TBI – Survivors, Caregivers, Family, and Friends

TBI Resources: Facts and Advice


“When caregivers care so much that they neglect themselves, it can create a downward spiral of self-destruction known as Compassion Fatigue,” which can result in “feeling immune to the suffering of others,” “feeling hopeless,” “insomnia,” “excessive blaming,” “bottled up emotions,” “isolation,” “addiction,” “neglecting yourself,” “financial problems,” “chronic physical ailments,” “apathy,” “preoccupation…with your loved one’s health and well-being,” or “violent thoughts.”…”Unidentified compassion fatigue causes a decline in health for caregivers and diminished care for their loved ones.”

13 signs of compassion fatigue (lift)

“Currently, almost a third of strokes occur in people under the age of 65, and this figure is set to rise.”

‘My arm went numb and I had a headache – but I never dreamed it was a STROKE’: Healthy woman, 20, is left paralysed down one side (Mail Online)

“One reason behind this jump in brainpower may lie in how much of the human metabolism is devoted to the human brain — it consumes a whopping 20 percent of the body’s total energy.”

Brain Evolution Study Shows Humans Sacrificed Brawn For High Intelligence (The Huffington Post)

“Some 20-60% of people with a TBI experience depression soon after the injury or even years later.”

Why Is Depression the Number One Symptom After a Brain Injury? (brainline.org)

“Studies show that more than 50 percent of people suffer from chronic pain disorders in the years following a brain injury.”

Why Does Everything Hurt So Much After Brain Injury? (brainline.org)th-1

“Dealing with ambiguous loss (i.e., a TBI survivor who has changed) means:

  • Recognizing and accepting your own feelings; mourn whenever you feel the need;
  • Finding a safe and supportive connection to a therapist, counselor or church;
  • Getting to know the survivor as the person he or she is now;
  • Utilizing healthy coping skills of having fun and using humor whenever possible;
  • Finding hope and exploring new treatment options;
  • Accepting what you’ve lost, but refusing to give-up on recovery!”

More than One Victim: Recovering from a Loved One’s Traumatic Brain Injury (CoSozo)

“When communicating with a person who has a brain injury, it’s important to listen, listen, listen. It’s important to be positive and encouraging in your statements, to be empathetic and at times to use humor in a positive and supportive manner.”

Making a Difference #8: Communication (brainline.org)

“No one can know for certain what our potential is.”

Lost & Found: What Brain Injury Survivors Want You to Know (brainline.org)


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