TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘TBI Caregiver’

Brain Injury Resources . . . . . . . . . . In an Instant: A Family’s Journey of Love and Healing

In An Instant in-an-instant-62477896

 In an Instant: A Family’s Journey of Love and Healing

by

Lee Woodruff & Bob Woodruff

reviewed by

Donna O’Donnell Figurski

 

Lee and Bob Woodruff wrote “In an Instant: A Family’s Journey of Love and Healing.” It’s a book about Bob, a news corespondent for ABC News, the TBI he received while on assignment in Taji, Iraq when a bomb struck the tank in which he was riding, and his journey to regain his life. It’s a love story about Bob and Lee and their children and how they pieced together their lives after his traumatic brain injury.

 

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TBI Caregivers SPEAK OUT! – Questionnaire

TBI Caregivers SPEAK OUT! Questionnaire

I have developed a TBI Caregiver Interview page on my blog, Surviving Traumatic Brain Injury. My interview consists of 20 questions that can be answered easily. I hope the page will provide information, inspire other TBI survivors, and connect people.

If you’d like take part in this project, please visit my site at TBI Caregivers SPEAK OUT! – Questionnaire. You can copy and paste the questions and your answers into your email program and send your interview to me at donnaodonnellfigurski@gmail.com. I will do my best to publish every interview. (I will only edit obvious typos, punctuation, for clarity, and to fit the format.)

If possible, please send a photo to include with your interview (optional, but preferred).

You will also need to fill out the release form so I can publish your interview on my “Surviving Traumatic Brain Injury” blog.

 

RELEASE FORM:

I, ____(FULL NAME)____, on this date (e.g., 04/01/2014), ____________, give Donna O’Donnell Figurski permission to use my interview on her “Surviving Traumatic Brain Injury” blog. (Your first and last name must be included on the Release Form, even if you do not want it posted on the web.)

Please put an “X” before the statement you agree with.
____I give Donna O’Donnell Figurski permission to use my last name.
____I do not give Donna O’Donnell Figurski permission to use my last name.

 

Please answer as many questions as you feel comfortable with. Your answers can be very brief; but, if long, your answer should be no more than 100 words. You may send your answers to me at donnaodonnellfigurski@gmail.com.

 

QUESTIONNAIRE for a TBI Caregivers SPEAK OUT!

 

1. What is your name? (last name optional)

2. Where do you live? (city and/or state and/or country) Email? (optional)

Questionnaire th-9

3. What is the brain-injury survivor’s relationship to you? How old was the survivor when he/she had the brain injury? What caused your survivor’s brain injury?

4. On what date did you begin care for your brain-injury survivor? Were you the main caregiver? Are you now? How old were you when you began care?

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

6. Were you employed at the time of your survivor’s brain injury? If so, were you able to continue working?

7. Did you have any help? If so, what kind and for how long?

8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

9. Was your survivor in a coma? If so, what did you do during that time?

10. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? How long was the rehab? Where were you when your survivor was getting therapy?

11. What problems or disabilities of your brain-injury survivor required your care, if any?

12. How has your life changed since you became a caregiver? Is it better? Is it worse?

13. What do you miss the most from pre-brain-injury life?

14. What do you enjoy most in post-brain-injury life?

15. What do you like least about brain injury?

16. Has anything helped you to accept your survivor’s brain injury?

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

18. Has your social life been altered or changed and, if so, how?

19. What are your plans? What do you expect/hope to be doing ten years from now?

20. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add?

 

 

 

 

 

 

 

TBI Tales: . . . . . . . . . . . . . . . . . . . . . Dancing-in-the-Rain Happy

One of the mediators of a Traumatic-Brain-Injury group to which I belong posed a question to all the members. She asked – What makes YOU happy, deliriously happy, sing-out-loud happy+cartoon+girlhappy, dance-in-the-rain happy? It’s a question not often asked of us caregivers.

I thought for a second. That’s easy. Then my fingers flew over the keyboard as I typed my answer. But, before I hit the “Send” button, I stopped. I thought again. I let the idea roll around my brain for a few moments and reconsidered the question. What makes YOU happy, deliriously happy, whoop-to-the-moon happy? Was this a trick question?

I knew what would make me over-the-top happy. That would be for my husband, David, to be better – for me to wake up one morning and see him walk and run and drive again, hear him talk without his raspy voice, and never again fear that he will aspirate his food. Yes, that would make me crazy-happy. But, I knew that was not what she meant. I can almost guarantee that every one of us caregivers would have offered a version of the same answer. And, then her question would have become rather boring.

I considered some possibilities. I know many women take solace in going to the salon, to be pampered – a new haircut, a mani/pedi, a spa day with massage and facial. But for me, those are chores. In fact, I did do a mani/pedi today, and I couldn’t wait to get out of the salon. I know! Most would think I’m nuts. So, I pondered a while longer. What would make me gloriously happy???? Something just for me! And I knew! I knew from the moment my fingers first hit the keys. (I’m glad I didn’t delete my answer.) Having my book published! That would do it! That would make me deliriously happy, sing-out-loud happy, dance-in-the-rain happy. It would make me whoop-to-the-moon happy. Seeing my book, “Prisoner Without Bars: Conquering Traumatic Brain Injury,” in print on the shelves next to Lee and Bob Woodruff’s Book shelf banner“In An Instant,” Su Meck’s “I Forgot To Remember,” Gabriele Gifford and Mark Kelly’s “Gabby,” or Trisha Meile’s “I Am The Central Park Jogger” would make me gloriously, over-the-top happy. I bet you’d hear me whooping all the way to Nova Scotia and all parts in between.

In the meantime, I can be very happy when I finish writing a really good blog post (like this one), and folks stop by to read it, offer comments, and share it with their friends. Yep, that would make me happy too … but not as happy as a book contract.

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the lower right corner of your screen.anim0014-1_e0-1

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

Permission granted to “Reblog” my post.

(Clip Art compliments of Bing.)

Traumatic Brain Injury – TBI – PRISONERS WITHOUT BARS

tbi-touched-life-th-5As a writer for children, I never intended to write a book for adult readers – other than those adults who read picture books to their children as the stars fill the night sky. But, circumstances changed in an instant when my husband, David, suffered a Traumatic Brain Injury in 2005. I didn’t know what a “TBI” was. I had never heard or seen those letters together before. But, they would soon become a permanent thought in my head.

As David stumbled into our bedroom, his hand covering his right eye, I knew something was drastically wrong. As his pain intensified and the paramedics transported him to the emergency room, I didn’t know how seriously our lives were about to change. The man, my lover, and my best friend, disappeared.

After three brain surgeries, a new man emerged. He looked different. He sounded different. He was severely disabled. He couldn’t speak beyond guttural sounds. He couldn’t walk, dress, brush his teeth, feed himself, or take care of personal hygiene without assistance. At first it seemed that he didn’t even know me, which nearly broke my heart.

david-running-in-hall

David trying out his new running outfit just three weeks before his TBI. December 2004

David’s TBI has caused us to travel many long and bumpy roads. We still do nine years post-TBI, but it is a journey we take together. I met David when I was 16 years old. I knew in an instant that he would be my life-partner – for better or for worse. We’ve had the better. We’ve had the worse. We are striving for the better once again.

Though I lost the “boy/man” I fell in love with, I have fallen in love all over again with this new version of David. Though he may look and act differently, he is still the most caring, gentle, intelligent man I know. His physical disabilities did not deter him from returning to his

Donna & David 15 months AT (After Trauma) April 2006

Donna & David 15 months AT (After Trauma)
April 2006

laboratory at Columbia University a year later to oversee his and his students’ research, to write scientific papers, to become the editor of a book of research articles from scientists from around the world, and to be awarded a grant for his research.

Our journey is not over.

I’ve written David’s story, “Prisoners Without Bars: A Caregiver’s Story,” to share our journey with you, my readers. It is a story of tears and angst, of stress and confusion. The story will make you cry. It will make you laugh. It will make you wonder in disbelief just how this man is able to accomplish so much with so little. The story chronicles David’s strength and persistence, his tenacity to build a new life, and to get better against all odds. David’s story is a story of hope and inspiration.

It is also my story. As David’s wife and best friend and as his primary caregiver, I stand on the front line advocating for him every step of the way and cheerlead his every accomplishment. It’s a story that will take you with us on our journey of TBI.

I wrote the book between my caregiving duties of David, my teaching first and third graders, and when I was not sleeping. It is currently being sent to literary agents, and I hope that it will be published soon, so you can read the inside story of how David fought and is conquering Traumatic Brain Injury one unbalanced step at a time.anim0014-1_e0-1

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the lower right corner of your screen.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

Permission granted to “Reblog” my post.

(Clip Art compliments of Bing.)

(Photos compliments of ME.)

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