TBI – Survivors, Caregivers, Family, and Friends

Posts tagged ‘Donna O’Donnell Figurski’

COVID-19: The President’s Infection (Part 4 of 4)

COVID-19: The President’s Infection (Part 4 of 4)

by

Columbia University Professor Emeritus, Dr. David Figurski

presented by

Donna O’Donnell Figurski

(Disclaimer: The World Health Organization <WHO> has officially named the new coronavirus as SARS-CoV-2 and the disease it causes as COVID-19. Because the majority of people, including much of the press, commonly refer to the virus as “COVID-19,” to avoid confusion I use COVID-19 as the name of the virus in this post.)

David H. Figurski, Ph.D & Survivor of Brain Injury

The President returned to the White House Monday evening. Was that too soon? Was the President at risk? Was he contagious?

The President’s doctors at Walter Reed were comfortable with his leaving the hospital because the White House has its own doctors and medical facility. Remdesivir is given IV for five days. Putting in an IV line would not be a problem at the White House. If the President needed supplemental oxygen, a chest X-ray, antibiotics, etc., they are readily available. The doctors at the White House can also do the daily blood tests needed to monitor the state of the President’s immune system and his propensity for clotting. Dexamethasone is usually prescribed for ten days, but an oral form is available.

Two important questions loomed. Is the President immune? And, is the President contagious?

The conferral of immunity by COVID-19 infection is a major question yet to be answered. If there is protective immunity and, if so, how long it lasts are major concerns of vaccine producers. There are now reports of people being infected with COVID-19 a second time. Immunity may depend on the severity of the initial infection and the robustness of the consequent immune response. There has been a report of mild or asymptomatic infections that do not elicit an antibody response. Are these people more vulnerable to a second infection? Alternatively, was their response so effective without antibodies that the virus could not become established and cause symptoms?

Is the President contagious? We can’t say without knowing his test results. Dr. Griffin considers a patient virus-free if that person has two negative tests on two consecutive days. Otherwise, a person is considered to be potentially contagious for 20 days. Since the doctors are permitting the President to hold rallies, I assume he is not thought to be contagious.

Dr. Griffin’s extensive experience with COVID-19 patients has allowed us to surmise what was happening with the President’s infection. The President appears to have completely recovered from his COVID-19 infection. But, several questions remain.

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Prisoners without Bars: A Caregiver’s Tale

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COVID-19: The President’s Infection (Part 2 of 4)

COVID-19: The President’s Infection (Part 2 of 4)

by

Columbia University Professor Emeritus, Dr. David Figurski

presented by

Donna O’Donnell Figurski

(Disclaimer: The World Health Organization <WHO> has officially named the new coronavirus as SARS-CoV-2 and the disease it causes as COVID-19. Because the majority of people, including much of the press, commonly refer to the virus as “COVID-19,” to avoid confusion I use COVID-19 as the name of the virus in this post.)

David H. Figurski, Ph.D & Survivor of Brain Injury

Dr. Griffin labels Week 1 of the infection as the “viral phase.” During Week 1, the virus is multiplying and is present in abundance. A test for COVID-19 would easily be positive. Because the President first felt symptoms on Wednesday, it’s likely that the President was infected for several days before the positive result on Friday, October 2.

Other data suggest that the President was at the end of Week 1 of the infection or at the beginning Week 2.

Week 2 of the infection is called the “cytokine storm phase” by Dr. Griffin.Cytokine Cytokines are molecules released by some cells that cause an action by other cells. When certain immune system cells sense a problem (like a virus-infected cell), they release cytokines to get other immune cells to multiply, to make attack molecules, or to come and help eliminate the cause of the problem. Normally, the immune system works well, but sometimes the immune system overreacts and causes severe problems or even death. “Cytokine storm” refers to an overreaction by the immune system. A steroid (for example, dexamethasone, which the President was given) is effective because it will dampen the immune response, a potentially beneficial effect when the immune system is overreacting. But, dexamethasone is considered harmful if the drug is not needed. (For example, dexamethasone is not given in Week 1 <the viral phase> because a normally functioning immune system is needed to reduce the amount of virus in the body.)

The President began taking dexamethasone while he was at Walter Reed. Dr. Griffin said that dexamethasone is not usually given in Week 1 because studies have shown that doing so can make COVID-19-disease outcomes worse. National Institutes of Health guidelines for physicians state that dexamethasone should only be given to patients with moderately severe or serious COVID-19 disease. The White House acknowledged that the President received oxygen before he was taken to Walter Reed. Supplemental oxygen is consistent with the President’s being given dexamethasone. Dr. Griffin said that oxygen, if needed, is usually given in Week 2, further indicating that the President’s infection may have started several days before Friday. October 2nd.

Doctors have found that COVID-19 has a third phase – a “clotting phase,” which starts at the end of Week 2 and extends at least through Week 3. COVID-19 infection can trigger clots, which can sometimes (albeit rarely) lead to strokes. Aspirin is routinely given at the end of Week 2 because it helps prevent clotting. Some patients had already been discharged from the hospital (having had two negative COVID-19 tests over two consecutive days and having agreed to self-quarantine for 14 days as a precaution) when a problem-clot occurred.

(To Be Continued)

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post: Please leave a comment by clicking the blue words “Leave a Comment” below this post.

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Please check out my book.

Prisoners without Bars: A Caregiver’s Tale

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COVID-19: The President’s Infection (Part 1 of 4)

COVID-19: The President’s Infection (Part 1 of 4)

by

Columbia University Professor Emeritus, Dr. David Figurski

presented by

Donna O’Donnell Figurski

(Disclaimer: The World Health Organization <WHO> has officially named the new coronavirus as SARS-CoV-2 and the disease it causes as COVID-19. Because the majority of people, including much of the press, commonly refer to the virus as “COVID-19,” to avoid confusion I use COVID-19 as the name of the virus in this post.)

This is an unusually long post, so I’ve divided it into four parts. It is easy to read, even though it’s filled with much information.

David H. Figurski, Ph.D & Survivor of Brain Injury

The complete story of the President’s COVID-19 infection and treatment is not known by the public. Virologist, Dr. Vincent Racaniello, interviewed Dr. Daniel Griffin, a New York City physician who has been treating hospitalized COVID-19 patients since the beginning of the pandemic. Vincent has been releasing podcasts about COVID-19 every couple of days. His TWiV podcast (This Week in Virology) of October 5, 2020, is a special podcast in which he and Dr. Griffin have a conversation about COVID-19 infection and treatments, as they relate to the President’s infection.

Vincent Racaniello is a professor and virologist and my former colleague in the Department of Microbiology & Immunology at Columbia University. His guest, Daniel Griffin, is a physician in the Infectious Disease Department of Columbia. Because Dr. Griffin has both an M.D. and a Ph.D., he is a physician-scientist and so has an additional appointment as Professor of Biochemistry & Molecular Biophysics. Dr. Griffin is also the Chief of the Division of Infectious Disease for ProHEALTH Care Associates. ProHEALTH Care is the largest physician-owned multi-specialty practice in the nation. He is also on the COVID-19 response team for the tri-state area.

Dr. Griffin has applied his clinical and molecular knowledge of COVID-19 to the few details we know about President Trump’s infection. In doing so, we now have a better idea of the President’s case. I urge you to listen to the complete 34-minute TWiV podcast of October 5th. I have defined some terms and explained some concepts that may be unfamiliar to you.

President Trump announced at 1:00 am on Friday, October 2, 2020, that he and the First Lady tested positive for COVID-19. Later that day, the President was admitted to Walter Reed National Military Medical Center. He returned to the White House at 6:30 pm the next Monday. Many of the details of the infection and the President’s condition have remained unknown.

When the President’s COVID-19 infection began is unclear. The President first reported a positive test in the early morning of October 2nd. The President said he is not tested for COVID-19 every day, and the White House will not say when the President’s last negative test occurred. In his Town Hall on October 15th, the President said he didn’t know for sure that he had taken a test before the debate three days before he was admitted.

(To Be Continued)

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

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As I say after each post: Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

Please check out my book.

Prisoners without Bars: A Caregiver’s Tale

SPEAK OUT! . . . . . . . . . . . . . Faces of Brain Injury . . . . . Rico Principe

SPEAK OUT! Faces of Brain Injury

Rico Principe (survivor)

presented by

Donna O’Donnell Figurski

Rico Principe – Brain Injury Survivor

Rico Principe (survivor and advocate)

Don’t let my looks fool you. I have a laundry-list of deficits. Some are obvious, and some become obvious only to those who live with me. The brain aneurysm didn’t kill me, but it killed the “me that I was” and gave my family and my friends the “new me.”

The brain aneurysm turned my world upside down. I wasn’t even aware of brain aneurysms until I had the “worst headache of my life” in 2004. It gave me a 24/7-headache, occasional bouts with depression, aphasia, neurofatigue, forgetfulness, memory loss, PTSD (post-traumatic stress disorder), sleeplessness, and loss of filter.  I also have a short fuse.

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It came unannounced, and I wouldn’t be here if it weren’t for the actions of my wife (Elvie). She was there and called 9-1-1 so I could be taken to the hospital as soon as possible.

I struggle with the “baggage” that comes with being a brain aneurysm survivor, but I chose not to be burdened by it.  Instead, I chose to be an advocate. I help run a Facebook group of brain aneurysm survivors with almost 11,000 members.

This is me. A survivor and an advocate.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

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As I say after each post: Please leave a comment by clicking the blue words “Leave a Comment” below this post.

Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

If you don’t like my blog, “Share” it intact with your enemies. I don’t care!

Feel free to “Like” my post.

Please check out my book.

Prisoners without Bars: A Caregiver’s Tale

SPEAK OUT! Itty-Bitty GIANT Steps

SPEAK OUT! Itty-Bitty GIANT Steps

presented by

Donna O’Donnell Figurski

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Andrea Coffey – Survivor of Brain Injury

Andrea Coffey (survivor) … I cooked for the first time today – just something very simple.

I’m kind of proud of myself.  Frozen pesto pasta! I threw some chicken in it.cartoon_chicken22-1

 

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

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Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

If you like my blog, share it intact with your friends. It’s easy! Click the “Share” buttons below.

Please check out my book, Prisoners without Bars: A Caregiver’s Tale.th

New News: . . . . . . . ZOOM! Coffee with the Authors @ BIAAZ

New News: . . . . . . . . ZOOM! Coffee with the Authors @ BIAAZ

presented by

Donna O’Donnell Figurski

David & Donna Figurski

I’m so excited to be invited by the Brain Injury Alliance of Arizona (BIAAZ), to share my book with you. PRISONERS WITHOUT BARS: A CAREGIVER’S TALE has been called a compelling read, a true-to-life drama, and a heart-warming and inspiring love story. What do YOU call it?

More than fifteen years after my husband, David’s traumatic brain injury in January 2005, we are still searching for the light at the end of the tunnel. It’s there. It’s just still so tiny.

I hope you will join me on Saturday, October 24th at 10:30a Pacific Time for a virtual book club meeting on ZOOM.

It’s FREE! It’s FREE! It’s FREE! It’s FREE!

Please come hear me talk about my book and read a short excerpt.
Bring your QUESTIONS.

REGISTER HERE and you will receive a link to attend.

Can’t wait to see you there.

I’d love to hear what you think of PRISONERS WITHOUT BARS: A CAREGIVER’S TALE. Reviews on Amazon, Barnes and Noble, and Goodreads are really appreciated. Reviews keep books alive.

(Clip Art compliments of Bing.)

(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

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Feel free to follow my blog. Click on “Follow” on the upper right sidebar.

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Caregivers SPEAK OUT: . . . Author, Abby Maslin

Caregivers SPEAK OUT: Author, Abby Maslin

presented by

Donna O’Donnell Figurski – author

Prisoners without Bars: A Caregiver’s Tale

 

Caregiver, Abby Maslin – author of “Love You Hard”

 

 

1. What is your name? (last name optional)

Abby Maslin

2. Where do you live? (city and/or state and/or country) Email? (optional)

Washington, DC, USA

3. What is the brain-injury survivor’s relationship to you? How old was the survivor when he/she had the brain injury? What caused your survivor’s brain injury?

My husband, TC, is the TBI (traumatic brain injury) survivor. He was 29 at the time of the assault that caused his injury.

4. On what date did you begin care for your brain-injury survivor? Were you the main caregiver? Are you now? How old were you when you began care?

I became my husband’s full-time caregiver on August 18, 2012. I had just celebrated my 30th birthday.

5. Were you caring for anyone else at that time (e.g., children, parents, etc.)?

I had a 21-month-old son, named Jack, whom I was also caring for at the time.

6. Were you employed at the time of your survivor’s brain injury? If so, were you able to continue working?

I was employed as a fourth-grade teacher. TC’s injury occurred the weekend before school started. I was not able to return to work for a year.

7. Did you have any help? If so, what kind and for how long?

We had family members who lived nearby and who offered intermittent help. My parents were both ill, however, and unable to help in any large capacity.

8. When did your support of the survivor begin (e.g., immediately – in the hospital; when the survivor returned home; etc.)?

Immediately. It began as I was tasked with advocating for TC’s medical care.

9. Was your survivor in a coma? If so, what did you do during that time?

Yes. TC was in a deep coma for about four days, but he took more than two weeks to fully come out of it.

10. Did your survivor have rehab? If so, what kind of rehab (i.e., inpatient and/or outpatient and occupational, physical, speech, and/or other)? How long was the rehab? Where were you when your survivor was getting therapy?

Yes. TC received all the therapies: speech, occupational, and physical. He received occupational and physical therapies for about one year. He received speech for more than two years.

Love You Hard by Abby Maslin

11. What problems or disabilities of your brain-injury survivor required your care, if any?

TC had severe aphasia (struggles with both expressive and receptive language). He had physical weakness on one side of his body and needed to relearn how to walk. He continues to have limited use of his right hand.

12. How has your life changed since you became a caregiver? Is it better? Is it worse?

It’s really impossible to compare. My life since becoming a caregiver is far more complex and difficult. It’s required a lot of emotional growth and healing to let go of the life I had and the relationship I once shared with my spouse. This new life, however, is far richer in purpose and gratitude than it was before. I have a clearer sense of who I am, what I’m capable of, and how I want to spend my time on earth.

13. What do you miss the most from pre-brain-injury life?

I miss the sense of safety I once felt. I miss the easy conversation my husband and I once shared. (His aphasia makes communication much more effortful.)

14. What do you enjoy most in post-brain-injury life?

I enjoy the sense of gratitude I live with daily. I can identify and reflect on my blessings with clarity. It’s a wonderful thing to appreciate life as it’s happening.

15. What do you like least about brain injury?

The unpredictability. As a caregiver, I find that it’s difficult to align one’s expectations to the recovery of a loved one, as everything is always in flux and changing.

16. Has anything helped you to accept your survivor’s brain injury?

What’s helped me is the recognition that suffering is universal. My family and I were never exempt from life’s challenges and normalizing that experience of hardship has helped me make peace with its existence.

17. Has your survivor’s injury affected your home life and relationships and, if so, how?

Absolutely. While my husband’s personality is mostly unchanged, there are subtle changes that have required us to relearn each other as people. It has shifted the dynamics of responsibility and roles in the household.

18. Has your social life been altered or changed and, if so, how?

Yes, at first. But, we were fortunate to have many friends who stuck out the recovery process with us and with whom we still socialize. We are not as social as before, but we also have two young children these days.

19. What are your plans? What do you expect/hope to be doing ten years from now?

Praying for continued good health. TC has wonderful healthy habits, but we can’t control the aging process. If all goes well, in ten years, we’ll still be working and living at home with a 14-year-old daughter and a 20-year-old son at college!

Caregiver, Abby Maslin – author of “Love You Hard”

20. What advice would you offer other caregivers of brain-injury survivors? Do you have any other comments that you would like to add?

Be forgiving of yourself and your own process of grief. It cannot be rushed. The hand you’ve been dealt is a terribly unfair one, and it is OK to acknowledge the gravity of that fact. Life with brain injury requires persistence, patience, and a lot of hope, but life can be as beautiful and as rich as before.

 

Stay Safe and Healthy!

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(Photos compliments of contributor.)

As I say after each post:

Please leave a comment by clicking the blue words “Leave a Comment” below this post.

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Kid Books – Just for Fun . . . “Clover Kitty Goes to Kittygarten”

Kid Books – Just for Fun
reviewed by
Donna O’Donnell Figurski

 

Clover Kitty Goes to Kittygarten

written by Laura Purdie Salas
illustrated by Hiroe Nakata

My rating 5 of 5 stars

 

I loved this book. Flashing lights, ringing bells, and playful shouts are common occurrences in most elementary classrooms, but they can often be a challenge for children with issues of sensory overload. Find out how Clover Kitty solves her problem and how her new friend, Oliver, helps.

Donna O’Donnell Figurski
author – “Prisoners without Bars: A Caregiver’s Tale”

View all my reviews

Kid Books – Just for Fun – “While We Can’t Hug”

Kid Books – Just for Fun

reviewed by
Donna O’Donnell Figurski


 

“While We Can’t Hug”

written by Eoin McLaughlin
illustrated by Polly Dunbar

My rating 5 of 5 stars

 

While We Can’t Hug” is a sweet book that children will want to hear again and again. Parents, will enjoy reading it over and over, too. I know I would. We all like to hug our family and friends, but what can you do when you can’t hug? Ask Tortoise and Hedgehog.

Donna O’Donnell Figurski
author – Prisoners without Bars: A Caregiver’s Tale

Kid Books – Just for Fun “Little Pea”

Kid Books – Just for Fun
reviewed by
Donna O’Donnell Figurski

 

Little PeaLittle Pea by Amy Krouse Rosenthal
My rating: 5 of 5 stars

“Little Pea” is a simple story with a powerful punch. Kids will love the twist and will want to hear this book again and again.

Donna O’Donnell Figurski
author – Prisoners without Bars: A Caregiver’s Tale

View all my reviews

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