TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘http://www.blogtalkradio.com/braininjuryradio’

On the Air: Brain Injury Radio Another Fork in the Road . . . . . . Jamie & Crystal Fairles – Survivors

On the Air: Brain Injury Radio

Another Fork in the Road

Brain Tumors and a Love Story

with Jamie & Crystal Fairles

images-1It took two brain tumors to make a love story. What an appropriate interview for this Valentine’s Day weekend! It was unlikely that Jamie and Crystal would have met had they not each suffered a brain tumor. But they did have brain tumors and they did meet . . . with a little help from their friends. An email relationship began, which eventually led to their engagement and some years later Jamie and Crystal were married. They now share their love with their toddler as they walk the road of brain injury hand-in-hand.

08 Jamie Fairles 10966701_785893851446166_2004498939_nJamie was first diagnosed with a brain tumor in 1998. That surgery lasted 13 ½ hours. He had 3 more surgeries before he was released, but he was not able to walk or talk and had to relearn those skills again. By 2005 Jamie had undergone 7 brain surgeries.

05 Crystal Fairles 10967058_785893721446179_257216402_nCrystal’s brain tumor was diagnosed in 2008 when she suffered a gran mal seizure. After her brain surgery, she was released from the hospital with little direction and permission to return to work. But the stress of her job was the catalyst for additional seizures.

If Jamie and Crystal hadn’t each had a brain tumor they would never have met. They are glad that they met and are happy to share their “love” story.

If you missed their interview on “Another Fork in the Road” on February 15th, you are in luck. You can listen to the archived show here.heart animated -beat

Click the link below to listen to Jamie, Crystal, and me.

See you “On the Air!”

Brain Tumors and a Love Story with Jamie & Crystal Fairles

Click here for a list of all “Another Fork in the Road” shows on the Brain Injury Radio Network.

TBI Tales . . . . It’s OK to Say “OK”

It’s OK to Say “OK”

by

Barbara Wilson Asby

(presented by Donna O’Donnell Figurski)

Barbara Wilson Asby - TBI Survivor

Barbara Wilson Asby – TBI Survivor

For the first time in over five years, I finally broke down and reached out to my husband for help today when I was having a seizure.

Why in the world do we have to be so darn strong all of the time?? For those who don’t really know me, I am going through a change right now – my seizures have gotten worse for the past few weeks or so. Today was no different. I don’t know if it was caused by the traveling, the holidays, or the stress of the Redskins versus the Cowboys game (LMAO), but I started having the seizure just after noon.

I began watching the game and started feeling worse – no, not Redskinsdue to the game (LOL). “We” (the ‘skins, that is – LOL) were looking pretty good at this point. I started going downhill quickly, and hubby watched this. He kept asking what to do. There really isn’t anything a spouse can do. I am the type that likes to be alone when these things are happening.

Then I started to feel like I was going to faint. I personally think there is no worse feeling than when your body puts you through this, especially when the feeling stays right there – not making up its mind what to do. I call it a “brown out.” For 30 minutes or so, I fought the brown out.

David Asby - husband of Barbara Wilson Asby

David Asby – husband of Barbara Wilson Asby

Then I looked at my husband and said, “Now don’t freak out, but I am going to faint. Don’t freak out, OK?”

He came over to me and said, “OK. Baby, is there anything I can do?” OMG, how nice it felt for him to be there with me.

I said, “No. Just don’t freak out! OK? Just don’t freak out!”

Meanwhile, I was the one freaking out because he was there. I normally handle things so much better when no one is around (LOL). Then I just gave in and had my hubby hold me. I was so wiped out – too tired even to cry. He put his arms around me and said, “Breathe, Baby. I am here. Just breathe – calm down.”

So for once, I did breathe. Dang it! Why do people with a TBI have to be so STRONG!!!!!

(Disclaimer: The views or opinions in this post are solely that of the author.)

If you have a story to share and would like to be a part of the SPEAK OUT! project, please submit your TBI Tale to me at donnaodonnellfigurski@gmail.com. I will publish as many stories as I can.

(Clip Art compliments of Bing.)

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On the Air: Brain Injury Radio Another Fork in the Road . . . . . . Allan Bateman – Preventive & Rehabilitative Therapist

On the Air: Brain Injury Radio Interview –

Another Fork in the Road

with

Allan Bateman – Preventive and Rehabilitative Therapist

images-1Therapy should be gentle. That is what Preventive and Rehabilitative Therapist, Allan Bateman, touts. He does not buy into the “No pain! No gain!” train of thought. He also believes that therapy is not one-size-fits-all. When he meets with a client, he searches for methods that will best help his client, and those methods

Allan Bateman - Preventive & Rehabilitative Therapist

Allan Bateman – Preventive & Rehabilitative Therapist

are ever-changing as the needs of the client change. Allan incorporates a lot of Eastern philosophy into his therapy like Qigong and martial arts. He uses their gentle movements to retrain the muscles to accomplish his goals.

Allan Bateman, PRT, was my husband, David’s, therapist for nearly seven years.

Allan Bateman & TBI Survivor, David Figurski - sometimes Allan even came to our home

Allan Bateman & TBI Survivor, David Figurski

Thank you, Allan, for sharing your knowledge and expertise with me and my listeners on “Another Fork in the Road” on the Brain Injury Radio Network.

Click the link below to listen to New York City-based Allan Bateman discuss how he approaches therapy with his clients.

See you “On the Air!”

Allan Bateman – Preventive Rehabilitative Therapist

Click here for a list of all “Another Fork in the Road” shows on the Brain Injury Radio Network.

“Another Fork in the Road” . . . Brain Injury Radio Network . . . Allan Bateman: Preventive and Rehabilitative Therapist

YOU ARE INVITED!

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If you have a TBI (Traumatic Brain Injury) it’s most likely you will enter the world of therapy. Sometimes it is only for a few months. Sometimes it lasts for years. Therapies can include Physical Therapy, Occupational Therapy, Activities of Daily Living, Speech Therapy, and Cognitive

Allan Bateman - Preventive & Rehabilitative Therapist

Allan Bateman – Preventive & Rehabilitative Therapist

Therapy to name a few. Because of the duration and intimacy of therapies, often survivors develop strong relationships with their therapists. That’s what happened when Preventive and Rehabilitative Therapist, Allan Bateman entered my husband’s (and my life). Allan sees his client as a whole person and individualizes each client’s therapy to fit his or her needs. Allan will share his ideas with my listeners.

 

               Come One! Come ALL!

What:        Interview with New York City, Preventive and Rehabilitative Therapist, Allan Bateman

Why:        Allan will discuss his progressive ways of therapy.

Where:     Brain Injury Radio Network

When:       Sunday, January 4th, 2015

Time:         5:00p PT (6:00p MT, 7:00p CT, and 8:00p ET) 90 minute show

How:         Click: Brain Injury Radio Network

Call In:    424-243-9540

Call In:     855-473-3711 toll free in USA

Call In:    202-559-7907 free outside US

or SKYPE

Allan Bateman & TBI Survivor, David Figurski - sometimes Allan even came to our home

Allan Bateman & TBI Survivor, David Figurski – sometimes Allan even came to our home

 

 

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening. The archived show will be available after the show both on the Brain Injury Radio Network site and on my blog in “On the Air.”

(Clip Art compliments of Bing.)

(Photos compliments of Allan Bateman.)

“Another Fork in the Road” . . . Brain Injury Radio Network Catherine (Cat) Brubaker’s and Dan Zimmerman’s Reflections – Triking Across America

YOU ARE INVITED!

putthis_on_calendar_clip_art

It took Catherine (Cat) Brubaker and Dan Zimmerman 5 months and 5,300 miles to cross the USA (diagonally) on recumbent trikes. Blowouts, tumbles, and close encounters with bears and wild turkeys still left plenty of time to meet folks at the heart of our country. It also left time to get lost in one’s own mind. Cat and Dan rode to raise awareness for TBI and for Stroke, but I wonder what awareness they discovered within themselves along their journey. And, I mean to find out. 🙂

 

                Come One! Come ALL!

What:        Interview with Catherine (Cat) Brubaker and Dan Zimmerman.

Why:        Cat and Dan will look inward and share their innermost thoughts.

Dan Zimmerman & Cat Brubaker

Dan Zimmerman & Cat Brubaker

Where:     Brain Injury Radio Network

When:       Sunday, December 21, 2014

Time:         5:00p PT (6:00p MT, 7:00p CT, and 8:00p ET) 90 minute show

How:         Click: Brain Injury Radio Network

Call In:    424-243-9540

Call In:     855-473-3711 toll free in USA

Call In:    202-559-7907 free outside US

or SKYPE

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening. The archived show will be available after the show both on the Brain Injury Radio Network site and on my blog in “On the Air.”

(Clip Art compliments of Bing.)

On the Air: Brain Injury Radio Interview with Christian Jungersen author of “You Disappear”

On the Air: Brain Injury Radio

Interview with Christian Jungersen

author of “You Disappear”

images-1IMPORTANT NOTE: Because of technical difficulties with sound, the interview starts at 14:20. Just drag the audio to that spot and start listening.

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You Disappear by Christian Jungersen

Folks, I had an amazing interview with Christian Jungersen, author of “You Disappear.” Christian’s story jumps on the rollercoaster life of a man who has a brain injury. Frederik’s slow-growing tumor is wreaking havoc in his and his family’s life. The book is a great read. The interview is a great listen. Don’t miss out on either.

Christian’s very poised and professional interview was conducted at 2:00 to 3:30 am from his home in Malta, an island in the Mediterranean Sea.

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Christian Jungersen

You can get to the interview by clicking the link. (Wait a few seconds for the audio to start.) Because of technical difficulties with sound, the interview starts at 14:20. Just drag the audio to that spot and start listening.

If you missed the show, don’t fret. You can always listen to the archived show. I’ve included the link below.

Please SHARE!

I hope you’ll tune in to my show, “Another Fork in the Road,” which airs the 1st and 3rd Sunday evenings of every month. The show starts at 5:00p Pacific Time and runs for 90 minutes. On the fifth Sunday in a month, Julie Kintz, Host of “Quantum Leap,” and I team up to cohost a show called “Another Quantum Leap in the Road.”

REMEMBER: Because of technical difficulties with sound, the interview starts at 14:20. Just drag the audio to that spot and start listening.

See you “On the Air!”

Interview with Christian Jungersen

Click here for a list of all “Another Fork in the Road” shows on the Brain Injury Radio Network.

On the Air – Brain Injury Radio Interview with Dr. David Figurski Prisoner without Bars: Conquering Traumatic Brain Injury

On the Air – Brain Injury Radio

Interview with Dr. David Figurski

Prisoner without Bars: Conquering Traumatic Brain Injury

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You’ve heard David’s story from my point of view. Yesterday David shared his perspective of living with traumatic brain injury. He spoke about how his life has greatly changed for better…and for worse.

david-running-in-hall-

David Figurski 3wks before Traumatic Brain Injury

We learned about David’s life as a child and his educational career, which he began as a Kindergarten dropout. He told of the years that led up to our marriage and also about his life as a Professor of Microbiology at Columbia University, both before and after his TBI. We found out how he is coping with this new life thrust upon him…and upon us. The show ends with me brushing tears from my cheeks as David talks about the heroic acts of caregivers and my role in his recovery.

12 D&D I Donna O'Donnell Figurski  & David Figurski Dancing 13 copy

David & Donna Figurski Starlight Dance Studio 8yrs after Traumatic Brain Injury

If you missed the show, don’t fret. You can always listen to the archived show. I’ve included the link below.

Please SHARE!

I hope you’ll tune in to my show, “Another Fork in the Road,” which airs the 1st and 3rd Sunday evenings of every month. The show starts at 5:00p Pacific Time and runs for 90 minutes. On the fifth Sunday in a month, Julie Kintz, Host of “Quantum Leap,” and I team up to cohost a show called “Another Quantum Leap in the Road.”

 

See you “On the Air!”

Survivors SPEAK OUT! Melissa Cronin

SPEAK OUT! – Melissa Cronin

by

Donna O’Donnell Figurski

 

Melissa Cronin Head Shot 2

Melissa Cronin

1. What is your name? (last name optional)

Melissa Cronin

2. Where do you live? (city and/or state and/or country) Email (optional)

South Burlington, Vermont, USA

3. When did you have your TBI? At what age?

Age 36

4. How did your TBI occur?

In 2003, when visiting the Santa Monica Farmers’ Market, an elderly driver confused the gas pedal for the brake and sped through the market. I was thrown forward, and my head hit the pavement. The force of the impact resulted in a ruptured spleen and multiple fractures, including my pelvis.

5. When did you (or someone) first realize you had a problem?

Fourteen months after the accident, when I returned to part-time work as a public health nurse, I experienced increased fatigue, difficulty concentrating, and multitasking. My boss threatened to fire me, so I resigned and attempted part-time work in a pediatrician’s office (bad idea for someone with a TBI), but I struggled to keep up in a fast-paced environment. In May 2006, I finally saw a neuropsychiatrist for testing, and the results proved to be consistent with a TBI.

6. What kind of emergency treatment, if any, did you have?

I did not have emergency treatment for a TBI. The CT (computerized tomography, also known as “CAT”) scans showed no bleeding (typical for a “mild” TBI). I did have emergency surgery, though, to remove my ruptured spleen.

7. Were you in a coma? If so, how long?

No

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

I had physical and occupational therapy at Cedars Sinai Hospital in Los Angeles to help regain muscle mass and strength after being hospitalized for nearly one month. I would be in a wheelchair for four months while my fractures healed, so rehab taught me ways to navigate through my day.

9. What problems or disabilities, if any, resulted from your TBI
(e.g., balance, perception, personality, etc.)?

Fatigue, difficulty multitasking and concentrating, occasional irritability, depression; and difficulty processing verbal, auditory, and visual information

10. How has your life changed? Is it better? Is it worse?

My life is both better and worse. It’s better because my TBI, and other injuries, opened up a path for me to writing. And my husband, whom I met only three weeks prior to the accident, has been my strongest support. It’s worse because I eventually had to give up my 20-year nursing career.

11. What do you miss the most from your pre-TBI life?

Running and skiing, and the babies I cared for in the neonatal intensive care unit where I worked before my injury

12. What do you enjoy most in your post-TBI life?

Writing, playing the Irish fiddle, going for walks, and, of course, my husband’s unwavering support

13. What do you like least about your TBI?

I’m much slower at getting things done. I often sleep in until 9:30 or 10:00 am, and I feel as if I’ve wasted much of the day. Also, I often fail to understand concepts others seem to grasp so easily.

14. Has anything helped you to accept your TBI?

I’ve been helped by the neuropsychiatrist who diagnosed me with a TBI and by the cognitive therapist who treated me. Also, my therapist – he continually reminds me that my brain has been rewired.

15. Has your injury affected your home life and relationships and, if so, how?

Definitely my home life has been affected. I rely on my husband to do much of the “heavy” lifting, like cooking, grocery shopping, and driving, because I am easily distracted.

16. Has your social life been altered or changed and, if so, how?

Absolutely. I do not socialize as much as I did before my injury because it doesn’t take much for me to become fatigued.

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“Invisible Bruise” Chicken Soup for the Soul: Recovering from Traumatic Brain Injuries. June 2014

17. Who is your main caregiver? Do you understand what it takes to be a caregiver?

I am my own main caregiver, though my husband does much of the cooking. I do not know what it takes to be a caregiver, though my father is living with Alzheimer’s, and I help out as much as I can.

18. What are your future plans? What do you expect/hope to be doing ten years from now?

Writing and traveling

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other TBI survivors with your specific kind of TBI.

I wish I understood much earlier the truth about TBIs before I re-entered the workplace and had to face the threat of being fired. For example, I wish someone had warned me that I might have actually suffered a TBI, and that the initial presentation of milder injuries does not mean the consequences are mild.

20. What advice would you offer to other TBI survivors? Do you have any other comments that you would like to add?

Persevere. Try not to compare yourself to non-brain injured individuals – you’ll only get frustrated. Pay attention to what your body and brain are telling you, and give yourself permission to take naps. Exercise your brain, in moderation, by doing crossword puzzles or learning a new skill. Whatever you accomplish, even if it’s getting out of bed by 7:00 am, is an accomplishment.

Melissa is the author of “Invisible Bruise,” published in Chicken Soup for the Soul: Recovering from Traumatic Brain Injuries.

Melissa playing fiddle

Melissa Cronin with her fiddle

To learn more about Melissa, please visit her website/blog at Melissa Cronin.

 

Thank you, Melissa, for taking part in this interview. I hope that your experience will offer some hope, comfort, and inspiration to my readers.

(Disclaimer: The views or opinions in this post are solely that of the interviewee.)

(Photos compliments of Melissa.)

If you would like to be a part of the SPEAK OUT! project, please go to TBI Survivor Interview Questionnaire for a copy of the questions and the release form.

“Another Fork in the Road” . . . Brain Injury Radio Network: “Triking Across America – diagonally,” with Catherine (Cat) Brubaker

YOU ARE INVITED!

 

putthis_on_calendar_clip_art“Another Fork in the Road” on Brain Injury Radio Network invites you to meet Catherine (Cat) Brubaker who is “Triking Across America – diagonally.” Cat looks like your normal, everyday, young woman. But what you don’t know about Cat, by just looking at her, is that she is living with not one, but two, traumatic brain injuries. But, Cat does not let her brain injury tie her down. No, she is on a 5,200 mile trike trip across America – diagonally – to raise awareness for TBI. Come hear Cat.

Come One! Come ALL!

(NOTE: New Day, Sunday – Same Time)

What:        “Another Fork in the Road” . . . Brain Injury Radio Network presents “Triking Across America – diagonally” with Catherine (Cat) Brubaker

Why:         Hear Cat’s amazing story of how she is pedaling into her future on he recumbent trike despite two traumatic brain injuries..

Where:     Brain Injury Radio Network

When:       Sunday, October 5th, 2014

Time:         5:00p PDT (6:00p MDT, 7:00p CDT, and 8:00p EDT) 90 minute show

How:         Click: Brain Injury Radio Network.

Call In:    424-243-9540

Call In:     855-473-3711 toll free in USA

Call In:    202-559-7907 free outside US

or SKYPE

If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening. The archived show will be available after the show both on the Brain Injury Radio Network site and on my blog in “On the Air.”

(Clip Art compliments of Bing.)

“Another ‘Quantum Leap’ in the Road”: Life Changes After TBI

Breaking News!       Breaking News!       Breaking News!

What Do You Do When There is  a 5th Sunday in a month? MERGE!

(Another Fork in the Road  & “Quantum Leap” merge on 5th Sundays)

putthis_on_calendar_clip_art“Another Fork in the Road” (1st & 3rd Sunday of each month @5:00pm PT) hosted by Donna O’Donnell Figurski and “Quantum Leap” (2nd & 4th Sunday of each month @5:00pm PT) hosted by Julie Kintz have merged for every 5th Sunday in a month.”

Join Julie and Donna as they explore topics directly related to Traumatic Brain Injury. The discussion on August 31, 2104 will delve into how “Life Changes After TBI” from the viewpoints of both the survivor (Julie) and the caregiver (Donna).

If you have any questions you would like us to address, please send a private message to either Julie or me. I hope you will join us at 5:00pm PT. (8:00pm ET) See you there. (http://www.blogtalkradio.com/braininjuryradio/2014/09/01/another-quantum-leap-in-the-road)

Come one! Come ALL!

What:       “Another ‘Quantum Leap’ in the Road” on Brain Injury Radio Network:
Why:          Donna & Julie talk about “Life Changes After TBI.”
Where:     Brain Injury Radio Network
When:       Sunday, August 31, 2014
Time:         5:00p PDT (6:00p MDT, 7:00p CDT, and 8:00p EDT) 90 minute show
How:          Click: Brain Injury Radio Network.
Call In:      424-243-9540
Call In:      855-473-3711 toll free in USA
Call In:      202-559-7907 free outside US

or SKYPE
If you miss the show, but would like to still hear the interview, you can access the archive on On Demand listening (Archived show) will be available after the show

(Clip Art compliments of Bing.)

diemodi jewelry

uniquely hand-crafted jewelry by donna

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