me the wrong number. Or, they will shudder at the thought of seeing me again. In stores, I am apparently invisible.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

Caregivers come and go. Some are good; some are perverts; some are thieves. They are necessary, so I lose things, get humiliated, or get assaulted. I have a friend who takes time to look after me once or twice a month. My friend works away and is home infrequently.

18. What are your future plans? What do you expect/hope to be doing ten years from now?

It would be nice to still be breathing. I have lived as I do now for twenty years. I hope to live for longer.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other ABI survivors with your specific kind of ABI.

Accept it as it develops. It takes time to reach the level you will live at. Accept that, and it will be easier.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

It is easy to be angry at the condition you find yourself in. You were not supposed to get disabled in any way, and you probably think that it is horrifically unfair. That is completely true in every case, but it does not help you go on with living. To do that, you have to look at what you have been given, what you still have, and what you can do. Take that inventory slowly and carefully because it is important. When you know what you have to work with and what you can do, don’t try getting anything else. Just accept what you have and adapt to live at that level. When you have done that and you can live calmly at that level, you could try to do more, but not until you are calm with your disability. So many people spend all of their time trying to fight the un-fightable. They are constantly miserable because it does not seem fair. I know it isn’t. I lost nearly everything three months after I retired from the Marines. All my dreams, hopes, and expectations died along with some of my brain. I really do not need to make worse what I have left by being miserable about it. That is foolish. I have to go on living. I had, and still have, no alternative, so I must make the very best of what I have. You will enjoy a better standard of living if you do the same.

 

Thank you, William, for taking part in this interview. I hope that your experience will offer some hope, comfort, and inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Clip Art compliments of Bing.)

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