TBI – Survivors, Caregivers, Family, and Friends

Archive for April, 2021

New News: Honorable Mention BETSY’S RAINBOW BALLOONS

Holy Jumping Jugglers!

Remember when I told you I entered a children’s picture book contest, Spring Fling Kidlit Contest 2021? I had to write a story from scratch with only 150 words – no more!

I posted my story, BETSY’S RAINBOW BALLOONS, on Bookity Blog several weeks ago and forgot about it. Tonight one of my CPs (Critique Partners) sent me a message to tell me that I won an honorable mention for my story.

Holy Giggling Grasshoppers!

I can’t believe it. Just like my first graders always jumped for joy when they accomplished something fun, I am jumping for joy now. Yippee!!!

Holy Bopping Balloons!

Congratulations to the WINNERS and the other HONORABLE MENTIONS. Heck, congratulations to all who entered.

AND…. Drum Roll….THE WINNERS ARE!

A big RAINBOW thank you to the contest organizers, Kaitlyn Sanchez and Ciara O’Neal. What a lot of work!

Read more stories at Bookity Blog.

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COVID-19: Vaccines (Part 2 of 3): Protection by Antibodies is Only Part of the Story

COVID-19: Vaccines (Part 2 of 3): Protection by Antibodies is Only Part of the Story
by
Columbia University Professor Emeritus, Dr. David Figurski
presented by
Donna O’Donnell Figurski

(Disclaimer: The World Health Organization <WHO> has officially named the new coronavirus as SARS-CoV-2 and the disease it causes as COVID-19.  Because the majority of people, including much of the press, commonly refer to the virus as “COVID-19,” to avoid confusion, I use COVID-19 as the name of the virus.)

 

David H. Figurski, Ph.D & Survivor of Brain Injury

Vaccination against COVID-19 primes your immune system to be ready to use every defense it has to fight the virus. It stimulates the creation of a potent and specific defense tailored to fight the COVID-19 virus.

Vaccination has been shown to be amazingly effective. All three vaccines for COVID-19 that have been used in the US (Moderna, Pfizer, and Johnson & Johnson) are 100% effective in preventing both hospitalization and death.

When people think of vaccination, they usually think only of antibodies. But this ignores the stimulation of an equally potent arm of immune system.

The bottom line is that vaccination (1) stimulates the production of antibodies that bind to the virus to prevent infection and (2) creates and activates “killer” T cells that destroy cells that have been infected.

Because antibodies are only part of the defensive power of your immune system, no one should be worried about variants, despite hysterical articles by a largely ignorant press.  We should certainly continue to monitor variants, but there is nothing to be worried about yet.  The antibodies are less able to block virus, but they still work.  Importantly, the killer T cells are unaffected by any variant.

The T cell response after vaccination against COVID-19 is as potent as the antibody arm of the immune system.  Some people cannot make antibodies, yet they do well after infection by COVID-19.

Some facts:

Your immune system is composed of two parts.  A first line of defense (Innate Immunity) acts immediately against any foreign substance.  It is non-specific.  After about a week, a specific and more potent immunity (Adaptive Immunity) has developed. The adaptive arm uses antibodies and T cells.

Vaccination stimulates your adaptive immunity, so the antibodies and T cells are ready before infection.

Scientists don’t yet know how long the anti-COVID-19 antibody levels remain high, but data show that antibodies have remained high for six months so far.  You may need to get vaccinated every year, as you do for the flu virus.

The antibody level will eventually go down, but your immune system maintains a few “memory cells” of the antibody-producing cells. These cells make antibody-producing cells immediately after infection.  So your immune system is fully armed in 2-3 days.

I strongly urge you to listen to minutes 6:25-22:00 of the interview TWiV 736 <March 28, 2021>of Dr. Alessandro Sette, a world-renowned expert on T cells and COVID-19 from The La Jolla Institute for Immunology, by Dr. Vincent Racaniello, a virologist and expert on COVID-19 from Columbia U.  Dr. Sette gives a basic explanation of T cells, the response to COVID-19, and vaccination.

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Survivors SPEAK OUT! Annie Ricketts

Survivors SPEAK OUT! Annie Ricketts

presented by

Donna O’Donnell Figurski

Annie Ricketts – Survivor of Brain Injury

1. What is your name? (last name optional)

Annie Ricketts

2. Where do you live? (city and/or state and/or country) Email (optional)

Isle of Wight, United Kingdom

3. On what date did you have your brain injury? At what age?

July 23, 2000    Age 36

4. How did your brain injury occur?

I flew off a horse.

5. When did you (or someone) first realize you had a problem?

I was diagnosed with a severe TBI (traumatic brain injury) in the hospital.

6. What kind of emergency treatment, if any, did you have?

None! On the day of the injury, I was left in the waiting area alone and unconscious for four hours. The next day, I was taken back to the hospital by ambulance and admitted. I had no scan – no observational tests were taken at all. I was sent home three days later without seeing a specialist.

7. Were you in a coma? If so, how long?

I was unconscious after the accident, but never in a coma.

8. Did you do rehab? What kind of rehab (i.e., inpatient or outpatient and occupational and/or physical and/or speech and/or other)? How long were you in rehab?

As an outpatient, I had occupational and speech therapies from year 5 to year 6.5 post injury. These therapies were repeated in years 10, 14, and 18.

9. What problems or disabilities, if any, resulted from your brain injury
(e.g., balance, perception, personality, etc.)?

My problems are complex and multiple, but there is no visible physical impairment.

10. How has your life changed? Is it better? Is it worse?

It is fabulous!

11. What do you miss the most from your pre-brain-injury life?

Nothing

12. What do you enjoy most in your post-brain-injury life?

Living life with a purpose

13. What do you like least about your brain injury?

My executive-function impairments intrigue and fascinate me. There is nothing I like least. I accept everything and continue to work on improving.

14. Has anything helped you to accept your brain injury?

I had a total loss of self-awareness, so I didn’t ever have any problems with acceptance. It is a different journey.

15. Has your injury affected your home life and relationships and, if so, how?

My family didn’t understand – it took a lot of time. Now, I get a lot of understanding and support.

16. Has your social life been altered or changed and, if so, how?

I have been isolated since the injury, and I want to remain this way. I had a normal social life before.

17.Who is your main caregiver?

My daughter.

-Do you understand what it takes to be a caregiver?

Yes, absolutely.

18. What are your plans? What do you expect/hope to be doing ten years from now?

I hope to be doing what I am doing now – only less hours!

19. Are you able to provide a helpful hint that may have taken you a long time to learn, but which you wished you had known earlier? If so, please state what it is to potentially help other survivors with your specific kind of brain injury.

Annie Ricketts – Brain Injury Survivor

Neuroinflammation starts straight after injury. It is like a switch being flicked ON. For many people, this inflammatory response continues until it is addressed. Research shows it can last upward of 17 years post injury. If you would like to know more about this and how inflammation creates and exacerbates symptoms, please visit globalbia.org.

20. What advice would you offer to other brain-injury survivors? Do you have any other comments that you would like to add?

Take care of your body – it is connected to your brain.

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Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

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COVID-19: Long COVID and Children

Long COVID and Children
by
Columbia University Professor Emeritus, Dr. David Figurski
presented by
Donna O’Donnell Figurski

 

(Disclaimer: The World Health Organization <WHO> has officially named the new coronavirus as SARS-CoV-2 and the disease it causes as COVID-19.  Because the majority of people, including much of the press, commonly refer to the virus as “COVID-19,” to avoid confusion, I use COVID-19 as the name of the virus.)

David H. Figurski, Ph.D & Survivor of Brain Injury

It has been accepted that the infection of teens and children with COVID-19 rarely results in significant symptoms, but it’s worrisome that they may be as susceptible as anyone else to a recently identified effect of COVID-19 – a syndrome called “long COVID.”

Children with the virus often show no signs of infection, and sometimes they (and their parents) are not even aware that they have been infected.  Contrast that with the experiences of the very old.  Infection of the elderly often leads to severe disease and can result in death.  Nobody has yet been able to explain how age results in the radical difference in sensitivity to the effects of the virus.

Doctors and scientists are also unable to explain the onset of the delayed symptoms of long COVID.  In one study, 10-13% of children who knew they were infected thought they had recovered.  They tested negative for the virus, and most of their symptoms were gone. In some cases, there were several weeks of good health. But weeks or months later, they showed new symptoms. (Adult symptoms include fatigue; fever; cough; sore throat; chest pain; shortness of breath; neurocognitive problems with memory, concentration, processing, or finding words; diarrhea; headaches; insomnia; dizziness; heart palpitations; abdominal cramps, rashes; tinnitus; joint pain; depression; and anxiety.) The symptoms may last weeks or months, and some people still have symptoms after several months.

Particularly worrisome is the fact that mild or asymptomatic acute infections can still lead to long COVID.  This means that children, who were thought to be unbothered by infection, are, in fact, sensitive to long COVID.

I haven’t seen the data, but I suspect that the 10-13% number came from people who either had an obvious symptom or tested positive.  If we include the number of asymptomatic infections, the percentage of infected children who get long COVID will likely go down significantly.  If you and your children are using masks and social-distancing, then you’re already at a low risk of even getting infected.

The bottom line is that this virus still shows surprises. It’s definitely too early to relax.

Clip Art compliments of BING..

Photos cocmpliments of Contributor.

Prisoners without Bars: A Caregiver’s Tale

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