TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘blogtalkradio.com/braininjuryradio’

TBI Tales . . . Tracking Miles in Electric Blue and Shiny Mango

Tracking Miles in Electric Blue and Shiny Mango

by

Donna O’Donnell Figurski

Cat TrikeCatherine (Cat) Brubaker (TBI survivor) got a black Catrike 700. Dan Zimmerman (StrokeZimmerman, Dan survivor) got a black Catrike 700. They pedaled across America diagonally, 5,300 miles, and it changed each of their lives.

David Figurski (TBI survivor) got a trike, an electric blue Catrike 700, the same model as Cat and Dan’s, but a different color.040915 David 1st Ride Catrike 700

Donna O’Donnell Figurski (copycat) got a trike, too. Though to show her independence, she didn’t get a Catrike 700. She went for the Donna's Pocket 040915Shiny Mango Pocket Trike. It’s cute!

DonnaNow David and Donna want to match Cat and Dan’s GOAL! We want to trike 5,300 miles in the desert. I wonder how long it will take us.

LET’S GO!

NAME          DATE                     Total MILES since 4/9/15

David           1/24/16                    1,570

NAME          DATE                    Total MILES since 4/9/15

Donna          1/24/16                 79

As I say after each post:

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(Clip Art compliments of Bing.)

(Photos compliments of Me.)

TBI Tales . . . . . . . . . . . . . . . . . . . . Global Head Shots Unique

Global Head Shots Unique

 by

Timothy Guetling

(presented by Donna O’Donnell Figurski)

 

Timothy Guetling  TBI Survivor

Timothy Guetling
TBI Survivor

My TBI occurred in 1972. At that time, neurologists were known as “neurosurgeons.” The only test that was available for testing at that time was an X-ray. The neurosurgeon told my mother, “I won’t give a dime for his recovery!”

After being unconscious for nineteen days, which included thirteen days of right-side paralysis, and forty-six days in the hospital, including twice-a-day intensive physical therapy, I came home to a new world. After about one year, I was deemed “100% recovered.” I knew better, but each time I tried to speak of it, I was shut down with “You are using that as an excuse.”

I missed a semester of my junior year in high school, but I graduated with my class in 1974. I then entered the world of work and college. I was successful. I worked many positions, and I graduated college. There was always the knowledge that something inside was not right, but I kept up in the world.

In 1998, due to recurring accidents at my place of employment, I was sent to be checked by a neurologist. X-rays, an EEG (electroencephalogram), an EKG (electrocardiogram), a CT scan (computerized tomography), and an MRI (magnetic resonance imaging) revealed “pressed plates” in my neck at vertebrae C4-C5, C5-C6, and C6-C7. These vertebrae deal with hand-eye coordination and balance/dizziness. My vision, my cognitive reflex/response from my brain to spinal cord, and my equilibrium were deemed 85% on a good day.

My work and recreation patterns changed. In 2011, due to recurring repercussions from my injury, I stopped working. SSDI (Social Security Disability Insurance) was approved in 2013. Now my equilibrium is at best 75%. My success is right here on this site and other sites related to TBI, brain injury, addiction/abuse, PTSD (post-traumatic stress disorder), etc. I offer my knowledge from my experience of over 42 years of “recovery evolution.” It is with a smile on my face and tears in my eyes that I can say, with no sadness or fear, that you and I are Global Head Shots Unique. We know more than anyone about us. Lets talk!

 

(Disclaimer: The views or opinions in this post are solely that of the author.)

If you have a story to share and would like to be a part of the SPEAK OUT! project, please submit your TBI Tale to me at donnaodonnellfigurski@gmail.com. I will publish as many stories as I can.

 

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.anim0014-1_e0-1

Please follow my blog. Click on “Follow” on the top right sidebar. (It’s nice to know there are readers out there.)

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

(Clip Art compliments of Bing.)

Survivors SPEAK OUT! . . . Doris

Survivors SPEAK OUT! . . . . . Doris

by

Donna O’Donnell Figurski

Doris 1 year after TBI 2007

Doris 1 year after TBI 2007

1. What is your name? (last name optional)

Doris F.

2. Where do you live? (city and/or state and/or country) Email (optional)

Tampa, Florida, USA

3. When did you have your TBI? At what age?

October 31, 2006     Age 46

4. How did your TBI occur?

I was parking my vehicle in the post office parking lot, and I passed out.

5. When did you (or someone) first realize you had a problem?

Post office employees found me unconscious behind the steering wheel.

6. What kind of emergency treatment, if any, did you have?

Doris - 1 day after the craniotomy - 2006

Doris – 1 day after the craniotomy – 2006

Craniotomy; clipping and coiling of a ruptured brain aneurysm

7. Were you in a coma? If so, how long?

Yes. 5 days

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I did not do rehab, but I saw a neuropsychologist after a few months of recovery.

9. What problems or disabilities, if any, resulted from your TBI
(e.g., balance, perception, personality, etc.)?

I am afflicted with anxiety, a severely bad memory, dizziness, and headaches, but I mostly have psychological problems
(e.g., balance, perception, personality, etc.).

10. How has your life changed? Is it better? Is it worse?

It’s worse. I lost my job as a veterinary manager; I lost my home; I lost my husband of 26 years (he wanted a divorce); and I lost many friends. My daughter has turned her back on me and does not associate with me – because, according to her, I am “weird” and “boring.”

11. What do you miss the most from your pre-TBI life?

I miss the ability to be productive and to socialize. I miss feeling healthy and strong.

12. What do you enjoy most in your post-TBI life?

I enjoy my pets – it seems like they understand. I feel close to them. I’ve also learned to play the guitar and sing. It brings me great pleasure and a feeling of accomplishment, especially when I practice a new song and it sounds good. (At least my animals think so! LOL.)

13. What do you like least about your TBI?

I hate what my brain injury has done to my life.

14. Has anything helped you to accept your TBI?

My friend, a neuropsychologist, has helped a great deal. He talked to me twice a week for almost a year. I am also grateful to my two long-time girlfriends. They were there through it all and still love me today.

15. Has your injury affected your home life and relationships and, if so, how?

Basically I lost all the people I thought were closest to me.

16. Has your social life been altered or changed and, if so, how?

I don’t really feel comfortable socializing. I feel like most people are fake.

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I’m my own caregiver. Being a caregiver takes a lot of effort and discipline.

18. What are your future plans? What do you expect/hope to be doing ten years from now?

I would like to be married again. I miss a man in my life. I’ve always enjoyed taking care of him, keeping a lovely home, cooking, and having a close relationship.

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other TBI survivors with your specific kind of TBI.

I wish it would not have taken years for me to accept my TBI and my altered abilities. I wasted a lot of time being angry and depressed.

20. What advice would you offer to other TBI survivors? Do you have any other comments that you would like to add?

My advice to other survivors follows. 1. Take it easy – one step at a time. 2. Don’t disconnect from the world – you are not alone. Find a support group. 3. Do something that you feel passionate about (e.g., helping others, animal activism, crafting, volunteering, performing or visual arts, etc.). 4. Find a fun activity that requires repetition (e.g., learning to play an instrument, knitting, gardening, etc.). This will help in the recovery process and will improve the brain. 5. Be kind to yourself, and be a little selfish. You have survived a major trauma. There is a reason you are still here on this earth. God bless you all!Hope

Thank you, Doris, for taking part in this interview. I hope that your experience will offer some hope, comfort, and inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

(Photos compliments of Doris.)

(Clip Art compliments of Bing.)

SPEAK OUT! Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

Itty-Bitty GIant Steps for Blog

 

SPEAK OUT! Itty-Bitty Giant Steps will provide a venue for brain-injury survivors and caregivers to shout out their accomplishments of the week.

If you have an Itty-Bitty Giant Step and you would like to share it, just send an email to me at donnaodonnellfigurski@gmail.com.

If you are on Facebook, you can simply send a Private Message to me. It need only be a sentence or two. I’ll gather the accomplishments and post them with your name on my blog approximately once a week. (If you do not want your last name to be posted, please tell me in your email or Private Message.)

I hope we have millions of Itty-Bitty Giant Steps.

 

Here are this week’s Itty-Bitty Giant Steps.

Sara Catherine Birch (caregiver)…An Itty-Bitty Giant Step this week – hubby is going back to his old job on Thursday. He will try a short shift to see if he could build up his hours slowly and get back his deputy title. Fingers crossed. His boss is keeping his hours low for the first couple of weeks so that his schedule won’t affect our benefits and he won’t have to worry about money.

Sara Catherine Birch (caregiver)…I’m very proud of hubby. I came home from work yesterday to find out how hubby’s looking after both kids (for the first time) went. As I walked in the door, I could hear the washing machine going. He had gotten both kids to bed, emptied and refilled the dishwasher, emptied the tumble-dryer, and put a wash on. Yeah, he definitely deserved the Domino’s pizza I was carrying.

Michelle Lee Bonnenfant (survivor)…Today I went to Walmart with my daughter and husband, despite the setbacks caused by my PTSD (post-traumatic stress disorder). I only panicked once! I got separated and forgot where I was in the store. Thank god, I had my cell phone! Small step, but I’m trying. Any store is bad for me. I can’t believe that I did a big, busy store! Needless to say, I’m exhausted and have a pounding headache. No pain, no gain!

Sidney Chronister (survivor)…I’m feeling super PROUD of myself. Today has been the first time ever (since my TBI four years ago) that I managed to cook all by myself. I even read a recipe all by myself (LOL)! I’m progressing very slowly. Let’s just hope I can do the same thing tomorrow – or in a week. Let’s pray for that. Thank you all once again for all the ENCOURAGING words you give me DAILY (especially in the days of bad weather). May God give us all more strength (He knows we have it), more patience (we NEED IT), and less crazy anger-outbursts. God bless you all, and have a blessed New Year’s. Happy 2015!!!

Ellie K. Payton (caregiver)…Today Claus Nowell, my 20-year-old, 10-months-post son, took his first steps in a walking frame. There were nurses and therapists “acheerin’.”

This is a huge Itty-Bitty Giant Step – one I’ve been waiting for with so much hope.

YOU did it!

Congratulations to all contributors!

(Clip Art compliments of Bing.)

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