Invisible Brain Injury comes with a whole set of problems. Because the survivor looks “normal,” their friends, family, and strangers often think they are faking their problems––neuro fatigue, memory loss, lack of organization, and other cognitive deficits.
My husband, David’s, brain injury is obviously visible, so he doesn’t run into issues where people doubt his injury. But for those survivors whose injury is “all in their brain” and not easily seen or realized by the general public or family and friends, major problems may arise. Folks too often believe that a brain injury should be healed in weeks or months, just like a broken bone. But the fact is that brain injury takes a lifetime of recovery.
Drew Niemann – Caregiver – Host of A Battle Within
Drew Niemann
2. Where do you live? (city and/or state and/or country) Email? (optional)
Lancaster, Pennsylvania, USA
3. What is the brain-injury survivor’s relationship to you?
My wife, Terry
-How old was the survivor when he/she had the brain injury?
(No answer)
-What caused your survivor’s brain injury?
Terry had a bicycle accident and two falls, which resulted in three concussions within three years. The second impact syndrome certainly played a role. (Second impact syndrome happens when the brain swells rapidly shortly after a person suffers a second concussion before symptoms from an earlier concussion have subsided.)
4. On what date did you begin care for your brain-injury survivor?
On and off – beginning in September 2014
-Were you the main caregiver?
Terry Niemann – Survivor of Brain Injury & Drew Niemann – Hosts of A Battle Within
Yes
-Are you now?
I’m more of a “support” person now.
-How old were you when you began care?
49
5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?
No
6. Were you employed at the time of your survivor’s brain injury?
Yes
-If so, were you able to continue working?
Yes
7. Did you have any help?
Yes
–If so, what kind and for how long?
On and off for days and weeks
8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?
Immediately
9. Was your survivor in a coma? If so, what did you do during that time?
No
A Battle Within – Podcast
10. Did your survivor have rehab?
Yes
-If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)?
Terry had physical, occupational, speech, vestibular, and vision therapies – all as an outpatient.
-How long was the rehab?
The duration of therapy depended on the particular injury being treated.
-Where were you when your survivor was getting therapy?
(No answer)
11. What problems or disabilities of your brain-injury survivor required your care, if any?
Day to day living; assistance in accommodating and with medical appointments
12. How has your life changed since you became a caregiver? Is it better? Is it worse?
Some days are better; some days, worse.
13. What do you miss the most from pre-brain-injury life?
I miss outdoor and physical activities.
14. What do you enjoy most in post-brain-injury life?
I have a clearer understanding of what is important in life.
15. What do you like least about brain injury?
I dislike what the brain injury has taken from Terry and the pain it has caused her and continues to cause her.
16. Has anything helped you to accept your survivor’s brain injury?
Time
17. Has your survivor’s injury affected your home life and relationships and, if so, how?
Yes. Roles changed in the household. Terry’s no longer able to work as a teacher, so it has affected us financially as well.
18. Has your social life been altered or changed and, if so, how?
Yes. We cannot do the things we once did or do them to same level. We need to choose differently now.
19. What are your plans? What do you expect/hope to be doing ten years from now?
(No answer)
20. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add?
Be patient. Learn as much as you can. Take time for yourself. Be sure to allow your loved one to do what he or she capable of. If you can and if it is possible, allow for his or her independence.
A traumatic brain injury survivor who has a physical disability deals with a problem that is obvious, but many survivors have brain injuries that are “invisible.” The problem with invisible TBIs is that the brain injuries are not obvious, yet they can cause serious difficulties for the survivors. Life may seem chaotic to a survivor with an invisible brain injury, but those in the “outside world” may think that nothing is wrong. As a result, some survivors face expectations that don’t reflect their reality. This disconnection is generally caused by the public’s lack of understanding about the myriad effects of brain injuries. Here is a site devoted to explaining the possible effects of “invisible” TBIs and what survivors can do to diminish them.
Raising Awareness of Traumatic Brain Injury - one view at a time. Thanks for visiting my blog
Surviving Traumatic Brain Injury 
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