TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘Prisoners without Bars: A Caregiver's Tale’

Survivors SPEAK OUT! Jordan Fallert

Survivors SPEAK OUT!     Jordan Fallert

by

Donna O’Donnell Figurski

Jordan Fallert

1. What is your name? (last name optional)

My name is Jordan Fallert.

2. Where do you live? (city and/or state and/or country) Email (optional)

I live in St. Louis, Missouri, USA.

3. On what date did you have your brain injury? At what age?

I got my brain injury on February 5th, 2021. I was 23 years old.

4. How did your brain injury occur?

I got my TBI (traumatic brain injury) from a car crash around 5:30 on a Friday. I had just left work to go home to study for a test for my master’s degree. Studying

5. When did you (or someone) first realize you had a problem?

What saved my life was that a fire truck had responded to a fire on that same road. They were told their backup was no longer needed. Their captain (who was in an SUV, not the fire truck) saw the crash happen. I was unconscious on impact, and they had to use the “Jaws of Life” to get me out of the car. After I was rescued, they took me straight to the hospital to have emergency surgery. I was in a coma for six weeks. I slowly gained consciousness and became aware pretty quickly that I was in the hospital, but I had no idea why. That was my biggest indication that something was wrong. Also, I couldn’t walk, and I had extreme right-side weakness.

6. What kind of emergency treatment, if any, did you have?

After I was rescued from my car and in the ambulance, the firemen realized very quickly I was having extreme difficulty breathing. I was hit on a road that had a speed limit of 45 mph. I was turning onto the road and going about 12 mph, and the other driver was speeding and going over 60 mph. Even though I was going so slowly, the force of the impact caused my diaphragm to rupture, my lungs to push on my stomach, and my stomach to push on my heart. Once I was at the hospital, I was immediately taken to the trauma floor. I was in surgery for about six hours.

7. Were you in a coma? If so, how long?

I was in a self-induced coma for about six weeks.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

Yes. I did a lot of rehab. I was in the hospital for about four months. As soon as I was conscious, they began putting me into rehab. I did speech, occupational, and physical therapies. After I was released from the hospital, I stayed with my mom in a house on the hospital campus and did intense outpatient therapy. And when I came home, I did more therapies at a hospital near me. It’s difficult to say how long I was in rehab, but I would guess about nine months.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?  wearing-specs-retro-cartoon-girl-teen-vector-illustration-148518868

My vision is one of my biggest problems so far. I go to a neuro-ophthalmologist to help combat my double vision. I have had some personality changes that my mom would probably agree with. But I would consider a lot of these “personality changes” to be normal for a very intelligent 24-year-old who had the whole world going for her. Someone else’s actions took that away. I also lost my independence.

10. How has your life changed? Is it better? Is it worse?

My life has changed, but I wouldn’t say it’s better or worse; it’s just different. (I personally have really tried my best to think like that.) My life has changed in that I have to rely on people a lot more than I am comfortable with. I got a car for my 16th birthday (almost ten years ago), so I’ve always been able to go places and do things without having to ask other people for rides and things like that. It feels like I was knocked down a peg or two.

11. What do you miss the most from your pre-brain-injury life?

This is a bit of a complicated question for me. My life was in such a weird place when my crash happened. Courses all went online because of COVID. I had to come home–exactly from my undergrad degree. I continued with a job where I had my internship at, but I hardly saw my friends because of COVID. They were all in different cities in the US, and we couldn’t really travel. So I guess what I really miss are my college years because those are the most recent and foremost in my mind. Because of the accident, I have retrograde amnesia. So I don’t remember anything from about two years before.

12. What do you enjoy most in your post-brain-injury life?

Jordan Fallert & CavapooBefore my accident, I was on a breeder list to get a cavapoo puppy. I was sixth on the list, and a litter was born in May 2021. Some people skipped on this litter of two (the Tom and Jerry litter), so I was able to have my choice. I chose Tom and renamed him Brew. He has been my saving grace after my brain injury. He’s my best friend and constant companion. I don’t know what I’d do without him.

13. What do you like least about your brain injury?

I don’t like feeling weak. This right-side weakness has been an uphill battle to deal with. But it’s getting better.

14. Has anything helped you to accept your brain injury?

My parents have really been my saving grace. They have never given up on me and never make me feel like I am limited. If I want to do something, they encourage me and help me do it.

15. Has your injury affected your home life and relationships and, if so, how?

I continue to live with my parents since my brain injury. I was living with them before due to COVID. My parents have been nothing but great. But I have had a lot of friendships wither and decay, which has been hard in and of itself.

16. Has your social life been altered or changed and, if so, how?

Yes and no. I didn’t have a social life before the accident because of COVID. After the crash and when I came home, I had some friends come see me at my house, but they slowly drifted away. It’s hard when you can’t drive, so you are always having to ask others to drive up to see you or drive you somewhere.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My main caregivers are my mom and my dad. I do not understand–and hope to never understand–what it takes to be a caregiver. I just know that they are the strongest individuals I know.

18. What are your plans? What do you expect/hope to be doing ten years from now?

My plans are very fluid and always changing. I recently (less than a month ago) got my license, and last week, I was able to buy my own car. With these changes, my attitude and outlook have drastically improved. I feel like I can conquer the world if I have this outlook. A Traumatic Brain Injury won’t keep me down and will not limit me. I won’t let it!    R

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

I was always angry that my brain couldn’t heal faster, but my mom kept reminding me that it’s not like a broken bone. It’s an organ that controls your entire body, so give it time to heal.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Don’t take your anger out on your caregiver(s). They want to help you get your life back. Hug everyone tighter, and tell them you love them. A brain injury will only limit you if you let it.

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New News: Honorable Mention BETSY’S RAINBOW BALLOONS

Holy Jumping Jugglers!

Remember when I told you I entered a children’s picture book contest, Spring Fling Kidlit Contest 2021? I had to write a story from scratch with only 150 words – no more!

I posted my story, BETSY’S RAINBOW BALLOONS, on Bookity Blog several weeks ago and forgot about it. Tonight one of my CPs (Critique Partners) sent me a message to tell me that I won an honorable mention for my story.

Holy Giggling Grasshoppers!

I can’t believe it. Just like my first graders always jumped for joy when they accomplished something fun, I am jumping for joy now. Yippee!!!

Holy Bopping Balloons!

Congratulations to the WINNERS and the other HONORABLE MENTIONS. Heck, congratulations to all who entered.

AND…. Drum Roll….THE WINNERS ARE!

A big RAINBOW thank you to the contest organizers, Kaitlyn Sanchez and Ciara O’Neal. What a lot of work!

Read more stories at Bookity Blog.

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PAPERBACK!        Read it Now!                              e-BOOK!      Read it Now!

Stay Safe and Healthy!

Clip Art compliments of Bing

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.anim0014-1_e0-1

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COVID-19: Long COVID and Children

Long COVID and Children
by
Columbia University Professor Emeritus, Dr. David Figurski
presented by
Donna O’Donnell Figurski

 

(Disclaimer: The World Health Organization <WHO> has officially named the new coronavirus as SARS-CoV-2 and the disease it causes as COVID-19.  Because the majority of people, including much of the press, commonly refer to the virus as “COVID-19,” to avoid confusion, I use COVID-19 as the name of the virus.)

David H. Figurski, Ph.D & Survivor of Brain Injury

It has been accepted that the infection of teens and children with COVID-19 rarely results in significant symptoms, but it’s worrisome that they may be as susceptible as anyone else to a recently identified effect of COVID-19 – a syndrome called “long COVID.”

Children with the virus often show no signs of infection, and sometimes they (and their parents) are not even aware that they have been infected.  Contrast that with the experiences of the very old.  Infection of the elderly often leads to severe disease and can result in death.  Nobody has yet been able to explain how age results in the radical difference in sensitivity to the effects of the virus.

Doctors and scientists are also unable to explain the onset of the delayed symptoms of long COVID.  In one study, 10-13% of children who knew they were infected thought they had recovered.  They tested negative for the virus, and most of their symptoms were gone. In some cases, there were several weeks of good health. But weeks or months later, they showed new symptoms. (Adult symptoms include fatigue; fever; cough; sore throat; chest pain; shortness of breath; neurocognitive problems with memory, concentration, processing, or finding words; diarrhea; headaches; insomnia; dizziness; heart palpitations; abdominal cramps, rashes; tinnitus; joint pain; depression; and anxiety.) The symptoms may last weeks or months, and some people still have symptoms after several months.

Particularly worrisome is the fact that mild or asymptomatic acute infections can still lead to long COVID.  This means that children, who were thought to be unbothered by infection, are, in fact, sensitive to long COVID.

I haven’t seen the data, but I suspect that the 10-13% number came from people who either had an obvious symptom or tested positive.  If we include the number of asymptomatic infections, the percentage of infected children who get long COVID will likely go down significantly.  If you and your children are using masks and social-distancing, then you’re already at a low risk of even getting infected.

The bottom line is that this virus still shows surprises. It’s definitely too early to relax.

Clip Art compliments of BING..

Photos cocmpliments of Contributor.

Prisoners without Bars: A Caregiver’s Tale

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