TBI – Survivors, Caregivers, Family, and Friends

Archive for March, 2014

Brain Injury Resources . . . . . . . . . . The Crash Reel – Kevin Pearce

th-8

 

 

The Crash Reel” is a gripping 4+ star movie about Kevin Pearce, a champion snowboarder who was expected to win a gold medal in the 2010 Winter Olympics.

Kevin Pearce - after TBI

Kevin Pearce – after TBI

Then his dream was interrupted by a Traumatic Brain Injury (TBI.)

There is amazing footage of Kevin before and after his crash.  The incredible love and concern of his family is readily apparent.  Kevin’s dream is different now, and he has found a useful and fulfilling life.

The movie/documentary will give you an inside look at one young man’s battle with TBI. I highly recommend the movie.

 

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TBI Tales: Missing Pre-TBI Life

My optimistic, forward-looking husband, who suffered a TBI over 9 years ago, was nevertheless moved by the Beatles’ song YESTERDAY. th-7 He changed a few words to make it more relevant to TBI survivors.  What’s obvious is that David, despite living productively with TBI, still misses his pre-TBI life.

 

 

 

“Yesterday” (for TBI Survivors)
Yesterday, all my troubles seemed so far awayth-6
Now it looks as though they’re here to stay
Oh, I REMEMBER yesterday

Suddenly, I’m not half the man I used to be
There’s a shadow hanging over me.
Oh, yesterday came suddenly

Why LIFE had to CHANGE I don’t know I COULDN’T say
I DID NOTHING wrong, now I LOST MY yesterday

Yesterday, LIFE was such an easy game to play
Now I need a place to BE AGAIN
Oh, I REMEMBER yesterday

Why LIFE had to CHANGE I don’t know I COULDN’T say
I DID NOTHING wrong, now I LOST MY yesterday

Yesterday, LIFE was such an easy game to play
Now I need a place to BE AGAIN
Oh, I REMEMBER yesterday
Mm mm mm mm mm mm mm

And now the original version of the song “Yesterday” by the Beatles.

“Yesterday”

Yesterday, all my troubles seemed so far away
Now it looks as though they’re here to stay
Oh, I believe in yesterdayth-5

Suddenly, I’m not half the man I used to be
There’s a shadow hanging over me.
Oh, yesterday came suddenly

Why she had to go I don’t know she wouldn’t say
I said something wrong, now I long for yesterday

Yesterday, love was such an easy game to play
Now I need a place to hide away
Oh, I believe in yesterday

Why she had to go I don’t know she wouldn’t say
I said something wrong, now I long for yesterday

Yesterday, love was such an easy game to play
Now I need a place to hide away
Oh, I believe in yesterday
Mm mm mm mm mm mm mm

QUESTION: What do you miss most about your TBI life?

As I say after each post:anim0014-1_e0-1

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the lower right corner of your screen.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my blog.

Permission granted to “Reblog” my post.

(Clip Art compliments of Bing.)

 

Traumatic Brain Injury – TBI – PRISONERS WITHOUT BARS

tbi-touched-life-th-5As a writer for children, I never intended to write a book for adult readers – other than those adults who read picture books to their children as the stars fill the night sky. But, circumstances changed in an instant when my husband, David, suffered a Traumatic Brain Injury in 2005. I didn’t know what a “TBI” was. I had never heard or seen those letters together before. But, they would soon become a permanent thought in my head.

As David stumbled into our bedroom, his hand covering his right eye, I knew something was drastically wrong. As his pain intensified and the paramedics transported him to the emergency room, I didn’t know how seriously our lives were about to change. The man, my lover, and my best friend, disappeared.

After three brain surgeries, a new man emerged. He looked different. He sounded different. He was severely disabled. He couldn’t speak beyond guttural sounds. He couldn’t walk, dress, brush his teeth, feed himself, or take care of personal hygiene without assistance. At first it seemed that he didn’t even know me, which nearly broke my heart.

david-running-in-hall

David trying out his new running outfit just three weeks before his TBI. December 2004

David’s TBI has caused us to travel many long and bumpy roads. We still do nine years post-TBI, but it is a journey we take together. I met David when I was 16 years old. I knew in an instant that he would be my life-partner – for better or for worse. We’ve had the better. We’ve had the worse. We are striving for the better once again.

Though I lost the “boy/man” I fell in love with, I have fallen in love all over again with this new version of David. Though he may look and act differently, he is still the most caring, gentle, intelligent man I know. His physical disabilities did not deter him from returning to his

Donna & David 15 months AT (After Trauma) April 2006

Donna & David 15 months AT (After Trauma)
April 2006

laboratory at Columbia University a year later to oversee his and his students’ research, to write scientific papers, to become the editor of a book of research articles from scientists from around the world, and to be awarded a grant for his research.

Our journey is not over.

I’ve written David’s story, “Prisoners Without Bars: A Caregiver’s Story,” to share our journey with you, my readers. It is a story of tears and angst, of stress and confusion. The story will make you cry. It will make you laugh. It will make you wonder in disbelief just how this man is able to accomplish so much with so little. The story chronicles David’s strength and persistence, his tenacity to build a new life, and to get better against all odds. David’s story is a story of hope and inspiration.

It is also my story. As David’s wife and best friend and as his primary caregiver, I stand on the front line advocating for him every step of the way and cheerlead his every accomplishment. It’s a story that will take you with us on our journey of TBI.

I wrote the book between my caregiving duties of David, my teaching first and third graders, and when I was not sleeping. It is currently being sent to literary agents, and I hope that it will be published soon, so you can read the inside story of how David fought and is conquering Traumatic Brain Injury one unbalanced step at a time.anim0014-1_e0-1

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the lower right corner of your screen.

If you like my blog, share it with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it with your enemies. I don’t care!

Feel free to “Like” my post.

Permission granted to “Reblog” my post.

(Clip Art compliments of Bing.)

(Photos compliments of ME.)

Tag Cloud

Montclair Write Group

Writing Support Group

Brain Injury Support Group of Duluth-Extension

Brain Injury Information and SUPPORT

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Maybe Crazy Help

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Karen DeBonis

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Surviving TBI

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BQB Publishing

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Jumbledbrain

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