TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘Traumatic Brain Injury’

SPEAK OUT! . . . . . . . . . . . . . . . . . Guest Blogger: Ken Collins . . . . . . 38 Tips for Living With a Brain Injury

SPEAK OUT! Guest Blogger: Ken Collins

(Host on the Brain Injury Radio Network)

offers

38 Tips for Living With a Brain Injury

 

Boy Blogger thOn December 31st, I will have lived with a traumatic brain injury for 38 years. I have used several strategies for co-existing with and minimizing the effects of my TBI. I know now that the brain-injury recovery process is ongoing and that there are four major areas to work on during recovery: (1) Getting Organized, (2) Being Responsible, (3) Following Through, and (4) Moving On. I learned a lot over the years, and I want to share my experiences. I have listed 38 tips (one for each year) that could be helpful to you.

 

1. Regain trust in yourself and in others.

2. Try not to be critical of mistakes you make. In the early years of your recovery, there will be too many of them to count. Learn from these mistakes and move on.

3. Find purpose and meaning in your life again. This will make it easier to get out of bed in the morning. Having a sense of purpose and meaning will give you something to live for and will help you feel worthwhile, help motivate you, and improve your recovery process. You will start feeling better about yourself.

4. Keep stress and anxiety to a minimum every day. Reducing stress and anxiety will increase your self-esteem and make life easier. Stress and anxiety trigger the fight-or-flight response in the mid-brain. You don’t have any control over this response because it is part of the Emotional Nervous System. When the fight-or-flight response is activated, it increases confusion and makes it harder to process information.

5. Regain your self-confidence and self-respect.

6.Be proactive.

7. Stay focused, calm, and relaxed as much as possible. This will make it easier to think, and you become less dependent on others to remind you. Becoming more responsible for yourself will build good habits on your part and will improve your self-esteem and self-confidence in the long run.

8. Get a large calendar. Put it up on your wall and use it. Make sure it’s in a location where you will always see it. An iPad (or clone), a smart phone, or a note pad with a calendar and alarm does the same thing. A calendar will also relieve stress and anxiety by helping you stay on task and not forget.

9. Get a key-holder and put it by your door to put your keys on when you come home. Do this every night so you won’t have to look for your keys in the morning. Starting your day off on the right foot will make your day easier and help to relieve stress and anxiety.

10. Make a “To Do” list to help you stay organized. iPads, iPhones or other smart phones, and note pads work wonders with this. The list will help you and make you feel good about yourself.

11. Making a list before you go shopping will save you money by cutting down on impulse-buying. It will also help you become more responsible and less dependent on others. Being less dependent on others improves your self-esteem.

12. Get lots of rest, and slow down. Many times we try to do too many things at once, and nothing gets done. Sleeping on an issue or concern can be the best way to help you figure it out. Getting enough rest will give you valuable energy to think better and solve difficult situations. Sufficient rest will also relieve stress and anxiety.

13. Set up a routine and stick to it. A routine will make it easier for you to follow through with what you have planned for the day. By doing the same thing every day, you will start building trust in your capabilities again.

14. Eat healthy foods, and get lots of exercise. Doing these things will help you get the blood with its oxygen circulating to your brain.

15. Get a dog and take it for walks. In my case, I have nine dogs, and they take me for a walk every morning and night! They also give me the unconditional love and companionship I need to feel good about myself and be happy.

16. Find ways to relax that aren’t counterproductive to your well-being. Abusing alcohol and drugs to “relax” is counterproductive. Long walks, yoga, and Tai Chi are much better for you and will make processing and problem-solving much easier. Stress and anxiety will be reduced.

17. Be patient.

18. Pay attention and become an active listener. Actively “hearing” what people have to say is more important than passively “listening” to what they say. Watch their body language. When I get distracted, sometimes it is harder to understand what a person is saying. Stay relaxed and focus. Take deep breaths – nothing works better than getting oxygen-filled blood to your brain.

19. Be around positive people and people who care about you. Nothing is more depressing than listening to someone who’s always complaining about his or her life or about what is going wrong in the world. Become active. Don’t just sit around hoping things will get better. Quit talking about a problem, and do something about it instead.

20. Don’t take criticism personally. When people don’t understand things, they criticize them. Constructive criticism can make you a better person in the long run.

21. Keep an open mind. Remember that your family and friends want to help, but sometimes they don’t know how. Many people don’t understand what you are going through, so don’t hold them responsible for this.

22. Stay calm; stay relaxed; take deep breaths; and move on!

23. Be careful of those you hang out with because they will set the stage for how you act. Friends who judge others and criticize you aren’t “friends.”

24. Grudges will only hold you back. They will be like anchors and keep you from being able to move on.

25. Lighten up on yourself, your family, and friends who want to help you.

26. Worry less and smile more.

27. Be content with what you have. Others have it much worse than you.

28. Find ways to stay active and be less isolated. Get out of your head and into the outside world.

29. Don’t give up – embrace adversity. Have adversity give you the resolve it will take to get better and improve your life. This will be up to you and no one else. People will be there to help you, but all of the work will be up to you. Use it or lose it!

30. Take ownership of your recovery. Remove the word “can’t” from your vocabulary.

31. Life is hard for most people. Life after a brain injury will definitely be hard, but not impossible. It will get easier over time – be patient! Make the best of every day and move on.

32. Thinking too much about a problem or issue can cause depression. This will trigger the fight-or-flight response, and you will be like a dog chasing its tail.

33. Be good to yourself.

34. Don’t take life too seriously.

Ken Collins for Blog

Ken Collins – TBI Survivor Host of Brain Injury Radio Network

35. Don’t let the little things get you down. When you think about them too long, they seem bigger than they really are.

36. Don’t beat yourself up over things you can’t control. This will only increase your stress and anxiety and trigger the fight-or-flight response.

37. Be happy with yourself and don’t try to live up to others’ expectations.

38. Most importantly – don’t set unrealistic expectations for yourself. Be strong. Find hope – because with hope, anything is possible!

Stop by the Brain Injury Radio Network to hear Ken. His show airs every 1st Thursday of each month from 5:00p to 6:30p Pacific Time.

Thank you, Ken Collins.

Disclaimer:
Any views and opinions of the Guest Blogger are purely his/her own.

(Clip Art compliments of Bing.)

 

SPEAK OUT! Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

Itty-Bitty GIant Steps for Blog

 

SPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at donnaodonnellfigurski@gmail.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

 

Here are this week’s Itty-Bitty Giant Steps.

Jodi Jizmejian (survivor)…This morning, I used my right hand without thinking about using it. I’m right-handed naturally, but this act was not planned. It seemed like “natural.” Mind you, I’m still experiencing numbness and heaviness in my right hand/arm, but I realized that I automatically started using my right hand to do something that I’ve been using my left hand to do. Oh, the silly, little things that excite me.

Carmen Gaarder Kumm (survivor)…Be proud of me. I didn’t call anyone, nor did I check the Internet until afterwards. I was making a salad, and I didn’t have sour cream. So, I substituted cottage cheese for it!!! Then I checked the Internet. Yep, I did it exactly right! Yay, me!

Sandra Williams (survivor)…I just finished my second round of speech therapy. Now I have coping strategies to help me keep my job. This confidence has allowed me to control flashbacks as I work. I can’t control the fatigue, but I do feel I have a much better shot at working from home. I will never be hired to work outside the home, so it is so important for me to keep this job. I feel like I have some hope.

YOU did it!

Congratulations to all contributors!

(Clip Art compliments of Bing.)

On the Air: Brain Injury Radio Another Fork in the Road: Catherine and Dan’s Reflections – Triking Across America

On the Air: Brain Injury Radio Interview with

Catherine (Cat) Brubaker and Dan Zimmerman

Another Fork in the Road:

Catherine and Dan’s Reflections – Triking Across America

images-1IMPORTANT NOTE: Because of technical difficulties, the show cuts out at the 6:37-minute marking and returns at the 10:30-minute marking. When the air is dead, drag the cursor to 10:30 and happy listening.

It was a pleasure to spend the evening with Catherine (Cat) Brubaker and Dan Zimmerman on my show, “Another Fork in the Road.” They are my heroes! It was such fun to dig into the depths of their feelings to learn what it meant to them toCat & Dan at the FInish Line 112914 travel across America for 5 months on recumbent trikes -a total of 5,300 miles.

If you missed the show, don’t fret. You can always listen to the archived show.

You can get to the interview by clicking the link at the bottom of this page. (Wait a few seconds for the audio to start.) Because of technical difficulties, the show cuts out at the 6:37-minute marking and returns at the 10:30-minute marking. When the air is dead, drag the cursor to 10:30 and start listening.

Cat Brubaker Crossing America – diagonally

Dan Pedaling to Maragaritaville

Dan Zimmerman Pedaling to Margaritaville

 

I hope you’ll tune in to my show, “Another Fork in the Road,” which airs the 1st and 3rd Sunday evenings of every month. The show starts at 5:00p Pacific Time and runs for 90 minutes. On the fifth Sunday in a month, Julie Kintz, Host of “Quantum Leap,” and I team up to cohost a show called “Another Quantum Leap in the Road.”

REMEMBER: Read above for directions for the technical difficulties.

See you “On the Air!”

Another Fork in the Road: Catherine and Dan’s Reflections – Triking Across America

Click here for a list of all “Another Fork in the Road” shows on the Brain Injury Radio Network.

“Another Fork in the Road” . . . Brain Injury Radio Network Catherine (Cat) Brubaker’s and Dan Zimmerman’s Reflections – Triking Across America

YOU ARE INVITED!

putthis_on_calendar_clip_art

It took Catherine (Cat) Brubaker and Dan Zimmerman 5 months and 5,300 miles to cross the USA (diagonally) on recumbent trikes. Blowouts, tumbles, and close encounters with bears and wild turkeys still left plenty of time to meet folks at the heart of our country. It also left time to get lost in one’s own mind. Cat and Dan rode to raise awareness for TBI and for Stroke, but I wonder what awareness they discovered within themselves along their journey. And, I mean to find out. 🙂

 

                Come One! Come ALL!

What:        Interview with Catherine (Cat) Brubaker and Dan Zimmerman.

Why:        Cat and Dan will look inward and share their innermost thoughts.

Dan Zimmerman & Cat Brubaker

Dan Zimmerman & Cat Brubaker

Where:     Brain Injury Radio Network

When:       Sunday, December 21, 2014

Time:         5:00p PT (6:00p MT, 7:00p CT, and 8:00p ET) 90 minute show

How:         Click: Brain Injury Radio Network

Call In:    424-243-9540

Call In:     855-473-3711 toll free in USA

Call In:    202-559-7907 free outside US

or SKYPE

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening. The archived show will be available after the show both on the Brain Injury Radio Network site and on my blog in “On the Air.”

(Clip Art compliments of Bing.)

Survivors SPEAK OUT! . . . . . . . Ken Collins

SPEAK OUT! – Ken Collins

Brain Injury Radio Network Host

by

Donna O’Donnell Figurski

Collins, Ken 2

Ken Collins – TBI Survivor Host on the Brain Injury Radio Network

1. What is your name? (last name optional)

Ken Collins

2. Where do you live? (city and/or state and/or country) Email (optional)

Gamerco, New Mexico, USA     on3.go@live.com

3. When did you have your TBI? At what age?

December 31, 1976     Age 26

4. How did your TBI occur?

I ran into a parked car while driving a snowmobile.

5. When did you (or someone) first realize you had a problem?

I realized the seriousness of my injury after I “woke” several weeks later. I was standing in front a mirror and picking at the wires in my mouth.

6. What kind of emergency treatment, if any, did you have?

I was taken to the Emergency Room, and I had surgery. I broke my jaw below my chin on the left side and rammed my right jawbone into my right ear canal.

7. Were you in a coma? If so, how long?

I have a month missing.  My hospital records say that I was “in and out” and that I was in a Posey jacket and wrist restraints all the time I was in the hospital.  I didn’t have any insurance, and there was no insurance on the snowmobile I was on or the car I ran into.  I was in the hospital a week, and then I was released to go home with my parents because I kept getting out of the restraints and wandering the halls.  On the last day I was in the hospital, they found me untied three times.  One of those times, I was urinating on a plant in the lobby.  I remember Christmas Eve, and then I don’t remember anything until I woke up in front of the mirror in late January.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I didn’t have any rehab because there wasn’t any rehab in 1976.  My rehab came from playing baseball and community organizing.

9. What problems or disabilities, if any, resulted from your TBI
(e.g., balance, perception, personality, etc.)?

My short-term memory problem has gotten much better over time. I have issues with balance and impulsivity.

10. How has your life changed? Is it better? Is it worse?

My brain injury has given me insights that have allowed me to become a better person.

11. What do you miss the most from your pre-TBI life?

Nothing

12. What do you enjoy most in your post-TBI life?

I have a better understanding of people and life in general.

13. What do you like least about your TBI?

Nothing

14.Has anything helped you to accept your TBI?

Time

15. Has your injury affected your home life and relationships and, if so, how?

I’ve been married three times. The relationships were hurt by my impulsivity and money-management issues.

16. Has your social life been altered or changed and, if so, how?

Not really

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My family provided me with the love and support I needed after my brain injury.  They also gave me a place to live for a couple years until I was able to live on my own.

18. What are your future plans? What do you expect/hope to be doing ten years from now?

I plan to be retired.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other TBI survivors with your specific kind of TBI.

Talk with other brain-injury survivors. I wish there would have been some people with brain injuries to talk to after my brain injury. I wish also that the Internet and smart phones would have existed.

20. What advice would you offer to other TBI survivors? Do you have any other comments that you would like to add?

Collins, Ken

Ken Collins – TBI Survivor Host on the Brain Injury Radio Network

Find purpose and meaning in your life again because this will make it easier to get out of bed in the morning. Having a sense of purpose and meaning will give you something to live for. This will also help you feel worthwhile, help motivate you, and improve your recovery process. Take ownership of your recovery, and get rid of the word “can’t” in your vocabulary.

 

To learn more about Ken, stop by the Brain Injury Radio Network to hear some of Ken’s archived shows.

Thank you, Ken, for taking part in this interview. I hope that your experience will offer some hope, comfort, and inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Photos compliments of Ken.)

Survivors SPEAK OUT! . . . . . . . Deb Angus

SPEAK OUT! – Deb Angus

by

Donna O’Donnell Figurski

 

Deb Angus & her book

Deb Angus with Regaining Consciousness

1. What is your name? (last name optional)

Deb Angus

2. Where do you live? (city and/or state and/or country) Email (optional)

Alberta, Canada

3. When did you have your TBI? At what age?

July 2001   Age 44

4. How did your TBI occur?

We were rear-ended at a red light by a distracted driver.

5. When did you (or someone) first realize you had a problem?

It was realized I had a brain injury about one week afterwards.

6. What kind of emergency treatment, if any, did you have?

None

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

My rehab was all outpatient: physical therapy, January-March 2002; vestibular therapy, March-April 2002; occupational therapy, April-May 2003; and speech therapy, May-June 2003.

9. What problems or disabilities, if any, resulted from your TBI
(e.g., balance, perception, personality, etc.)?

I have light-sensitivity (pain from bright sunlight, photo flash, strobe lights, etc.), double vision, depth-perception problems, tinnitus, pain from loud noises, speaking problems (word-finding, stuttering, and stammering), memory problems, concentration and attention problems, a balance problem and dizziness, left-side weakness, sleeping problems, and spatial-coordination problems. I had constant debilitating head pain for the first three weeks and shooting head-pains from August 2001 until about 2010, which have dissipated quite a lot over the years. They still occur once in a while, but they’re much milder than earlier in my recovery. In 2005, I developed an extreme sensitivity to perfumes and colognes. It started as the result of olfactory and trigeminal nerve damage.

10. How has your life changed? Is it better? Is it worse?

My life is worse. I cannot do many activities anymore (e.g., riding a bicycle or ice-skating). Parties, large crowds, and loud noises are difficult or impossible. Light-sensitivity is still an ongoing issue. It affects my driving, watching certain movies and TV programs, and attending certain events.

11. What do you miss the most from your pre-TBI life?

I miss the spontaneity – just going out and doing whatever whenever.

12. What do you enjoy most in your post-TBI life?

I have more compassion and understanding. I’m more aware of concussions and their impact on brain health.

13. What do you like least about your TBI?

I realize our fragility in life.

14. Has anything helped you to accept your TBI?

I have been helped by time, a lot of inner work on acceptance, and learning about TBI.

15. Has your injury affected your home life and relationships and, if so, how?

Many people have given up on me; good friends have stood by me; many more new friends have entered my life. Only I and my husband are here – I have no contact with my family back east. It wasn’t until halfway through my rehab that I realized what a brain injury was and how much it had affected me. I was then able to recognize the symptoms in my husband when he was rear-ended at red light by a drunk driver in ’92. He was never diagnosed. He hasn’t worked outside the home in 22 years. His injury is more depressive than mine, and he dislikes being around people now.

16. Has your social life been altered or changed and, if so, how?

I don’t go out as much as I used to. A small circle of friends, who understand what I’ve gone through and what I still contend with, invite me out for lunches, etc. No more drinking; no more music events; no large-crowd events, like the Calgary Stampede or fireworks.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

My caregiver is just me, my husband, and patience.

Book Cover-FINAL-6x9-web3

Regaining Consciousness: My Encounter with Mild Brain Injury — The Silent Epidemic

18. What are your future plans? What do you expect/hope to be doing ten years from now?

I still continue to work full-time. It took 10 years of writing and research, but I finally published my book on mild brain injury in 2014. I am now out delivering talks on concussions and brain injuries to raise awareness. I’m hoping to be able to retire in next 3-5 years and to concentrate more on promoting my book and delivering talks. I’m hoping that this work will help change the paradigms in the medical, legal, and insurance industries for recognition of these injuries, the recovery process involved, and the fact that many survivors need support for employment, housing, and medical issues that may crop up due to TBI – especially as we age.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other TBI survivors with your specific kind of TBI.

I wish I would have known how easily concussions occurred and that repeated concussions lead to permanent brain injury. And to deal more effectively with stress, which can wear the body and spirit down to dust. I am currently dealing with kidney failure due to a rare autoimmune response to a virus. My general practitioner is convinced that this occurred because of the stress I’ve endured working through brain injury, having a job that was uncertain from year to year, and having to move six times in four years, due to problem tenants, a rodent problem, and a job transition in 2012.

20. What advice would you offer to other TBI survivors? Do you have any other comments that you would like to add?

Deb Angus winter

Deb Angus

Be patient with yourself. Be gentle and nurturing with lots of self-care. Keep strong, be determined to improve, and be willing to explore all kinds of healing modalities. Keep trying to find the right doctors and the right therapists who will listen to you and help you.

 

Thank you, Deb, for taking part in this interview. I hope that your experience will offer some hope, comfort, and inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Photos compliments of Deb.)

Survivors SPEAK OUT! . . . . . . . Anthony Vigil Jr.

SPEAK OUT! – Anthony Vigil Jr.

by

Donna O’Donnell Figurski

About a week after waking from the coma.  I had dropped down to 76 lbs!  Both legs were amputated, btw.-11. What is your name? (last name optional)

Anthony Vigil, Jr.

2. Where do you live? (city and/or state and/or country) Email (optional)

Guam

3. When did you have your TBI? At what age?

July 2011    I was 31 years old.

4. How did your TBI occur?

I was in a traumatic car accident while on my way to train for my 2nd half-marathon.  I was an avid long-distance runner, had completed my first in 1:39, and was training to come in under 1:30 for my 2nd.  The accident also resulted in the loss of both legs above the knees.

5. When did you (or someone) first realize you had a problem?

I realized I had a problem when I started studying for the LSAT (law school admission test) during the summer of 2013.

6. What kind of emergency treatment, if any, did you have?

I was in bad shape – both lungs were collapsed, and my kidneys, liver, and gallbladder failed.  There was much more that I don’t remember.  I was lucky that my accident was less than a mile from the US Naval Hospital, where many doctors there were previously stationed in Iraq and Afghanistan and had experience with the kind of trauma I suffered.  I was eventually transported to St. Luke’s Hospital in the Philippines, where they had a brain drug that is not approved by the FDA (Food and Drug Administration), but is used in Europe and Asia.

7. Were you in a coma? If so, how long?

I was in a medically induced coma for one month.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I was in physical rehab, both as an inpatient and an outpatient, for about two months. Then I decided to complete it at home. It took two years to fully recover physically. I’m still working on the cognitive aspect.

9. What problems or disabilities, if any, resulted from your TBI
(e.g., balance, perception, personality, etc.)?

The doctors told my parents that I would have the mind of a child, but luckily that didn’t happen.  When I was being tested in the Philippines, I couldn’t even draw a clock, my speech was slurred, and I didn’t know what year it was or how old I was.  I did know who all my family was, though.  I still have trouble reading dense passages and have to reread them just to comprehend.  Because my short-term memory was affected, I have trouble keeping track of concepts in dense passages.

10. How has your life changed? Is it better? Is it worse?

For the better – my relationship with my parents is so much better.

For worse – it has quashed (or at least delayed) my aspirations for a professional degree (law or MBA).

11. What do you miss the most from your pre-TBI life?

I greatly miss my processing speed.  I used to be very quick to pick up new concepts, and many people thought I was smart. (I guess they still do.)

12. What do you enjoy most in your post-TBI life?

I enjoy relationships with people.  I’ve realized that relationships are more important than money.  I also try to enjoy life in every little thing I do.

13. What do you like least about your TBI?

I dislike knowing that I’m not as capable as before, but I’ve finally arrived at peace with that.Vigil Jr., Anthony Relay Race Pre TBI

14. Has anything helped you to accept your TBI?

I’ve been helped by reading other people’s stories and by learning how people were able to succeed despite the TBI.

15. Has your injury affected your home life and relationships and, if so, how?

For the first two years, I hated being stuck at home with my parents again, after I had been living on my own since 19.  I’ve finally come to enjoy and appreciate my parents.

16. Has your social life been altered or changed and, if so, how?

I didn’t have much of a social life before the accident, so not much has changed.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

During the first year of my recovery, my mom was my caregiver.  Yes, I understand that it takes a lot of love, even though you may not understand why things happened that way and even if the other person fights you the whole time.  =)

18. What are your future plans? What do you expect/hope to be doing ten years from now?

I was approved for a business loan a week before my accident, so I hope to resume that plan and maybe get a professional degree.  That’s a big maybe.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other TBI survivors with your specific kind of TBI.

Try working or really exerting your mind.  You won’t really know your capabilities until you try.

20. What advice would you offer to other TBI survivors? Do you have any other comments that you would like to add?

Research, research, research.  Reach out to other survivors, for no one else knows what you are experiencing.  I tried explaining it to my coworkers and parents, and it was impossible for them to understand!Vigil, Jr., Anthony

 

Thank you, Anthony, for taking part in this interview. I hope that your experience will offer some hope, comfort, and inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Photos compliments of Anthony.)

 

Speak OUT! NewsBit . . . . . . . . . Major News About Football-Caused Concussions

Major News About Football-Caused Concussions

Newsboy thYou’ve probably heard of Kosta Karageorge, the senior on the Ohio State University football team who apparently committed suicide. He enjoyed hitting his opponents. He had several known concussions, and probably several more that were unreported. It’s now very clear that concussions injure the brain. Kosta complained about his concussions in his last text message to his mother, saying “…but these concussions have my head all f—ed up.” His tragic case is still being investigated, but because he played on a major football team and because he had a history of brain trauma, his case has highlighted the need to know more about concussions and the need to better protect players, particularly young players, whose brains are still developing. (Full stories 1 and 2)

Both the National Football League (NFL), a league of professional players, and the National Collegiate Athletic Association (NCAA), a national organization that oversees most college football, have settled class-action lawsuits about concussions. (The NFL settled for $765 million, and the NCAA, for $70 million, but judges are likely to rule that more is needed.) High school football is not regulated by a national organization, but rather by the individual states. Now the first class-action lawsuit has been filed against the athletic association of a state – Illinois. The attorney is the same one that filed the NCAA lawsuit. This is the first lawsuit for high school football, and the attorney believes that high school athletic associations need to be sued in every state to affect the sport nationally. He is representing a former high school quarterback who suffered several concussions. The objective of the lawsuit is to make the sport safer. (Full stories 3 and 4)

A star high school football player has written a poignant essay about why his concussion landed him in the hospital fighting for his life. He definitely enjoyed being one of the “elite,” but now he writes that football wasn’t worth shattering his life and dreams (“…was playing football worth it? The answer is no. Not by a long shot”). He hopes to warn other youths of the incredible danger. (Full story)

(Clip Art compliments of Bing.)

 

SPEAK OUT! Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

Itty-Bitty GIant Steps for Blog

 

 

SPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at donnaodonnellfigurski@gmail.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

 

Here are this week’s Itty-Bitty Giant Steps.

Bart Boughner (survivor)…I found my old horse this past month. I haven’t seen him since 2004. Today (yeah!) I remembered I can scan pictures to send to the new owner. Yesterday I tried the camera – not so good. I love days like today!

Bart Boughner, 2 months after TBI, poses with his horse.

Bart Boughner, 2 months after TBI, poses with his horse.

Ever So Dirty, aka Hannah and Rightly Zipped, aka Bubba

Ever So Dirty, aka Hannah and Rightly Zipped, aka Bubba

The big one is my old mare, Ever So Dirty, aka Hannah. She had two babies for me. The one I just found is the little one, Rightly Zipped, aka Bubba.  I still have the sister, and – funny thing – they were born on the same day, two years apart, and with the same parents.

Olivianjeana Collazo (caregiver)…Our biggest accomplishment has been finding fish oil and other things to help our son with his brain injury, which happened in July. All that the doctors could say was the worst. I can’t wait to show them our son now. He is doing half the things they said he wouldn’t! Thanks for reading.

Peter Cornfield (survivor)…Peter uses innovative measures to move a basket of firewood to the fireplace using only one hand. See his inspirational video on You Tube. Moving Wood With My Stick.

Jamie Fairles (survivor)…Hi, Donna. As of yesterday, I’m off for four weeks from my B SW (Bachelor of Social Work) field practicum placement until my second term begins in the new year. I have the rest of this practicum to finish, a second field placement, and only two more full courses until I’m a social worker!

 Heather Sivori Floyd (caregiver)…BIG NEWS to share! Kinda nervous to share but really excited! Had a meeting with a few people from Brain Injury Alliance of Kentucky today. They have written something for bicycle helmet legislation for children. It will be called TJ’s law!! Very exciting! Now to get the right people involved to get this thing passed.

William Jarvis (survivor)…Donna, a big step for me was moving. Five months ago, I thought it would be impossible, due to my TBI and walking with a cane. However, I am now in my new home in Myrtle Beach. I got a lot of support from family and friends. You can do more than you think! Don’t be afraid to try things.

Debbie Madison (survivor)…I went to my first Christmas party, and I didn’t hide in the bathroom! It wasn’t so bad, and I had a nice time with my husband.

Debbie Madison (survivor)…I finished the shopping, and I sent out cards without losing addresses or the list.

Julie-Ann Manners (survivor)…It’s Wednesday here in Oz (Australia). I just got out of the hospital on Monday. [I was in due to my epilepsy from my ABI (acquired brain injury).] And this is HUGE FOR ME. I have finally been put on the list for rehab for fine motor control, speech, walking, reading, and writing!! Eventually I will be able to start being me again!! I’m so super excited!! My injury happened this year in February, and I have had no help, and now after Christmas, I am finally going to be able to get some! YAY!!!!

Michael Montepara (survivor)…Okay, here’s one of my Itty-Bitty Giant Steps: I am thankful that this week I did not have to sleep in my truck in the cold. AMEN.

Shanna Wolf Heart Powell‎ (survivor)…I accomplished grocery shopping tonight with out a break down, except for the pig head they were selling at the store!!! I broke down and cried in Walmart!!!

YOU did it!

Congratulations to all contributors!

(Clip Art compliments of Bing.)

On the Air: Brain Injury Radio Interview with Christian Jungersen author of “You Disappear”

On the Air: Brain Injury Radio

Interview with Christian Jungersen

author of “You Disappear”

images-1IMPORTANT NOTE: Because of technical difficulties with sound, the interview starts at 14:20. Just drag the audio to that spot and start listening.

0385537255

You Disappear by Christian Jungersen

Folks, I had an amazing interview with Christian Jungersen, author of “You Disappear.” Christian’s story jumps on the rollercoaster life of a man who has a brain injury. Frederik’s slow-growing tumor is wreaking havoc in his and his family’s life. The book is a great read. The interview is a great listen. Don’t miss out on either.

Christian’s very poised and professional interview was conducted at 2:00 to 3:30 am from his home in Malta, an island in the Mediterranean Sea.

24931_e13be44dc211492a88f946bf5f05c3bb_500

Christian Jungersen

You can get to the interview by clicking the link. (Wait a few seconds for the audio to start.) Because of technical difficulties with sound, the interview starts at 14:20. Just drag the audio to that spot and start listening.

If you missed the show, don’t fret. You can always listen to the archived show. I’ve included the link below.

Please SHARE!

I hope you’ll tune in to my show, “Another Fork in the Road,” which airs the 1st and 3rd Sunday evenings of every month. The show starts at 5:00p Pacific Time and runs for 90 minutes. On the fifth Sunday in a month, Julie Kintz, Host of “Quantum Leap,” and I team up to cohost a show called “Another Quantum Leap in the Road.”

REMEMBER: Because of technical difficulties with sound, the interview starts at 14:20. Just drag the audio to that spot and start listening.

See you “On the Air!”

Interview with Christian Jungersen

Click here for a list of all “Another Fork in the Road” shows on the Brain Injury Radio Network.

diemodi jewelry

uniquely hand-crafted jewelry by donna

Welcome to Harmony Kent Online

The home of all things books

Pete Springer

Passionate Teacher and Future Children's Author

HOPE TBI

Helping Other People Excel - To Be Independent

For the Love of Books, Old and New

Katie Fischer, Writer and Reader of Stories

Charlie Bown

Children's Author

Jessica Hinrichs

“We write to taste life twice, in the moment and in retrospect.” ― Anais Nin

VIVIAN KIRKFIELD - Writer for Children

Picture Books Help Kids Soar

Mindy’s Writing Wonderland

For authors, parents, teachers & everyone who loves children’s books.

Kaitlyn Leann Sanchez

Literary Agent

Surviving Traumatic Brain Injury

TBI - Survivors, Caregivers, Family, and Friends

The Care Factor

Loving someone with a Traumatic Brain Injury

Brain Injury Support Group of Duluth-Extension

Brain Injury Information and SUPPORT

Brain Aneurysm Global Insight

Brain Aneurysm, cerebral hemorrhaging, hemorrhage stroke